Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/2004 8:45:31 AM Pacific Daylight Time, monica-jb@... writes: I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? ************* ~~ I have Scoliosis. I was told it was adult onset because of EDS issues - leg shorter than other, flat feet, shoulder surgery (pants over vest) that makes me hold my upper body in a tweaked position, pain, breast augmentation .... On and on. What has helped is a back brace, orthotics in my shoes with a lift in the leg that is shorter, mindful posture and limited reach and stretch movements and periodic manipulations to rearrange the funky shape. There is a bunch of lower back pain associated with this but when I am faithful with doing all the things that are supposed to help correct the curve the pain is not as bad. This, hard to do because it goofs up other EDS related body parts so I am content with semi correction for everything. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/2004 8:45:31 AM Pacific Daylight Time, monica-jb@... writes: I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? ************* ~~ I have Scoliosis. I was told it was adult onset because of EDS issues - leg shorter than other, flat feet, shoulder surgery (pants over vest) that makes me hold my upper body in a tweaked position, pain, breast augmentation .... On and on. What has helped is a back brace, orthotics in my shoes with a lift in the leg that is shorter, mindful posture and limited reach and stretch movements and periodic manipulations to rearrange the funky shape. There is a bunch of lower back pain associated with this but when I am faithful with doing all the things that are supposed to help correct the curve the pain is not as bad. This, hard to do because it goofs up other EDS related body parts so I am content with semi correction for everything. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/2004 8:45:31 AM Pacific Daylight Time, monica-jb@... writes: I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? ************* ~~ I have Scoliosis. I was told it was adult onset because of EDS issues - leg shorter than other, flat feet, shoulder surgery (pants over vest) that makes me hold my upper body in a tweaked position, pain, breast augmentation .... On and on. What has helped is a back brace, orthotics in my shoes with a lift in the leg that is shorter, mindful posture and limited reach and stretch movements and periodic manipulations to rearrange the funky shape. There is a bunch of lower back pain associated with this but when I am faithful with doing all the things that are supposed to help correct the curve the pain is not as bad. This, hard to do because it goofs up other EDS related body parts so I am content with semi correction for everything. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I have scoliosis, which also wasn't dignosed during the junior high school screening, even though I remember the nurse telling me " stand up straight. you are standing with one shoulder lower than the other. " Duh! Mine was finally diagnosed in college when I was having a lot of lower back pain. I had decided to take a break from ballet due to knee problems, and we think that the ballet was helping keep my back and abdominal muscles strenthened which helped with the scoliosis. I have an S-curve in my lumbar area (which is apparently not super common and probably why it wasn't picked up in the screening) and also a slight compensatory C-curve in my upper back. I can't reacall what the degree of curvature is off the top of my head. I remember it was pretty close to the cut off for needing a brace or surgery, but the only treatment was physical therapy. My sister also has slight scoliosis and my father has a more moderate case. Plus, he has some wedge shaped vertabrae that he used to have to wear a brace for. I don't think my sister has any problems and my dad has had back pain on and off for most of his life. > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I have scoliosis, which also wasn't dignosed during the junior high school screening, even though I remember the nurse telling me " stand up straight. you are standing with one shoulder lower than the other. " Duh! Mine was finally diagnosed in college when I was having a lot of lower back pain. I had decided to take a break from ballet due to knee problems, and we think that the ballet was helping keep my back and abdominal muscles strenthened which helped with the scoliosis. I have an S-curve in my lumbar area (which is apparently not super common and probably why it wasn't picked up in the screening) and also a slight compensatory C-curve in my upper back. I can't reacall what the degree of curvature is off the top of my head. I remember it was pretty close to the cut off for needing a brace or surgery, but the only treatment was physical therapy. My sister also has slight scoliosis and my father has a more moderate case. Plus, he has some wedge shaped vertabrae that he used to have to wear a brace for. I don't think my sister has any problems and my dad has had back pain on and off for most of his life. > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I have scoliosis, which also wasn't dignosed during the junior high school screening, even though I remember the nurse telling me " stand up straight. you are standing with one shoulder lower than the other. " Duh! Mine was finally diagnosed in college when I was having a lot of lower back pain. I had decided to take a break from ballet due to knee problems, and we think that the ballet was helping keep my back and abdominal muscles strenthened which helped with the scoliosis. I have an S-curve in my lumbar area (which is apparently not super common and probably why it wasn't picked up in the screening) and also a slight compensatory C-curve in my upper back. I can't reacall what the degree of curvature is off the top of my head. I remember it was pretty close to the cut off for needing a brace or surgery, but the only treatment was physical therapy. My sister also has slight scoliosis and my father has a more moderate case. Plus, he has some wedge shaped vertabrae that he used to have to wear a brace for. I don't think my sister has any problems and my dad has had back pain on and off for most of his life. > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I too have scoliolsis, only minor and also kyphoscoliolsis (I think) sway back anyway and a tilted and twisted pelvis. Sharon > Both my daughters have been dx'd with slight scoliosis. It's in the area between their shoulder blades on both of them. This is the area that has most of her back pain. Mike noticed it in the first time he saw her. > It was never dx'd during those regular exams that the school gives every year, but by 2 different doctors. > Is this an EDS thing? > > My girl's grandmother, my mother in law, has scoliosis. Strangely, she didn't figure it out until she was well into her 40's. > She was always very active (still is), and even ran 2 marathons in her 40's. Then, one day while taking a shower, she looked down, and noticed that her belly button was off to one side. After a few more years, she started having major back problems. She ended up having surgery - where they placed a metal rod in her spine to straighten it out. This surgery has helped her tremendously, and has only had some minor problems in the last 10 or so years. > > Now, I would think that my girl's got their EDS from me, cause I have it. But, my husband's side of the family has a long history of rheumatoid arthritis, and this scoliosis. > So, I'm wondering if maybe my kids have a combination of problems from both sides of the family. > > I've been told I have a slight curve in my spine too by an orthopedic dr who did nothing for me but try to send me to a phsycologist. > > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Y'up, count me in for the scoliosis too. I have a minor case between my shoulders and a bit on my lower back to. Two of my Aunts have it (one so bad she had to wear the milwaukee brace and have corrective surgery for it....twice!) and two of my cousins have it too. Yes, I think I read it was tied into EDS some way or another. -Rhea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 I have diagnosis of levo-scoliosis. Everything in me is left sided. They wrote it in on one of my catscan. Nothing else was said. If there was pain involved ... I do not feel pain in that area. Lumbar level near my GI problem/duplication. Caro. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Well , I too have scoliosis, I just about have everything for that matter. Mine is lumbar with a pretty bad S curve, and rotation of the lower spine. I too wear orthotics for flat feet and a heel lift in my left shoe cuz that leg is shorter. I've had one spinal surgery but not to correct the scoliosis, but rather to fix spinal stenosis. I still need a fusion, but who wants to be fused crooked? S. scoliosis > Both my daughters have been dx'd with slight scoliosis. It's in the area between their shoulder blades on both of them. This is the area that has most of her back pain. Mike noticed it in the first time he saw her. > It was never dx'd during those regular exams that the school gives every year, but by 2 different doctors. > Is this an EDS thing? > > My girl's grandmother, my mother in law, has scoliosis. Strangely, she didn't figure it out until she was well into her 40's. > She was always very active (still is), and even ran 2 marathons in her 40's. Then, one day while taking a shower, she looked down, and noticed that her belly button was off to one side. After a few more years, she started having major back problems. She ended up having surgery - where they placed a metal rod in her spine to straighten it out. This surgery has helped her tremendously, and has only had some minor problems in the last 10 or so years. > > Now, I would think that my girl's got their EDS from me, cause I have it. But, my husband's side of the family has a long history of rheumatoid arthritis, and this scoliosis. > So, I'm wondering if maybe my kids have a combination of problems from both sides of the family. > > I've been told I have a slight curve in my spine too by an orthopedic dr who did nothing for me but try to send me to a phsycologist. > > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > I guess what I'm asking is - how many of you have scoliosis, even if it's minor? And, do you have any problems from it? > I have scoliosis and wore a Milwaukee brace from 1978-1981 and then a Boston jacket type brace from 1981-1982. I don't know what degree of curvature I had but it was enough to warrant treatment. It does cause some trouble with my back -- especially during pregnancy. And I htink it has something to do with the problems in my left shoulder blade. I tore the muscles a couple of years ago and now the only way I can get slight relief is by curving my body to the right (low rt shoulder, raised right hip). That is the way my curvature goes. I don't know if my rt leg is actually shorter or if it appears shorter because of the lifting of my right hip. Sorry I can't be more helpful but I am running (laughing at that thought) out to pick up my daughter from school... Joy Quote Link to comment Share on other sites More sharing options...
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