EDS Awareness

[Guest guest]

I mentioned in a post earlier today that I had a couple of fairly

interesting things going on involving EDS awareness.

You all know that one of the things I do is help people find

practitioners of some of the alternative therapies. Some of it I do

via open post, some via off-list email.

A couple of weeks ago, I was trying to find a Jin Shin Do

practitioner for someone on the East Coast. When I couldn't locate

anyone close enough on my own, I sent an email to someone and asked

for her help. We swapped three or four emails back and forth in the

process. Here are some excerpts of her replies to me.

" (1)I'm not familiar with the Ehlers-Danlos Syndrome, but I've been

working a lot recently with connective tissue through the Tendino-

Muscular meridians and would be very interested in working with it,

given your testimonial about what bodywork has done for you.

(2)I'll start educating myself about this. It occurs to me to ask if

you belong to the AOBTA. I'm the editor of the newsletter and would

be very interested in an article from you about the syndrome and

your experience with it, as there may be other Asian Body Therapy

forms that would benefit people with it. I'm thinking Chi Nei Tsang

and Medical Qi Gong for starters. That might give you a more

extensive list of available practitioners. It sounds like people

with more advanced problems would need to avoid therapies that

stretch or manipulate the body, as in traditional Shiatsu or Thai

massage.

(3)This is practically the article I'd like to put in Pulse. With

the addition of some background on EDS and some tweaking, this is

exactly the style that I would like to see. I'm going to work on

putting some of the material you've already sent me together into an

article and then run it by you. I thank you for all the references,

etc. The amount of material is overwhelming, and I'm sure our

readers would feel that way too, unless they are in contact with

someone with EDS. So, what I'd like to do is provide the list of

research sources you have provided me as part of the article. Let me

know what you think. "

Does it surprise anyone that Barb was able to very quickly come up

with an overwhelming amount of reference links? To say that Barb and

I are absolutely thrilled about this is a gross understatment. As

info, AOBTA is the American Organization of Bodywork Therapies of

Asia.

This is a phenomenal opportunity to educate a very major group of

alternative practitioners about EDS. More importantly, it is going

to give me access to a very wide ranging list of practitioners that

I didn't have access to before for making recommendations in the

future.

I hadn't said anything about it earlier because I wanted to make

sure that it was actually going to happen. It looks now like she is

targeting their issue that will be mailed on May 5th.

At the top I said I had a couple of fairly interesting things going

on. The other part of " couple " is that my Polarity teacher has also

asked me to do something similar with APTA, which is the American

Polarity Therapy Association. Everybody please keep your fingers

crossed and think positive thoughts. Maybe I can get something

going with them as well.