in Ohio

[Guest guest]

Hi ,

Thanks for sharing your story. My name is Donna, I have PLS & live in Iowa.

With this disease, you have found a very good support group to be in. I'm also

48. I own my own business (3rd generation Dry Cleaner) & I understand when you

said there were days you had trouble doing your job. Yep--been there! I just

show up everyday & keep plugging away, sometimes feel " worthless " , unable to do

things I used to do. Have great help & they understand.

, again, thanks for sharing & feel free to talk with me anytime. We are all

here for each other.

Take care,

Donna ~ PLS ~ Iowa

re: pls and work...

Hi I found out last year I have pls. I was working full time. I

made for Honda cars. Slowly started to have signs, but nothing I

could not handle. For a woman had a hard dirty job, I did robotic

welding and also hand welded, making the subframe holds the gas tank

on all honda cars alot of overtime and hard work.we also had over

one hundred robots to make this one part. I had to wear heavy steel

toed boots. I started noticing little signs did not know what was

happening, my walking was getting bad, my equilibrium was off, just

standing upright, I had to consecrate, just so I did not fall over.

I went to family doctor, he sent me to my nuerologists. I kept

working but getting very hard. I am looking at my calendar right

now. Family doctor Aug. 17, first visit nuerologist Aug. 24. He

started testing. every month new test. I kept on working Sept24 I

got a phone call from his nurse saying he wanted me off Immediately

and Indefinately.on Oct 22 I had a spinal tap, pls was confirmed. I

have not gone back. On the forms to my job he wrote putting me off

for 36 months, well I knew my job was history, because I only have

12 months to return...then no matter what I would be terminated. My

doctor did not really advised me what was happening. My advice apply

for ss disability. I did not want to face the fact of not going back

to work , so finally in Febuary of this year applied for ssdi. I

just got my first letter of denied, my long term disability said

next time will not be denied.They will fight for me. This pls is

hard enough, now fighting for ssdi. I am 48 years old. I know it

takes time for the social security disability. I am going though it

now. I am feeling pls kicking in more and more. I know NOW I cannot

do my job...for one thing, it is about safety. Hard to give up

senority I was in the top 20 out of the whole Plant.. and I made

more than hubby..it is very hard but now know I can't help it..I

just got sick, now trying to enjoy Not being in the rat race. My job

understands, I stop in once in a while to say hi, but getting

harder. Write anytime or talk, I do know this is the best place to

find out your questions. I don't know what I would have done without

my pls friends..Where do you live? I live in Ohio, one hour north of

Cincinnati. We are all here for each other. from OHIO.

--------------------------------------------------------------------------------