Chat: update on Storm and family

[Guest guest]

Hi all,

Sorry I haven't been able to be more active on the list lately. We

have been dealing with a lot of issues and I have not had the time or

the energy to even spend more than a few minutes online at a time and

keeping up with regular emial is about all I have been able to do.

We are struggling with our job and the kids school (the same place)

We are in a very rough position right now. I don't really know what

to do about Storm, He is not gaining weight again (it's winter!) I

have emailed Dr. H with his new measurements, and she said she would

check everything and send his new dosages, but we haven't heard yet.

I am afraid he is not getting enough gh. Also, his other meds run out

this month, but we don't see the gastro until next month. I am

afraid he willstart throwing up again and we will lose all he has

gained. I am just nuts right now. So sorry Jodi, to hear how Max's

visit with Dr. H went! I'm sure she meant well, but you know how her

bedside manner can be!

Anyhow, we are in the middle of a VERY tough decision on the job

front. If we accept the position in NC we will have 3 very small

rooms to live in. (VERY SMALL) but if we don't accept the job, then

what! We cannot stay in the current situation we are in, it is just

bad news for our kids! Anyhow, thanks for listening! I will update

Storm's measurements next time! Thank you all for your support!

And to the mom with the adopted girls and soon boy! GOOD FOR YOU!

Hang in there! RSS isn't that horrible! Also, it actually is easier

when the family knows the truth, sometimes they can be very

supportive when they know what is going on! Just my opinion, I know

all families are different! I don't have to tell my family, Storm is

happy to tell them all the time!

Anyhow, thanks for reading!

Carmen, mom to Paisley, growing too fast at almost 10 and Storm, age

7 y. 3m. 44 pounds and 109 cm.