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bashful1965 wrote:

>

> I don't think I'm out

> of the woods yet as far as MS goes because the lesions can be so

> small that they don't show up on the MRI. Wish me luck though!!!

You have all the luck you want from me. I thought what you said was

interesting because my neurologist acted like because my MRI came back

with no lesions, I didn't have MS. She maybe have used the MRI in

addition to something else though that I'm not aware of.

Darcy

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bashful1965 wrote:

>

> I don't think I'm out

> of the woods yet as far as MS goes because the lesions can be so

> small that they don't show up on the MRI. Wish me luck though!!!

You have all the luck you want from me. I thought what you said was

interesting because my neurologist acted like because my MRI came back

with no lesions, I didn't have MS. She maybe have used the MRI in

addition to something else though that I'm not aware of.

Darcy

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Anne, I've been through biofeedback, physiotherapy, tried ever drug and exercise

known to man (well not really, but I'm sure you get my drift :-) Most of it has

been next to useless. I have fibro, arthritis, vertebrae spurs, herniated

discs, and lumbar and cervical stenosis. A few years ago, I had surgery on my

lower back and it helped a great deal for the leg and lower back pain, but did

nothing for the rest of me. I still hurt, trip over dustmites and drop things,

and so the docs keep looking for MS.

But.....

I had my first steroid injection ever (C3 thru C5) on December 10th of this

year. For two days after, I felt like I had been run over twice by a large

lorry. Then on day three, the steroid started working. Not only did it lessen

my almost constant migraine, it also improved my fibro and the other symptoms.

I haven't walked into a wall for the past week! I have another injection

scheduled and a meeting with a neurosurgeon to discuss surgical options. I

figure if one steroid injection could make that much difference, I am going to

go for the whole ball of wax!! They can do a maximum of three injections in six

months and I'm gonna get all three. I've been sick for fifteen years and this

week is the best I have felt since 1991. I figure if the doctors wanna use

needles and if they wanna chip and drill and smash - I'm gonna let 'em!

Lyndi

bashful1965 wrote:

> Well, I finally got the results from my MRIs. Just a reminder, I

> failed my neuro exam and he wanted the MRIs to see what was going on

> w/ my central nervous system. My brain is just fine...no lesions

> which is good (that means MS) but my spine isn't go good. I have

> straightening of the cervical curvature, in C5-C6 I have a bone spur

> as well as a 1-2mm protrusion/herniation, in C6-C7 I have a 2mm disc

> protrusion/herniation. Well, well, no wonder my back hurts so

> friggin' bad all the time. I thought my fibro had found a new home

> there but it's something else entirely. I see the neuro to discuss

> these findings the Thursday after Christmas. I don't think I'm out

> of the woods yet as far as MS goes because the lesions can be so

> small that they don't show up on the MRI. Wish me luck though!!!

>

> Anne

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: -owner

>

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Anne,

When reading your post I have a question about the MRI. Did the MRI read

normal. I thought that an MRI is one way of testing for MS, it should show

lesions of plaque. Did your neuro tell you that it means MS. I'm scared I have

many MS symptoms and my MRI was normal. I was relieved, now I don't know.

Please respond.

Happy Holidays Dana

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I will know more next Thursday but I've been told from people at a couple MS

sites that the lesions don't always show up on the MRI if they are new and very

small. I don't know this as fact but I will know next week and will let you

know.

Anne

Re: MRI results

Anne,

When reading your post I have a question about the MRI. Did the MRI read

normal. I thought that an MRI is one way of testing for MS, it should show

lesions of plaque. Did your neuro tell you that it means MS. I'm scared I have

many MS symptoms and my MRI was normal. I was relieved, now I don't know.

Please respond.

Happy Holidays Dana

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Dana - this is from the MS Society website regarding MS not always

showing up on MRI.

" It should be remembered, however, that approximately 5% of patients

with clinically definite MS do not show lesions on MRI, and the

absence of demyelination on MRI does not rule out MS. Also, since

many lesions seen on MRI may be in so-called " silent " areas of the

brain, it is not always possible to make a specific correlation

between what is seen on the MRI scan and the patient's clinical signs

and symptoms. In addition, with advancing age (probably over age 50),

there are often small areas seen on MRI in healthy people that

resemble MS but are actually related to the aging process, and are of

no clinical significance. "

Anne

> Anne,

> When reading your post I have a question about the MRI. Did

the MRI read normal. I thought that an MRI is one way of testing for

MS, it should show lesions of plaque. Did your neuro tell you that

it means MS. I'm scared I have many MS symptoms and my MRI was

normal. I was relieved, now I don't know.

> Please respond.

> Happy Holidays Dana

>

>

>

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When I had my MRI's, they injected me with something to enhance the image.

Sometimes in order to see any lesions, if there are any, they need to inject

you with the enhancer. They usually do a " before " scan and an " after "

scan, the after scan showed lesions that the " before " scan didn't. I

cannot for the life of me remember what they call it.

Rhonda

Re: MRI results

> Anne,

> When reading your post I have a question about the MRI. Did the MRI

read normal. I thought that an MRI is one way of testing for MS, it should

show lesions of plaque. Did your neuro tell you that it means MS. I'm

scared I have many MS symptoms and my MRI was normal. I was relieved, now I

don't know.

> Please respond.

> Happy Holidays Dana

>

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When I had my MRI's, they injected me with something to enhance the image.

Sometimes in order to see any lesions, if there are any, they need to inject

you with the enhancer. They usually do a " before " scan and an " after "

scan, the after scan showed lesions that the " before " scan didn't. I

cannot for the life of me remember what they call it.

Rhonda

Re: MRI results

> Anne,

> When reading your post I have a question about the MRI. Did the MRI

read normal. I thought that an MRI is one way of testing for MS, it should

show lesions of plaque. Did your neuro tell you that it means MS. I'm

scared I have many MS symptoms and my MRI was normal. I was relieved, now I

don't know.

> Please respond.

> Happy Holidays Dana

>

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Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for the info

though.

Anne

Re: MRI results

> Anne,

> When reading your post I have a question about the MRI. Did the MRI

read normal. I thought that an MRI is one way of testing for MS, it should

show lesions of plaque. Did your neuro tell you that it means MS. I'm

scared I have many MS symptoms and my MRI was normal. I was relieved, now I

don't know.

> Please respond.

> Happy Holidays Dana

>

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Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for the info

though.

Anne

Re: MRI results

> Anne,

> When reading your post I have a question about the MRI. Did the MRI

read normal. I thought that an MRI is one way of testing for MS, it should

show lesions of plaque. Did your neuro tell you that it means MS. I'm

scared I have many MS symptoms and my MRI was normal. I was relieved, now I

don't know.

> Please respond.

> Happy Holidays Dana

>

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Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for the info

though.

Anne

Re: MRI results

> Anne,

> When reading your post I have a question about the MRI. Did the MRI

read normal. I thought that an MRI is one way of testing for MS, it should

show lesions of plaque. Did your neuro tell you that it means MS. I'm

scared I have many MS symptoms and my MRI was normal. I was relieved, now I

don't know.

> Please respond.

> Happy Holidays Dana

>

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Rhonda,

I believe its just usually called " contrast material " . Depending on

your diagnostic center the actual drug can vary. I can never

remember what the name of the material is thats used at the

facilities that I go to. But over the years, I have noticed that it

changes. Anyway, the contrast really helps enhance the images to

better highlight any abnormalities. Ever since my first surgery I've

had to have the injection in the middle of the films. I've never had

a reaction to it.

This link is a good explanation of what contrast material is and why

its needed.

http://radnuc.lhsc.on.ca/uwo/LHSCcontrast.html

HTH,

Nikki

> When I had my MRI's, they injected me with something to enhance the

image.

> Sometimes in order to see any lesions, if there are any, they need

to inject

> you with the enhancer. They usually do a " before " scan and

an " after "

> scan, the after scan showed lesions that the " before " scan

didn't. I

> cannot for the life of me remember what they call it.

>

> Rhonda

>

>

> Re: MRI results

>

>

> > Anne,

> > When reading your post I have a question about the MRI. Did

the MRI

> read normal. I thought that an MRI is one way of testing for MS,

it should

> show lesions of plaque. Did your neuro tell you that it means MS.

I'm

> scared I have many MS symptoms and my MRI was normal. I was

relieved, now I

> don't know.

> > Please respond.

> > Happy Holidays Dana

> >

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Rhonda,

I believe its just usually called " contrast material " . Depending on

your diagnostic center the actual drug can vary. I can never

remember what the name of the material is thats used at the

facilities that I go to. But over the years, I have noticed that it

changes. Anyway, the contrast really helps enhance the images to

better highlight any abnormalities. Ever since my first surgery I've

had to have the injection in the middle of the films. I've never had

a reaction to it.

This link is a good explanation of what contrast material is and why

its needed.

http://radnuc.lhsc.on.ca/uwo/LHSCcontrast.html

HTH,

Nikki

> When I had my MRI's, they injected me with something to enhance the

image.

> Sometimes in order to see any lesions, if there are any, they need

to inject

> you with the enhancer. They usually do a " before " scan and

an " after "

> scan, the after scan showed lesions that the " before " scan

didn't. I

> cannot for the life of me remember what they call it.

>

> Rhonda

>

>

> Re: MRI results

>

>

> > Anne,

> > When reading your post I have a question about the MRI. Did

the MRI

> read normal. I thought that an MRI is one way of testing for MS,

it should

> show lesions of plaque. Did your neuro tell you that it means MS.

I'm

> scared I have many MS symptoms and my MRI was normal. I was

relieved, now I

> don't know.

> > Please respond.

> > Happy Holidays Dana

> >

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Rhonda,

I believe its just usually called " contrast material " . Depending on

your diagnostic center the actual drug can vary. I can never

remember what the name of the material is thats used at the

facilities that I go to. But over the years, I have noticed that it

changes. Anyway, the contrast really helps enhance the images to

better highlight any abnormalities. Ever since my first surgery I've

had to have the injection in the middle of the films. I've never had

a reaction to it.

This link is a good explanation of what contrast material is and why

its needed.

http://radnuc.lhsc.on.ca/uwo/LHSCcontrast.html

HTH,

Nikki

> When I had my MRI's, they injected me with something to enhance the

image.

> Sometimes in order to see any lesions, if there are any, they need

to inject

> you with the enhancer. They usually do a " before " scan and

an " after "

> scan, the after scan showed lesions that the " before " scan

didn't. I

> cannot for the life of me remember what they call it.

>

> Rhonda

>

>

> Re: MRI results

>

>

> > Anne,

> > When reading your post I have a question about the MRI. Did

the MRI

> read normal. I thought that an MRI is one way of testing for MS,

it should

> show lesions of plaque. Did your neuro tell you that it means MS.

I'm

> scared I have many MS symptoms and my MRI was normal. I was

relieved, now I

> don't know.

> > Please respond.

> > Happy Holidays Dana

> >

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It's not a dye. It's a contrast agent called gadolinium. You have to sign

a consent form for them to be able to inject you with the stuff. Do you

remember if that is what it was called?

I'm just curious.

Rhonda

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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It's not a dye. It's a contrast agent called gadolinium. You have to sign

a consent form for them to be able to inject you with the stuff. Do you

remember if that is what it was called?

I'm just curious.

Rhonda

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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nope...I was on valium so I was kind of out of it but is says what they used on

the paperwork I have at home.

Anne

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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nope...I was on valium so I was kind of out of it but is says what they used on

the paperwork I have at home.

Anne

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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nope...I was on valium so I was kind of out of it but is says what they used on

the paperwork I have at home.

Anne

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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I think this is just iodine. They used this on me for a cat scan once and I was

severely allergic to it. Now every time I go to the Dr. and they ask me for

allergies I have to tell them this.

Sincerely, Pamela Rauch

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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I think this is just iodine. They used this on me for a cat scan once and I was

severely allergic to it. Now every time I go to the Dr. and they ask me for

allergies I have to tell them this.

Sincerely, Pamela Rauch

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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I think this is just iodine. They used this on me for a cat scan once and I was

severely allergic to it. Now every time I go to the Dr. and they ask me for

allergies I have to tell them this.

Sincerely, Pamela Rauch

Re: MRI results

> Trust me, I've been injected w/ dye. My MRI's took 2 days. Thanks for

the info though.

>

> Anne

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  • 2 years later...
Guest guest

Hi all,

Thanks again for everyones concern. I just recieved the results from my MRI of

the brain and it pretty much said the same thing as the CT. There are areas of

hyperintensity but nothing that is suggestive of anything serious although the

doctor's report did say they could be changes of chronic small vessel disease.

Could that be related to VEDS?? My GP is referring me to a neurologist just to

be sure. Also I think she said that the neurologist she is sending me to would

deal specifically with demyelination, which they said the areas might be

suspicious of. Has anyone with VEDS had problems like this??

Thanks again

Betty

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Guest guest

> Hi all,

> Thanks again for everyones concern. I just recieved the results

from my MRI of the brain and it pretty much said the same thing as

the CT. There are areas of hyperintensity but nothing that is

suggestive of anything serious although the doctor's report did say

they could be changes of chronic small vessel disease.

Hi Betty,

So glad you got the results and they don't seem threatening at this

point. Please let us know what the neuro says. Good luck, we're all

pulling for you!

Love Lana

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