Re: NIH surprise, catching up/Lana/

[Guest guest]

Hi Lana,,

They did the biopsies on Jan 8th of this year at NIH. Still no results yet

..They told me to call again around mid- April. They said my cells were

growing extremely slowing. So no I still don't know what type of EDS I have

yet. They firmly do believe I have it. They are looking at Types 1,2,4,6, or

7. The waiting is very hard on me and stressful. Once the diagnosis comes

back, they will send me to any clinic or department I need, including all

scanning. Thanks for asking.

Hugs, S.

RE: NIH surprise, catching up

> , how long has it been???? So you don't know what type you have?

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> Love Lana

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> I'm still waiting for my biopsies to come back from NIH, the EDS ones.

Long

> wait!

> Sincerely, S.

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>

[Guest guest]

Please let me know what you find out, OK?? I pray it's not 4, ! None

are good, but 4 is horrible.

Love Lana

Re: NIH surprise, catching up/Lana/

Once the diagnosis comes

back, they will send me to any clinic or department I need, including all

scanning. Thanks for asking.

Hugs, S.

[Guest guest]

Please let me know what you find out, OK?? I pray it's not 4, ! None

are good, but 4 is horrible.

Love Lana

Re: NIH surprise, catching up/Lana/

Once the diagnosis comes

back, they will send me to any clinic or department I need, including all

scanning. Thanks for asking.

Hugs, S.