Re: Update on me and question.

[Guest guest]

, Pain free days with us, is like wishing a healthy person wins the lottery. That is why we often

wish each other pain free days. It's a great gift when we get even part of a day without pain. Kind

of corny, I know, like calling a giant "shorty", but you get the picture. LOL

Have a good time at the conference, and tell us all about it. Loving hugs, MM

[Guest guest]

, I don't know about anyone else, but I never had pain free days for a few years and then a couple of months ago they started me on a new med called Avinza. That keeps me pain free, not just the fibro and lupus, but also the migraines I used to get. that's about it for me!

a

I don't post much but I read all the messages. I've been to my new rheumy a couple of times now and have been having tests, all results are not in yet. However, he told me on Monday that in addition to the lupus I have fibromyalgia. I am just beginning to learn about that diagnosis as it was not something I expected or knew anything about. Heck, after more than four years, I'm still learning about lupus.

I see that y'all sometimes wish each other more pain free days and my question is do you really have pain free days? I don't know what that feels like, I can't remember pain free days. I have days of more pain and less pain but can't imagine no pain. I sure hope to get some soon.

I know that many of you have gone through very trying

[Guest guest]

, I don't know about anyone else, but I never had pain free days for a few years and then a couple of months ago they started me on a new med called Avinza. That keeps me pain free, not just the fibro and lupus, but also the migraines I used to get. that's about it for me!

a

I don't post much but I read all the messages. I've been to my new rheumy a couple of times now and have been having tests, all results are not in yet. However, he told me on Monday that in addition to the lupus I have fibromyalgia. I am just beginning to learn about that diagnosis as it was not something I expected or knew anything about. Heck, after more than four years, I'm still learning about lupus.

I see that y'all sometimes wish each other more pain free days and my question is do you really have pain free days? I don't know what that feels like, I can't remember pain free days. I have days of more pain and less pain but can't imagine no pain. I sure hope to get some soon.

I know that many of you have gone through very trying

[Guest guest]

, I don't know about anyone else, but I never had pain free days for a few years and then a couple of months ago they started me on a new med called Avinza. That keeps me pain free, not just the fibro and lupus, but also the migraines I used to get. that's about it for me!

a

I don't post much but I read all the messages. I've been to my new rheumy a couple of times now and have been having tests, all results are not in yet. However, he told me on Monday that in addition to the lupus I have fibromyalgia. I am just beginning to learn about that diagnosis as it was not something I expected or knew anything about. Heck, after more than four years, I'm still learning about lupus.

I see that y'all sometimes wish each other more pain free days and my question is do you really have pain free days? I don't know what that feels like, I can't remember pain free days. I have days of more pain and less pain but can't imagine no pain. I sure hope to get some soon.

I know that many of you have gone through very trying

[Guest guest]

Hi, this is Robyn, Have you experienced any side effects from the

Avinza? I posted a few times that I had bad, bad intestinal cramps,

nausea, etc from the Plaquenil. I hear it has helped others, but I

don't know if I can trade the pain for the stomach problems. I was

only diagnosed with Lupus a few months ago and I have not had a pain

free day yet. I am grateful for the days with less pain. I know that

the more I exert myself, the more pain I have. Fatigue turns to pain

for me. Please tell me more about Avinza. Thanks so much, take care,

Robyn

> In a message dated 5/14/2004 1:29:28 PM US Mountain Standard Time,

> katebird01@y... writes:

>

>

> , I don't know about anyone else, but I never had pain

free days for

> a few years and then a couple of months ago they started me on a

new med

> called Avinza. That keeps me pain free, not just the fibro and

lupus, but also the

> migraines I used to get. that's about it for me!

> a

>

> > I don't post much but I read all the messages. I've been to my

new rheumy

> > a couple of times now and have been having tests, all results

are not in yet.

> > However, he told me on Monday that in addition to the lupus I

have

> > fibromyalgia. I am just beginning to learn about that diagnosis

as it was not

> > something I expected or knew anything about. Heck, after more

than four years, I'm

> > still learning about lupus.

> >

> > I see that y'all sometimes wish each other more pain free days

and my

> > question is do you really have pain free days? I don't know

what that feels like,

> > I can't remember pain free days. I have days of more pain and

less pain but

> > can't imagine no pain. I sure hope to get some soon.

> >

> > I know that many of you have gone through very trying

> >

> >

[Guest guest]

Hi, this is Robyn, Have you experienced any side effects from the

Avinza? I posted a few times that I had bad, bad intestinal cramps,

nausea, etc from the Plaquenil. I hear it has helped others, but I

don't know if I can trade the pain for the stomach problems. I was

only diagnosed with Lupus a few months ago and I have not had a pain

free day yet. I am grateful for the days with less pain. I know that

the more I exert myself, the more pain I have. Fatigue turns to pain

for me. Please tell me more about Avinza. Thanks so much, take care,

Robyn

> In a message dated 5/14/2004 1:29:28 PM US Mountain Standard Time,

> katebird01@y... writes:

>

>

> , I don't know about anyone else, but I never had pain

free days for

> a few years and then a couple of months ago they started me on a

new med

> called Avinza. That keeps me pain free, not just the fibro and

lupus, but also the

> migraines I used to get. that's about it for me!

> a

>

> > I don't post much but I read all the messages. I've been to my

new rheumy

> > a couple of times now and have been having tests, all results

are not in yet.

> > However, he told me on Monday that in addition to the lupus I

have

> > fibromyalgia. I am just beginning to learn about that diagnosis

as it was not

> > something I expected or knew anything about. Heck, after more

than four years, I'm

> > still learning about lupus.

> >

> > I see that y'all sometimes wish each other more pain free days

and my

> > question is do you really have pain free days? I don't know

what that feels like,

> > I can't remember pain free days. I have days of more pain and

less pain but

> > can't imagine no pain. I sure hope to get some soon.

> >

> > I know that many of you have gone through very trying

> >

> >

[Guest guest]

Hi, this is Robyn, Have you experienced any side effects from the

Avinza? I posted a few times that I had bad, bad intestinal cramps,

nausea, etc from the Plaquenil. I hear it has helped others, but I

don't know if I can trade the pain for the stomach problems. I was

only diagnosed with Lupus a few months ago and I have not had a pain

free day yet. I am grateful for the days with less pain. I know that

the more I exert myself, the more pain I have. Fatigue turns to pain

for me. Please tell me more about Avinza. Thanks so much, take care,

Robyn

> In a message dated 5/14/2004 1:29:28 PM US Mountain Standard Time,

> katebird01@y... writes:

>

>

> , I don't know about anyone else, but I never had pain

free days for

> a few years and then a couple of months ago they started me on a

new med

> called Avinza. That keeps me pain free, not just the fibro and

lupus, but also the

> migraines I used to get. that's about it for me!

> a

>

> > I don't post much but I read all the messages. I've been to my

new rheumy

> > a couple of times now and have been having tests, all results

are not in yet.

> > However, he told me on Monday that in addition to the lupus I

have

> > fibromyalgia. I am just beginning to learn about that diagnosis

as it was not

> > something I expected or knew anything about. Heck, after more

than four years, I'm

> > still learning about lupus.

> >

> > I see that y'all sometimes wish each other more pain free days

and my

> > question is do you really have pain free days? I don't know

what that feels like,

> > I can't remember pain free days. I have days of more pain and

less pain but

> > can't imagine no pain. I sure hope to get some soon.

> >

> > I know that many of you have gone through very trying

> >

> >

[Guest guest]

Please tell me more about Avinza. Thanks so much, take care,

Robyn

Robyn, I take it once in the mornings. There have been no side effects for me though. It is a slow time release med that starts out strong and then when it hits a certain point it levels out for 24 hours. I don't feel doped or out of it and am finally having mostly pain free days.

a C