Re: Amazing revelation from my son

[Guest guest]

LOri-my son had substantail vision issues even after we thought they were

largely resolved. And he didn't know himself how bad things were until

things were fixed. When you live with something day in and day out, you

have no idea what " normal " is

Amazing revelation from my son

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological vision

issues even though he appears to see fine (he reads well, and tested 20/30).

She prescribed him a set of very low magnification glasses, that seem to

help him with depth perception, and he appears to read more fluently with

them. We have not made him wear them except when he is watching TV or doing

seat work. (She also wants us to spend $7,000 on visual therapy over the

next 1.5 years, which we are considering).

>

> He has lost most . "

>

> Today, he was really going to town with his finger games when I had a

thought that maybe he likes this so much because neurologically he is seeing

something different, like light trails when he is waving is fingers and

hands around. I stopped him and said " , I want you to wear your

glasses now. " He put them on for me but did not want to. After a few

minutes he said " Mom, I don't want to wear my glasses now. " I said " Why not

" , He said " Because now I can't play superheroes. " When I asked him

" why not " his answer to me was " because it looks different with my glasses

on. " As long as he has his glasses on, he has NO DESIRE to play these

finger game - Hallelujah!

>

> What an incredible discovery! There is so much about what is going on

with these kids that we have not idea of -- until we get small glimpses what

they think, feel, hear and see. I'm starting to believe that the vision

issue may be a bigger piece of the puzzle than we previously had thought.

>

> Lori

>

>

>

>

>

[Guest guest]

Lori,

My son, Liam, 7, ADHD, CAPD, Dyslexic, SID, has been doing VT for 9

months (though we stopped to do another program for the summer).

The results have been AMAZING! Some of the very best money I have

ever shelled out of my very light wallet! Even Liam will tell you

he can do a lot more stuff with his eyes and can control the muscles

SO MUCH better. Think hard, girl! It could make a huge difference

for your child.

Sio

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological

vision issues even though he appears to see fine (he reads well, and

tested 20/30). She prescribed him a set of very low magnification

glasses, that seem to help him with depth perception, and he appears

to read more fluently with them. We have not made him wear them

except when he is watching TV or doing seat work. (She also wants us

to spend $7,000 on visual therapy over the next 1.5 years, which we

are considering).

>

> He has lost most of his autistic symptoms except one - that drives

us crazy because it looks so wierd - he pretend plays with his

fingers and holds his hands about 4-6 inches in front of his eyes,

and role plays with his fingers and hands. He has a bunch of

figurines that he involves in this and he calls it " playing

superheroes. "

>

> Today, he was really going to town with his finger games when I

had a thought that maybe he likes this so much because

neurologically he is seeing something different, like light trails

when he is waving is fingers and hands around. I stopped him and

said " , I want you to wear your glasses now. " He put them on

for me but did not want to. After a few minutes he said " Mom, I

don't want to wear my glasses now. " I said " Why not " , He

said " Because now I can't play superheroes. " When I asked him " why

not " his answer to me was " because it looks different with my

glasses on. " As long as he has his glasses on, he has NO DESIRE to

play these finger game - Hallelujah!

>

> What an incredible discovery! There is so much about what is

going on with these kids that we have not idea of -- until we get

small glimpses what they think, feel, hear and see. I'm starting to

believe that the vision issue may be a bigger piece of the puzzle

than we previously had thought.

>

> Lori

>

>

>

>

>

[Guest guest]

brain blood sugar is very significant for the eyes

i would get a hair test

try and get some bone marrow fat is the diet for pancreas stem cell

support.

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological

vision issues even though he appears to see fine (he reads well, and

tested 20/30). She prescribed him a set of very low magnification

glasses, that seem to help him with depth perception, and he appears

to read more fluently with them. We have not made him wear them

except when he is watching TV or doing seat work. (She also wants us

to spend $7,000 on visual therapy over the next 1.5 years, which we

are considering).

>

> He has lost most of his autistic symptoms except one - that drives

us crazy because it looks so wierd - he pretend plays with his

fingers and holds his hands about 4-6 inches in front of his eyes,

and role plays with his fingers and hands. He has a bunch of

figurines that he involves in this and he calls it " playing

superheroes. "

>

> Today, he was really going to town with his finger games when I had

a thought that maybe he likes this so much because neurologically he

is seeing something different, like light trails when he is waving is

fingers and hands around. I stopped him and said " , I want you

to wear your glasses now. " He put them on for me but did not want

to. After a few minutes he said " Mom, I don't want to wear my

glasses now. " I said " Why not " , He said " Because now I can't

play superheroes. " When I asked him " why not " his answer to me

was " because it looks different with my glasses on. " As long as he

has his glasses on, he has NO DESIRE to play these finger game -

Hallelujah!

>

> What an incredible discovery! There is so much about what is going

on with these kids that we have not idea of -- until we get small

glimpses what they think, feel, hear and see. I'm starting to

believe that the vision issue may be a bigger piece of the puzzle

than we previously had thought.

>

> Lori

>

>

>

>

>

[Guest guest]

I had a vision therapist tell me that she can get kids to do a lot,

even when they aren't very verbal. Allie is getting better and

better with verbal communication but HATES doctors' offices and

strangers. I told the therapist I was considering it when she's a

little older and she suggested that Allie might be fine now. She has

never seen Allie. Would you suggest vision therapy for a moderately-

functioning 5 yr old?

Thanks,

Debi

> Lori,

>

> My son, Liam, 7, ADHD, CAPD, Dyslexic, SID, has been doing VT for

9

> months (though we stopped to do another program for the summer).

> The results have been AMAZING!

[Guest guest]

Well, I'd try and get an eval done (if you haven't). Then based on

your daughter's needs, ask her to design a program you could do with

her at home. A lot of people only see the therapist once a month or

so. We went twice a week, but that's because i was trying to get as

much in as I could before school got out, as I knew we'd have to

stop for the summer. But the stuff we did at home took a little

over 30 minutes each day, (had to be done at least five days a

week).

One thing she may like about vision therapy is the fact that it is

very repetitive, so once you worked it into her routine, it would be

quite doable, I think! Does she work with an Occupational

Therapist? If she does OK with that, then I'd think, barring

personality issues, she'd do fine with VT (as it is OT for the

muscles of the eyes).

Also, my VT therapist has a lot of experience working with ASD

kiddo's. It is a common co-morbid for some reason. I wonder if

yours does, too?

If you have any questions, and want to ask a great developmental

optometrist go to the ReadNOW board. Address your questions

to Dr. Stephey in the title. He'll give you very honest answers.

HTH

Sio

> I had a vision therapist tell me that she can get kids to do a

lot,

> even when they aren't very verbal. Allie is getting better and

> better with verbal communication but HATES doctors' offices and

> strangers. I told the therapist I was considering it when she's a

> little older and she suggested that Allie might be fine now. She

has

> never seen Allie. Would you suggest vision therapy for a

moderately-

> functioning 5 yr old?

>

> Thanks,

> Debi

>

> > Lori,

> >

> > My son, Liam, 7, ADHD, CAPD, Dyslexic, SID, has been doing VT

for

> 9

> > months (though we stopped to do another program for the

summer).

> > The results have been AMAZING!

[Guest guest]

Lori, my son is 4 and likes to do something similar with puzzle pieces and

other various objects. He likes to wave them back and forth in front of

his eyes. My son is non-verbal and cannot express why he does this. I

have always suspected that he was seeing something that you or I would not

see if we were to engage in this behavior. Could you tell me more about

what kind of testing was done to determine your child's vision

difficulties? Would these tests work on a younger, non-verbal child?

Thanks,

Kat

Message: 22

> Date: Mon, 05 Jul 2004 17:33:34 -0500

> From: Lori Knowles <loriknowles@...>

> Subject: Amazing revelation from my son

>

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological vision

issues even though he appears to see fine (he reads well, and tested

20/30). She prescribed him a set of very low magnification glasses, that

seem to help him with depth perception, and he appears to read more

fluently with them. We have not made him wear them except when he is

watching TV or doing seat work. (She also wants us to spend $7,000 on

visual therapy over the next 1.5 years, which we are considering).

>

> He has lost most of his autistic symptoms except one - that drives us

crazy because it looks so wierd - he pretend plays with his fingers and

holds his hands about 4-6 inches in front of his eyes, and role plays with

his fingers and hands. He has a bunch of figurines that he involves in

this and he calls it " playing superheroes. "

>

> Today, he was really going to town with his finger games when I had a

thought that maybe he likes this so much because neurologically he is

seeing something different, like light trails when he is waving is fingers

and hands around. I stopped him and said " , I want you to wear your

glasses now. " He put them on for me but did not want to. After a few

minutes he said " Mom, I don't want to wear my glasses now. " I said " Why

not " , He said " Because now I can't play superheroes. " When I asked

him " why not " his answer to me was " because it looks different with my

glasses on. " As long as he has his glasses on, he has NO DESIRE to play

these finger game - Hallelujah!

>

> What an incredible discovery! There is so much about what is going on

with these kids that we have not idea of -- until we get small glimpses

what they think, feel, hear and see. I'm starting to believe that the

vision issue may be a bigger piece of the puzzle than we previously had

thought.

>

> Lori

[Guest guest]

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological

vision issues even though he appears to see fine (he reads well, and

tested 20/30). She prescribed him a set of very low magnification

glasses, that seem to help him with depth perception, and he appears

to read more fluently with them. We have not made him wear them

except when he is watching TV or doing seat work. (She also wants us

to spend $7,000 on visual therapy over the next 1.5 years, which we

are considering).

I did VT for about 9 months (about 9 or 10 years ago?)

I was able to get my insurance to pay for much of it.

This DID require phonecalls and discussion. I think

they paid 50% or 70%. I don't remember what each visit

cost but I went once a week for about 9 months.

I guess $7000 sounds a bit steep to me (for VT), unless

you are going several times a week.

>

> He has lost most of his autistic symptoms except one - that drives

us crazy because it looks so wierd - he pretend plays with his

fingers and holds his hands about 4-6 inches in front of his eyes,

and role plays with his fingers and hands. He has a bunch of

figurines that he involves in this and he calls it " playing

superheroes. "

I used to diverge my eyes (focus way far out in the distance)

often, and I had NO IDEA that I was doing it or what it was

I was doing. If I was by myself or in situations with tiles

or other patterns I would just sort of do it unconciously.

I did VT for months before I got some clue that I was " doing

something " and WHAT IT WAS I was doing. Very weird.

FWIW, mercury chelation (taking ALA) made VERY BIG changes

in my vision, right away. This was several YEARS after I

finished VT. I think both can be important.....

good wisehs,

Moria

[Guest guest]

Glad to see your story. I think vision issues are affecting a lot of

the kids. We took care of 50% of my daughter's problems at 2 1/2

when she got glasses for being very far-sighted. It took 9 months

for her brain to adjust to the glasses and world around her that she

could now see! We then could look back and see that her vision

started going downhill after her MMR at 1 year (she developed very

normally up to that point). We just spent $1500 on a preschool

vision therapy program for 10 weeks and the changes made it well

worth it (I continue the program at home now). Our next journey is

primative reflexes (learned about through our vision therapy and my

daughter definately has some) and we'll also look at NDD. We hope

not to have to do formal vision therapy in a couple years.

Best Wishes!

Becky

> My son , high functioning, age 6, was recently tested by a

behavioral optometrist and found to have significant neurological

vision issues even though he appears to see fine (he reads well, and

tested 20/30). She prescribed him a set of very low magnification

glasses, that seem to help him with depth perception, and he appears

to read more fluently with them. We have not made him wear them

except when he is watching TV or doing seat work. (She also wants us

to spend $7,000 on visual therapy over the next 1.5 years, which we

are considering).

>

> He has lost most of his autistic symptoms except one - that drives

us crazy because it looks so wierd - he pretend plays with his

fingers and holds his hands about 4-6 inches in front of his eyes,

and role plays with his fingers and hands. He has a bunch of

figurines that he involves in this and he calls it " playing

superheroes. "

>

> Today, he was really going to town with his finger games when I had

a thought that maybe he likes this so much because neurologically he

is seeing something different, like light trails when he is waving is

fingers and hands around. I stopped him and said " , I want you

to wear your glasses now. " He put them on for me but did not want

to. After a few minutes he said " Mom, I don't want to wear my

glasses now. " I said " Why not " , He said " Because now I can't

play superheroes. " When I asked him " why not " his answer to me

was " because it looks different with my glasses on. " As long as he

has his glasses on, he has NO DESIRE to play these finger game -

Hallelujah!

>

> What an incredible discovery! There is so much about what is going

on with these kids that we have not idea of -- until we get small

glimpses what they think, feel, hear and see. I'm starting to

believe that the vision issue may be a bigger piece of the puzzle

than we previously had thought.

>

> Lori

>

>

>

>

>