Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi sweetie, and welcome to the group. We tend to be a both fun and light-hearted bunch here, We all have our various ailments, and demeaners, but we are just one big tight banded family here. I hope that you will enjoy being here. My name is a, from Northern California, I am 33, and was origionally diagnosed with Lupus 2001 then rediagnosed later. with fibromyalgia, hypothyroidism, and Raynauds syndrome. I am a single mother, or a 3 and 1/2 year old, and go to college full-time. Right now I am on vacation, and am enjoying a little gardening, and playtime with my daughter. I also like to bible study. Welcome, feel free to talk about anything, within they guidlines. We don't have too many but please keep them in consideration. Look forward to getting to know more about you. Love, hugs, and prayers, Golanv Waya wrote: Hi Everyone,My name is Golanv in English it means Raven. I am a 44year old American Indian married to a wonderful guyand have a sweet daughter who is 14. I recently haddoctors say they are pretty sure I have lupus. I havebeen having problems they decribed as a mixedconnective tissue disorder for a few years. I have hadRaynaud's disease for years. I had a foot surgery thatlanded me with Reflex Sympathetic Dysthrophy (orComplex pain Syndrone) in 1991. I am very flustratedwith the deteriation of my health at such a young age.I'm stuggling to keep up a good front for my familybut failing at it. I get irritable and a bear to livewith at times. Recently I broke down and expressed Ineeded help keeping house so my husband is spendingone day on the weekend cleaning and helping me. Mydaughter bless her heart has always been lazy andhates house work. Me being a clean freak and not ableto do it is driving me nuts lol. I'm a registerednurse on disablity and miss being able to help others.From the post I can see many are going through similarproblems. I appreciate you all letting me join thelist and look forward to getting to know everyone.Thanks =)~Golanv"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
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