I DON'T HAVE LUPUS

[Guest guest]

WHAT? How many other Dr’s told

you that you have lupus? All I can say is congratulations if you don’t! Since

you have fibro and Sjogrens I hope you still stay with our group .

From: Carey

Sent: Monday, June 07, 2004 1:45

PM

To: LUPIES

Subject: I'M CURED......I

DON'T HAVE LUPUS ANYMORE !!

Greetings My Fellow Lupies,

I just got back from my first

visit with my new Rheumatologist.......and guess what.....

" I DON'T HAVE LUPUS

!! " He

didn't examine me or do any lab work .....he just read my Medical files from my

other doctors. Now my Nephrologist and my PCP have both told me that all the

markers for Lupus were negative which meant that my Lupus was not

active.....But THIS doctor said that I am in `REMISSION'....which means that I

don't have Lupus anymore.....and probably won't have a recurrance again!

He told me that I have

Fibromyalgia, and Sjogren's Syndrom.......MY MOUTH IS STILL HANGING

OPEN!.......

He also said that I

don't need to avoid the sun or U.V. rays.....since I don't have Lupus .....He

also said that most Lupus Patients

don't have Photosensitivity anyway ! .....MOUTH GETTING WIDER......He asked me

if I get a rash or flu-like symtoms or fever when I am in the sun......I said I

don't test it .....since I was diagnosed with Lupus ....and was told not to go

in the sun without sunscreen and a hat and long sleeves....that's what I do.

He said he doesn't

restrict his Lupus patient from going in the sun unless they have

.......something..... I can't remember what he called it that indicates

photosensitivity..........He took my blood pressure....which was

150/70......listened to my chest.......pressed on my left ankle and said the

slight edema was caused by Norvasc, my blood pressure medication.......He told

me to keep seeing my Nephrologist, but my kidney involvment was caused by high

blood pressure not Lupus.....Cause I don't have Lupus !

He lowered my dose of

Prednisone to 71/2 mg. a day, told me to keep taking all my other meds as

usual, and come back in 3 Months........I'm not surprised that he told me that

I have Fibromyalgia and Sjogren's Syndrome.......But I don't have Lupus

Anymore???

Have I found anotherOr am I a miracle????

" The

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http://www.itzarion.com/lupusgroup.html

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