Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Have you discussed the possibility of beta-blockers with the cardiologist? I have the marfanoid body type and I have OI with arrythmias (although I was officially diagnosed with vasodepressor syncope, also known as neurocardiogenic syncope, I believe I may have POTS also... I need to double check my tilt table results the next time I see my cardio). Anyway, I've been taking beta-blockers (I take atenelol) for several years and my arrythmias have lessened significantly and my syncope episodes nearly disappeared (I still sometimes have pre-syncope episodes, but I haven't actually fainted in a long time). And the best part is that I have had no noticible side-effects. You may want to talk with the cardio to see if beta- blockers may be helpful in your daughter's case. There may be other symptoms that contradict their use, however. Also, Mike had suggested some polarity techniques for arrythmias a month or two ago. You might want to use the archive feature on the website to see if you can find the post. Unfortunately my print-out of it is at home so I can't just look at it for the post number right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 I forgot to ask if she's had an EP Study done (EP stands for Electro Physiological or something very similar). That should show the type of arrythmia as well as what causes it and would help to determine the best course of treatment. Sometimes RF ablation can be done during the same exam period which can cure the arrythmias. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Arrhythmia Qestion for smginley or anyone with POTS and orthostatic Intolerance - Long Meaghan feels exceedingly hard done by that home teaching is unattainable in Ontario, so she is constantly frustrated when reminded of it, especially because she is soooo wiped out that she can't think by the end of the day. ~~~~~~` Bernadette - have you emailed Cameron? She is now homeschooling both her boys and she told me they are loving it! She lives in Guelph Ontario Bonnie Quote Link to comment Share on other sites More sharing options...
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