HAVE LUPUS?

June 11, 2004

I II didn’t want to tell you that you have lupus if the

Dr. said you don’t. If I went into remission I might be inclined to say

I don’t have it NOW (remission).

HeHere is the part that

really floored me: >>

He also said that I don't need to avoid the sun or U.V. rays.....since I don't

have Lupus .....He also said that most Lupus Patients

don't have Photosensitivity anyway ! .....MOUTH GETTING WIDER......He asked me

if I get a rash or flu-like symtoms or fever when I am in the sun......I said I

don't test it .....since I was diagnosed with Lupus ....and was told not to go

in the sun without sunscreen and a hat and long sleeves....that's what I do.

He said he doesn't restrict his Lupus patient from going in the sun unless they

have ......something..... I can't remember what he called it that indicates

photosensitivity

From: Carey

Sent: Tuesday, June 08, 2004 3:20

PM

To: LUPIES

Subject: Re: I DON'T HAVE

LUPUS

Dear Cheryl.

Of course I still have Lupus !!This New Rheumy is just a

negligent, Ignorant Jerk-off ! You and I both know that Lupus doesnt just go

away.....I am in remission.....but the WOLF still lurks......And of course I

will stay with the group......if it wasn't for all the good information.to be

had here....I could have believed this Fool and wound up really sick.

Fibromyalgia, and Sjogren's

Syndrom.......MY MOUTH IS STILL HANGING OPEN!.......

He also said that I

don't need to avoid the sun or U.V. rays.....since I don't have Lupus .....He

also said that most Lupus Patients

don't have Photosensitivity anyway ! .....MOUTH GETTING WIDER......He asked me

if I get a rash or flu-like symtoms or fever when I am in the sun......I said I

don't test it .....since I was diagnosed with Lupus ....and was told not to go

in the sun without sunscreen and a hat and long sleeves....that's what I do.

He said he doesn't

restrict his Lupus patient from going in the sun unless they have

.......something..... I can't remember what he called it that indicates

photosensitivity..........He took my blood pressure....which was 150/70......listened