Re: To Kate: SPecialists...

[Guest guest]

I actually am glad I found this group before I started with the

specialists, because now I KNOW enough to ask the right questions,

and not take being brushed off by the doctors. I'm willing at times

to hear, " it's Lupus related " for the things that I experience health-

wise, but I'd like to know what the damage is long term, and whether

there are ways to prevent all of this. I don't want to have to use

the Pred, and have already expressed my concerns to the doctors, who

have been assuring me that there are all sorts of new meds out, and

the reasons for treatment resistance I've had for the last few years

are no longer valid.

right now the thing that bothers me the most isnt the tiredness and

sick feeling, or even the migrains... But I feel absolutely worthless

because I have so much pain typing and writing, and that's what I've

been doing to keep things going for myself emotionally. There is so

much I want to DO but my hands feel like they've been stepped on!

>

> Relax, make your list of complaints (no matter how small) and your

concerns. It will make things go much easier. Wish I had known that

when I first went to my Rhuemy. Took this bunch to teach me. LOL

>

> barb

[Guest guest]

Kate, I can relate to you and the hands problem. Mine are better right now but have been real bad and I type 80% of the time for my job. I have not done any of my cross stitch for some time. I really would like to finish the one I've started. All I can say is that when they find the meds that help your other sore/painful areas the meds may very well help with the hands. When you go to the doctor next time ask about some type of therapy for them. You know, like the soft ball things that you squeeze.

Kate wrote: I actually am glad I found this group before I started with the specialists, because now I KNOW enough to ask the right questions, and not take being brushed off by the doctors. I'm willing at times to hear, "it's Lupus related" for the things that I experience health-wise, but I'd like to know what the damage is long term, and whether there are ways to prevent all of this. I don't want to have to use the Pred, and have already expressed my concerns to the doctors, who have been assuring me that there are all sorts of new meds out, and the reasons for treatment resistance I've had for the last few years are no longer valid. right now the thing that bothers me the most isnt the tiredness and sick feeling, or even the migrains... But I feel absolutely worthless because I have so much pain typing and writing, and that's what I've

been doing to keep things going for myself emotionally. There is so much I want to DO but my hands feel like they've been stepped on!> > Relax, make your list of complaints (no matter how small) and your concerns. It will make things go much easier. Wish I had known that when I first went to my Rhuemy. Took this bunch to teach me. LOL> > barb"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies