HI.My name is stacy

[Guest guest]

I was diagnosed with lupus 9/11/02. A terrable day for us all. I am still trying to come to terms with this illness.I am so happy i found your web site. It is vey informative. I have just moved to north carilina and i am tring to find a good doctor so far no good. I will not give up hope.

A little about myself,I am 32 yrs and have 2 children My son is 13 my daughter is 10. I also have a life partner whom has been a gift from heaven to me. She does everything for this family when i am not able too. One of the loves of my life is to watch my children do their tieknowndo. They are green belts.They have 6 classes a week. And i push myself to go to them there have ben times i have not been able to go. Like all of us knows every minute of every day is a struggle.

One of the reasons i am glad i found you web site is other than the people who live with me i have no support! My mother told me after i told her i was sick that "it is to much stress for her and she would rather i did not speak to her anymore" So now i just mail her christmas pictures of the kids "not of me" she said she does not want to see me either" Most i can gather out of it is that she is just selfish and does not want to be a mother to me. Only to her heathy chidren. Who by they way do not speak to me ether. I think they are afaid she will find out. Enough of that.

I am generally a happy person considering the pain and everything else. I love my life even with lupus because i share it with my kids and my life parner. And they are every reason to wake up in the morning.

Thanks for listening! your new freind

[Guest guest]

Hey, , welcome to the group. Well, you will never find someone here who doesn't want to know

you because of your illness. We are all, more or less, in the same boat and rowing like mad to stay

afloat. I believe you will find the members, here, to be caring, supportive, knowledgable, informative,

intelligent (teehee), and funny, too. We can get into teasing mode and josh each other around some,

but we all know how it is to feel isolated from family and friends because of this disease.

I live in No. California, about 50 miles from San Francisco. It took me years to find good doctors, and

when one of them moves away or retires I have it all to do over again. Since the nature of Lupus is

to present itself differently in each patient, and since it's root cause is still a mystery, it is not so

hard to understand why doctors have a difficult time recognizing it and treating it. It took thirty years for the word "suspect" to be removed from my chart wherever the word Lupus appeared. I

often test negatively on the ANA, but have every other symptom in the book. We are each unique

in how our bodies react to Lupus, how WE react emotionally and mentally, and how our doctors react

professionally to it. No wonder we are lost in Lupus fog a lot of the time.

You should feel free to jump into any conversation going on the board, ask questions, vent, whine

(We offer a little cheese with that.), moan, groan, laugh, cry. We share a lot more than just symptoms in this group. Any chronic disease takes a heavy toll on the patient and on their loved ones. No question about it. But, the heaviest burden is in the feeling of isolation from the rest of the

people around us. Those who deny that we are ill, who like to believe that it is "all in our heads", or

those who just can't cope with sick people in any way, shape, or form and who retreat in defeat to

leave us hanging out there alone in the cold. Yup, we know, and we understand, and we are here for

each other 24/7. We have members around the world, in every time zone, and of many different

backgrounds. We have Lupus in common, and through our membership in this group, we are finding

that we have even more in common with each other, that there are people who care and understand.

So, again, welcome. Tell us more about YOU, and keep writing to the group. It can help tremendously to know that you are not alone any more. Hugs, MM aka: Mike, one of the moderators

[Guest guest]

Hello , I am so sorry you have no support from your family. I just cannot imagine a mother being like that, but some weird things happen in this world. I think it is her loss, although I'm sure it also must be very painful to you.

I have three boys and two of them also do taekwando. The go the the American Taekwando Association (ATA) founded by Master Lee, Chuck Norris's initial coach. My 9 year old just tested for his black belt about three weeks ago after 4 and a half years of commitment. My 7 year old is now a purple belt and will test for blue within the next 6 weeks. I also have a 3 and a half year old, but I'm waiting until he's 5 to sign him up. The two older are also swimmers, one being on the YMCA's swim team.

Welcome, hope you find our group helpful with information, ready with support and bringing you laughter whenever possible. Please feel free to join in our conversations, ask questions and have fun.

Mojo

HI.My name is stacy

I was diagnosed with lupus 9/11/02. A terrable day for us all. I am still trying to come to terms with this illness.I am so happy i found your web site. It is vey informative. I have just moved to north carilina and i am tring to find a good doctor so far no good. I will not give up hope.

A little about myself,I am 32 yrs and have 2 children My son is 13 my daughter is 10. I also have a life partner whom has been a gift from heaven to me. She does everything for this family when i am not able too. One of the loves of my life is to watch my children do their tieknowndo. They are green belts.They have 6 classes a week. And i push myself to go to them there have ben times i have not been able to go. Like all of us knows every minute of every day is a struggle.

One of the reasons i am glad i found you web site is other than the people who live with me i have no support! My mother told me after i told her i was sick that "it is to much stress for her and she would rather i did not speak to her anymore" So now i just mail her christmas pictures of the kids "not of me" she said she does not want to see me either" Most i can gather out of it is that she is just selfish and does not want to be a mother to me. Only to her heathy chidren. Who by they way do not speak to me ether. I think they are afaid she will find out. Enough of that.

I am generally a happy person considering the pain and everything else. I love my life even with lupus because i share it with my kids and my life parner. And they are every reason to wake up in the morning.

Thanks for listening! your new freind "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies