Re: Myoclonus / involuntary muscle jumping

[Guest guest]

Hi Aase. My son Dylan was getting those day and night. They got worse all the

time. For him it was a medication side affect. Once he stopped taking Methadone,

the jerking and twitching stopped. I get it only when about to fall asleep. It

always wakes me up. I don't take any meds. Cindylouwho

From: Aase Marit Waage To: ceda

Subject: Myoclonus / involuntary muscle " jumping "

Hi all,

What I am talking

about, is involuntary movement of either a body part or even your

whole body. I get them when I am very relaxed, often when I am about

to go to sleep.

[Guest guest]

I get those, too. Esp at night when I'm relaxed. Mine used to be

just an occasional twitch of my legs - which I attributed to overuse

that day. Now I get them every single night in my abs - they really

jerk me around. My husband and I always get a good laugh out of it -

it really is humerous.

This is one of the many things I'm investigating - I'd like the

twitching and jerking to stop. I had no clue there was a name to it -

so thanks - I've got one more clue to help in my research.

Right now I'm working on a theory that I have really tense -

shortened - muscles in my abs. I think these shortened abs are

pulling my chest down and contributing to a round back (which I am

fighting ferociously). I also think that there are fascial

restrictions involved.

My doctor has been working to release my fascia and I do self massage

on my abs at night as soon as I get into bed. It has helped some,

but I still have some twitching and jerking. I keep planning to

start a particular yoga pose that will stretch those muscles - but

somehow I never find the time. I've been spending too much time here

I believe.

I also take no meds.

> From: Aase Marit Waage To: ceda

> Subject: Myoclonus / involuntary muscle " jumping "

>

>

> Hi all,

> What I am talking

> about, is involuntary movement of either a body part or even your

> whole body. I get them when I am very relaxed, often when I am

about

> to go to sleep.

>

>

>

>

[Guest guest]

Wow, does that ever sound familiar! I too get this usually in my

legs when relaxing in the evenings. But sometimes I'll wake up in my

sleep just as one is happening. IE/ a little while ago I woke up

just as my arm jerked sending a stiffened index finger and nail into

my chin. Owch! The same thing happened only with my left leg, but

unfortunately it was my poor dog on the bed who got booted. I now

have her sleep in her crate on the floor so I know she is safe from

me and my 'spazes' lol.

Is there any relationship between this and EDS/HMS/connective tissue

disorders?

-Rhea

[Guest guest]

Wow, does that ever sound familiar! I too get this usually in my

legs when relaxing in the evenings. But sometimes I'll wake up in my

sleep just as one is happening. IE/ a little while ago I woke up

just as my arm jerked sending a stiffened index finger and nail into

my chin. Owch! The same thing happened only with my left leg, but

unfortunately it was my poor dog on the bed who got booted. I now

have her sleep in her crate on the floor so I know she is safe from

me and my 'spazes' lol.

Is there any relationship between this and EDS/HMS/connective tissue

disorders?

-Rhea

[Guest guest]

I thought it would be interesting to hear if this is something you

guys also experience and if maybe some of you have got an

explanation about why this happens. I think it is called

Myoclonus...What I am talking about, is involuntary movement of

either a body part or even your whole body.

------------

Oh, yeah. It is something I have lived with for years. Many years

ago, the wife and I just started calling it the " twitchies " for lack

of a better name. I didn't have a clue as to what it actually was

until I mentioned it in a post a few months back and Sharon down

under told me.

Sometimes (most often in fact) it would hit me in the shoulder area.

Other times, it would be the whole body. Care to guess how

enjoyable those were for my wife when we just happened to be in

the " spoon " cuddle position with her in front - and with her being

4'10 " and me being close to 6'2 " . More than once, my knee has just

about put her through the headboard.

Fortunately, in the last couple of years with all of the bodywork

treatment sessions I have received and the personal beneficial

effects I get energetically when doing either acuressure or polarity

on someone else, I don't get the twitchies as frequently or

violently as I used to. I still do get them from time to time, but

not as often nor as bad. When I do, they are almost always just

after going to bed and when, for whatever reason, I am more tensed

up or tired than normal.

[Guest guest]

I thought it would be interesting to hear if this is something you

guys also experience and if maybe some of you have got an

explanation about why this happens. I think it is called

Myoclonus...What I am talking about, is involuntary movement of

either a body part or even your whole body.

------------

Oh, yeah. It is something I have lived with for years. Many years

ago, the wife and I just started calling it the " twitchies " for lack

of a better name. I didn't have a clue as to what it actually was

until I mentioned it in a post a few months back and Sharon down

under told me.

Sometimes (most often in fact) it would hit me in the shoulder area.

Other times, it would be the whole body. Care to guess how

enjoyable those were for my wife when we just happened to be in

the " spoon " cuddle position with her in front - and with her being

4'10 " and me being close to 6'2 " . More than once, my knee has just

about put her through the headboard.

Fortunately, in the last couple of years with all of the bodywork

treatment sessions I have received and the personal beneficial

effects I get energetically when doing either acuressure or polarity

on someone else, I don't get the twitchies as frequently or

violently as I used to. I still do get them from time to time, but

not as often nor as bad. When I do, they are almost always just

after going to bed and when, for whatever reason, I am more tensed

up or tired than normal.

[Guest guest]

Right now I'm working on a theory that I have really tense -

shortened - muscles in my abs. I think these shortened abs are

pulling my chest down and contributing to a round back (which I am

fighting ferociously). I also think that there are fascial

restrictions involved.

----------------

Get your Trail Guide out and look at pages 181-183 (edition 2 - not

sure of page numbers if you have edition 1). You can see where the

Rectus Abdominus muscle inserts along the 5th, 6th and 7th ribs and

the xiphoid process at the bottom of the sternum.

If your " round back " posture looks or feels like you have " a crease "

parallel to the floor at the bottom of the sternum and you are being

bent forward along that crease, you are probably correct in your

assumption about the abdominals being guilty.

On the other hand, if your " round back " is evidenced higher than

that, it would suggest either other muscles or fascia instead or in

addition to the abdominals. An upper back rounding, shoulders

rolled in and forward, posture is suggestive of tight pectoralis

muscles, particularly pec minor.

In either case, anterior fascial restrictions are always a

possibility because the fascia runs the full length of the torso and

can get constricted anyplace along that line.

And just on general principles because of the other posts last night

and this morning:

" Opinions expressed in this post are solely those of the writer, are

provided for informational purposes only, and are not in any fashion

to be construed as giving medical or legal advice. Readers are

urged in all cases to consult their primary care provider when

questions arise. " Sheeesh!

[Guest guest]

Right now I'm working on a theory that I have really tense -

shortened - muscles in my abs. I think these shortened abs are

pulling my chest down and contributing to a round back (which I am

fighting ferociously). I also think that there are fascial

restrictions involved.

----------------

Get your Trail Guide out and look at pages 181-183 (edition 2 - not

sure of page numbers if you have edition 1). You can see where the

Rectus Abdominus muscle inserts along the 5th, 6th and 7th ribs and

the xiphoid process at the bottom of the sternum.

If your " round back " posture looks or feels like you have " a crease "

parallel to the floor at the bottom of the sternum and you are being

bent forward along that crease, you are probably correct in your

assumption about the abdominals being guilty.

On the other hand, if your " round back " is evidenced higher than

that, it would suggest either other muscles or fascia instead or in

addition to the abdominals. An upper back rounding, shoulders

rolled in and forward, posture is suggestive of tight pectoralis

muscles, particularly pec minor.

In either case, anterior fascial restrictions are always a

possibility because the fascia runs the full length of the torso and

can get constricted anyplace along that line.

And just on general principles because of the other posts last night

and this morning:

" Opinions expressed in this post are solely those of the writer, are

provided for informational purposes only, and are not in any fashion

to be construed as giving medical or legal advice. Readers are

urged in all cases to consult their primary care provider when

questions arise. " Sheeesh!

[Guest guest]

Yep - I feel like my chest is being pulled down toward my pelvis.

When I straighten up I can feel a pull in my abs. As I've worked

this area the last three months it has been easier to stand straight.

I also deal with tight pec minors, etc - but I find that those

muscles generally pull my shoulders in rather that pull my chest

down. Make sense?

The fascial release stuff I'm having my chiro do is helping, too.

She's a bit leary about doing too much in one session because my body

twitches and jerks like crazy when she's doing it. Doesn't hurt a

bit though and I sure feel better after.

Shoot - my whole entire body is tight! - expcept for those loose

ligaments - and of course I blame those for my tight muscles.

I just keep working trigger points and doing the acupressure. I'm

hoping the postural yoga will help.

As for consulting my primary care provider - consider it done - I'm

my primary care provider and I've given myself a referal to you and

everyone else here :-)

>

> Right now I'm working on a theory that I have really tense -

> shortened - muscles in my abs. I think these shortened abs are

> pulling my chest down and contributing to a round back (which I am

> fighting ferociously). I also think that there are fascial

> restrictions involved.

>

> ----------------

>

> Get your Trail Guide out and look at pages 181-183 (edition 2 - not

> sure of page numbers if you have edition 1). You can see where the

> Rectus Abdominus muscle inserts along the 5th, 6th and 7th ribs and

> the xiphoid process at the bottom of the sternum.

>

> If your " round back " posture looks or feels like you have " a

crease "

> parallel to the floor at the bottom of the sternum and you are

being

> bent forward along that crease, you are probably correct in your

> assumption about the abdominals being guilty.

>

> On the other hand, if your " round back " is evidenced higher than

> that, it would suggest either other muscles or fascia instead or in

> addition to the abdominals. An upper back rounding, shoulders

> rolled in and forward, posture is suggestive of tight pectoralis

> muscles, particularly pec minor.

>

> In either case, anterior fascial restrictions are always a

> possibility because the fascia runs the full length of the torso

and

> can get constricted anyplace along that line.

>

> And just on general principles because of the other posts last

night

> and this morning:

> " Opinions expressed in this post are solely those of the writer,

are

> provided for informational purposes only, and are not in any

fashion

> to be construed as giving medical or legal advice. Readers are

> urged in all cases to consult their primary care provider when

> questions arise. " Sheeesh!

[Guest guest]

Yep - I feel like my chest is being pulled down toward my pelvis.

When I straighten up I can feel a pull in my abs. As I've worked

this area the last three months it has been easier to stand straight.

I also deal with tight pec minors, etc - but I find that those

muscles generally pull my shoulders in rather that pull my chest

down. Make sense?

The fascial release stuff I'm having my chiro do is helping, too.

She's a bit leary about doing too much in one session because my body

twitches and jerks like crazy when she's doing it. Doesn't hurt a

bit though and I sure feel better after.

Shoot - my whole entire body is tight! - expcept for those loose

ligaments - and of course I blame those for my tight muscles.

I just keep working trigger points and doing the acupressure. I'm

hoping the postural yoga will help.

As for consulting my primary care provider - consider it done - I'm

my primary care provider and I've given myself a referal to you and

everyone else here :-)

>

> Right now I'm working on a theory that I have really tense -

> shortened - muscles in my abs. I think these shortened abs are

> pulling my chest down and contributing to a round back (which I am

> fighting ferociously). I also think that there are fascial

> restrictions involved.

>

> ----------------

>

> Get your Trail Guide out and look at pages 181-183 (edition 2 - not

> sure of page numbers if you have edition 1). You can see where the

> Rectus Abdominus muscle inserts along the 5th, 6th and 7th ribs and

> the xiphoid process at the bottom of the sternum.

>

> If your " round back " posture looks or feels like you have " a

crease "

> parallel to the floor at the bottom of the sternum and you are

being

> bent forward along that crease, you are probably correct in your

> assumption about the abdominals being guilty.

>

> On the other hand, if your " round back " is evidenced higher than

> that, it would suggest either other muscles or fascia instead or in

> addition to the abdominals. An upper back rounding, shoulders

> rolled in and forward, posture is suggestive of tight pectoralis

> muscles, particularly pec minor.

>

> In either case, anterior fascial restrictions are always a

> possibility because the fascia runs the full length of the torso

and

> can get constricted anyplace along that line.

>

> And just on general principles because of the other posts last

night

> and this morning:

> " Opinions expressed in this post are solely those of the writer,

are

> provided for informational purposes only, and are not in any

fashion

> to be construed as giving medical or legal advice. Readers are

> urged in all cases to consult their primary care provider when

> questions arise. " Sheeesh!

[Guest guest]

> Oh, yeah. It is something I have lived with for years. Many years

> ago, the wife and I just started calling it the " twitchies " for lack

> of a better name.

Well, I never had any problem with this until the last couple of years.

Mine are nowhere near what he has had in terms of major violent motions, but

I have had the small tics and twitches during high-stress periods of my

life. I had a spot on my face that twitched constantly during the weeks

preceding a charity auction I was volunteering for. My left eye-lid

twitched the entire week before final exams last month, and it started up

again this week as I prepare to start classes again on Tuesday. Also, at

various times the muscles in my arms and legs will start twitching. It's

REALLY annoying!

-Barb

[Guest guest]

I also deal with tight pec minors, etc - but I find that those

muscles generally pull my shoulders in rather that pull my chest

down. Make sense?

The fascial release stuff I'm having my chiro do is helping, too.

She's a bit leary about doing too much in one session because my

body twitches and jerks like crazy when she's doing it. Doesn't

hurt a bit though and I sure feel better after.

------------

(1) Makes perfect sense - that's what tight pec minors do.

(2) Sounds like you are experiencing what is known as " unwinding "

with the fascial release work. Be sure that you drink plenty of

water after one of these sessions. Something else that is

recommended is to take a hot epsom salts bath afterwards. That

helps flush toxins out of your system and reduces any soreness you

might otherwise experience.

(3) Also be aware that it is not uncommon after a good MFR session

to feel like you have been run over by an 18 wheeler rig for a day

or two. Not doing too much in one session helps avoid this. The

first couple of times I had full MFR work done on me, they were

about 90 minute sessions and I felt like King Kong had used me as

the ball in a game of handball for about three days afterwards. My

twin brother told me pretty much the same thing after the first time

I did MFR on him. Of course in his case, my reaction was " good -

I've owed you that since the third grade. "

[Guest guest]

I also deal with tight pec minors, etc - but I find that those

muscles generally pull my shoulders in rather that pull my chest

down. Make sense?

The fascial release stuff I'm having my chiro do is helping, too.

She's a bit leary about doing too much in one session because my

body twitches and jerks like crazy when she's doing it. Doesn't

hurt a bit though and I sure feel better after.

------------

(1) Makes perfect sense - that's what tight pec minors do.

(2) Sounds like you are experiencing what is known as " unwinding "

with the fascial release work. Be sure that you drink plenty of

water after one of these sessions. Something else that is

recommended is to take a hot epsom salts bath afterwards. That

helps flush toxins out of your system and reduces any soreness you

might otherwise experience.

(3) Also be aware that it is not uncommon after a good MFR session

to feel like you have been run over by an 18 wheeler rig for a day

or two. Not doing too much in one session helps avoid this. The

first couple of times I had full MFR work done on me, they were

about 90 minute sessions and I felt like King Kong had used me as

the ball in a game of handball for about three days afterwards. My

twin brother told me pretty much the same thing after the first time

I did MFR on him. Of course in his case, my reaction was " good -

I've owed you that since the third grade. "

[Guest guest]

WWW swoops in and comments......

Boy...you are sooooo baaaaadddddd!!!! Mike!!! and

swooshes off on her broom

---------------

No - he really did deserve it - big time.

I don't remember exactly how old we were at the time, but we had

just learned how to print our names. Well, one day " Mickey, Mickey,

Mickey " appeared all along one hallway wall about two feet up from

the floor. My mother was so upset about it that she waited until my

dad got home for the " proper administration of justice. " Let's say

that my protestations of innocence fell upon deaf ears, whereupon

sentence was quickly pronounced - and executed.

Then one night at the dinner table during our senior year in high

school, the day that my twin got the " A " grade back on the paper he

had slaved over for his creative writing assignment in English

class, the rest of the story suddenly came to light.

He says " Remember that time when Mick got spanked for printing his

name all over the wall with crayon? " His creative writing paper

consisted of his " confession " about how he did it and got away with

it. Three of the four of us at the table thought it was hysterical.

The fourth waited for 43 years to get PARTIAL payback. If I can

ever get " my energy " up from about a AAA level to around a 110 or

higher, I intend to hot wire his glutes to the point where he won't

be able to sit for a week.

[Guest guest]

WWW swoops in and comments......

Boy...you are sooooo baaaaadddddd!!!! Mike!!! and

swooshes off on her broom

---------------

No - he really did deserve it - big time.

I don't remember exactly how old we were at the time, but we had

just learned how to print our names. Well, one day " Mickey, Mickey,

Mickey " appeared all along one hallway wall about two feet up from

the floor. My mother was so upset about it that she waited until my

dad got home for the " proper administration of justice. " Let's say

that my protestations of innocence fell upon deaf ears, whereupon

sentence was quickly pronounced - and executed.

Then one night at the dinner table during our senior year in high

school, the day that my twin got the " A " grade back on the paper he

had slaved over for his creative writing assignment in English

class, the rest of the story suddenly came to light.

He says " Remember that time when Mick got spanked for printing his

name all over the wall with crayon? " His creative writing paper

consisted of his " confession " about how he did it and got away with

it. Three of the four of us at the table thought it was hysterical.

The fourth waited for 43 years to get PARTIAL payback. If I can

ever get " my energy " up from about a AAA level to around a 110 or

higher, I intend to hot wire his glutes to the point where he won't

be able to sit for a week.

[Guest guest]

WWW swoops in and comments......

Boy...you are sooooo baaaaadddddd!!!! Mike!!! and

swooshes off on her broom

---------------

No - he really did deserve it - big time.

I don't remember exactly how old we were at the time, but we had

just learned how to print our names. Well, one day " Mickey, Mickey,

Mickey " appeared all along one hallway wall about two feet up from

the floor. My mother was so upset about it that she waited until my

dad got home for the " proper administration of justice. " Let's say

that my protestations of innocence fell upon deaf ears, whereupon

sentence was quickly pronounced - and executed.

Then one night at the dinner table during our senior year in high

school, the day that my twin got the " A " grade back on the paper he

had slaved over for his creative writing assignment in English

class, the rest of the story suddenly came to light.

He says " Remember that time when Mick got spanked for printing his

name all over the wall with crayon? " His creative writing paper

consisted of his " confession " about how he did it and got away with

it. Three of the four of us at the table thought it was hysterical.

The fourth waited for 43 years to get PARTIAL payback. If I can

ever get " my energy " up from about a AAA level to around a 110 or

higher, I intend to hot wire his glutes to the point where he won't

be able to sit for a week.

[Guest guest]

Re: Myoclonus / involuntary muscle " jumping "

My

twin brother told me pretty much the same thing after the first time

I did MFR on him. Of course in his case, my reaction was " good -

I've owed you that since the third grade. "

~~~~~~~~~~~~~~

WWW swoops in and comments......

Boy...you are sooooo baaaaadddddd!!!! Mike!!! and swooshes off

on her broom

WWWW aka Bonnie

[Guest guest]

Re: Myoclonus / involuntary muscle " jumping "

My

twin brother told me pretty much the same thing after the first time

I did MFR on him. Of course in his case, my reaction was " good -

I've owed you that since the third grade. "

~~~~~~~~~~~~~~

WWW swoops in and comments......

Boy...you are sooooo baaaaadddddd!!!! Mike!!! and swooshes off

on her broom

WWWW aka Bonnie

[Guest guest]

Re: Myoclonus / involuntary muscle " jumping "

The fourth waited for 43 years to get PARTIAL payback. If I can

ever get " my energy " up from about a AAA level to around a 110 or

higher, I intend to hot wire his glutes to the point where he won't

be able to sit for a week.

~~~~~~

and " hot wiring " would be?????

WWW

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

Aase,

I suffer from Myoclonus and have for years, I have treid numerous

anticonvulsants but not had a whole lot of luck. i had an EEG last

week to rule out anything wrong in my brain and have to have an EMG

to rule out nerve damage in my limbs etc on April 20th. They think my

Myoclonus is caused by my RSD as my sympathetic nervous system is so

screwed up, but they are not sure.

I have had full body episodes where I look like I am having some kind

of fit and they have lasted for minutes+. I also suffer from

fasciculations or rapid " fluttery " muscle movements and have had

these last NON STOP for months and months until I was put on a high

dose anti convulsant.

My osteopath has witnessed these episodes and now wants to tape them

so that my Neurologist can see exactly what goes on.

There are medications and things that can help and there are numerous

kinds of Myoclonus (and I have had a few of them).

Sorry I can't be of much further help (I am about to go out, it is

Sunday and I am getting ready to go sailing again ) but if

there is anythng you want to know just ask and I will see if I can

answer it for you.

Sharon

> Hi all,

>

> Ooops, I wrote this last night, and thought I had sent it...

>

> Since we have been talking about necks, nerves and such, I came to

> think about one thing which I have wondered about... And what place

> could be better to ask about this than here? I thought it would be

> interesting to hear if this is something you guys also experience

and

> if maybe some of you have got an explanation about why this happens.

>

> I think it is called Myoclonus, but I might remember wrong and I

may

> be misspelling it (I am too tired and lazy right now to get my

> buttout of the recliner to check the dictionary). What I am talking

> about, is involuntary movement of either a body part or even your

> whole body. I get them when I am very relaxed, often when I am

about

> to go to sleep.

>

> The past few years I have had this more and more often. It is kind

of

> funny, because it startles me so much sometimes that I get

completely

> awake with my heart pounding. Most often now my whole body " jumps " .

I

> have also had many funny experiences when I have laid down in my

> recliner to have a nap. Suddenly my stomach muscles contract all by

> themselves, making me do an involuntarily " sit-up " . It is so odd...

> When I first started having these, it was most often just in a leg,

> an arm or something like this, but that changed. How funny... It

sure

> is not much fun when you have joints which are especially painful

> upon movement, because it is so sudden, totally out of the blue.

> Ouch... There is nothing you can do to avoid them, at least that I

> know of.

>

> Do any of you know what causes these involuntary sudden muscle

> contractions? Do you know if they are common in EDSers, and if so,

> why? Since we were talking about nerves and such, I started to

wonder

> if they could have anything to do with such things, or if it is

some

> sort of funny signal in the brain that causes them...

>

> It will be interesting to hear what you guys think and how many of

> you experience this.

>

> Aase Marit

[Guest guest]

Thanks for the post -

So the abdominal contractions fall under the PLMD dx? Just one more

reason why I'm always so tired. Got to eliminate those unintended

night time sit-ups - boost my energy. OK - massage those abs every

night and get the chiro to do more fascial release.

>

> PLMD is the unvoluntary contraction (spasm or jerking) of a muscle,

> genereally in the legs and arms. I have been diagnosed with PLMS

and

> have contractions in my abdominal muscles as well. This diagnosis

> falls in the category of a sleep disorder because it starts when a

> person is going to sleep and during sleep it disturbs the REM sleep

> needed for rejuvenation, preventing stage 3 or 4 restorative sleep.

> My PLMD was discovered during a sleep study.

>

[Guest guest]

I get these too, but not too bad.