Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Hi everyone I'm sorry I haven't written much lately. I do read as many of the posts as I can though. I really appreciate all the information everyone shares it helps immensely with still being new to this disease. I had a scary situation this morning. I woke up and I felt funny like something was wrong. As my mind got a little clearer I realized I had such severe muscle weakness I couldn't move anything except my head. My husband was home and being new to all this didn't know what to do. He kept rubbing my arms and asking me if I could feel it. I had no problem feeling I just had absolutely now strength in my body and was only able to move my head. I was also having a hard time speaking. After about a 1/2 hour I was able to lift my arms and within an hour could stand up. I had a bad headache and felt nausea the rest of the day I also had that feeling of doing a major exercise workout, my muscles felt extremely fatigued. We called my Primary care who is out of town until June (we found out) and they told us to go to the emergency room or wait till 5:00 pm and go into the after hours care facility. I was feeling better and figured either place would probably make me sit for hours just to tell me they didn't know what to tell me except to go to a specialist. So I decided to forget it for now. Later this evening I talked to a man from my church who is a pharmacist and very knowledgable on a lot of conditions. He told me my symptoms sounded like I was low on electrolytes which is a common occurance with lupus. He said I really needed to get into a doctor as soon as possible but would suggest until then to drink a couple of gatorades a day along with eating a banana and drinking a glass of orange juice to build my electrolytes up and add potassium to my body. Has anyone had this kind of thing happen to them? If so what did you do? I sure appreciate any help! I hope everyone is doing well and having some good days! Take care! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Carol, I know that if I was low on potassium, and this happens a lot with my kidneys, I would get muscle cramps in my calves, especially during sleeping. I get a lot weaknesses, but nothing so severe. What worries me more is the fact that you said you had problems speaking. I never have that problems (no joke). I'm sure other members will give you different suggestions, but I have a feeling everyone will tell you to take it to the doctor. I don't think anything can be done until tests are run to figure out whether there's a deficit of some chemical in your body that may be causing this. I would see a doctor real soon, even if it meant the ER. Doesn't any other doctor cover when your primary is away? Mojo I'm back and wonder has anyone had this happen to them? > Hi everyone I'm sorry I haven't written much lately. I do read as > many of the posts as I can though. I really appreciate all the > information everyone shares it helps immensely with still being new > to this disease. > I had a scary situation this morning. I woke up and I felt funny > like something was wrong. As my mind got a little clearer I > realized I had such severe muscle weakness I couldn't move anything > except my head. My husband was home and being new to all this > didn't know what to do. He kept rubbing my arms and asking me if I > could feel it. I had no problem feeling I just had absolutely now > strength in my body and was only able to move my head. I was also > having a hard time speaking. After about a 1/2 hour I was able to > lift my arms and within an hour could stand up. I had a bad > headache and felt nausea the rest of the day I also had that feeling > of doing a major exercise workout, my muscles felt extremely > fatigued. We called my Primary care who is out of town until June > (we found out) and they told us to go to the emergency room or wait > till 5:00 pm and go into the after hours care facility. > I was feeling better and figured either place would probably make me > sit for hours just to tell me they didn't know what to tell me > except to go to a specialist. So I decided to forget it for now. > Later this evening I talked to a man from my church who is a > pharmacist and very knowledgable on a lot of conditions. He told me > my symptoms sounded like I was low on electrolytes which is a common > occurance with lupus. He said I really needed to get into a doctor > as soon as possible but would suggest until then to drink a couple > of gatorades a day along with eating a banana and drinking a glass > of orange juice to build my electrolytes up and add potassium to my > body. Has anyone had this kind of thing happen to them? If so what > did you do? I sure appreciate any help! I hope everyone is doing > well and having some good days! Take care! Carol > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Carol, I know that if I was low on potassium, and this happens a lot with my kidneys, I would get muscle cramps in my calves, especially during sleeping. I get a lot weaknesses, but nothing so severe. What worries me more is the fact that you said you had problems speaking. I never have that problems (no joke). I'm sure other members will give you different suggestions, but I have a feeling everyone will tell you to take it to the doctor. I don't think anything can be done until tests are run to figure out whether there's a deficit of some chemical in your body that may be causing this. I would see a doctor real soon, even if it meant the ER. Doesn't any other doctor cover when your primary is away? Mojo I'm back and wonder has anyone had this happen to them? > Hi everyone I'm sorry I haven't written much lately. I do read as > many of the posts as I can though. I really appreciate all the > information everyone shares it helps immensely with still being new > to this disease. > I had a scary situation this morning. I woke up and I felt funny > like something was wrong. As my mind got a little clearer I > realized I had such severe muscle weakness I couldn't move anything > except my head. My husband was home and being new to all this > didn't know what to do. He kept rubbing my arms and asking me if I > could feel it. I had no problem feeling I just had absolutely now > strength in my body and was only able to move my head. I was also > having a hard time speaking. After about a 1/2 hour I was able to > lift my arms and within an hour could stand up. I had a bad > headache and felt nausea the rest of the day I also had that feeling > of doing a major exercise workout, my muscles felt extremely > fatigued. We called my Primary care who is out of town until June > (we found out) and they told us to go to the emergency room or wait > till 5:00 pm and go into the after hours care facility. > I was feeling better and figured either place would probably make me > sit for hours just to tell me they didn't know what to tell me > except to go to a specialist. So I decided to forget it for now. > Later this evening I talked to a man from my church who is a > pharmacist and very knowledgable on a lot of conditions. He told me > my symptoms sounded like I was low on electrolytes which is a common > occurance with lupus. He said I really needed to get into a doctor > as soon as possible but would suggest until then to drink a couple > of gatorades a day along with eating a banana and drinking a glass > of orange juice to build my electrolytes up and add potassium to my > body. Has anyone had this kind of thing happen to them? If so what > did you do? I sure appreciate any help! I hope everyone is doing > well and having some good days! Take care! Carol > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Carol, I know that if I was low on potassium, and this happens a lot with my kidneys, I would get muscle cramps in my calves, especially during sleeping. I get a lot weaknesses, but nothing so severe. What worries me more is the fact that you said you had problems speaking. I never have that problems (no joke). I'm sure other members will give you different suggestions, but I have a feeling everyone will tell you to take it to the doctor. I don't think anything can be done until tests are run to figure out whether there's a deficit of some chemical in your body that may be causing this. I would see a doctor real soon, even if it meant the ER. Doesn't any other doctor cover when your primary is away? Mojo I'm back and wonder has anyone had this happen to them? > Hi everyone I'm sorry I haven't written much lately. I do read as > many of the posts as I can though. I really appreciate all the > information everyone shares it helps immensely with still being new > to this disease. > I had a scary situation this morning. I woke up and I felt funny > like something was wrong. As my mind got a little clearer I > realized I had such severe muscle weakness I couldn't move anything > except my head. My husband was home and being new to all this > didn't know what to do. He kept rubbing my arms and asking me if I > could feel it. I had no problem feeling I just had absolutely now > strength in my body and was only able to move my head. I was also > having a hard time speaking. After about a 1/2 hour I was able to > lift my arms and within an hour could stand up. I had a bad > headache and felt nausea the rest of the day I also had that feeling > of doing a major exercise workout, my muscles felt extremely > fatigued. We called my Primary care who is out of town until June > (we found out) and they told us to go to the emergency room or wait > till 5:00 pm and go into the after hours care facility. > I was feeling better and figured either place would probably make me > sit for hours just to tell me they didn't know what to tell me > except to go to a specialist. So I decided to forget it for now. > Later this evening I talked to a man from my church who is a > pharmacist and very knowledgable on a lot of conditions. He told me > my symptoms sounded like I was low on electrolytes which is a common > occurance with lupus. He said I really needed to get into a doctor > as soon as possible but would suggest until then to drink a couple > of gatorades a day along with eating a banana and drinking a glass > of orange juice to build my electrolytes up and add potassium to my > body. Has anyone had this kind of thing happen to them? If so what > did you do? I sure appreciate any help! I hope everyone is doing > well and having some good days! Take care! Carol > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
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