Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/5/04 5:07:29 AM Eastern Daylight Time, moondancer@... writes: << ~~Waving~~ >> Back at you girl! Hang in there. Lots of prayers for this morning! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/5/04 5:07:29 AM Eastern Daylight Time, moondancer@... writes: << ~~Waving~~ >> Back at you girl! Hang in there. Lots of prayers for this morning! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/5/04 7:28:03 AM Eastern Daylight Time, sicklizard@... writes: << Marfanoid habitus. >> This is considered to be a diagnostic criteria of EDS, in some........it means you have features that can apper Marfan's like........doesn't mean you have Marfan's though. And usually the height thing is a diagnostic criteria/differential for Marfan's vs EDS. There are always some who do not fit a specific criteria. There are some who have EDS and are very tall, and soem with Marfan's who are not REAL tall, but very, very rare to find a short person with Marfan's. I think what your doctor must have meant is you have Marfanoid Habitus.......I have noticed this particular feature with many with VEDS.....long thin fingers, long arms, and long legs.....I am short but have long extremities. Makes me appear as though I am taller, LOL!!!!! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/5/04 7:28:03 AM Eastern Daylight Time, sicklizard@... writes: << Marfanoid habitus. >> This is considered to be a diagnostic criteria of EDS, in some........it means you have features that can apper Marfan's like........doesn't mean you have Marfan's though. And usually the height thing is a diagnostic criteria/differential for Marfan's vs EDS. There are always some who do not fit a specific criteria. There are some who have EDS and are very tall, and soem with Marfan's who are not REAL tall, but very, very rare to find a short person with Marfan's. I think what your doctor must have meant is you have Marfanoid Habitus.......I have noticed this particular feature with many with VEDS.....long thin fingers, long arms, and long legs.....I am short but have long extremities. Makes me appear as though I am taller, LOL!!!!! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/5/04 7:28:03 AM Eastern Daylight Time, sicklizard@... writes: << Marfanoid habitus. >> This is considered to be a diagnostic criteria of EDS, in some........it means you have features that can apper Marfan's like........doesn't mean you have Marfan's though. And usually the height thing is a diagnostic criteria/differential for Marfan's vs EDS. There are always some who do not fit a specific criteria. There are some who have EDS and are very tall, and soem with Marfan's who are not REAL tall, but very, very rare to find a short person with Marfan's. I think what your doctor must have meant is you have Marfanoid Habitus.......I have noticed this particular feature with many with VEDS.....long thin fingers, long arms, and long legs.....I am short but have long extremities. Makes me appear as though I am taller, LOL!!!!! Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Good luck , TJ. I hope everything goes well today at the hearing. Love, Patti Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Good luck , TJ. I hope everything goes well today at the hearing. Love, Patti Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Good luck , TJ. I hope everything goes well today at the hearing. Love, Patti Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Moon, although it is a major diagnostic characteristic, it doesn't always follow that you have to be very tall to be Marfan. I actually have an EDS and Marfan mutation and I'm only 5ft tall even in my thick heeled ortho shoes! I do have a lot of other marfanoid fetures though, especially the long, thin limbs in proportion to body size which is a main feature with Marfan syndrome and Marfanoid habitus. Hope that helps and good luck today :-) Love and hugs...Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Moon, although it is a major diagnostic characteristic, it doesn't always follow that you have to be very tall to be Marfan. I actually have an EDS and Marfan mutation and I'm only 5ft tall even in my thick heeled ortho shoes! I do have a lot of other marfanoid fetures though, especially the long, thin limbs in proportion to body size which is a main feature with Marfan syndrome and Marfanoid habitus. Hope that helps and good luck today :-) Love and hugs...Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Moon, although it is a major diagnostic characteristic, it doesn't always follow that you have to be very tall to be Marfan. I actually have an EDS and Marfan mutation and I'm only 5ft tall even in my thick heeled ortho shoes! I do have a lot of other marfanoid fetures though, especially the long, thin limbs in proportion to body size which is a main feature with Marfan syndrome and Marfanoid habitus. Hope that helps and good luck today :-) Love and hugs...Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Thanks Patti :-) God Bless And Hugs- Love Moon Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Thanks Patti :-) God Bless And Hugs- Love Moon Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Thank you ! I felt them all the while I was there :-) God Bless And Hugs- Love Moon Re: Sue In a message dated 4/5/04 5:07:29 AM Eastern Daylight Time, moondancer@... writes: << ~~Waving~~ >> Back at you girl! Hang in there. Lots of prayers for this morning! Hugs, Sue To learn more about EDS, visit our website: http://members.rogers.com/ceda2/ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 When does the dr want you to come in? Quote Link to comment Share on other sites More sharing options...
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