Myoclonus / involuntary muscle jumping

[Guest guest]

Hi all,

Ooops, I wrote this last night, and thought I had sent it...

Since we have been talking about necks, nerves and such, I came to

think about one thing which I have wondered about... And what place

could be better to ask about this than here? I thought it would be

interesting to hear if this is something you guys also experience and

if maybe some of you have got an explanation about why this happens.

I think it is called Myoclonus, but I might remember wrong and I may

be misspelling it (I am too tired and lazy right now to get my

buttout of the recliner to check the dictionary). What I am talking

about, is involuntary movement of either a body part or even your

whole body. I get them when I am very relaxed, often when I am about

to go to sleep.

The past few years I have had this more and more often. It is kind of

funny, because it startles me so much sometimes that I get completely

awake with my heart pounding. Most often now my whole body " jumps " . I

have also had many funny experiences when I have laid down in my

recliner to have a nap. Suddenly my stomach muscles contract all by

themselves, making me do an involuntarily " sit-up " . It is so odd...

When I first started having these, it was most often just in a leg,

an arm or something like this, but that changed. How funny... It sure

is not much fun when you have joints which are especially painful

upon movement, because it is so sudden, totally out of the blue.

Ouch... There is nothing you can do to avoid them, at least that I

know of.

Do any of you know what causes these involuntary sudden muscle

contractions? Do you know if they are common in EDSers, and if so,

why? Since we were talking about nerves and such, I started to wonder

if they could have anything to do with such things, or if it is some

sort of funny signal in the brain that causes them...

It will be interesting to hear what you guys think and how many of

you experience this.

Aase Marit