Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 In a message dated 4/7/2003 1:38:57 PM Eastern Daylight Time, parenting_autism writes: > > > They show > > the severely affected individuals but rarely show the high > > functioning ones. Most people equate autism with Rainman.> > > You know, it's funny...I always think that the media portrays kids > with " higher functioning " autism...I would be thrilled if was > able to function as well as Rainman, or the kid in " Gilbert Grape " . > > I guess it's all in perspective...most folks don't even know kids > like mine exist. > > Raena > > I agree Raena. I tell people my kids are autistic, and I get, " oh, they have problems making friends, right? " I'm like yeah, the hooting, hollering, flapping and biting tend to drive people away...lol. I would also be thrilled if my two got to the level of Rainman. Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > > > They show > > > the severely affected individuals but rarely show the high > > > functioning ones. Most people equate autism with Rainman.> > > > > You know, it's funny...I always think that the media portrays kids > > with " higher functioning " autism...I would be thrilled if was > > able to function as well as Rainman, or the kid in " Gilbert Grape " . > > > > I guess it's all in perspective...most folks don't even know kids > > like mine exist. > > > > Raena > > > > > > I agree Raena. I tell people my kids are autistic, and I get, " oh, they have > problems making friends, right? " I'm like yeah, the hooting, hollering, > flapping and biting tend to drive people away...lol. I would also be > thrilled if my two got to the level of Rainman. > > Leigh I missed the first part of this conversation, forgive me. Boone is a lot like Rainman. However, he still has no friends, nor does he show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even rocks now. He can meltdown with the best of them. He's still severely autistic and life is not easy for him, Rainman-ish or not. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > > > They show > > > the severely affected individuals but rarely show the high > > > functioning ones. Most people equate autism with Rainman.> > > > > You know, it's funny...I always think that the media portrays kids > > with " higher functioning " autism...I would be thrilled if was > > able to function as well as Rainman, or the kid in " Gilbert Grape " . > > > > I guess it's all in perspective...most folks don't even know kids > > like mine exist. > > > > Raena > > > > > > I agree Raena. I tell people my kids are autistic, and I get, " oh, they have > problems making friends, right? " I'm like yeah, the hooting, hollering, > flapping and biting tend to drive people away...lol. I would also be > thrilled if my two got to the level of Rainman. > > Leigh I missed the first part of this conversation, forgive me. Boone is a lot like Rainman. However, he still has no friends, nor does he show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even rocks now. He can meltdown with the best of them. He's still severely autistic and life is not easy for him, Rainman-ish or not. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > > > They show > > > the severely affected individuals but rarely show the high > > > functioning ones. Most people equate autism with Rainman.> > > > > You know, it's funny...I always think that the media portrays kids > > with " higher functioning " autism...I would be thrilled if was > > able to function as well as Rainman, or the kid in " Gilbert Grape " . > > > > I guess it's all in perspective...most folks don't even know kids > > like mine exist. > > > > Raena > > > > > > I agree Raena. I tell people my kids are autistic, and I get, " oh, they have > problems making friends, right? " I'm like yeah, the hooting, hollering, > flapping and biting tend to drive people away...lol. I would also be > thrilled if my two got to the level of Rainman. > > Leigh I missed the first part of this conversation, forgive me. Boone is a lot like Rainman. However, he still has no friends, nor does he show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even rocks now. He can meltdown with the best of them. He's still severely autistic and life is not easy for him, Rainman-ish or not. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > In between reading the other posts and coming back online right now, I was > thinking that Rainman as portrayed in the movie was in his forties. I > wonder what he was like as a small child? That's a good question. Temple Grandin talks about being a small child. Sounds like she was just like one our kids to me. I bet he was not half so far at > Boone's age as Boone is. There's a LOT of years of growing and learning > between the kids here and the man on that screen, and our kids have so many > therapeutic opportunities that he never had. This is sooooo true. > I'd be VERY interested in learning about the early life of the man > is based on. Do you remember his name? Kim Peek. In fact, his profile is on the www.savantsyndrome.com website with Boone's. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > I agree Raena. I tell people my kids are autistic, and I get, " oh, they have > problems making friends, right? " I'm like yeah, the hooting, hollering, > flapping and biting tend to drive people away...lol. I would also be > thrilled if my two got to the level of Rainman. It's so strange, isn't it, that those of us with kids towards the aspie end of the spectrum meet people who expect autism to be the lowest of the low end of the spectrum, all non-verbal, non-communicative, violent, standoffish, autonomous repeaters of repetitive behaviour, while those of us with kids toward the classic end of the spectrum (still very rarely what I described above) who have pronounced delays in speech and in other areas meet people who expect autism to be some kind of mild variation of ADD. Could it just be that the people who look at our kids and recognize their challenges for what they are are the people who don't feel they have to comment? Do ya think? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > Boone is a lot like Rainman. However, he still has no friends, nor does he > show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams > like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even > rocks now. He can meltdown with the best of them. He's still severely > autistic and life is not easy for him, Rainman-ish or not. In between reading the other posts and coming back online right now, I was thinking that Rainman as portrayed in the movie was in his forties. I wonder what he was like as a small child? I bet he was not half so far at Boone's age as Boone is. There's a LOT of years of growing and learning between the kids here and the man on that screen, and our kids have so many therapeutic opportunities that he never had. I'd be VERY interested in learning about the early life of the man is based on. Do you remember his name? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > Boone is a lot like Rainman. However, he still has no friends, nor does he > show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams > like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even > rocks now. He can meltdown with the best of them. He's still severely > autistic and life is not easy for him, Rainman-ish or not. In between reading the other posts and coming back online right now, I was thinking that Rainman as portrayed in the movie was in his forties. I wonder what he was like as a small child? I bet he was not half so far at Boone's age as Boone is. There's a LOT of years of growing and learning between the kids here and the man on that screen, and our kids have so many therapeutic opportunities that he never had. I'd be VERY interested in learning about the early life of the man is based on. Do you remember his name? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > Boone is a lot like Rainman. However, he still has no friends, nor does he > show any desire to have any. He hoots, hollers, flaps, hits, kicks, screams > like a banshee, grunts, sings, hums, picks at sores, self-injures -- he even > rocks now. He can meltdown with the best of them. He's still severely > autistic and life is not easy for him, Rainman-ish or not. In between reading the other posts and coming back online right now, I was thinking that Rainman as portrayed in the movie was in his forties. I wonder what he was like as a small child? I bet he was not half so far at Boone's age as Boone is. There's a LOT of years of growing and learning between the kids here and the man on that screen, and our kids have so many therapeutic opportunities that he never had. I'd be VERY interested in learning about the early life of the man is based on. Do you remember his name? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > Boone is a lot like Rainman. However, he still has no friends, nor > does he show any desire to have any. He hoots, hollers, flaps, > hits, kicks, screams like a banshee, grunts, sings, hums, picks at > sores, self-injures -- he even rocks now. He can meltdown with the > best of them. He's still severely autistic and life is not easy for > him, Rainman-ish or not. > Sissi, I wasn't trying to say that Rainman-ish kids are not severely autistic...not at all. Just that people think that severe autism is equivalent to low functioning autism...they are two different things, IMO...Donna , for instance, is quite severe, also quite high functioning. I know Boone *really* struggles, and I am not downplaying that at all, but I wish could function as well as Boone does, to be honest. That may not make sense to you, but it's true. Not trying to get into a " my kid is worst " debate...just saying that I read posts from you guys and feel envious a lot of the time. Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 I know what you mean. But it happens in my own home. Weiord. I have Greggory and Alec. Greggory is so HF and Alec is so far from that I have no idea if he will ever get to the point GReggory is at now. I feel resentment over having to watch one autistic child excell and improve and my other autistic child going backwards if any direction at all. I wonder what is the difference. I don't remember what Alec's last ATEC score was but it was in the severe range and it has been getting worse for years now. I know how it feels to be envious. Stinks huh? Jacquie H Not trying to > get into a " my kid is worst " debate...just saying that I read posts > from you guys and feel envious a lot of the time. > > Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 > Could it just be that the people who look at our kids and recognize their challenges for what they are are the people who don't feel they have to comment? Do ya think? > I think you might have something there, Jacquie. It's rare to get an understanding smile or comment from a stranger. What we usually experience are the negative comments about not being able to control our children. I will say though that when was little I got a lot of rude comments because people thought she was being an obnoxious brat. Now that she's older and her delays are more obvious I get the offended looks: " Why did you bring THAT in here?? " I do my best to ignore them all. has as much right to be out in public as they do. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Well, we have been asked to leave a few restaurants because spent most of his time under the table. So we don't go to those places anymore. Noisy coffee shops, pancake houses and any place with a drive through usually don't care if is on the floor on on a chair. At our favorite coffee shop the waitresses even look under the table to say hi to and ask him if he wants toast. And I just don't worry about what it looks like anymore. Tuna >>>>>>>>>>> > My mom can be like that. Ugh. She told me that if > Alec is sitting under the table at a resturant it > might bother people. I was confused really. Why on > earth would that bother anyone? He wasnt making > noise or anything just sitting there. And she told > me(we were in the resturant at the time) that I > would have to stop taking him out to eat if he kept > doing it. >>>>>>>>>>>>>>>> ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Well, we have been asked to leave a few restaurants because spent most of his time under the table. So we don't go to those places anymore. Noisy coffee shops, pancake houses and any place with a drive through usually don't care if is on the floor on on a chair. At our favorite coffee shop the waitresses even look under the table to say hi to and ask him if he wants toast. And I just don't worry about what it looks like anymore. Tuna >>>>>>>>>>> > My mom can be like that. Ugh. She told me that if > Alec is sitting under the table at a resturant it > might bother people. I was confused really. Why on > earth would that bother anyone? He wasnt making > noise or anything just sitting there. And she told > me(we were in the resturant at the time) that I > would have to stop taking him out to eat if he kept > doing it. >>>>>>>>>>>>>>>> ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 WEll I guess my mom would be one of those people who would ask the waitress to ask people like us to leave. Ugh. You would think she would be more understanding. She always says how lucky I am to not have Alec flapping and being so autistic. ugh. He is very autistic. Very, VERY autistic. She choses not to see it I guess. But she complains about everyone. About how all kids are brats and how parents dont tell them to be nice and good anymore. I can't imagine that all parents are like this. She complains that the dogs in her neighborhood bark. LOL She complains that kids will skateboard down her street. She lives on the street of an elementary school! She complains that kids whine, she just complains. Everything gets on her nerves. But oh well. She can be a real pain in the butt. But I dont think she means to be. Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. Jacquie H Re: Re: Digest Number 5691 Well, we have been asked to leave a few restaurants because spent most of his time under the table. So we don't go to those places anymore. Noisy coffee shops, pancake houses and any place with a drive through usually don't care if is on the floor on on a chair. At our favorite coffee shop the waitresses even look under the table to say hi to and ask him if he wants toast. And I just don't worry about what it looks like anymore. Tuna >>>>>>>>>>> > My mom can be like that. Ugh. She told me that if > Alec is sitting under the table at a resturant it > might bother people. I was confused really. Why on > earth would that bother anyone? He wasnt making > noise or anything just sitting there. And she told > me(we were in the resturant at the time) that I > would have to stop taking him out to eat if he kept > doing it. >>>>>>>>>>>>>>>> ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 WEll I guess my mom would be one of those people who would ask the waitress to ask people like us to leave. Ugh. You would think she would be more understanding. She always says how lucky I am to not have Alec flapping and being so autistic. ugh. He is very autistic. Very, VERY autistic. She choses not to see it I guess. But she complains about everyone. About how all kids are brats and how parents dont tell them to be nice and good anymore. I can't imagine that all parents are like this. She complains that the dogs in her neighborhood bark. LOL She complains that kids will skateboard down her street. She lives on the street of an elementary school! She complains that kids whine, she just complains. Everything gets on her nerves. But oh well. She can be a real pain in the butt. But I dont think she means to be. Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. Jacquie H Re: Re: Digest Number 5691 Well, we have been asked to leave a few restaurants because spent most of his time under the table. So we don't go to those places anymore. Noisy coffee shops, pancake houses and any place with a drive through usually don't care if is on the floor on on a chair. At our favorite coffee shop the waitresses even look under the table to say hi to and ask him if he wants toast. And I just don't worry about what it looks like anymore. Tuna >>>>>>>>>>> > My mom can be like that. Ugh. She told me that if > Alec is sitting under the table at a resturant it > might bother people. I was confused really. Why on > earth would that bother anyone? He wasnt making > noise or anything just sitting there. And she told > me(we were in the resturant at the time) that I > would have to stop taking him out to eat if he kept > doing it. >>>>>>>>>>>>>>>> ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 WEll I guess my mom would be one of those people who would ask the waitress to ask people like us to leave. Ugh. You would think she would be more understanding. She always says how lucky I am to not have Alec flapping and being so autistic. ugh. He is very autistic. Very, VERY autistic. She choses not to see it I guess. But she complains about everyone. About how all kids are brats and how parents dont tell them to be nice and good anymore. I can't imagine that all parents are like this. She complains that the dogs in her neighborhood bark. LOL She complains that kids will skateboard down her street. She lives on the street of an elementary school! She complains that kids whine, she just complains. Everything gets on her nerves. But oh well. She can be a real pain in the butt. But I dont think she means to be. Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. Jacquie H Re: Re: Digest Number 5691 Well, we have been asked to leave a few restaurants because spent most of his time under the table. So we don't go to those places anymore. Noisy coffee shops, pancake houses and any place with a drive through usually don't care if is on the floor on on a chair. At our favorite coffee shop the waitresses even look under the table to say hi to and ask him if he wants toast. And I just don't worry about what it looks like anymore. Tuna >>>>>>>>>>> > My mom can be like that. Ugh. She told me that if > Alec is sitting under the table at a resturant it > might bother people. I was confused really. Why on > earth would that bother anyone? He wasnt making > noise or anything just sitting there. And she told > me(we were in the resturant at the time) that I > would have to stop taking him out to eat if he kept > doing it. >>>>>>>>>>>>>>>> ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > My mom can be like that. Ugh. She told me that if Alec is sitting under the table at a resturant it might bother people. I was confused really. Why on earth would that bother anyone? He wasnt making noise or anything just sitting there. And she told me(we were in the resturant at the time) that I would have to stop taking him out to eat if he kept doing it. I asked why. I told her he is fine down there. She said " but what happens if he is still doing it at 12 or 15 or 20? I told her I would take him with his usual bag of lunch from Burger King. Ugh. > Jacquie H That's my attitude. I wouldn't care if was drooling and talking gibberish. I would still take her out. She can get too loud and she mimics noises she hears one of the non-verbal kids on her bus making but she likes being out in public on occasion. Most of the time she would prefer to stay at home but sometimes she wants to go. I'm not going to deny her that. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > My mom can be like that. Ugh. She told me that if Alec is sitting under the table at a resturant it might bother people. I was confused really. Why on earth would that bother anyone? He wasnt making noise or anything just sitting there. And she told me(we were in the resturant at the time) that I would have to stop taking him out to eat if he kept doing it. I asked why. I told her he is fine down there. She said " but what happens if he is still doing it at 12 or 15 or 20? I told her I would take him with his usual bag of lunch from Burger King. Ugh. > Jacquie H That's my attitude. I wouldn't care if was drooling and talking gibberish. I would still take her out. She can get too loud and she mimics noises she hears one of the non-verbal kids on her bus making but she likes being out in public on occasion. Most of the time she would prefer to stay at home but sometimes she wants to go. I'm not going to deny her that. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > My mom can be like that. Ugh. She told me that if Alec is sitting under the table at a resturant it might bother people. I was confused really. Why on earth would that bother anyone? He wasnt making noise or anything just sitting there. And she told me(we were in the resturant at the time) that I would have to stop taking him out to eat if he kept doing it. I asked why. I told her he is fine down there. She said " but what happens if he is still doing it at 12 or 15 or 20? I told her I would take him with his usual bag of lunch from Burger King. Ugh. > Jacquie H That's my attitude. I wouldn't care if was drooling and talking gibberish. I would still take her out. She can get too loud and she mimics noises she hears one of the non-verbal kids on her bus making but she likes being out in public on occasion. Most of the time she would prefer to stay at home but sometimes she wants to go. I'm not going to deny her that. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > Well, we have been asked to leave a few restaurants > because spent most of his time under the table. > So we don't go to those places anymore. 's class was out on a field trip and stopped at a Mcs in Richmond IN (It's right by route 40 if anyone is going that way and wants to avoid it.) The MANAGER told the teacher that she ought to be ashamed for bringing " those type of kids out in public. " Needless to say I do NOT go to that Mcs anymore and I tell everyone to boycott it. Jerk. Mcs of all places!! Sure some of the kids in 's class are very low functioning and some have to be hand fed but it's a MCDONALDS not a 5 star restaurant!! I don't care how load they scream, it's supposed to be a kid friendly restaurant. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > Well, we have been asked to leave a few restaurants > because spent most of his time under the table. > So we don't go to those places anymore. 's class was out on a field trip and stopped at a Mcs in Richmond IN (It's right by route 40 if anyone is going that way and wants to avoid it.) The MANAGER told the teacher that she ought to be ashamed for bringing " those type of kids out in public. " Needless to say I do NOT go to that Mcs anymore and I tell everyone to boycott it. Jerk. Mcs of all places!! Sure some of the kids in 's class are very low functioning and some have to be hand fed but it's a MCDONALDS not a 5 star restaurant!! I don't care how load they scream, it's supposed to be a kid friendly restaurant. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. > We're twins right Jacquie? We have the same mother I'm sure. I often say that if my mother couldn't bitch she'd explode, but if I ever said that to her she would be extremely offended. She'd sulk for months. She doesn't see herself that way at all. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. > We're twins right Jacquie? We have the same mother I'm sure. I often say that if my mother couldn't bitch she'd explode, but if I ever said that to her she would be extremely offended. She'd sulk for months. She doesn't see herself that way at all. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > Its weird. She doesn't see herself as demanding or unreasonable at all. I could go on and on but I won't. Anyway, I plan to take Alec out to resturants as long as I want to. > We're twins right Jacquie? We have the same mother I'm sure. I often say that if my mother couldn't bitch she'd explode, but if I ever said that to her she would be extremely offended. She'd sulk for months. She doesn't see herself that way at all. Tina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.