Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 I worked for the NY chapter. How I found out about EDS was from the pamphlet they had om it. They were the ones to help me find a doctor that treated patients with EDS. I can't believe that they sunk so low to not have any info about it. Please follow through on this. It's like the arthritis foundation is going downhill. If you want, I can get hold of the NY chapter and see what is going on. Ilene You only have one life. Live it to the fullest. Quote Link to comment Share on other sites More sharing options...
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