Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Thanks hon. I am just so frustrated, Mike is frustrated, and the rhuemy is frustrated. I am going to start Cellcept next week so hopefully just maybe that will help but its mostly for the lupus. BTW not sure if I congratulated you or not but congrats on finishing the chemo. You must feel so much better knowing you no longer have to deal with that. So how are YOU doing? Not sure if you posted an update, been so out of it that I have not been able to play catch up with the board. How is the weather your way? Well I will talk with you soon sweetie, keep me informed as I will you... Love ya Deanna > > Well that sucks.......... > I mean I'm happy he finally heard what you were referring to, but not to > be able to give you an answer that's another thing. > > Mojo > > my appointment..... > > > > Well... As you can see I was not hospitalized. > > > > Went to my appointment today with the lung dr. Did all those not so > > fun breathing tests and of course passed them as usual. (well I > > should say there was no change from all the previous tests) > > > > Went in talked with the doctor he says - I don't know what to tell > > you, all your tests we have done in the past 3 weeks prove to show us > > your fine, but from what your describing sounds all to be heart > > related but even all the heart tests we have performed are showing no > > change. I was like - Look, my quality of life sucks, I can't breath, > > I can't lay down without going into a coughing frenzy which then > > leads into me either vomitting or losing my breath and turning blue. > > SOMETHING is NOT right! > > He told me to get up on the table and lay down so he could hear what > > I was describing and he finally heard it. Then as I went into a > > coughing frenzy he helped me up and said hang on a second. He comes > > back and says " we're going to do a bronchoscopy on you and see if > > there is some sort of obstruction going on in there " As much as I > > hate that test I was like fine. So went and did the god awful test > > and he says well good news and bad news - the good news as I have > > been telling you all along is that you don't have emphasema, you > > don't have lung cancer, the bad news is I don't know what is causing > > this but call me Friday and hopefully I will have some more answers. > > I just said you know this is sad when I would rather hear you tell me > > I had cancer or emphasema so that at least I knew what the heck was > > going on, what was causing all this -- but NO - again no answer - He > > even brought in 2 other lung docs, they went thru all the tests, > > listened to me, and all said the same damn thing. > > So I am screwed... > > > > My throat and nose hurt from the novacaine and scope so I am going to > > go back to the couch and get in my sitting position and try to get > > some much needed rest. I just wanted to update those of you who were > > intrested. > > > > Take care all and have a good night. > > > > Hugs > > Deanna > > > > > > > > > > > > " The LUPIES Store " Come check out our store... > > http://www.cafepress.com/thelupies > > > > " The LUPIES Web Page " > > http://www.itzarion.com/lupusgroup.html > > > > " The LUPIES online photo albums! " > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/lupies > > Quote Link to comment Share on other sites More sharing options...
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