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Re: Re: [RE: Unbelievable/Ilene

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Hi to you Ilene,

Hugs, son

Re: Re: [RE: Unbelievable

> I worked for the NY chapter. How I found out about EDS was from the

> pamphlet they had om it. They were the ones to help me find a doctor

> that treated patients with EDS.

>

> I can't believe that they sunk so low to not have any info about it.

>

> Please follow through on this. It's like the arthritis foundation is

> going downhill. If you want, I can get hold of the NY chapter and see

> what is going on.

>

> Ilene

> You only have one life. Live it to the fullest.

>

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>

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