Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 I agree, and I wonder if the testing that I'm in the middle of will prove that? I'm seeing a neurologist right now - partly because of progressive weakness and because my arms and hands are falling asleep all the time, but partly also because of my messed-up speech and not being able to remember. This part just fascinates him, and he's always slipping little tests into the conversation - a couple of weeks ago I " caught " him giving me the 5 minute Alheimer's exam (he seemed a little ticked off that I told my husband what he was doing while he was doing it ). He's not finding any pathology in my brain that would physically cause me to have the difficulties that I'm having (CAT scans, MRIs, etc...), and he keeps repeating over and over, " but fibro doesn't CAUSE speech and memory defects! " . I'm hoping that by the time he's done with the testing and still doesn't find anything organically wrong with my brain that he'll concede that fibro DOES indeed call cause speech and memory defects! Just my two cents :-) - At 07:13 AM 12/11/01 -0500, you wrote: >Yup, frequently. To me, this just goes to prove that there is something >wrong with the way our body conducts it's nerve impulse. The words >definitely get screwed up between my brain and my mouth, although I'm >not sure if it's in the brain or literally on the way there. If fm is >all in our heads with regards to pain, how come we call the refrigerator >a microwave? You might get sympathy for your " false " pain, but you get >nothing besides getting laughed at for mixing up appliances. To me, the >fact that so much of our speech gets mixed up, can't think of the right >word, and can't remember what you knew yesterday, just goes to prove >there is something physically wrong with our bodies. We're not just a >bunch of lazy people who want pain so that we can get sympathy!! >Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 bluskies@... wrote: and he keeps > repeating over and over, " but fibro doesn't CAUSE speech and memory > defects! " . I'm hoping that by the time he's done with the testing and > still doesn't find anything organically wrong with my brain that he'll > concede that fibro DOES indeed call cause speech and memory defects! Have you pointed out to him that a lot of us on the groups complain of these very same things? I will say most of the reading on fibro I did, didn't mention them, but they certainly didn't come out an say they weren't part either. Just too many people complaining of the same thing for it not to be part of it, not to mention the number of doctors who do say it's part of fibro. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 bluskies@... wrote: and he keeps > repeating over and over, " but fibro doesn't CAUSE speech and memory > defects! " . I'm hoping that by the time he's done with the testing and > still doesn't find anything organically wrong with my brain that he'll > concede that fibro DOES indeed call cause speech and memory defects! Have you pointed out to him that a lot of us on the groups complain of these very same things? I will say most of the reading on fibro I did, didn't mention them, but they certainly didn't come out an say they weren't part either. Just too many people complaining of the same thing for it not to be part of it, not to mention the number of doctors who do say it's part of fibro. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Well, Fibro does cause speech and memory defects and I can't imagine a neurologist not know this. This was on one of the problems that first caused my doctor to start thinking about fibro and he is a family doctor. << and he keeps repeating over and over, " but fibro doesn't CAUSE speech and memory defects! " . >> Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 That doctor is a big POOP HEAD!!!! That's my opinion and I'm sticking to it *lol* Anne Re: Speech & Memory u2tree2000 wrote: > > How is this different if I went to a group and met with other Fibro > sufferers in person. I wonder if you reword it different and say I > attend a group and take out the internet what the doctor would say. Oh, I can answer that one as the subject came up. What he had to say about local support groups after he asked me if I belonged to one, and I said no, was " good, because all they do is whine and focus on their pain for about 50 minutes and about 10 minutes of time decently spent. " Needless to say, as soon as I can find the paper again, I'm going to try a local group for at least a meeting or two. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Well that doctor is ridiculous, doesn't he know that talking to others that have the same syndrome you have actually makes you feel better. I hate doctors who don't support groups like that. They have their place and our meaningful to the people that attend them. Tara > > > > How is this different if I went to a group and met with other Fibro > > sufferers in person. I wonder if you reword it different and say I > > attend a group and take out the internet what the doctor would say. > > Oh, I can answer that one as the subject came up. What he had to say > about local support groups after he asked me if I belonged to one, and I > said no, was " good, because all they do is whine and focus on their pain > for about 50 minutes and about 10 minutes of time decently spent. " > Needless to say, as soon as I can find the paper again, I'm going to try > a local group for at least a meeting or two. > > Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 u2tree2000 wrote: > Finally I was like you know what > a pimple doesn't flake, bleed and last for a year, he said I am the > doctor, and I said yeah and I am the customer so I am finding a > different store. I just *love* it when doctors just totally ignore what you're saying and act like your symptom isn't really like what you're telling them it is. What do they actually think that you'd make up a symptom like flaking and bleeding, not to mention lasting for a year?? Oh doctor, I'm so stressed by this dumb ole pimple that means the boys won't look at me that I'm going to invent it's bleeding and flaking and exaggerate how long I've had it, just so you'll get rid of it for me. What a total idiot!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 We can only hope . I would love to think that another doctor finally sees the light that this isn't anything to brush off and it attacks the whole body... --- bluskies@... wrote: > I agree, and I wonder if the testing that I'm in the > middle of will prove > that? I'm seeing a neurologist right now - partly > because of progressive > weakness and because my arms and hands are falling > asleep all the time, but > partly also because of my messed-up speech and not > being able to remember. > This part just fascinates him, and he's always > slipping little tests into > the conversation - a couple of weeks ago I " caught " > him giving me the 5 > minute Alheimer's exam (he seemed a little ticked > off that I told my > husband what he was doing while he was doing it ). > He's not finding any > pathology in my brain that would physically cause me > to have the > difficulties that I'm having (CAT scans, MRIs, > etc...), and he keeps > repeating over and over, " but fibro doesn't CAUSE > speech and memory > defects! " . I'm hoping that by the time he's done > with the testing and > still doesn't find anything organically wrong with > my brain that he'll > concede that fibro DOES indeed call cause speech and > memory defects! Just > my two cents :-) > > - > > At 07:13 AM 12/11/01 -0500, you wrote: > >Yup, frequently. To me, this just goes to prove > that there is something > >wrong with the way our body conducts it's nerve > impulse. The words > >definitely get screwed up between my brain and my > mouth, although I'm > >not sure if it's in the brain or literally on the > way there. If fm is > >all in our heads with regards to pain, how come we > call the refrigerator > >a microwave? You might get sympathy for your > " false " pain, but you get > >nothing besides getting laughed at for mixing up > appliances. To me, the > >fact that so much of our speech gets mixed up, > can't think of the right > >word, and can't remember what you knew yesterday, > just goes to prove > >there is something physically wrong with our > bodies. We're not just a > >bunch of lazy people who want pain so that we can > get sympathy!! > >Darcy > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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