reaching childhood milestones

[Guest guest]

is doing a project on HEDS. One of her questions for her project is,

has the child reached major milestones and at what age?

Since she's not a " true HEDS " , she made her milestones at the normal time.

What about true HEDS kids? Have they sat up, crawled, walked, talked, etc on

time? Thanks in advance for your help!

Bonnie

[Guest guest]

Hi Bonnie

Dont know if this will help much but i was definatly a delayed

development child. I think I was well over a year before walking,

and a late talker. My parents always chocked this up to the fact

that I was born three months premature (which ive read is also a HEDS

characteristic) but we are now wondering about pretty much everything

in my life and if it was impacted by undiagnosed eds.

Stacey

[Guest guest]

, Dylan is 17 years old, DX with EDS3, a little over a year ago. All

milestones where normal or early except for speech, which is not unusal for that

last of 5 boys. Want more info? just ask. Cindylouwho

[Guest guest]

~~

I too reached milestones well in advance. Socially ... my mom always said I

was a late bloomer, however. I think it was I was so sick when I was little

and started to tear, pop and rip really really early... a bit of an outCAST

when you are always in one!

Debbi

[Guest guest]

I NEVER crawled like a " normal " child. Infact I NEVER crawled at all

I sat up (a lot of the time in the W positiion) and sort of used my

legs to scoot my self along (we know now that I probably could crawl

due to the laxity).

I am usure about walking etc and since my Mum passed away in 2002 I

will never know. My sister though had MANY speech probelms and had to

go through speech therapy.

Hope this helps (we are thought to be HEDS but my family shows signs

of EDS as well with many members have all teeth removed by age 30).

Sharon

> is doing a project on HEDS. One of her questions for her

project is,

> has the child reached major milestones and at what age?

>

> Since she's not a " true HEDS " , she made her milestones at the

normal time.

> What about true HEDS kids? Have they sat up, crawled, walked,

talked, etc on

> time? Thanks in advance for your help!

>

> Bonnie

[Guest guest]

I NEVER crawled like a " normal " child. Infact I NEVER crawled at all

I sat up (a lot of the time in the W positiion) and sort of used my

legs to scoot my self along (we know now that I probably could crawl

due to the laxity).

I am usure about walking etc and since my Mum passed away in 2002 I

will never know. My sister though had MANY speech probelms and had to

go through speech therapy.

Hope this helps (we are thought to be HEDS but my family shows signs

of EDS as well with many members have all teeth removed by age 30).

Sharon

> is doing a project on HEDS. One of her questions for her

project is,

> has the child reached major milestones and at what age?

>

> Since she's not a " true HEDS " , she made her milestones at the

normal time.

> What about true HEDS kids? Have they sat up, crawled, walked,

talked, etc on

> time? Thanks in advance for your help!

>

> Bonnie

[Guest guest]

I NEVER crawled like a " normal " child. Infact I NEVER crawled at all

I sat up (a lot of the time in the W positiion) and sort of used my

legs to scoot my self along (we know now that I probably could crawl

due to the laxity).

I am usure about walking etc and since my Mum passed away in 2002 I

will never know. My sister though had MANY speech probelms and had to

go through speech therapy.

Hope this helps (we are thought to be HEDS but my family shows signs

of EDS as well with many members have all teeth removed by age 30).

Sharon

> is doing a project on HEDS. One of her questions for her

project is,

> has the child reached major milestones and at what age?

>

> Since she's not a " true HEDS " , she made her milestones at the

normal time.

> What about true HEDS kids? Have they sat up, crawled, walked,

talked, etc on

> time? Thanks in advance for your help!

>

> Bonnie

[Guest guest]

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

> Thanks Sharon!!

>

> Re: reaching childhood milestones

>

>

> I NEVER crawled like a " normal " child. Infact I NEVER crawled at

all

> I sat up (a lot of the time in the W positiion) and sort of used

my

> legs to scoot my self along (we know now that I probably could

crawl

> due to the laxity).

>

>

>

[Guest guest]

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

> Thanks Sharon!!

>

> Re: reaching childhood milestones

>

>

> I NEVER crawled like a " normal " child. Infact I NEVER crawled at

all

> I sat up (a lot of the time in the W positiion) and sort of used

my

> legs to scoot my self along (we know now that I probably could

crawl

> due to the laxity).

>

>

>

[Guest guest]

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

> Thanks Sharon!!

>

> Re: reaching childhood milestones

>

>

> I NEVER crawled like a " normal " child. Infact I NEVER crawled at

all

> I sat up (a lot of the time in the W positiion) and sort of used

my

> legs to scoot my self along (we know now that I probably could

crawl

> due to the laxity).

>

>

>

[Guest guest]

Thanks Sharon!!

Re: reaching childhood milestones

I NEVER crawled like a " normal " child. Infact I NEVER crawled at all

I sat up (a lot of the time in the W positiion) and sort of used my

legs to scoot my self along (we know now that I probably could crawl

due to the laxity).

[Guest guest]

Thanks Sharon!!

Re: reaching childhood milestones

I NEVER crawled like a " normal " child. Infact I NEVER crawled at all

I sat up (a lot of the time in the W positiion) and sort of used my

legs to scoot my self along (we know now that I probably could crawl

due to the laxity).

[Guest guest]

I sure hope that her presentatin goes well and that her " husband "

helps with the " birth " of there little girl , what a good way

to make kids research genetics especially since they have in

the class who has a genetic disease and waht a great way for her to

MAYBE get across to the other students and her teacher what EDS (or

HEDS in particular in this case) is like.

Let us know how her presentation goes.

As for a girls name that is LOTR related (here are all of the girls

names I could find on the net from LOTR (one of the 3 parts):- Arwen

(Elf) ,Luthien (the elven woman who was the first among them), Eowyn,

Galadriel (Elf queen and Arwen's grandmother), Rosie (Hobbit), Freda

(Child of Morwen), Morwen (woman from westfold who seds kids away

when village attacked by uruk-hai and wildmen), Lobelia (Hobbit).

OR use the following site to make up a middle earth name (I put in

's name along with the surname you sign with " Heintskill " and

got a HEAP of cool middle earth names, maybe she could use on of them

the web site is http://www.barrowdowns.com/middleearthname.asp and

the names are things like " Ainadring " one possible elven name for

, other are " Ainadringiel, Ainadringien, Ainadringwen " or her

female Hobbit name of " Gem " .

Well that filled in time looking up that LOTR info. THANX :->

Sharon

> Thanks... . presents tomorrow with her " husband " for Biology

class....

>

> She's " having a girl " and trying to think of a name for the baby.

Of course, she's looking at names that would be Lord of the Rings

oriented.

>

> Boys and girls in the biology class were paired with the opposite

sex and had to do a joint research project on a genetic disorder. I

wish I could be at her class to see her present.... It should be

interesting!

>

> At least the boy is doing his part of the research!

>

> Re: reaching childhood milestones

>

>

> OOPS I meant could NOT crawl due to laxity. and you are welcome

is

> there anything else you need.

> Sharon

>

>

>

>

[Guest guest]

Thanks... . presents tomorrow with her " husband " for Biology class....

She's " having a girl " and trying to think of a name for the baby. Of course,

she's looking at names that would be Lord of the Rings oriented.

Boys and girls in the biology class were paired with the opposite sex and had to

do a joint research project on a genetic disorder. I wish I could be at her

class to see her present.... It should be interesting!

At least the boy is doing his part of the research!

Re: reaching childhood milestones

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

[Guest guest]

Thanks... . presents tomorrow with her " husband " for Biology class....

She's " having a girl " and trying to think of a name for the baby. Of course,

she's looking at names that would be Lord of the Rings oriented.

Boys and girls in the biology class were paired with the opposite sex and had to

do a joint research project on a genetic disorder. I wish I could be at her

class to see her present.... It should be interesting!

At least the boy is doing his part of the research!

Re: reaching childhood milestones

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

[Guest guest]

Thanks... . presents tomorrow with her " husband " for Biology class....

She's " having a girl " and trying to think of a name for the baby. Of course,

she's looking at names that would be Lord of the Rings oriented.

Boys and girls in the biology class were paired with the opposite sex and had to

do a joint research project on a genetic disorder. I wish I could be at her

class to see her present.... It should be interesting!

At least the boy is doing his part of the research!

Re: reaching childhood milestones

OOPS I meant could NOT crawl due to laxity. and you are welcome is

there anything else you need.

Sharon

[Guest guest]

OK I am looking forward to it.

Sharon

32 yrs old (for another 18 days)

HEDS

Canberra, Australia

>

> Re: reaching childhood milestones

>

>

> I have only seen the first one so far but enjoyed it, I also have

the

> first 2 books and really enjoy them.

> She can email me any time. What I don't know I can look up

> LOTR is big here (we are close to NZ here in OZ)too.

> Sharon

>

> Well...if you get an email from an imladris822 that's amanda!!!

>

>

>

[Guest guest]

OK I am looking forward to it.

Sharon

32 yrs old (for another 18 days)

HEDS

Canberra, Australia

>

> Re: reaching childhood milestones

>

>

> I have only seen the first one so far but enjoyed it, I also have

the

> first 2 books and really enjoy them.

> She can email me any time. What I don't know I can look up

> LOTR is big here (we are close to NZ here in OZ)too.

> Sharon

>

> Well...if you get an email from an imladris822 that's amanda!!!

>

>

>

[Guest guest]

OK I am looking forward to it.

Sharon

32 yrs old (for another 18 days)

HEDS

Canberra, Australia

>

> Re: reaching childhood milestones

>

>

> I have only seen the first one so far but enjoyed it, I also have

the

> first 2 books and really enjoy them.

> She can email me any time. What I don't know I can look up

> LOTR is big here (we are close to NZ here in OZ)too.

> Sharon

>

> Well...if you get an email from an imladris822 that's amanda!!!

>

>

>

[Guest guest]

Re: reaching childhood milestones

I have only seen the first one so far but enjoyed it, I also have the

first 2 books and really enjoy them.

She can email me any time. What I don't know I can look up

LOTR is big here (we are close to NZ here in OZ)too.

Sharon

Well...if you get an email from an imladris822 that's amanda!!!

[Guest guest]

Re: reaching childhood milestones

I have only seen the first one so far but enjoyed it, I also have the

first 2 books and really enjoy them.

She can email me any time. What I don't know I can look up

LOTR is big here (we are close to NZ here in OZ)too.

Sharon

Well...if you get an email from an imladris822 that's amanda!!!