Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Yes , please see a rheumatologist about this. Most have a good awareness of FMS and believe in it. I don't believe FMS lasts for a week or even three months. To my knowledge it's chronic, and I have just changed doctors cause mine said I could grow out of it. Not to scare you, fibro is not life threatening in any way, and flares of it can be managed so being fatigued and in pain are not constant. I don't think doctors rely on FMS as a fallback diagnosis, they will usually eliminate similar illnesses that mimic FMS. Make sure doctors have done that, sounds like your daughter has had a lot of tests, so they probably have dismissed more serious conditions. My bloodwork and CT's are almost always normal, fibro doesn't show up on them. Did your daughter's doctor look for tender points? Seriously, see a rheumatologist and ask beforehand for their knowledge of FMS. They can really help, and reassure you that this can be managed. Good luck with your daughter, it's young to be so sick, but she obviously has a great and caring mom, and we all hope she's gonna be ok! Take care Shandi > Hi, > > My name is and I am looking desperately for some help or guidance. Six weeks ago today my 13 year old daughter came down with a regular flu like virus. After 6 days, I took her to the doctor who said it was influenza. Two weeks later, she still had the headache, body aches, and fatigue, but the fever and sore throat were gone. It has been six weeks since this started, and she is still in bed with headache severe enough to prevent her from sitting up, body aches, and fatigue. She was an active, bright, happy girl until this happened. She competed in gymnastics, and took several dance classes weekly. It is so strange to see her in bed. She can only color or watch TV. Lights and noises bother her; she can't read because of her headache. Life is passing her by. She has seen an infectious disease doctor, and a neurologist. She has had her blood tested for everything, a spinal tap, CAT scan, and MRI. Everything has come back normal. > > Right now she is under the care of a GP, but I am not sure he is the right doctor to treat her. He told me this is FMS, but then again he said he has had other patients who have had fibro for a week. My understanding of the illness is that it lasts 3 months at the very least. Right now she is taking Effexor, an anti depressant, and Zyprexa, a schizophrenia medicine! This is so scary to me, as I have always fed my kids healthy foods and avoided medicines. > > I need your advice. Does this sound like FMS? Should I seek the care of a rheumotolgist instead? Do people just assume it is FMS if they cannot come up with another diagnosis? What else can I do to help my daughter? > > Thanks for any input or advice! > > > ~~~~~~~~~~~~~~ > Breger > lisa@b... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Yes , please see a rheumatologist about this. Most have a good awareness of FMS and believe in it. I don't believe FMS lasts for a week or even three months. To my knowledge it's chronic, and I have just changed doctors cause mine said I could grow out of it. Not to scare you, fibro is not life threatening in any way, and flares of it can be managed so being fatigued and in pain are not constant. I don't think doctors rely on FMS as a fallback diagnosis, they will usually eliminate similar illnesses that mimic FMS. Make sure doctors have done that, sounds like your daughter has had a lot of tests, so they probably have dismissed more serious conditions. My bloodwork and CT's are almost always normal, fibro doesn't show up on them. Did your daughter's doctor look for tender points? Seriously, see a rheumatologist and ask beforehand for their knowledge of FMS. They can really help, and reassure you that this can be managed. Good luck with your daughter, it's young to be so sick, but she obviously has a great and caring mom, and we all hope she's gonna be ok! Take care Shandi > Hi, > > My name is and I am looking desperately for some help or guidance. Six weeks ago today my 13 year old daughter came down with a regular flu like virus. After 6 days, I took her to the doctor who said it was influenza. Two weeks later, she still had the headache, body aches, and fatigue, but the fever and sore throat were gone. It has been six weeks since this started, and she is still in bed with headache severe enough to prevent her from sitting up, body aches, and fatigue. She was an active, bright, happy girl until this happened. She competed in gymnastics, and took several dance classes weekly. It is so strange to see her in bed. She can only color or watch TV. Lights and noises bother her; she can't read because of her headache. Life is passing her by. She has seen an infectious disease doctor, and a neurologist. She has had her blood tested for everything, a spinal tap, CAT scan, and MRI. Everything has come back normal. > > Right now she is under the care of a GP, but I am not sure he is the right doctor to treat her. He told me this is FMS, but then again he said he has had other patients who have had fibro for a week. My understanding of the illness is that it lasts 3 months at the very least. Right now she is taking Effexor, an anti depressant, and Zyprexa, a schizophrenia medicine! This is so scary to me, as I have always fed my kids healthy foods and avoided medicines. > > I need your advice. Does this sound like FMS? Should I seek the care of a rheumotolgist instead? Do people just assume it is FMS if they cannot come up with another diagnosis? What else can I do to help my daughter? > > Thanks for any input or advice! > > > ~~~~~~~~~~~~~~ > Breger > lisa@b... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Yes , please see a rheumatologist about this. Most have a good awareness of FMS and believe in it. I don't believe FMS lasts for a week or even three months. To my knowledge it's chronic, and I have just changed doctors cause mine said I could grow out of it. Not to scare you, fibro is not life threatening in any way, and flares of it can be managed so being fatigued and in pain are not constant. I don't think doctors rely on FMS as a fallback diagnosis, they will usually eliminate similar illnesses that mimic FMS. Make sure doctors have done that, sounds like your daughter has had a lot of tests, so they probably have dismissed more serious conditions. My bloodwork and CT's are almost always normal, fibro doesn't show up on them. Did your daughter's doctor look for tender points? Seriously, see a rheumatologist and ask beforehand for their knowledge of FMS. They can really help, and reassure you that this can be managed. Good luck with your daughter, it's young to be so sick, but she obviously has a great and caring mom, and we all hope she's gonna be ok! Take care Shandi > Hi, > > My name is and I am looking desperately for some help or guidance. Six weeks ago today my 13 year old daughter came down with a regular flu like virus. After 6 days, I took her to the doctor who said it was influenza. Two weeks later, she still had the headache, body aches, and fatigue, but the fever and sore throat were gone. It has been six weeks since this started, and she is still in bed with headache severe enough to prevent her from sitting up, body aches, and fatigue. She was an active, bright, happy girl until this happened. She competed in gymnastics, and took several dance classes weekly. It is so strange to see her in bed. She can only color or watch TV. Lights and noises bother her; she can't read because of her headache. Life is passing her by. She has seen an infectious disease doctor, and a neurologist. She has had her blood tested for everything, a spinal tap, CAT scan, and MRI. Everything has come back normal. > > Right now she is under the care of a GP, but I am not sure he is the right doctor to treat her. He told me this is FMS, but then again he said he has had other patients who have had fibro for a week. My understanding of the illness is that it lasts 3 months at the very least. Right now she is taking Effexor, an anti depressant, and Zyprexa, a schizophrenia medicine! This is so scary to me, as I have always fed my kids healthy foods and avoided medicines. > > I need your advice. Does this sound like FMS? Should I seek the care of a rheumotolgist instead? Do people just assume it is FMS if they cannot come up with another diagnosis? What else can I do to help my daughter? > > Thanks for any input or advice! > > > ~~~~~~~~~~~~~~ > Breger > lisa@b... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 > Hi, > > My name is and I am looking desperately for some help or guidance. Six weeks ago today my 13 year old daughter came down with a regular flu like virus. After 6 days, I took her to the doctor who said it was influenza. Two weeks later, she still had the headache, body aches, and fatigue, but the fever and sore throat were gone. It has been six weeks since this started, and she is still in bed with headache severe enough to prevent her from sitting up, body aches, and fatigue. She was an active, bright, happy girl until this happened. She competed in gymnastics, and took several dance classes weekly. It is so strange to see her in bed. She can only color or watch TV. Lights and noises bother her; she can't read because of her headache. Life is passing her by. She has seen an infectious disease doctor, and a neurologist. She has had her blood tested for everything, a spinal tap, CAT scan, and MRI. Everything has come back normal. > > Right now she is under the care of a GP, but I am not sure he is the right doctor to treat her. He told me this is FMS, but then again he said he has had other patients who have had fibro for a week. My understanding of the illness is that it lasts 3 months at the very least. Right now she is taking Effexor, an anti depressant, and Zyprexa, a schizophrenia medicine! This is so scary to me, as I have always fed my kids healthy foods and avoided medicines. > > I need your advice. Does this sound like FMS? Should I seek the care of a rheumotolgist instead? Do people just assume it is FMS if they cannot come up with another diagnosis? What else can I do to help my daughter? > > Thanks for any input or advice! > > > ~~~~~~~~~~~~~~ > Breger > lisa@b... , Have the doctors tested for any sort of toxin or poisoning? Just curious. It sounds like it could be FMS, but FMS symptoms can be very similar to a lot of other things. Or some them are similar, I should say. I'm sure you'll get a lot of responses to your post here, most of them with a lot more info than what I can provide you. but if you're unhappy with what the doctors are treating your daughter with, than speak up. Did they tell you why your daughter needs this Zyprexa? Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Well, I haven't been to sleep since the " incident " happened to my daughter...she is sleeping with me from now on. I am going to TRY to get some sleep but PLEASE email me with ANY advise on this matter (depression, counseling, law, civil suits, etc.). Like I said I need my Lupie family more then ever because you know having Lupus intensifies EVERYTHING. Blessings, In California AuroraSkyward@... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.