Update and thanks Lana :-)

[Guest guest]

In a message dated 5/10/04 3:27:20 PM Eastern Daylight Time, EDSLana@...

writes:

<< But what is MRSA and MSSA??? >>

Hi Lana,

MRSA is Methacillin Resistant Staph Aureus (Resistant to almost all

antibiotics except Vancomycin) -- a very serious infection due to the fact that

it is

very difficult to treat and antibiotics need to be given IV.

MSSA is Methacillin Sensitive Staph Aureus (Sensitive to antibiotics) -- an

infection that is much easier to treat.

Hugs,

Sue

[Guest guest]

Lana, glad you liked the Great Truths Darl! :-)

Thank you for your concerns. I'm hanging in there, my temps are

still spiking but I'm feeling a lot less poorly and feverish now

thankfully. I'm so glad that I am responding to the meds as everyone

was terrified I was developing an MRSA. Fortunately it's looking

more like it's been an MSSA, although I am still being monitored

closely for any relapse or flare up.

My biggest concern at present is my actual shoulder though as it

seems to be subluxing. My primary care doc and I are both concerned

that my violent coughing last week may have caused damage to my

internal repairs as I've had a lot of pain, heat and swelling in the

joint since it let off that awful crack the other day. And it's

continued to crack and judder too, where it feels horribly like a

subluxation. I actually woke up in horrible pain with it this

morning and when I shifted slightly it let off another sickening

crack as it seemed to reposition itself...it really does sound like

a joint reduction crack, which is really worrying me.

I am seeing the clinic ortho nurse to get my staples out in the

morning, so my GP wants me to mention the problems to her. we're

hoping she will be able to advise me on whether I need x-rays, MRI's

or ever to see Mac sooner than next Wednesday. I have to admit that

I will feel a whole lot better when I have seen him as I know he

will be honest with me about the whole thing and do whatever he can

to help me. I think a lot of Mac and can honestly say he's the only

medical professional I trust and respect completely...and anyone who

knows the issues I've had with the medical profession with know

exactly how big a statement that is from me!

I'm trying not to be worried or nervous, but as with all best laid

plans I'm failing miserably! I'm just so scared things are going

wrong already. I promise I will let you know how I get on and what,

if anything is happening. Thank you to everyone for your support,

kindness and patience and please know that I am thinking of you

always.

Love and hugs....Jo

xxx

[Guest guest]

I'm so glad that I am responding to the meds as everyone

> was terrified I was developing an MRSA. Fortunately it's looking

> more like it's been an MSSA, although I am still being monitored

> closely for any relapse or flare up.

...................Ok, Jo, I don't expect you to reply soon, because I

do NOT want you wearing that already painful shoulder down even more

than it is! But what is MRSA and MSSA??? DUH! Sorry, I just can't

put the initials to anything.

>

And it's

> continued to crack and judder too, where it feels horribly like a

> subluxation. I actually woke up in horrible pain with it this

> morning and when I shifted slightly it let off another sickening

> crack as it seemed to reposition itself...it really does sound like

> a joint reduction crack, which is really worrying me.

....................OUCH! Darn, Jo, I was really hoping it would be

better by now. Please try not to move it as much as possible, OK?

> I am seeing the clinic ortho nurse to get my staples out in the

> morning, so my GP wants me to mention the problems to her. we're

> hoping she will be able to advise me on whether I need x-rays,

MRI's

> or ever to see Mac sooner than next Wednesday. I have to admit that

> I will feel a whole lot better when I have seen him as I know he

> will be honest with me about the whole thing and do whatever he can

> to help me. I think a lot of Mac and can honestly say he's the only

> medical professional I trust and respect completely...and anyone

who

> knows the issues I've had with the medical profession with know

> exactly how big a statement that is from me!

..................Yes, I too, will feel much better when you see Mac!

I DO understand how you feel, Jo, as I feel much the same way

regarding my GP. I know he's not the most informed doctor on EDS,

but he does CARE for me and TRIES to LEARN about it. He sends me to

whatever specialists the case calls for.

>

> I'm trying not to be worried or nervous, but as with all best laid

> plans I'm failing miserably! I'm just so scared things are going

> wrong already. I promise I will let you know how I get on and what,

> if anything is happening. Thank you to everyone for your support,

> kindness and patience and please know that I am thinking of you

> always.

....................Jo, I would be feeling the exact same way! I will

continue to keep you on our prayer list, as well as the one in my

church. I truly believe this can help, and it certainly can't hurt,

now, can it?? I will include Mac as well, just for you, Sweet Jo, OK?

You're very welcome for the support....you are just as kind and

considerate, dear friend!

TONS of GET WELL SOON WISHES & GENTLE HUGS,

Love Lana

[Guest guest]

> Hi Lana,

>

> MRSA is Methacillin Resistant Staph Aureus (Resistant to almost all

> antibiotics except Vancomycin) -- a very serious infection due to

the fact that it is

> very difficult to treat and antibiotics need to be given IV.

>

> MSSA is Methacillin Sensitive Staph Aureus (Sensitive to

antibiotics) -- an

> infection that is much easier to treat.

Oh dear! Neither one is good, but the 1st is HORRIBLE! I will pray

very hard for Jo.

THANKS Sue!! How are YOU, my dear friend??? I've missed talking to

you. I may call you later this afternoon - going to be around?

Love Lana

[Guest guest]

Hi,

this weekend I was at the Nordic Dermatology Congress in Odense,

Denmark. It was very interesting. I learned something new they had

found out. That if you have bad facial psoriasis, it is very likely

that you are having a Staph. Aureus infection... I have had facial

pso for ages, but the past year or so it has been awful, covering

most of my facial skin, at the same time as I have battled the

pneumonia. I have been telling the doc that " my face is like a

barometer for infection " , but he hasn't really listened to it,

probably because it was totally anecdotal... When it finally cleared

up a while ago with antibiotics, I finally got my face back. I gave

it a good course of steroids, and has been able to maintain it with

applicating it now and then. Now I have been having what is probably

a bronchitis for two weeks, with low grade fevers again as I had for

over a year, and now I started getting some spots again. So if it

doesn't calm down real soon, i'll be back in his office, this time

with the article for the study which I ordered from the medical

library... It is on it's way... I'll highlight my proof!!!! I'll be

saying " I knew it, I knew it, I knew it!!! Told you so, told you so,

told you so!!!! " ... He-he... If it persists now, I will insist on

having a culture done, so that we know for sure what is causing my

chest infections!!!

And no more letting the immune system work it out on it's own, I am

done going there hoping for that, even if his reason for prescribing

other medication just to help you get the " goop " out, is for sure

just the problems with things like MRSA/MSSA etc. They have become

much more restrictive with antibiotics here because of the huge

problems you experience in the US and other places. We don't have

that kind of problems here yet, not to the degree you have, and they

want to do everything they can not to end up with such problems, and

one of the things they do, is to try not to prescribe antibiotics if

you can resolve the problems in other ways. But I won't be

participating in that too much, because I just don't have the energy

to use time on hoping to let it pass without antibiotics, even if I

think that would be ideal. After years of being on immunosuppresants

for my psoriasis and arthritis, I don't think I have the best immune

system there is either...

Sorry, I just got excited and had to share when this was mentioned...

It is just so fun to hear that what you have been sure has been the

case, has been proven scientifically!!! Cool!!!!

Aase Marit

>

> I'm so glad that I am responding to the meds as everyone

>> was terrified I was developing an MRSA. Fortunately it's looking

>> more like it's been an MSSA, although I am still being monitored

>> closely for any relapse or flare up.

>

>..................Ok, Jo, I don't expect you to reply soon, because I

>do NOT want you wearing that already painful shoulder down even more

>than it is! But what is MRSA and MSSA??? DUH! Sorry, I just can't

>put the initials to anything.

>>

>And it's

>> continued to crack and judder too, where it feels horribly like a

>> subluxation. I actually woke up in horrible pain with it this

>> morning and when I shifted slightly it let off another sickening

>> crack as it seemed to reposition itself...it really does sound like

>> a joint reduction crack, which is really worrying me.

>

>...................OUCH! Darn, Jo, I was really hoping it would be

>better by now. Please try not to move it as much as possible, OK?

>

>> I am seeing the clinic ortho nurse to get my staples out in the

>> morning, so my GP wants me to mention the problems to her. we're

>> hoping she will be able to advise me on whether I need x-rays,

>MRI's

>> or ever to see Mac sooner than next Wednesday. I have to admit that

>> I will feel a whole lot better when I have seen him as I know he

>> will be honest with me about the whole thing and do whatever he can

>> to help me. I think a lot of Mac and can honestly say he's the only

> > medical professional I trust and respect completely...and anyone

>who

>> knows the issues I've had with the medical profession with know

>> exactly how big a statement that is from me!

>

>.................Yes, I too, will feel much better when you see Mac!

>I DO understand how you feel, Jo, as I feel much the same way

>regarding my GP. I know he's not the most informed doctor on EDS,

>but he does CARE for me and TRIES to LEARN about it. He sends me to

>whatever specialists the case calls for.

>>

>> I'm trying not to be worried or nervous, but as with all best laid

>> plans I'm failing miserably! I'm just so scared things are going

>> wrong already. I promise I will let you know how I get on and what,

>> if anything is happening. Thank you to everyone for your support,

>> kindness and patience and please know that I am thinking of you

>> always.

>

>...................Jo, I would be feeling the exact same way! I will

>continue to keep you on our prayer list, as well as the one in my

>church. I truly believe this can help, and it certainly can't hurt,

>now, can it?? I will include Mac as well, just for you, Sweet Jo, OK?

>You're very welcome for the support....you are just as kind and

>considerate, dear friend!

>

>TONS of GET WELL SOON WISHES & GENTLE HUGS,

>Love Lana

>

>

>

>

>To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

> Sorry, I just got excited and had to share when this was

mentioned...

> It is just so fun to hear that what you have been sure has been the

> case, has been proven scientifically!!! Cool!!!!

That's GREAT, Aase! I keep telling my husband that most of YOU know

a lot more than most of my DOCTORS! And it's true!

So, Aase, how is the neck doing??? Are you still behaving yourself?

Mine is doing OK. I do have to admit the PT has helped, as long as

they don't overdo it and try to do too much weight stuff too soon.

I do hope you're feeling better and taking good care of yourself!

Thinking of you!

Love Lana