Re: Uhhh, EDS Type 3??? Hypermobility

April 2, 2004

,

WOW - Two excellent observations! You are absolutely right on both counts

> I've been reading everything I can about EDS these past three months

> since the diagnosis. What I have learned is that there isn't near

> enough good scientific research - that the condition is vast and

> varied - and to take everything with a grain or two of salt.

>

> I also learned long before I had a diagnosis that my body is unique

> and it doesn't matter if the docs know what to call what is wrong

> with me - what matters is to treat what's wrong.

>

April 3, 2004

In a message dated 4/2/04 5:54:47 PM Eastern Standard Time,

aase.m@... writes:

<< Like so many of us, my hands look kind of

old though, I have too much skin there... >>

Me too! I have skin on my face of a much younger person, but my

hands.....yuck! I look too old. And they are very swollen now from arthritis

in them and

are starting to look knarley (sp?)........thank God people don't usually look

there first, LOL!!!!!

Hugs,

Sue

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