Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hey Missy, First, let me welcome you to our group. My nam,e is Becky and I am one of the moderators..............although I have been out of touch this week as I have been ill. The sores in the nose, really ,really suck and HURT! When mine get to hurting I use a little bit of Carmex on them. I understand the need to function for your family. do you have any down time? I'm not sure how old your children are. I find that when you are flaring rest and no stress (I know impossible with kids) helps ease the syptoms. I hope you feel better soon.......hang in there. *hugs* Becky msw164 wrote: I have had really hard day not feeling very well. I have a sore in my nose that just doesn't want to go away. I just feel awful all over. My family dr. thinks I do not need my rhemu. She thinks she can take on all my care. Last time I seen my rhemu he was talking about chemo. Family dr. up my doses of malaria rx to 600mg aday the rhemu said that was to much. That we could try the chemo or something else. Not sure what to do. I need to function for my kids and husband. I just feel like I can bearly go. Hope everyone is doing good today. Missy "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Becky thanks for the welcome sorry to hear you have been ill. No down time. I have 4 children and they range in age from 16 to 1yr. old. My parents and sisters do not believe that I could have lupus they feel I have been misdiagnosed and I do not look sick only on the flare days. I have explained that I have good days and I have flare days they do not understand. > > > I have had really hard day not feeling very well. I have a sore in > > my nose that just doesn't want to go away. I just feel awful all > > over. My family dr. thinks I do not need my rhemu. She thinks she > > can take on all my care. Last time I seen my rhemu he was talking > > about chemo. Family dr. up my doses of malaria rx to 600mg aday the > > rhemu said that was to much. That we could try the chemo or > > something else. Not sure what to do. I need to function for my kids > > and husband. I just feel like I can bearly go. Hope everyone is > > doing good today. Missy > > > > > > > > > > " The LUPIES Store " Come check out our store... > > http://www.cafepress.com/thelupies > > > > " The LUPIES Web Page " > > http://www.itzarion.com/lupusgroup.html > > > > " The LUPIES online photo albums! " > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/lupies > > > > > > Quote Link to comment Share on other sites More sharing options...
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