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Hi everyone I'm sorry I haven't written much lately. I do read as

many of the posts as I can though. I really appreciate all the

information everyone shares it helps immensely with still being new

to this disease.

I had a scary situation this morning. I woke up and I felt funny

like something was wrong. As my mind got a little clearer I

realized I had such severe muscle weakness I couldn't move anything

except my head. My husband was home and being new to all this

didn't know what to do. He kept rubbing my arms and asking me if I

could feel it. I had no problem feeling I just had absolutely now

strength in my body and was only able to move my head. I was also

having a hard time speaking. After about a 1/2 hour I was able to

lift my arms and within an hour could stand up. I had a bad

headache and felt nausea the rest of the day I also had that feeling

of doing a major exercise workout, my muscles felt extremely

fatigued. We called my Primary care who is out of town until June

(we found out) and they told us to go to the emergency room or wait

till 5:00 pm and go into the after hours care facility.

I was feeling better and figured either place would probably make me

sit for hours just to tell me they didn't know what to tell me

except to go to a specialist. So I decided to forget it for now.

Later this evening I talked to a man from my church who is a

pharmacist and very knowledgable on a lot of conditions. He told me

my symptoms sounded like I was low on electrolytes which is a common

occurance with lupus. He said I really needed to get into a doctor

as soon as possible but would suggest until then to drink a couple

of gatorades a day along with eating a banana and drinking a glass

of orange juice to build my electrolytes up and add potassium to my

body. Has anyone had this kind of thing happen to them? If so what

did you do? I sure appreciate any help! I hope everyone is doing

well and having some good days! Take care! Carol

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Carol, I know that if I was low on potassium, and this happens a lot with

my kidneys, I would get muscle cramps in my calves, especially during

sleeping. I get a lot weaknesses, but nothing so severe. What worries me

more is the fact that you said you had problems speaking. I never have that

problems (no joke). I'm sure other members will give you different

suggestions, but I have a feeling everyone will tell you to take it to the

doctor. I don't think anything can be done until tests are run to figure out

whether there's a deficit of some chemical in your body that may be causing

this.

I would see a doctor real soon, even if it meant the ER. Doesn't any other

doctor cover when your primary is away?

Mojo

I'm back and wonder has anyone had this happen to them?

> Hi everyone I'm sorry I haven't written much lately. I do read as

> many of the posts as I can though. I really appreciate all the

> information everyone shares it helps immensely with still being new

> to this disease.

> I had a scary situation this morning. I woke up and I felt funny

> like something was wrong. As my mind got a little clearer I

> realized I had such severe muscle weakness I couldn't move anything

> except my head. My husband was home and being new to all this

> didn't know what to do. He kept rubbing my arms and asking me if I

> could feel it. I had no problem feeling I just had absolutely now

> strength in my body and was only able to move my head. I was also

> having a hard time speaking. After about a 1/2 hour I was able to

> lift my arms and within an hour could stand up. I had a bad

> headache and felt nausea the rest of the day I also had that feeling

> of doing a major exercise workout, my muscles felt extremely

> fatigued. We called my Primary care who is out of town until June

> (we found out) and they told us to go to the emergency room or wait

> till 5:00 pm and go into the after hours care facility.

> I was feeling better and figured either place would probably make me

> sit for hours just to tell me they didn't know what to tell me

> except to go to a specialist. So I decided to forget it for now.

> Later this evening I talked to a man from my church who is a

> pharmacist and very knowledgable on a lot of conditions. He told me

> my symptoms sounded like I was low on electrolytes which is a common

> occurance with lupus. He said I really needed to get into a doctor

> as soon as possible but would suggest until then to drink a couple

> of gatorades a day along with eating a banana and drinking a glass

> of orange juice to build my electrolytes up and add potassium to my

> body. Has anyone had this kind of thing happen to them? If so what

> did you do? I sure appreciate any help! I hope everyone is doing

> well and having some good days! Take care! Carol

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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Guest guest

Carol, I know that if I was low on potassium, and this happens a lot with

my kidneys, I would get muscle cramps in my calves, especially during

sleeping. I get a lot weaknesses, but nothing so severe. What worries me

more is the fact that you said you had problems speaking. I never have that

problems (no joke). I'm sure other members will give you different

suggestions, but I have a feeling everyone will tell you to take it to the

doctor. I don't think anything can be done until tests are run to figure out

whether there's a deficit of some chemical in your body that may be causing

this.

I would see a doctor real soon, even if it meant the ER. Doesn't any other

doctor cover when your primary is away?

Mojo

I'm back and wonder has anyone had this happen to them?

> Hi everyone I'm sorry I haven't written much lately. I do read as

> many of the posts as I can though. I really appreciate all the

> information everyone shares it helps immensely with still being new

> to this disease.

> I had a scary situation this morning. I woke up and I felt funny

> like something was wrong. As my mind got a little clearer I

> realized I had such severe muscle weakness I couldn't move anything

> except my head. My husband was home and being new to all this

> didn't know what to do. He kept rubbing my arms and asking me if I

> could feel it. I had no problem feeling I just had absolutely now

> strength in my body and was only able to move my head. I was also

> having a hard time speaking. After about a 1/2 hour I was able to

> lift my arms and within an hour could stand up. I had a bad

> headache and felt nausea the rest of the day I also had that feeling

> of doing a major exercise workout, my muscles felt extremely

> fatigued. We called my Primary care who is out of town until June

> (we found out) and they told us to go to the emergency room or wait

> till 5:00 pm and go into the after hours care facility.

> I was feeling better and figured either place would probably make me

> sit for hours just to tell me they didn't know what to tell me

> except to go to a specialist. So I decided to forget it for now.

> Later this evening I talked to a man from my church who is a

> pharmacist and very knowledgable on a lot of conditions. He told me

> my symptoms sounded like I was low on electrolytes which is a common

> occurance with lupus. He said I really needed to get into a doctor

> as soon as possible but would suggest until then to drink a couple

> of gatorades a day along with eating a banana and drinking a glass

> of orange juice to build my electrolytes up and add potassium to my

> body. Has anyone had this kind of thing happen to them? If so what

> did you do? I sure appreciate any help! I hope everyone is doing

> well and having some good days! Take care! Carol

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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Guest guest

Carol, I know that if I was low on potassium, and this happens a lot with

my kidneys, I would get muscle cramps in my calves, especially during

sleeping. I get a lot weaknesses, but nothing so severe. What worries me

more is the fact that you said you had problems speaking. I never have that

problems (no joke). I'm sure other members will give you different

suggestions, but I have a feeling everyone will tell you to take it to the

doctor. I don't think anything can be done until tests are run to figure out

whether there's a deficit of some chemical in your body that may be causing

this.

I would see a doctor real soon, even if it meant the ER. Doesn't any other

doctor cover when your primary is away?

Mojo

I'm back and wonder has anyone had this happen to them?

> Hi everyone I'm sorry I haven't written much lately. I do read as

> many of the posts as I can though. I really appreciate all the

> information everyone shares it helps immensely with still being new

> to this disease.

> I had a scary situation this morning. I woke up and I felt funny

> like something was wrong. As my mind got a little clearer I

> realized I had such severe muscle weakness I couldn't move anything

> except my head. My husband was home and being new to all this

> didn't know what to do. He kept rubbing my arms and asking me if I

> could feel it. I had no problem feeling I just had absolutely now

> strength in my body and was only able to move my head. I was also

> having a hard time speaking. After about a 1/2 hour I was able to

> lift my arms and within an hour could stand up. I had a bad

> headache and felt nausea the rest of the day I also had that feeling

> of doing a major exercise workout, my muscles felt extremely

> fatigued. We called my Primary care who is out of town until June

> (we found out) and they told us to go to the emergency room or wait

> till 5:00 pm and go into the after hours care facility.

> I was feeling better and figured either place would probably make me

> sit for hours just to tell me they didn't know what to tell me

> except to go to a specialist. So I decided to forget it for now.

> Later this evening I talked to a man from my church who is a

> pharmacist and very knowledgable on a lot of conditions. He told me

> my symptoms sounded like I was low on electrolytes which is a common

> occurance with lupus. He said I really needed to get into a doctor

> as soon as possible but would suggest until then to drink a couple

> of gatorades a day along with eating a banana and drinking a glass

> of orange juice to build my electrolytes up and add potassium to my

> body. Has anyone had this kind of thing happen to them? If so what

> did you do? I sure appreciate any help! I hope everyone is doing

> well and having some good days! Take care! Carol

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/lupies

>

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