Re: To Kate From Jerri

[Guest guest]

Thing is, I started having these supposed UTI infections when I had

the LEAST risk factors. So I don't understand it. Now I've been

treated a few times for UTI infection, but had no blood in the urine.

PLEASE don't say the word " diverticulitis " to me!!! I'm TERRIFIED of

the very THOUGHT! I KNOW I have to go see the GI speciallist (have

had the " runs " since May 3rd) but really DONT WANT TO GO.

Now it really ticks me off to go to a specialist anyway, because

EVERYTHING from headaches to diahrea to UTIs to stomach aches as well

as the joint pain and exhaustion is ALL DUE TO THE LUPUS according to

them. My old doctors didn't even TEST anymore, they just give out

narcotic pain killers and antibiotics like they're candy... then LAST

ER visit I ripped up the script for the narcotic pain killers right

there in the ER ward. I TOLD them I was not going to take narcotics

for a reoccuring problem, and would rather deal with the pain then be

a walking zombie... which I AM on those pills... and I have KIDS to

raise!!!

OOPS... LOL sorry I went on a rant. I am SOOOOOOOOOOO frustrated

about now....

> >

> > Your letter got to me, I've had that a lot lately, and ended up

in

> > the ER for it. They never followed up though, although there was

> some

> > talk about seeing a GI specialist. Thing is I've had a spat

> > of " bladder infections " that the doctors aren't sure about... Now

I

> > am also worried about kidney involvement. Know I HAVE to get to

the

> > doc soon again. Do me a favor and when you find out about what it

> is

> > with you, let me know and tag me in your subject line so I can

find

> > it again, or email me at tempestspell@y... Right now I'm

> > reading all this on the groups site so my mailbox doesn't flood,

> and

> > I'm not here every day, so it gets kinda tough to sort through

> > everything.

> >

> > Thanks!

> >

> > ~Kate

[Guest guest]

Forgot to add in my other post that my " runs " are from IBS or spastic

colon or whatever they call it. It changes everytime I go it seems.

I've been doing some reading and I don't think I have

diverticulitis. I'm thinking something more along the lines of

ulcerative colitis. I know, that's worse, but the symptoms seem to

match up better. I've had several colonoscopies (talk about fun!

NOT!!) They have found pre-ulcers and irritations but no eruptions.

Funny thing is before every scope....I had just finished a long round

of antibiotics that would have healed the ulcers up somewhat.

Anyway, it's been a few years since I've had one - I'm sure I'll get

one ordered on my next visit! UUGGHHHH

Yeah, I know what you mean...I can go in for an ingrown toenail and

they say it's from Lupus. I'm tired of the automatic dx's! Why

can't they spend 10 seconds trying to figure out what is really going

on...or better yet - how to fix it! Okay, I don't have time for a

rant - but I do know how you feel! I hope we both get solutions

soon! Good luck to you!

Jerri

> Thing is, I started having these supposed UTI infections when I had

> the LEAST risk factors. So I don't understand it. Now I've been

> treated a few times for UTI infection, but had no blood in the

urine.

>

> PLEASE don't say the word " diverticulitis " to me!!! I'm TERRIFIED

of

> the very THOUGHT! I KNOW I have to go see the GI speciallist (have

> had the " runs " since May 3rd) but really DONT WANT TO GO.

>

> Now it really ticks me off to go to a specialist anyway, because

> EVERYTHING from headaches to diahrea to UTIs to stomach aches as

well

> as the joint pain and exhaustion is ALL DUE TO THE LUPUS according

to

> them. My old doctors didn't even TEST anymore, they just give out

> narcotic pain killers and antibiotics like they're candy... then

LAST

> ER visit I ripped up the script for the narcotic pain killers right

> there in the ER ward. I TOLD them I was not going to take narcotics

> for a reoccuring problem, and would rather deal with the pain then

be

> a walking zombie... which I AM on those pills... and I have KIDS to

> raise!!!

>

> OOPS... LOL sorry I went on a rant. I am SOOOOOOOOOOO frustrated

> about now....

[Guest guest]

Forgot to add in my other post that my "runs" are from IBS or spastic colon or whatever they call it. It changes everytime I go it seems. I've been doing some reading and I don't think I have diverticulitis. I'm thinking something more along the lines of ulcerative colitis. I know, that's worse, but the symptoms seem to match up better. I've had several colonoscopies (talk about fun! NOT!!) They have found pre-ulcers and irritations but no eruptions. Funny thing is before every scope....I had just finished a long round of antibiotics that would have healed the ulcers up somewhat. Anyway, it's been a few years since I've had one - I'm sure I'll get one ordered on my next visit! UUGGHHHHHi Jerry,

My name is Carol. I have been away from the board for a little bit and I was trying to catch up when I came across your post. I have ulcerative colitis along with Lupus. I do have a couple diverticuli (sp) but they have never given me any problems so I'm not real familial with diverticulitis. I do know that if a pocket gets infected you do need a round of antibiotics. I can tell you this however. If I take any kind of antibiotics they will send me into a flare of UC almost immediately. Antibiotics is something I definitely avoid if I can. If I can be of any help just holler but, if you would, could you put my name in the subject so I will see it? I am really preoccupied with housetraining my new puppy right now so I don't have as much time to spend here on the board.

Hugs....

Karol