new Lupie

[Guest guest]

Cheryl J., Welcome to the group. I am so glad you found us, although no for the reason you had to

look. I live in no. California, about 50 miles from San Francisco. I am the single, adoptive mother of

four, grandmother of two, with my two youngest boys still at home to raise. They are 12 and almost 16. A real challenge. LOL

I was dx'd with SLE, RA, Sjogren's, Anemia, chronic Lyme's, Myofibrositis, non-insulin dependent

Diabetes, and now am being tested for heart and lung complications. Isn't THAT special? Heehee.

I got my first dx at age 30, and the last confirmations are still coming in. It can be a long and frustrating process just getting a dx (diagnosis). I currently take Plaquenil, Zorprin, three oral diabetic meds, iron supplements, vitamin supplements, diuretics, and many other drugs depending

on my condition at any given moment.

I know you will find the members, here, to be intellligent, well informed, supportive and caring, and

often funny. We find that laughing in the face of adversity is just what's needed to help us cope with

all that is going wrong with our bodies. Please feel free to jump into any conversation going on the

board, ask questions, whine (we offer cheese with that), moan, groan, cry, laugh, vent, whatever.

This Life in the Lupus Lane can be frustrating, painful, and is difficult for our families and friends to

understand. After all, most of us "don't look sick" much of the time. I've had people tell me I have

a lovely "blush" when my rash is in full swing. LOL

Again, welcome, and join right in. Hugs, MM aka: Mike, one of the moderators

[Guest guest]

Hi Cheryl. Welcome to the group. I've had trouble with my posts the

past few days too! I'm 32 and live north of Gainesville. I

have " suspect " lupus, MCTD, IBS, FMS, etc. etc. I also had ovarian

failure and recently had a hysterectomy.

I am extremely interested in what doctors you use as I am currently

searching for a good Rheumy and even an internist. If you wouldn't

mind sharing with me what you think of the new Rheumy..I would

greatly appreciate it! Again, welcome to the group!

Jerri

[Guest guest]

Hi Cheryl,

Welcome to the group! You have found a new home......You say that you don't know anything about Lupus....so I suggest you take a look at the

www.itzarion.com/lupusgroups.html site that `Rion' Sewell put together for us....there you will find the basic facts....and many answers to questions you don't even know you have.

It's a great place to start to educate yourself about Lupus.....and related health problems.

Welcome aboard!

C.

New Lupie

Hi Everyone,My name is Cheryl, I tried this thing before a couple of days ago, butI don't think it worked, I didn't do something right, so I will try itagain. I am really new at this lupus thing, I am fortunate though, and Ihaven't had the terrible problems that I have read that you guys have. I was diagnosed about 1.5 months ago, am taking Plaquenil, and am doingall of the research and reading I can get my hands on. I have all kindsof problems, and am not even sure which ones are due to lupus, or ifthey aren't! But, I am starting to think that they may ALL be linked tolupus. I don't go and see my rheumatologist until next month, so I havestarted a list of questions for him and it is growing by the day! I have ovarian failure, protein in my urine, terrible gastrointestinalproblems, constant joint and muscle pain, and am on an antidepressant. I said I was fortunate earlier, didn't I? ;-) I really am, especiallyafter reading your e-mails. I will type my particulars once I know that this works. In themeantime, I am sure enjoying reading about all of you, it does brightenmy day to know you guys are out there, as I don't know anything about,or anyone who has, lupus.Thanks!Cheryl - Atlanta"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Welcome Sue! My name is Cheryl. I have

lupus, fibro, arthritis, osteoporosis, degenerative disk disease, and a bunch

of other stuff. I get rashes in different places and not always on the face. I

have terrible fatigue. I have pain day and night even though I take lots of

meds. I have no more insurance for a few months. Pretty soon my pain will get

worse because I won’t be able to buy all my meds. I have been without

insurance for about 2 years and loaded up my credit cards trying to stay

healthy as I could. Look up all you can on our links about lupus and

fibromyalgia. You might also get the American Lupus Society web. Again,

welcome, we understand. Feel free to complain, ask questions, laugh, tell

jokes, talk about your family. Whatever, we are friends.

From:

sisterst57

Sent: Thursday, May 13, 2004 8:12

AM

To: LUPIES

Subject: Hi! I'm a new

Lupie

Hi!!

My name is

Sue and I just found out (about 3 months ago) that I

have

Lupus...Mixed Connective Tissue Disease. I also have Fm,Osteo

Arthritis,Neuropathy

(that suddenly appeared in legs and feet about

4 years

ago..I am not diabetic and they say I have it because of my

thyroid

problem?)and degenerative disk disease in disk in my back. A

few other

non-pain related things too. I have been reading about

what I

have..trying to understand all I can. The articles are vague

sometimes or

over whelmingly graphic...either way..I need to talk to

those that

really know what I am going through...I have mutiple

symptoms as

is common in Mixed Connective Tissue disease.. (I know I

am not

suffering as much as many of you.) I have been getting a rash

on my one

arm whenever I get too stressed physically by doing too

much. No

rashes on my face though...is that common? I hope to get to

know you all

and hope I can help you too!

Love from----->Sue