Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Sometimes when I go to the store I use their electric cart. I do this when I’m real tired and also if I have to go to both sides to the store to get a few things. I hate dragging myself from side to side to get a small amount. I feel a little silly sometimes because some people think I can’t walk and offer to get things down off of the top shelf. Actually it is helpful when they do that but I tell them I can stand. Lupus takes some getting used to, that’s for sure. When I get home from the store it is all I can do to get the bags in the house. Sometimes I leave the dry things in the car for my husband and I put the cold things away and lie down. Maybe you snap at people because you are mad that you have lupus. Get mad, scream in your pillow! Talk about it. Let it out here. We are mad too!! We understand how you feel. From: Mojo (Joanna) Sent: Wednesday, May 12, 2004 6:19 PM To: LUPIES Subject: from the new member Robyn > Hi a, Thanks for the welcome. Sounds like you have a full house > and a busy schedule. I'm 49 and my only daughter is 24 and not > living at home. I have 4 Jack terriers that keep me company > when I'm laid up in bed. I'm grateful that my husband is supportive. > I'm sure all of this scares him at times. This disease is so > frustrating. I can be feeling relatively OK and then run some > errands and my body just shuts down all of a sudden. It happened > today at the grocery store and it was all I could do to get home. I > felt like someone was hitting me all over my body with a hammer. > minsd telling me how you are treating your Lupus? I've learned a lot > of patience as I've gotten older, but it seems that I'm so short > with some people now, usually total strangers. But, how are they > supposed to know how I'm feeling unless I tell them? They can't read > my mind. Talk soon, Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Cheryl you sound like me in the store now. After having numerous surgeries on my leg a few years back it was nice to use the carts them I felt guilty cause I figured I could walk okay. Let me tell you lately I have been using them again. It is that or no going to the store. If I have to park to far from the front I also just refuse to stop. I know that is not good but I know that as wiped out as I have been it is best not to push myself. Ruth in CA to the new member Robyn Sometimes when I go to the store I use their electric cart. I do this when I’m real tired and also if I have to go to both sides to the store to get a few things. I hate dragging myself from side to side to get a small amount. I feel a little silly sometimes because some people think I can’t walk and offer to get things down off of the top shelf. Actually it is helpful when they do that but I tell them I can stand. Lupus takes some getting used to, that’s for sure. When I get home from the store it is all I can do to get the bags in the house. Sometimes I leave the dry things in the car for my husband and I put the cold things away and lie down. Maybe you snap at people because you are mad that you have lupus. Get mad, scream in your pillow! Talk about it. Let it out here. We are mad too!! We understand how you feel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 You know I was helping a man reach something who was using a cart yesterday and how ironic-- I should have been using a cart myself. Hard to make that transfer, so used to doing everything myself. I'm working on being more humble. Thanks, Robyn > Cheryl you sound like me in the store now. After having numerous surgeries on my leg a few years back it was nice to use the carts them I felt guilty cause I figured I could walk okay. > > Let me tell you lately I have been using them again. It is that or no going to the store. If I have to park to far from the front I also just refuse to stop. I know that is not good but I know that as wiped out as I have been it is best not to push myself. > > Ruth in CA > to the new member Robyn > > > Sometimes when I go to the store I use their electric cart. I do this when I'm real tired and also if I have to go to both sides to the store to get a few things. I hate dragging myself from side to side to get a small amount. I feel a little silly sometimes because some people think I can't walk and offer to get things down off of the top shelf. Actually it is helpful when they do that but I tell them I can stand. Lupus takes some getting used to, that's for sure. When I get home from the store it is all I can do to get the bags in the house. Sometimes I leave the dry things in the car for my husband and I put the cold things away and lie down. Maybe you snap at people because you are mad that you have lupus. Get mad, scream in your pillow! Talk about it. Let it out here. We are mad too!! We understand how you feel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 You know I was helping a man reach something who was using a cart yesterday and how ironic-- I should have been using a cart myself. Hard to make that transfer, so used to doing everything myself. I'm working on being more humble. Thanks, Robyn > Cheryl you sound like me in the store now. After having numerous surgeries on my leg a few years back it was nice to use the carts them I felt guilty cause I figured I could walk okay. > > Let me tell you lately I have been using them again. It is that or no going to the store. If I have to park to far from the front I also just refuse to stop. I know that is not good but I know that as wiped out as I have been it is best not to push myself. > > Ruth in CA > to the new member Robyn > > > Sometimes when I go to the store I use their electric cart. I do this when I'm real tired and also if I have to go to both sides to the store to get a few things. I hate dragging myself from side to side to get a small amount. I feel a little silly sometimes because some people think I can't walk and offer to get things down off of the top shelf. Actually it is helpful when they do that but I tell them I can stand. Lupus takes some getting used to, that's for sure. When I get home from the store it is all I can do to get the bags in the house. Sometimes I leave the dry things in the car for my husband and I put the cold things away and lie down. Maybe you snap at people because you are mad that you have lupus. Get mad, scream in your pillow! Talk about it. Let it out here. We are mad too!! We understand how you feel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 You know I was helping a man reach something who was using a cart yesterday and how ironic-- I should have been using a cart myself. Hard to make that transfer, so used to doing everything myself. I'm working on being more humble. Thanks, Robyn > Cheryl you sound like me in the store now. After having numerous surgeries on my leg a few years back it was nice to use the carts them I felt guilty cause I figured I could walk okay. > > Let me tell you lately I have been using them again. It is that or no going to the store. If I have to park to far from the front I also just refuse to stop. I know that is not good but I know that as wiped out as I have been it is best not to push myself. > > Ruth in CA > to the new member Robyn > > > Sometimes when I go to the store I use their electric cart. I do this when I'm real tired and also if I have to go to both sides to the store to get a few things. I hate dragging myself from side to side to get a small amount. I feel a little silly sometimes because some people think I can't walk and offer to get things down off of the top shelf. Actually it is helpful when they do that but I tell them I can stand. Lupus takes some getting used to, that's for sure. When I get home from the store it is all I can do to get the bags in the house. Sometimes I leave the dry things in the car for my husband and I put the cold things away and lie down. Maybe you snap at people because you are mad that you have lupus. Get mad, scream in your pillow! Talk about it. Let it out here. We are mad too!! We understand how you feel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for your reply. I do the same thing, put the cold groceries away and leave the rest for my husband. I was just saying that I was helping a man reach something who was using a cart and I was falling apart myself. I need to learn to stop " doing " before I get the point that I'm about to collapse. I almost had a panic attack at the checkout. Got to slow down! I keep telling myself. Good to hear I'm not the only one that gets mad about this. To the average person, I probably look " just fine " . So, unless I ask for help, it may not come my way. They're not mind readers. Very grateful for you and all on this message board. Robyn T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for your reply. I do the same thing, put the cold groceries away and leave the rest for my husband. I was just saying that I was helping a man reach something who was using a cart and I was falling apart myself. I need to learn to stop " doing " before I get the point that I'm about to collapse. I almost had a panic attack at the checkout. Got to slow down! I keep telling myself. Good to hear I'm not the only one that gets mad about this. To the average person, I probably look " just fine " . So, unless I ask for help, it may not come my way. They're not mind readers. Very grateful for you and all on this message board. Robyn T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for your reply. I do the same thing, put the cold groceries away and leave the rest for my husband. I was just saying that I was helping a man reach something who was using a cart and I was falling apart myself. I need to learn to stop " doing " before I get the point that I'm about to collapse. I almost had a panic attack at the checkout. Got to slow down! I keep telling myself. Good to hear I'm not the only one that gets mad about this. To the average person, I probably look " just fine " . So, unless I ask for help, it may not come my way. They're not mind readers. Very grateful for you and all on this message board. Robyn T Quote Link to comment Share on other sites More sharing options...
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