Post from different board re Cranialsacral

[Guest guest]

I had some posts with someone on a different board the last couple

of days. In brief, she has been looking into and considering having

cranialsacral work done but has been told " no " by her neurosurgeon.

She feels he is wrong, so do I. But then, neither of us is a

neurosurgeon. I am doing some checking on it. In the meantime, I

am going to copy my posts with her, along with my request for

additional information, as general information for this list. I will

post an update when I hear something back.

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" McCoy " wrote:

I " ve looked into cranialsacral therapy a lot. I plan on asking my

neurosurgeon when i see him in April if it's okay to do. I have a

craniocervical fusion from my skull down to C4. I talked to another

person that was fused but not in the way i was. Hers were anterior

and posterior fusions of C2-C4 and she was told by the same

neurosurgeont hat she couldn't and mine's much more serious than

hers so I'm not sure if it will be allowed. From what i read i

don't see how it can be harmful, but I'm not the doctor.

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Thank you very much for the above post. I agree with you about not

seeing how it can be harmful. But also like you, neither am I a

neurosurgeon. At the moment, I don't know whether there is

something about CST in this situation that I don't know and

critically do need to know, or if we are dealing with another case

of a " conventional " medicine practitioner bad-mouthing what they

consider " fringe " medicine out of their own ignorance.

I say what I do above because I KNOW in other cases where the

conventional side of the house is flat dead-wrong and their

opposition is driven more by greed and ignorance than any thing

else. Be that as it may, there is still the issue of the law being

on their side when it comes to anything even approaching diagnostics.

More importantly, you raised an issue that I personally have to

assume as a personal ethical and moral responsibility to

investigate. Because of that, I have taken the liberty to copy your

post and send it to the Upledger Institute, asking for

clarification. As info for you, I am copying below what I sent them.

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I am an LMP and have taken both CST 1 and 2 and LDT 1 and 2. I also

have extensive training in MFR, Polarity Therapy and Jin Shin Do

Acupressure, among others.

At any rate, I belong to an internet based support group for persons

with the connective tissue disorder Ehlers-Danlos Syndrome. As part

of my involvement with the group I pretty much act as the groups

advisor for questions and issues involving any bodywork modalities,

alternative and/or complimentary therapies, and energy medicine

topics. I also help members locate quailifed practitioners in their

areas, particularly for CST and LDT. The Find a Practitioner

section, by the way, has been extremely helpful for this.

I just got hit with a posting tonight that I need some help with.

The original subject was lymphatic drainage therapy. Someone was

not familiar with it so I posted a fairly detailed explanation of

what the lymph system is, does, and how LDT works. That led to a

couple of other posts, including one in which I listed some of the

modalities I practice, including CST. The response to that is what I

need help with. When you read it, you will see why I need help and

guidance.

The entire posting is below:

I " ve looked into cranialsacral therapy a lot. I plan on asking my

neurosurgeon when i see him in April if it's okay to do. I have a

craniocervical fusion from my skull down to C4. I talked to another

person

that was fused but not in the way i was. Hers were anterior and

posterior

fusions of C2-C4 and she was told by the same neurosurgeon that she

couldn't and mine's much more serious than hers so I'm not sure if

it will be allowed. From what i read i don't see how it can be

harmful, but I'm not

the doctor.

This issue of safety post-cervical fusion is extremely important

because spinal fusions at all locations (lumber to cervical) are

unfortunately very common for more advanced cases of EDS. In spite

of my personal aversion to and suspicion of spinal fusions in

general, they none the less are rather frequently done in this

population. Since CST is a modality that I highly recommend for a

number of reasons, I need to know if there is in fact any legitimacy

to the above neurosurgeon's claims. I agree with the statement about

not seeing how it could be harmful, but I NEED something more than

that if I am going to be recommending the modality.

Any information you can provide on this issue would be appreciated

[Guest guest]

Mike - Gut feeling says that the neurosurgen is speaking out of

ignorance and an aversion to alternative. That's not at all

substantial I know. I'll ask my chiro on Mon.....no promises.