Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 Hey Mojo How are ya? I am still dealing with this mess but I am moving along. Some nights I sleep and still have nights that I dont. He gave me some sleeping pills and if I take 2 or 3 of them I can actually sleep. Then the next day I am groggy. and it takes a while for my head to catch up with my ass. I feel like I am walking around in a daze for the most part. I just dont like this whole thing but what can you do just go on and do the next right thing. The thing I have found is having a good support system. I have my family and 3 of the greatest friends ever. I dont know what I would have done without them. and now I have this group that is just great !!! My sleeping pills are starting to work I will write moe later. Take care of youself and Love Lorra"Mojo (Joanna)" wrote: Lorra, been there, done that. Wish I had a good suggestion for you. Mydealing with it wasn't the best. I would physically exhaust myself, my hubbyworried I would wipe myself out, but I just couldn't stop. My whole housewas redone, and I wouldn't accept any help from anyone. That's not a goodthing to do though. I wasn't good, and I was just getting myself moreexhausted and crazier. It was the only way to get some sleep at night time. Hope you get better suggestions. Whatever works let me know, I never knowwhen I'll be on high prednisone again. Mojo Input > Hi everyone!!! It's Lorra again. I have had SLE for 12 yrs now and > after the first 3 to 4 yrs my lupus was for the most part calm. Now > it's decided to pay me a nasty visit. I was on 60mg of pred. for a > long time and finally finally came off and havent had the need for > it till now. First it was 5mg then 10mg the 7 /12 then 10 and 20mg > and now today its 40mg. Plus He doubled my bp meds and my zoloft too > 200 a day and stronger pain meds. It has just thrown me for a loop > LOL. So I had a hissy fit on the way home and on the way to work and > at work for a while. So now i am getting used to the idea. I dont > like it but gettting used to it. LOL I have gone through menapause > and I am having hot flashs, not sleeping, short of breath, swelling, > and frickin moody. Any suggestions on how too get me through this > mess???? HELP!!!!!!!!!!!!!! I go back to the doc on the 17th too > see if any of this is working. Anyway talk to ya soon. > > Love Lorra Lupie > > > > "The LUPIES Store" Come check out our store... > http://www.cafepress.com/thelupies > > "The LUPIES Web Page" > http://www.itzarion.com/lupusgroup.html > > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 Hey Mojo How are ya? I am still dealing with this mess but I am moving along. Some nights I sleep and still have nights that I dont. He gave me some sleeping pills and if I take 2 or 3 of them I can actually sleep. Then the next day I am groggy. and it takes a while for my head to catch up with my ass. I feel like I am walking around in a daze for the most part. I just dont like this whole thing but what can you do just go on and do the next right thing. The thing I have found is having a good support system. I have my family and 3 of the greatest friends ever. I dont know what I would have done without them. and now I have this group that is just great !!! My sleeping pills are starting to work I will write moe later. Take care of youself and Love Lorra"Mojo (Joanna)" wrote: Lorra, been there, done that. Wish I had a good suggestion for you. Mydealing with it wasn't the best. I would physically exhaust myself, my hubbyworried I would wipe myself out, but I just couldn't stop. My whole housewas redone, and I wouldn't accept any help from anyone. That's not a goodthing to do though. I wasn't good, and I was just getting myself moreexhausted and crazier. It was the only way to get some sleep at night time. Hope you get better suggestions. Whatever works let me know, I never knowwhen I'll be on high prednisone again. Mojo Input > Hi everyone!!! It's Lorra again. I have had SLE for 12 yrs now and > after the first 3 to 4 yrs my lupus was for the most part calm. Now > it's decided to pay me a nasty visit. I was on 60mg of pred. for a > long time and finally finally came off and havent had the need for > it till now. First it was 5mg then 10mg the 7 /12 then 10 and 20mg > and now today its 40mg. Plus He doubled my bp meds and my zoloft too > 200 a day and stronger pain meds. It has just thrown me for a loop > LOL. So I had a hissy fit on the way home and on the way to work and > at work for a while. So now i am getting used to the idea. I dont > like it but gettting used to it. LOL I have gone through menapause > and I am having hot flashs, not sleeping, short of breath, swelling, > and frickin moody. Any suggestions on how too get me through this > mess???? HELP!!!!!!!!!!!!!! I go back to the doc on the 17th too > see if any of this is working. Anyway talk to ya soon. > > Love Lorra Lupie > > > > "The LUPIES Store" Come check out our store... > http://www.cafepress.com/thelupies > > "The LUPIES Web Page" > http://www.itzarion.com/lupusgroup.html > > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 Hey Mojo How are ya? I am still dealing with this mess but I am moving along. Some nights I sleep and still have nights that I dont. He gave me some sleeping pills and if I take 2 or 3 of them I can actually sleep. Then the next day I am groggy. and it takes a while for my head to catch up with my ass. I feel like I am walking around in a daze for the most part. I just dont like this whole thing but what can you do just go on and do the next right thing. The thing I have found is having a good support system. I have my family and 3 of the greatest friends ever. I dont know what I would have done without them. and now I have this group that is just great !!! My sleeping pills are starting to work I will write moe later. Take care of youself and Love Lorra"Mojo (Joanna)" wrote: Lorra, been there, done that. Wish I had a good suggestion for you. Mydealing with it wasn't the best. I would physically exhaust myself, my hubbyworried I would wipe myself out, but I just couldn't stop. My whole housewas redone, and I wouldn't accept any help from anyone. That's not a goodthing to do though. I wasn't good, and I was just getting myself moreexhausted and crazier. It was the only way to get some sleep at night time. Hope you get better suggestions. Whatever works let me know, I never knowwhen I'll be on high prednisone again. Mojo Input > Hi everyone!!! It's Lorra again. I have had SLE for 12 yrs now and > after the first 3 to 4 yrs my lupus was for the most part calm. Now > it's decided to pay me a nasty visit. I was on 60mg of pred. for a > long time and finally finally came off and havent had the need for > it till now. First it was 5mg then 10mg the 7 /12 then 10 and 20mg > and now today its 40mg. Plus He doubled my bp meds and my zoloft too > 200 a day and stronger pain meds. It has just thrown me for a loop > LOL. So I had a hissy fit on the way home and on the way to work and > at work for a while. So now i am getting used to the idea. I dont > like it but gettting used to it. LOL I have gone through menapause > and I am having hot flashs, not sleeping, short of breath, swelling, > and frickin moody. Any suggestions on how too get me through this > mess???? HELP!!!!!!!!!!!!!! I go back to the doc on the 17th too > see if any of this is working. Anyway talk to ya soon. > > Love Lorra Lupie > > > > "The LUPIES Store" Come check out our store... > http://www.cafepress.com/thelupies > > "The LUPIES Web Page" > http://www.itzarion.com/lupusgroup.html > > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Lol, that's for sure Mojo, my husband makes many a stop for me to the 24 hour one when I forget. a C Time is also flying for me and I constantly forget my refills, but thankfully I have Walgreen's on my husbands way home. I call it in and he picks it up. Mojo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Yep, 's wisdom could be seen in all of her messages. It is so nice of you to have gone and read over the messages to see what kind of a person was. She was and still is my inspiration. I hope that when I start having as many problems with my health as she did, that I'll be able to follow her example and be as good a person as she was. Mojo To Mojo > Hi Mojo, > > I hope you don't mind but I noticed what you said about missing > . I never knew since I joined the group a little over > a month after she died. However, I had heard so much about her and > what a wonderful person she was I decided I wanted to get to know > her a little. I went back through a bunch of the old messages and > read her posts and then read the ones from the last month of her > life. I feel now that I have a little better understanding of who > she was. I wish I could take the pain and missing away for you but > I know I can't. I just want you to know I can see why you and > everyone else thought she was such a wonderful person. She truly > was a giver even right up to the end. I can really see why you miss > her. It's not been long since she passed on and the memory must be > really fresh for you. I hope you will take the time to allow > yourself to heal. Thinking of her and missing her is really a > wonderful but painful thing as it shows how much she was loved. I'm > grateful she took the time to start this group so I could meet great > people like you and all the others. Thanks for all your support! > I'm sure is smiling down from her pain free place of > beautiful flowers and wonderful lake and feeling grateful to all of > you for carrying on her work! Hugs of comfort to you Mojo! Carol > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Yep, 's wisdom could be seen in all of her messages. It is so nice of you to have gone and read over the messages to see what kind of a person was. She was and still is my inspiration. I hope that when I start having as many problems with my health as she did, that I'll be able to follow her example and be as good a person as she was. Mojo To Mojo > Hi Mojo, > > I hope you don't mind but I noticed what you said about missing > . I never knew since I joined the group a little over > a month after she died. However, I had heard so much about her and > what a wonderful person she was I decided I wanted to get to know > her a little. I went back through a bunch of the old messages and > read her posts and then read the ones from the last month of her > life. I feel now that I have a little better understanding of who > she was. I wish I could take the pain and missing away for you but > I know I can't. I just want you to know I can see why you and > everyone else thought she was such a wonderful person. She truly > was a giver even right up to the end. I can really see why you miss > her. It's not been long since she passed on and the memory must be > really fresh for you. I hope you will take the time to allow > yourself to heal. Thinking of her and missing her is really a > wonderful but painful thing as it shows how much she was loved. I'm > grateful she took the time to start this group so I could meet great > people like you and all the others. Thanks for all your support! > I'm sure is smiling down from her pain free place of > beautiful flowers and wonderful lake and feeling grateful to all of > you for carrying on her work! Hugs of comfort to you Mojo! Carol > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Thanks again for the kind words. About your summer....remember the kids are old enough to help you a lot. When I was three it was my responsibility to pick everything up off the floor so my older brother could vacuum. It's good for them to help you keep house so they learn how to keep their own when they are grown. You don't have to do it all on your own. After they swim all morning, they can help you for an hour. Don't overdo it trying to be the perfect mother, spouse, woman...etc. Take care, > Well, hope it keeps getting better . > > Mojo > > Coming out of it > > > > I think I'm finally starting to come out of my little flare. I > > finally broke down and called the Rheumy late Tuesday after I had to > > stay home from work again. He told me to do a steroid " wave " which I > > started yesterday. So, back up to 16mg for a week, then 12MG, etc. > > Every time I have to do this I start to feel better and basically > > stop sleeping. I just love that...don't you? > > > > Anyway, I'm back at work, and pretending life is normal. > > > > Hope everyone has a wonderful day. > > > > > > > > > > > > > > " The LUPIES Store " Come check out our store... > > http://www.cafepress.com/thelupies > > > > " The LUPIES Web Page " > > http://www.itzarion.com/lupusgroup.html > > > > " The LUPIES online photo albums! " > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 We love .............he's so smart! Becky brian_mosher2002 wrote: Thanks again for the kind words. About your summer....remember the kids are old enough to help you a lot. When I was three it was my responsibility to pick everything up off the floor so my older brother could vacuum. It's good for them to help you keep house so they learn how to keep their own when they are grown. You don't have to do it all on your own. After they swim all morning, they can help you for an hour. Don't overdo it trying to be the perfect mother, spouse, woman...etc. Take care, > Well, hope it keeps getting better . > > Mojo > > Coming out of it > > > > I think I'm finally starting to come out of my little flare. I > > finally broke down and called the Rheumy late Tuesday after I had to > > stay home from work again. He told me to do a steroid "wave" which I > > started yesterday. So, back up to 16mg for a week, then 12MG, etc. > > Every time I have to do this I start to feel better and basically > > stop sleeping. I just love that...don't you? > > > > Anyway, I'm back at work, and pretending life is normal. > > > > Hope everyone has a wonderful day. > > > > > > > > > > > > > > "The LUPIES Store" Come check out our store... > > http://www.cafepress.com/thelupies > > > > "The LUPIES Web Page" > > http://www.itzarion.com/lupusgroup.html > > > > "The LUPIES online photo albums!" > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/lupies > > Quote Link to comment Share on other sites More sharing options...
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