welcome Micha

[Guest guest]

welcome

Micha,

You have sure had a rough time. I’m

sorry you have lost so much of your former life! Most of us get depressed

about that problem too, I know I do. I see you love to dance. My

husband and I used to ballroom dance together every week. We went on day

hikes and bird watching. We went to the gym together. I used to be

very athletic when I was young. Because of my progressing illnesses, we

hardly dance. My husband has had to suffer because he lost his dance

partner. I feel sorry for myself sometimes but try to count my blessings

where I see them. At least he hasn’t left me and went off dancing

into the sunset with someone else. hah

I want to say that we are a friendly group

and we like to tease, have fun, and exchange information too. I have been

in the group for so long (I have lupus fog) that I forgot how long now. I

have lupus, fibromyalgia, IBS, interstitial cystitis, degenerative disk disease,

TMJ dysfunction, arthritis, osteoporosis, and chemical depression. I am a

cancer survivor and have had several seizures and a brain hemorrhage quite

awhile ago. I can drive now but I am on permanent disability. I am

married to a faithful, kind husband. He is a little nuts though and we

have our go-arounds. He is bipolar. It is a difficult mental illness

as you know and the mental health care system in the USA is disgraceful!!!. With

his healthy body and the healthy half of my brain put together we almost make

one whole person.

From: tlgl99

Sent: Thursday, May 27, 2004 11:41

AM

To: LUPIES

Subject: Re: Introduction

new member

> Hello

all,

>

> I'm

Micha, 43 years old, living in Europe, the Netherlands. A long

time ago I

was diagnosed with arthrosis in my neck and last year

with

fibromyalgia.

> At the

moment I'm in a small physical rehab program for the

fibromyalgia:

a half hour of physiotherapy in which I learn to walk

better and

soon the occupational therapy to help with coping with my

disabilities

in daily live.

> After

this, about in September, I will see a rheumatologist

specialized

in S.L.E.

>