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Claire writes,

> Hey everyone. As I mentioned in an earlier email, I see a rheumatologist for

> the first time on the 8th of this month. I'd really appreciate if you guys

> would let me know which drugs you each feel work best for pain for you all

> so I can have a list with me when I talk to the doctor. Thanks a bunch

> claire

I take MS Contin and Vicodon for breakthrough pain.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

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> Hey everyone. As I mentioned in an earlier email, I see a

rheumatologist for

> the first time on the 8th of this month. I'd really appreciate if

you guys

> would let me know which drugs you each feel work best for pain for

you all

> so I can have a list with me when I talk to the doctor. Thanks a

bunch

> claire

>

>

Since my pain is purely muscular and they haven't diagnosed me with

anything but Fibro I use Zoloft and Flexeril for pain. The Zoloft

inhibits the reuptake of seretonin and the muscle relaxer keeps my

arms and legs from cramping really hard. Plus it helps me sleep

properly (I have a sleep disorder) which helps with the pain levels

and tolerance too. Right now I'm a little fatigued but for the first

time in 9 months I have no pain.

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Guest guest

> Hey everyone. As I mentioned in an earlier email, I see a

rheumatologist for

> the first time on the 8th of this month. I'd really appreciate if

you guys

> would let me know which drugs you each feel work best for pain for

you all

> so I can have a list with me when I talk to the doctor. Thanks a

bunch

> claire

>

>

Since my pain is purely muscular and they haven't diagnosed me with

anything but Fibro I use Zoloft and Flexeril for pain. The Zoloft

inhibits the reuptake of seretonin and the muscle relaxer keeps my

arms and legs from cramping really hard. Plus it helps me sleep

properly (I have a sleep disorder) which helps with the pain levels

and tolerance too. Right now I'm a little fatigued but for the first

time in 9 months I have no pain.

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Guest guest

> Hey everyone. As I mentioned in an earlier email, I see a

rheumatologist for

> the first time on the 8th of this month. I'd really appreciate if

you guys

> would let me know which drugs you each feel work best for pain for

you all

> so I can have a list with me when I talk to the doctor. Thanks a

bunch

> claire

>

>

Since my pain is purely muscular and they haven't diagnosed me with

anything but Fibro I use Zoloft and Flexeril for pain. The Zoloft

inhibits the reuptake of seretonin and the muscle relaxer keeps my

arms and legs from cramping really hard. Plus it helps me sleep

properly (I have a sleep disorder) which helps with the pain levels

and tolerance too. Right now I'm a little fatigued but for the first

time in 9 months I have no pain.

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Guest guest

>Hey everyone. As I mentioned in an earlier email, I see a rheumatologist for

>the first time on the 8th of this month. I'd really appreciate if you guys

>would let me know which drugs you each feel work best for pain for you all

>so I can have a list with me when I talk to the doctor. Thanks a bunch

>claire

>

Hi Claire,

Elavil helped me for years until it started causing vision problems

and my job was threatened. I take zoloft now and that helps but it

is not as effective as the elavil. Plus my fibro is getting worse

with age.

I was using a combination of lorcet and various NSAIDs (most

recently Daypro) to handle whatever pain the zoloft didn't eliminate

(which was quite a bit). Finally I was put on a duragesic patch. So

far, it's been great--no side effects that I'm aware of and the pain

is gone most of the time. When I do have breakthrough pain, I usually

use lorcet unless it is in my lower back, when daypro works better.

I wish I was telling you about medications that are not narcotics

since these seem to make some (most?) doctors run for the hills.

Good luck with your rheumatologist. I hope he or she is one of those

rare doctors who is not afraid to manage pain effectively.

Margaret

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Guest guest

>Hey everyone. As I mentioned in an earlier email, I see a rheumatologist for

>the first time on the 8th of this month. I'd really appreciate if you guys

>would let me know which drugs you each feel work best for pain for you all

>so I can have a list with me when I talk to the doctor. Thanks a bunch

>claire

>

Hi Claire,

Elavil helped me for years until it started causing vision problems

and my job was threatened. I take zoloft now and that helps but it

is not as effective as the elavil. Plus my fibro is getting worse

with age.

I was using a combination of lorcet and various NSAIDs (most

recently Daypro) to handle whatever pain the zoloft didn't eliminate

(which was quite a bit). Finally I was put on a duragesic patch. So

far, it's been great--no side effects that I'm aware of and the pain

is gone most of the time. When I do have breakthrough pain, I usually

use lorcet unless it is in my lower back, when daypro works better.

I wish I was telling you about medications that are not narcotics

since these seem to make some (most?) doctors run for the hills.

Good luck with your rheumatologist. I hope he or she is one of those

rare doctors who is not afraid to manage pain effectively.

Margaret

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Guest guest

>Hey everyone. As I mentioned in an earlier email, I see a rheumatologist for

>the first time on the 8th of this month. I'd really appreciate if you guys

>would let me know which drugs you each feel work best for pain for you all

>so I can have a list with me when I talk to the doctor. Thanks a bunch

>claire

>

Hi Claire,

Elavil helped me for years until it started causing vision problems

and my job was threatened. I take zoloft now and that helps but it

is not as effective as the elavil. Plus my fibro is getting worse

with age.

I was using a combination of lorcet and various NSAIDs (most

recently Daypro) to handle whatever pain the zoloft didn't eliminate

(which was quite a bit). Finally I was put on a duragesic patch. So

far, it's been great--no side effects that I'm aware of and the pain

is gone most of the time. When I do have breakthrough pain, I usually

use lorcet unless it is in my lower back, when daypro works better.

I wish I was telling you about medications that are not narcotics

since these seem to make some (most?) doctors run for the hills.

Good luck with your rheumatologist. I hope he or she is one of those

rare doctors who is not afraid to manage pain effectively.

Margaret

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Guest guest

Thanks, Margaret. I hope so too. My boyfriend is on the duragesic patch and

Vicodin, but he has " proof " of his problems. His spine is almost completely

deteriorated in many spots, etc. I am so frustrated. I hope this

rheumatolgist is good. I'll let you all know.

Claire

http://www.angelfire.com/mn/ClaireChopp

Re: Medications

> >Hey everyone. As I mentioned in an earlier email, I see a rheumatologist

for

> >the first time on the 8th of this month. I'd really appreciate if you

guys

> >would let me know which drugs you each feel work best for pain for you

all

> >so I can have a list with me when I talk to the doctor. Thanks a bunch

> >claire

> >

>

> Hi Claire,

>

> Elavil helped me for years until it started causing vision problems

> and my job was threatened. I take zoloft now and that helps but it

> is not as effective as the elavil. Plus my fibro is getting worse

> with age.

>

> I was using a combination of lorcet and various NSAIDs (most

> recently Daypro) to handle whatever pain the zoloft didn't eliminate

> (which was quite a bit). Finally I was put on a duragesic patch. So

> far, it's been great--no side effects that I'm aware of and the pain

> is gone most of the time. When I do have breakthrough pain, I usually

> use lorcet unless it is in my lower back, when daypro works better.

>

> I wish I was telling you about medications that are not narcotics

> since these seem to make some (most?) doctors run for the hills.

> Good luck with your rheumatologist. I hope he or she is one of those

> rare doctors who is not afraid to manage pain effectively.

>

> Margaret

>

>

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Guest guest

Thanks, Margaret. I hope so too. My boyfriend is on the duragesic patch and

Vicodin, but he has " proof " of his problems. His spine is almost completely

deteriorated in many spots, etc. I am so frustrated. I hope this

rheumatolgist is good. I'll let you all know.

Claire

http://www.angelfire.com/mn/ClaireChopp

Re: Medications

> >Hey everyone. As I mentioned in an earlier email, I see a rheumatologist

for

> >the first time on the 8th of this month. I'd really appreciate if you

guys

> >would let me know which drugs you each feel work best for pain for you

all

> >so I can have a list with me when I talk to the doctor. Thanks a bunch

> >claire

> >

>

> Hi Claire,

>

> Elavil helped me for years until it started causing vision problems

> and my job was threatened. I take zoloft now and that helps but it

> is not as effective as the elavil. Plus my fibro is getting worse

> with age.

>

> I was using a combination of lorcet and various NSAIDs (most

> recently Daypro) to handle whatever pain the zoloft didn't eliminate

> (which was quite a bit). Finally I was put on a duragesic patch. So

> far, it's been great--no side effects that I'm aware of and the pain

> is gone most of the time. When I do have breakthrough pain, I usually

> use lorcet unless it is in my lower back, when daypro works better.

>

> I wish I was telling you about medications that are not narcotics

> since these seem to make some (most?) doctors run for the hills.

> Good luck with your rheumatologist. I hope he or she is one of those

> rare doctors who is not afraid to manage pain effectively.

>

> Margaret

>

>

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Guest guest

Thanks, Margaret. I hope so too. My boyfriend is on the duragesic patch and

Vicodin, but he has " proof " of his problems. His spine is almost completely

deteriorated in many spots, etc. I am so frustrated. I hope this

rheumatolgist is good. I'll let you all know.

Claire

http://www.angelfire.com/mn/ClaireChopp

Re: Medications

> >Hey everyone. As I mentioned in an earlier email, I see a rheumatologist

for

> >the first time on the 8th of this month. I'd really appreciate if you

guys

> >would let me know which drugs you each feel work best for pain for you

all

> >so I can have a list with me when I talk to the doctor. Thanks a bunch

> >claire

> >

>

> Hi Claire,

>

> Elavil helped me for years until it started causing vision problems

> and my job was threatened. I take zoloft now and that helps but it

> is not as effective as the elavil. Plus my fibro is getting worse

> with age.

>

> I was using a combination of lorcet and various NSAIDs (most

> recently Daypro) to handle whatever pain the zoloft didn't eliminate

> (which was quite a bit). Finally I was put on a duragesic patch. So

> far, it's been great--no side effects that I'm aware of and the pain

> is gone most of the time. When I do have breakthrough pain, I usually

> use lorcet unless it is in my lower back, when daypro works better.

>

> I wish I was telling you about medications that are not narcotics

> since these seem to make some (most?) doctors run for the hills.

> Good luck with your rheumatologist. I hope he or she is one of those

> rare doctors who is not afraid to manage pain effectively.

>

> Margaret

>

>

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  • 1 year later...

Niki,

I don't know for a fact that it does change hormones when you are in pain,

but I AGREE with you that it could, and I don't want to take the chance of

me being in/shtaying in pain would effect the baby worse than taking an

occasional T#3! Thanks for the vote of confidence...

I too, suffer from neuropathy (from diabetes) but I take (when I am not

pregnant) Neurotin, which helps to an extent... My neropathy doesn't seem

to be as bad as yours appears to be though... It is frustrating and

painful, but I can handle it better now that I've dropped so much weight.

has wl helped yours at all??

Hugs

Sharon

Niki Everett said:

> Hello,

> I kinda wanted to chime in on this topic. I have a condition called

> neuropathy, brought on due to my 9 yr battle with Multiple Sclerosis.

> (Basically neuropathy is where the nerves are dead or dieing, very painful

> due to the nerves that are dieing mis-firing.) I have been on Norco

> (lortab 10 with less tylenol) since January. I take approximately 6 of

> these pills a day. I have tried to cut back, but if I don't have

> something

> to control the pain, I am totally bed ridden. I was sent to a

> Maternal-Fetal specialist, and was informed that he is not concerned about

> me being on the narcotics, but rather the level of tylenol. He said that

> he

> had pregnant patients on STRONGER meds due to kidney shunts, and other

> ailments. Now I am not saying that taking strong meds are good for

> everyone

> or good for the baby, but rather for me, I have no choice. I do feel

> better that the doctor is monitoring my little guy (it is a boy we already

> know, he is NOT shy in letting us know). I have an ultrasound to check

> his

> progress EVERY visit (just a minor, quick 5 minute one, to make sure that

> he

> is proper weight, and that he is getting a proper blood supply, which was

> a

> little low in my August u/s).

>

> Again, this is just what is going on with me, and is in no way an

> indorsement for taking the T#3, but if it is needed to make you be able to

> survive, you have to outweigh the pro and cons. When you are in pain,

> your

> hormones change, which, I feel, effects the baby. Taking a med to relieve

> the pain lasts normally 6 hours at the most, where a migraine can last

> days.

>

> Good luck, congrats to all the new delieveries, and good luck to all the

> soon to comes!

>

> Niki

> Lap RNY 8/26/03 -209

> Mommy to 1/23/96

> EDD for " RJ " 2/5/04

>

> -- Re: medications

>

>

> Leah,

>

> I suffer from horrible migraines and all three of my docs tell me there is

> no migraine med on the market, otc or script that is safe while pregnant.

> Check with your doc before you take anything. I am on T#3 as needed and

> since codiene doesn't cross the placental barrier nor is it expressed in

> breast milk, it is considered safe for pregnancy/breastfeeding. I take as

> little as possible, regardless. Double check before you take anything,

> okay?

>

> As for sublingual b12 -- you can get that otc at health food stores. GNC,

> Rite Aid, etc., do not carry it that I know of... Trader Joe's does.

>

> Folic Acid, if you want to take 1-3 Milligrams per day, get a script. It

> is easier to take 1-3 pills than the otc variety that comes in

> 400micrograms and you end up taking half a bottle a day! LOL!

>

> Good luck and let me know about this migraine med you heard about... I'd

> like to check it out myself, just to see.

>

> Sharon

>

> Leah said:

>> Hi,

>>

>> I remember seeing that there is a migraine medication that is ok to

>> take while pregant. We are ttc and I don't want to take anything

>> that would hurt the baby, and the med that I am on now is a class c.

>> I have had a migrane since yesterday morning so any input would help.

>>

>> Also, some of you have said that you take a b-12 pill with folic

>> acid. The last time I was at the drug store I looked for one and

>> couldn't find it otc. Is it something that is a perscription, or can

>> you give me the brand name for it?

>>

>> Thanks,

>>

>> Leah

>>

>>

>>

>>

>> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>>

>>

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Niki,

I don't know for a fact that it does change hormones when you are in pain,

but I AGREE with you that it could, and I don't want to take the chance of

me being in/shtaying in pain would effect the baby worse than taking an

occasional T#3! Thanks for the vote of confidence...

I too, suffer from neuropathy (from diabetes) but I take (when I am not

pregnant) Neurotin, which helps to an extent... My neropathy doesn't seem

to be as bad as yours appears to be though... It is frustrating and

painful, but I can handle it better now that I've dropped so much weight.

has wl helped yours at all??

Hugs

Sharon

Niki Everett said:

> Hello,

> I kinda wanted to chime in on this topic. I have a condition called

> neuropathy, brought on due to my 9 yr battle with Multiple Sclerosis.

> (Basically neuropathy is where the nerves are dead or dieing, very painful

> due to the nerves that are dieing mis-firing.) I have been on Norco

> (lortab 10 with less tylenol) since January. I take approximately 6 of

> these pills a day. I have tried to cut back, but if I don't have

> something

> to control the pain, I am totally bed ridden. I was sent to a

> Maternal-Fetal specialist, and was informed that he is not concerned about

> me being on the narcotics, but rather the level of tylenol. He said that

> he

> had pregnant patients on STRONGER meds due to kidney shunts, and other

> ailments. Now I am not saying that taking strong meds are good for

> everyone

> or good for the baby, but rather for me, I have no choice. I do feel

> better that the doctor is monitoring my little guy (it is a boy we already

> know, he is NOT shy in letting us know). I have an ultrasound to check

> his

> progress EVERY visit (just a minor, quick 5 minute one, to make sure that

> he

> is proper weight, and that he is getting a proper blood supply, which was

> a

> little low in my August u/s).

>

> Again, this is just what is going on with me, and is in no way an

> indorsement for taking the T#3, but if it is needed to make you be able to

> survive, you have to outweigh the pro and cons. When you are in pain,

> your

> hormones change, which, I feel, effects the baby. Taking a med to relieve

> the pain lasts normally 6 hours at the most, where a migraine can last

> days.

>

> Good luck, congrats to all the new delieveries, and good luck to all the

> soon to comes!

>

> Niki

> Lap RNY 8/26/03 -209

> Mommy to 1/23/96

> EDD for " RJ " 2/5/04

>

> -- Re: medications

>

>

> Leah,

>

> I suffer from horrible migraines and all three of my docs tell me there is

> no migraine med on the market, otc or script that is safe while pregnant.

> Check with your doc before you take anything. I am on T#3 as needed and

> since codiene doesn't cross the placental barrier nor is it expressed in

> breast milk, it is considered safe for pregnancy/breastfeeding. I take as

> little as possible, regardless. Double check before you take anything,

> okay?

>

> As for sublingual b12 -- you can get that otc at health food stores. GNC,

> Rite Aid, etc., do not carry it that I know of... Trader Joe's does.

>

> Folic Acid, if you want to take 1-3 Milligrams per day, get a script. It

> is easier to take 1-3 pills than the otc variety that comes in

> 400micrograms and you end up taking half a bottle a day! LOL!

>

> Good luck and let me know about this migraine med you heard about... I'd

> like to check it out myself, just to see.

>

> Sharon

>

> Leah said:

>> Hi,

>>

>> I remember seeing that there is a migraine medication that is ok to

>> take while pregant. We are ttc and I don't want to take anything

>> that would hurt the baby, and the med that I am on now is a class c.

>> I have had a migrane since yesterday morning so any input would help.

>>

>> Also, some of you have said that you take a b-12 pill with folic

>> acid. The last time I was at the drug store I looked for one and

>> couldn't find it otc. Is it something that is a perscription, or can

>> you give me the brand name for it?

>>

>> Thanks,

>>

>> Leah

>>

>>

>>

>>

>> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>>

>>

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Niki,

I don't know for a fact that it does change hormones when you are in pain,

but I AGREE with you that it could, and I don't want to take the chance of

me being in/shtaying in pain would effect the baby worse than taking an

occasional T#3! Thanks for the vote of confidence...

I too, suffer from neuropathy (from diabetes) but I take (when I am not

pregnant) Neurotin, which helps to an extent... My neropathy doesn't seem

to be as bad as yours appears to be though... It is frustrating and

painful, but I can handle it better now that I've dropped so much weight.

has wl helped yours at all??

Hugs

Sharon

Niki Everett said:

> Hello,

> I kinda wanted to chime in on this topic. I have a condition called

> neuropathy, brought on due to my 9 yr battle with Multiple Sclerosis.

> (Basically neuropathy is where the nerves are dead or dieing, very painful

> due to the nerves that are dieing mis-firing.) I have been on Norco

> (lortab 10 with less tylenol) since January. I take approximately 6 of

> these pills a day. I have tried to cut back, but if I don't have

> something

> to control the pain, I am totally bed ridden. I was sent to a

> Maternal-Fetal specialist, and was informed that he is not concerned about

> me being on the narcotics, but rather the level of tylenol. He said that

> he

> had pregnant patients on STRONGER meds due to kidney shunts, and other

> ailments. Now I am not saying that taking strong meds are good for

> everyone

> or good for the baby, but rather for me, I have no choice. I do feel

> better that the doctor is monitoring my little guy (it is a boy we already

> know, he is NOT shy in letting us know). I have an ultrasound to check

> his

> progress EVERY visit (just a minor, quick 5 minute one, to make sure that

> he

> is proper weight, and that he is getting a proper blood supply, which was

> a

> little low in my August u/s).

>

> Again, this is just what is going on with me, and is in no way an

> indorsement for taking the T#3, but if it is needed to make you be able to

> survive, you have to outweigh the pro and cons. When you are in pain,

> your

> hormones change, which, I feel, effects the baby. Taking a med to relieve

> the pain lasts normally 6 hours at the most, where a migraine can last

> days.

>

> Good luck, congrats to all the new delieveries, and good luck to all the

> soon to comes!

>

> Niki

> Lap RNY 8/26/03 -209

> Mommy to 1/23/96

> EDD for " RJ " 2/5/04

>

> -- Re: medications

>

>

> Leah,

>

> I suffer from horrible migraines and all three of my docs tell me there is

> no migraine med on the market, otc or script that is safe while pregnant.

> Check with your doc before you take anything. I am on T#3 as needed and

> since codiene doesn't cross the placental barrier nor is it expressed in

> breast milk, it is considered safe for pregnancy/breastfeeding. I take as

> little as possible, regardless. Double check before you take anything,

> okay?

>

> As for sublingual b12 -- you can get that otc at health food stores. GNC,

> Rite Aid, etc., do not carry it that I know of... Trader Joe's does.

>

> Folic Acid, if you want to take 1-3 Milligrams per day, get a script. It

> is easier to take 1-3 pills than the otc variety that comes in

> 400micrograms and you end up taking half a bottle a day! LOL!

>

> Good luck and let me know about this migraine med you heard about... I'd

> like to check it out myself, just to see.

>

> Sharon

>

> Leah said:

>> Hi,

>>

>> I remember seeing that there is a migraine medication that is ok to

>> take while pregant. We are ttc and I don't want to take anything

>> that would hurt the baby, and the med that I am on now is a class c.

>> I have had a migrane since yesterday morning so any input would help.

>>

>> Also, some of you have said that you take a b-12 pill with folic

>> acid. The last time I was at the drug store I looked for one and

>> couldn't find it otc. Is it something that is a perscription, or can

>> you give me the brand name for it?

>>

>> Thanks,

>>

>> Leah

>>

>>

>>

>>

>> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>>

>>

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  • 6 months later...
Guest guest

I'm wondering what is left to try. So far, this is what has not worked:

Oxcycontin 20mg= no brain

Methadone 60mg =nausea & muscle jerks

Duragisic 100 = Severe cold sweats

Every med only brought the pain down to a 7 1/2 out of 10

Dylan can't deal with the cold sweats anymore from the patches. Any one know

what options are left? Cindylouwho

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  • 4 years later...

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too.

The VERY BEST thing YOU can DO is to carry your list of medicines with you ALWAYS. Show each doctor the list and have them write what you are no longer to take, or if the dosage was changed. If insurance substitutes a medication for another, validate what medicine the new one replaces. Have the list accessible (like next to your insurance card) if you must go to the Emergency Department.

Your medication list is like a map - shows where you have been - and gives the doctor a lot of information, even if you are unable to give the information at that time. Keep your list up to date and carry it with you always.

Thanks for letting me share!

Joanne H

(, Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Cindy BaudouxSent: Sunday, September 07, 2008 10:56 AMTo: Subject: Re: Re: A Cindy Saga...on topic and off topic - - v tac

I am going to bring that up with my family doctor. ... The transplant coordinator had the doctor presribe thelasix, which I was told took out potassium, but thenthe other water pill put it back so it was a washout,but she did tell me to stop taking them

..

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Joanne,Thanks for the advice. I've been doing this for a while now. It really helps when I go to the ER or the doctor. Although the hepatologist doesn't always look at the list - he asks about the medicines instead.Marie

To: From: copper@...Date: Sun, 7 Sep 2008 11:10:33 -0700Subject: RE: Re: Medications

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too.

The VERY BEST thing YOU can DO is to carry your list of medicines with you ALWAYS. Show each doctor the list and have them write what you are no longer to take, or if the dosage was changed. If insurance substitutes a medication for another, validate what medicine the new one replaces. Have the list accessible (like next to your insurance card) if you must go to the Emergency Department.

Your medication list is like a map - shows where you have been - and gives the doctor a lot of information, even if you are unable to give the information at that time. Keep your list up to date and carry it with you always.

Thanks for letting me share!

Joanne H

(, Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Cindy BaudouxSent: Sunday, September 07, 2008 10:56 AMTo: Subject: Re: Re: A Cindy Saga...on topic and off topic - - v tac

I am going to bring that up with my family doctor. ... The transplant coordinator had the doctor presribe thelasix, which I was told took out potassium, but thenthe other water pill put it back so it was a washout,but she did tell me to stop taking them

..

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Joanne,Thanks for the advice. I've been doing this for a while now. It really helps when I go to the ER or the doctor. Although the hepatologist doesn't always look at the list - he asks about the medicines instead.Marie

To: From: copper@...Date: Sun, 7 Sep 2008 11:10:33 -0700Subject: RE: Re: Medications

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too.

The VERY BEST thing YOU can DO is to carry your list of medicines with you ALWAYS. Show each doctor the list and have them write what you are no longer to take, or if the dosage was changed. If insurance substitutes a medication for another, validate what medicine the new one replaces. Have the list accessible (like next to your insurance card) if you must go to the Emergency Department.

Your medication list is like a map - shows where you have been - and gives the doctor a lot of information, even if you are unable to give the information at that time. Keep your list up to date and carry it with you always.

Thanks for letting me share!

Joanne H

(, Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Cindy BaudouxSent: Sunday, September 07, 2008 10:56 AMTo: Subject: Re: Re: A Cindy Saga...on topic and off topic - - v tac

I am going to bring that up with my family doctor. ... The transplant coordinator had the doctor presribe thelasix, which I was told took out potassium, but thenthe other water pill put it back so it was a washout,but she did tell me to stop taking them

..

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Joanne,Thanks for the advice. I've been doing this for a while now. It really helps when I go to the ER or the doctor. Although the hepatologist doesn't always look at the list - he asks about the medicines instead.Marie

To: From: copper@...Date: Sun, 7 Sep 2008 11:10:33 -0700Subject: RE: Re: Medications

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too.

The VERY BEST thing YOU can DO is to carry your list of medicines with you ALWAYS. Show each doctor the list and have them write what you are no longer to take, or if the dosage was changed. If insurance substitutes a medication for another, validate what medicine the new one replaces. Have the list accessible (like next to your insurance card) if you must go to the Emergency Department.

Your medication list is like a map - shows where you have been - and gives the doctor a lot of information, even if you are unable to give the information at that time. Keep your list up to date and carry it with you always.

Thanks for letting me share!

Joanne H

(, Ca)

-----Original Message-----From: [mailto: ]On Behalf Of Cindy BaudouxSent: Sunday, September 07, 2008 10:56 AMTo: Subject: Re: Re: A Cindy Saga...on topic and off topic - - v tac

I am going to bring that up with my family doctor. ... The transplant coordinator had the doctor presribe thelasix, which I was told took out potassium, but thenthe other water pill put it back so it was a washout,but she did tell me to stop taking them

..

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- and, it's not unusual at all for the pharmacist to catch a mistake the Dr. made. When Judy was a pharm-tech, a day didn't go by where a prescription was questioned (and found to be wrong!). This, in a small mid-Minnesota town!

Your best protection is knowing what the effects are of the drug prescribed. This is especially important for our caregivers - for those times when we're not (or can't) paying close attention :(

Arne

57 - UC 1977 - PSC 2000

Alive and well in Minnesota

________________________________

From: [mailto: ] On Behalf Of Copper

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too...

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- and, it's not unusual at all for the pharmacist to catch a mistake the Dr. made. When Judy was a pharm-tech, a day didn't go by where a prescription was questioned (and found to be wrong!). This, in a small mid-Minnesota town!

Your best protection is knowing what the effects are of the drug prescribed. This is especially important for our caregivers - for those times when we're not (or can't) paying close attention :(

Arne

57 - UC 1977 - PSC 2000

Alive and well in Minnesota

________________________________

From: [mailto: ] On Behalf Of Copper

A quick thought on medications...

Cindy's description of one medication, adding/subtracting from other medications... etc is not unusual - for anyone who takes medicine for any problem! As a Nurse Practitioner I can't tell you how often medications get confused, duplicated in some way, forgotten, etc. Causes of this are multiple too...

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