Re: Peridontal and CoQ10 - Aase

[Guest guest]

Thanks for the input on your experience.

Five years ago I had almost perfect gums - virtually no pockets at

all (only a few 1s on the test, mostly 0s) - but now my gums are

awful - and it's all happened in the last 2 years.

I've just started taking CoQ10 - and based on your experience I might

take a bigger dose. I also going to try to rub it into my gums when

I remember - figure it can't hurt. The only trouble with rubbing it

on my gums is I figure it won't do much good if I go and eat right

away - and I tend to eat all day and forget to do it after I brush my

teeth at night - new habbit to get into I guess.

> Hi ,

>

> The only thing I know, is that I was diagnosed with peridontal

> disease in Oct. 1997. They measured the pockets in the gum at the

> dental faculty, at a special dept. for rare diseases. Only a month

or

> so later, I was to my own dentist and later a specialist, and the

> pockets were no where near what they had originally measured. The

> only thing I had done was to start Coenzyme Q10. I took three times

> the ordinary dosage, I think, orally. I did not massage it onto the

> gums, swallowed the caps. It is a while since I took it now, but I

> plan on getting more and start it again. I really believe it works

> for that...

>

>

> Aase Marit

>

> >I know it has been posted here that CoQ10 is beneficial in treating

> >peridontal disease. I read recently that CoQ10 can actually cause

> >the gumline to repair. Take the softgel cap - break it open and

> >massage it onto the gums - swallow the rest of the pill. I can't

> >find the study or I would provide the citation - if I ever find it

in

> >my pile of papers I will repost.

> >

> >

> >

> >

> >

> >

> >

> >To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

> >

[Guest guest]

Hi ,

Yes, as they told me, they recommended a way higher dosage, so I

would give it a try if I were you. For me it also came on very

suddenly, I never had any such problems. I was at the Genetecist and

he managed to get me in at this rare disorder department at the

dental faculty very quickly, since I would be staying in Oslo for a

week or so. So I came there only 2-3 days after getting my diagnosis,

and it was a shock to get this message from them, they sounded so

serious and all. But when I got to my own dentist with the report,

she really could not understand that they had measured correctly. I

have real difficulties believing that they did anything wrong, but in

the mean time I had started taking massive doses of Coenzyme Q10. My

own dentist referred me to a Periodontist for treatment, and by the

time I got there, it was even better. It seem to have gotten a bit

worse again now though, which I am sure is caused by me being sick

for so long with a stubborn pneumonia, while I had it I got several

mouth infections also, as a side effect to a Steroid Asthma spray...

I really don't think that is any good at all for this. So I will be

getting Coenzyme Q10 again and do it all over again. I should never

have stopped to begin with, but you know how it often is, it is easy

to end up getting sloppy after a while. I would take the high dosage

for quite a long time if I were you, but if you get excellent results

to the point of feeling that it is not necessary anymore, I would

move on to a lower dosage, e.g. the " normal " dosage. t is also a

matter of money, it is expensive, at least it is here in Norway. I

wouldn't be surprised if it was quite a lot cheaper over there

though, maybe e.g. Costco is a good idea, if you or someone you know

have a membership. I would love to go there this summer and stock up

on different things... BTW, a pleasant " side effect " I had while

on the high dosages of Q10 was increased energy levels, which was

wonderful as I really struggle with fatigue every day...

I also use an electrical toothbrush, and use toothpicks. The

specialists recommended the use of smooth triangular toothpicks, not

floss, as it cleans the pockets more effectively. I can't use the

ones you break apart, as they get rough edges. But I get the ones

that are thinner, separate and is sharp at both ends. I also use the

triangular plastic ones sometimes when I find them, those with the

little angled piece on one end.

I don't know how common the use of triangular wooden toothpicks are

in the US. I just know that once when I was there, I looked for them

at the supermarket, but couldn't find any. Only round ones, which are

useless for tooth cleaning. They are OK for removing a piece of food

stuck in your teeth, but besides that, I think they only work for

pinning food and other things they are neat for, not as toothpicks

which they really was constructed for...

Here's great plastic triangular toothpicks, much like the ones I get sometimes:

http://www.enexus.com/dentalmart/brushpick.html

But I must confess, the wooden triangular ones seems the best, I think...

On my way on the web to find a simple picture of the toothpicks I

meant, but I did find a funny story... The Chinese company Kulang

runs 7 centers for recirculation of toothpicks. People can deliver

used toothpicks to them, and get around 80 cents for 1 kg (tip to

everybody travelling to China: Bring your own toothpicks!!!!

Later, I also started to now and then use a tooth scrape, you get

them in department stores in packs with a little dentist mirror also.

I just give all pockets a bit of a scrape, carefully (and for other

reasons I do the backside of the front teeth etc.). Since starting

this, my dentist actually has not used the cleaning paste which the

assistant prepare when you get there, and sometimes the assistant has

looked at her funny and asking why she hasn't touched it, as if she

thinks she is getting forgetful. Then the dentist says to her there

is absolutely nothing there for her to clean up, it is already

perfectly clean... (and I drink coke, tea and smoke too, which always

used to stain my teeth) So it obviously works... These are the same

ones as dentists use, only cheaper types. I also have a proper

dentist one which the periodontist gave me, not to use on myself, but

on my dog... You can get those double ones (tools on both ends)

cheap on eBay as well, they sell them for use in crafts etc., often

in packs of 10 or 12, but maybe others would be interested?

Well, enough for now. Good luck on combating this - do whatever you

can now that you haven't had it for that long.... It is no fun with

this. I know one thing for sure, and I haven't had much trouble at

all compared to a lot of people here. I didn't have to have surgery,

but had to have two sessions of drilling down into my gums. Every

time I got more than 20 injections... I don't have a problem with

injections in general, but in my mouth...Yuck. If I can help it, I

won't be doing it again. I hate having stuff done in my mouth, I just

hate going to the dentist. I even have to find a new dentist now, my

old one got sick and quit... No fun at all...

Below is an abstract comparing fluoride impregnated wooden triangular

toothpicks to ones not impregnated. The ones with fluride are

better... That's the ones I normally get...

Aase Marit

>Thanks for the input on your experience.

>

>Five years ago I had almost perfect gums - virtually no pockets at

>all (only a few 1s on the test, mostly 0s) - but now my gums are

>awful - and it's all happened in the last 2 years.

>

>I've just started taking CoQ10 - and based on your experience I might

>take a bigger dose. I also going to try to rub it into my gums when

>I remember - figure it can't hurt. The only trouble with rubbing it

>on my gums is I figure it won't do much good if I go and eat right

>away - and I tend to eat all day and forget to do it after I brush my

>teeth at night - new habbit to get into I guess.

>

>

>

>

>> Hi ,

>>

>> The only thing I know, is that I was diagnosed with peridontal

>> disease in Oct. 1997. They measured the pockets in the gum at the

>> dental faculty, at a special dept. for rare diseases. Only a month

>or

>> so later, I was to my own dentist and later a specialist, and the

>> pockets were no where near what they had originally measured. The

>> only thing I had done was to start Coenzyme Q10. I took three times

>> the ordinary dosage, I think, orally. I did not massage it onto the

>> gums, swallowed the caps. It is a while since I took it now, but I

>> plan on getting more and start it again. I really believe it works

>> for that...

>>

>>

>> Aase Marit

>>

>> >I know it has been posted here that CoQ10 is beneficial in treating

>> >peridontal disease. I read recently that CoQ10 can actually cause

>> >the gumline to repair. Take the softgel cap - break it open and

>> >massage it onto the gums - swallow the rest of the pill. I can't

>> >find the study or I would provide the citation - if I ever find it

>in

>> >my pile of papers I will repost.

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >To learn more about EDS, visit our website:

>http://www.ehlersdanlos.ca

>> >

[Guest guest]

Wow Aase - what a great bunch of info!!

Yes, I have been extreamly fortunate in the peridontal dept so far!

Today I start with the triple dose of CoQ10 - hopefully the side

effect of more energy will work for me, too. I definitely could use

that! I'm a dental floss person - use it several times a day to get

rid of all the food that gets stuck between my tight teeth. I have

it stashed all over the house, in my purse, in the car ... Dentist

said that using dental floss all the time was why I used to have such

good gums.

My mom has had quite a bit of trouble - lots of time in the dentists

chair - so I know what I could be in for. Novacaine, doesn't work for

us either. She has always had bleeding gums - everytime she brushes

her teeth it's a mess. A couple years ago her new dentist

suggested " Stimudents " which is are toothpick like things - only more

rubbery - she uses them many times a day and they 'toughened' up her

gums within a couple months so they quit bleeding. Her gums are

still terrible though, and she is always getting food stuck in them

and getting infections. Dentist said there was nothing to do but

take antibiotics when she got the infection.

Thanks again for the info!

> >> Hi ,

> >>

> >> The only thing I know, is that I was diagnosed with peridontal

> >> disease in Oct. 1997. They measured the pockets in the gum at

the

> >> dental faculty, at a special dept. for rare diseases. Only a

month

> >or

> >> so later, I was to my own dentist and later a specialist, and

the

> >> pockets were no where near what they had originally measured.

The

> >> only thing I had done was to start Coenzyme Q10. I took three

times

> >> the ordinary dosage, I think, orally. I did not massage it onto

the

> >> gums, swallowed the caps. It is a while since I took it now,

but I

> >> plan on getting more and start it again. I really believe it

works

> >> for that...

> >>

> >>

> >> Aase Marit

> >>

> >> >I know it has been posted here that CoQ10 is beneficial in

treating

> >> >peridontal disease. I read recently that CoQ10 can actually

cause

> >> >the gumline to repair. Take the softgel cap - break it open

and

> >> >massage it onto the gums - swallow the rest of the pill. I

can't

> >> >find the study or I would provide the citation - if I ever

find it

> >in

> >> >my pile of papers I will repost.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >To learn more about EDS, visit our website:

> >http://www.ehlersdanlos.ca

> >> >

[Guest guest]

Hi ,

My pleasure!!!

One thing that the wooden triangular toothpicks also do, is to

toughen up the gums, so the bleeding problems get a lot better. I

really don't think floss does that. Most of my teeth are also very

tightly spaced, and I had problems using toothpicks before, but they

showed me how to do it even if the space is tight, and it really

works. You first use the very tip and lift the piece of the gum that

goes down between the teeth, and then insert it between the teeth,

using it as a brush to one side first, then the other, and you can

feel how you insert it into the pockets that has formed, and get

stuff cleaned up there. You have to expect to get a bit sore at

first, but it soon gets better, so don't let that stop you, just go

on. You can start by doing it once a day, e.g. in the evening, then

start doing it morning and evening, if you can manage that. If you

have problems holding the toothpick, because it is so little, there

are a few grip enlargeners for that. But the best alternative may

just be to have a piece of wood, e.g. part of a broom handle, and

have somebody drill a tiny hole in it which you can insert a tooth

pick into. Or a piece of plastic, e.g. the handle of some other grip

enlargener which you can spare, again, have a small hole drilled in

it. The tools I have seen and tried which are in commercial sale,

aren't that great at all, such a home made tool is much better.

I really hope you can get on top of these things, and that it will

make a difference for you. I say that I do it all out of fear of

having to sit in that chair a lot again, I hate going to the dentist,

and this I did not like a bit, that is for sure... My mom also had a

lot of problems with her teeth, and finally gave up and had all her

upper teeth extracted. The dentist would never let her do it, but

finally she had it and insisted on it after we encouraged her. She

had such bad infections and so much pain and her teeth also looked so

awful that she felt really bad about them cosmetically. I think she

really had it one day when some (unpolite, I might add) a about 12

yrs old kid made fun of her teeth when she smiled to him... She got

so hurt by that, that a kid could do such a thing and that her teeth

had become so bad that a child reacted like that. Until to the day

she died, she regularly repeated how wonderfully happy she was with

her dentures, they looked great and there was no more pain,

infections and long dentist visits...

Aase Marit

>Wow Aase - what a great bunch of info!!

>

>Yes, I have been extreamly fortunate in the peridontal dept so far!

>Today I start with the triple dose of CoQ10 - hopefully the side

>effect of more energy will work for me, too. I definitely could use

>that! I'm a dental floss person - use it several times a day to get

>rid of all the food that gets stuck between my tight teeth. I have

>it stashed all over the house, in my purse, in the car ... Dentist

>said that using dental floss all the time was why I used to have such

>good gums.

>

>My mom has had quite a bit of trouble - lots of time in the dentists

>chair - so I know what I could be in for. Novacaine, doesn't work for

>us either. She has always had bleeding gums - everytime she brushes

>her teeth it's a mess. A couple years ago her new dentist

>suggested " Stimudents " which is are toothpick like things - only more

>rubbery - she uses them many times a day and they 'toughened' up her

>gums within a couple months so they quit bleeding. Her gums are

>still terrible though, and she is always getting food stuck in them

>and getting infections. Dentist said there was nothing to do but

>take antibiotics when she got the infection.

>

>Thanks again for the info!

>

>

>

>

>> >> Hi ,

>> >>

>> >> The only thing I know, is that I was diagnosed with peridontal

>> >> disease in Oct. 1997. They measured the pockets in the gum at

>the

>> >> dental faculty, at a special dept. for rare diseases. Only a

>month

>> >or

>> >> so later, I was to my own dentist and later a specialist, and

>the

>> >> pockets were no where near what they had originally measured.

>The

>> >> only thing I had done was to start Coenzyme Q10. I took three

>times

>> >> the ordinary dosage, I think, orally. I did not massage it onto

>the

>> >> gums, swallowed the caps. It is a while since I took it now,

>but I

>> >> plan on getting more and start it again. I really believe it

>works

>> >> for that...

>> >>

>> >>

>> >> Aase Marit

>> >>

>> >> >I know it has been posted here that CoQ10 is beneficial in

>treating

>> >> >peridontal disease. I read recently that CoQ10 can actually

>cause

>> >> >the gumline to repair. Take the softgel cap - break it open

>and

>> >> >massage it onto the gums - swallow the rest of the pill. I

>can't

>> >> >find the study or I would provide the citation - if I ever

>find it

>> >in

>> >> >my pile of papers I will repost.

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >To learn more about EDS, visit our website:

>> >http://www.ehlersdanlos.ca

>> >> >