Re: Hemet Mom Needs A Break!

[Guest guest]

Find a quit place and pray!!!!

[Guest guest]

What our family does.....

My son gets services from our state's Division of Developmental Disabilities.

We get 4 hours of respite per week, where a worker comes into our home and

cares for our son. During the summer, I enrolled my son one day week in a day

camp run by our city's Park Department. Because my son has a disability, I

requested accommodations for him under the American's with Disabilities Act, so

camp was successful without too many complaints. I did have to talk with the

city's special needs coordinator both before and after enrollment to make sure

my son's special needs were met. The ADA, is a wonderful law, and as parents

of special needs children, it really benefits our kids for us to become

experts on this law. I have even gone as far as to call the info line on the

ADA

website. The coordinator who answered my call was wonderful, and sent me lots

of free information.

I also attend a monthly informal support group of local Moms. We meet in a

local restaurant and share stories, compare IEPs, etc. My NT 13 year old

daughter has started baby-sitting for some of the families.

You NEED to get your son signed up for Division of Developmental Disabilities

Services (or whatever it is called in your state) before his 18th birthday.

It is my understanding that it is MUCH harder to get services if you try to

sign them up as adults. DDD works with transitioning disabled adults as they

leave school and will be the provider of housing and assisted employment as they

age out of the school system. So, it is very important that you begin to

plan now for your son's future, especially in light of the declining budgets in

many states, and the fact that you will have to fight harder than ever for

services for your child.

Jody

[Guest guest]

Hi Dan & ,

Thank you for all your advice! I know of all the

proposed ideas below to work with my daughter. I just

have to fine fresh new ways to get her prompted and

focused.

I like the idea of the vanishing act! For some

reason, the kids notice real quick that I not there

and they come to the bedroom! That's my hideout from

the world.

I do not use any kind of treatments. I only found out

about all these treatments within the 18 months. If I

had known about the autism dx way back when she was an

infant, I would've given it a try. But Lani was dx

with autism officially at the age of 11 yrs. but the

IEP's in school were already implementing her workload

for autism. It was very evident back in her early

school years.

We're in the military and 15 yrs. away from the states

that all these treatments were new. But around the

time my daughter was 7 yrs. I had begun to do research

on the internet, asking the doctors, buying and

reading books on autism and asperger (?). I read all

and anything I could learn about autism so I could

better manage my child.

It paid off for the knowledge and school work. A lot

was from first hand experiences and by reading all the

books found out that I was on target what I was doing

to help her in school. I'm not saying that I'm an

expert on autism, but just through my own experiences

and being around the school with other children known

to have autism of varying characteristics.

My husband is the one who calms me down and takes me

away from the house when I get too stressed. He's

been a Godsend for me. He's very loving and patient

with me (cause I'm hot headed). But now that he's

deployed, that's more stress! But life goes on and so

do I, right?

Thank you for your support. Have a great weekend!

_________________________________________________________

[Guest guest]

Dear ,

" Life goes on and so do I... " I love it! Sometimes I stand back and look

at " life " and wonder what would happen if I just sat down like a 2 year old

and refused to keep everything going...Sometimes I come close to looking

like I'm doing this, and I am surprised at what goes on without me...and how

messy the house gets!!! I can't imagine doing this as a single parent - I

greatly respect you.

I greatly respect the parents in your " generation " of autistic kids. I

worked at a group home with autistic kids in the early 1980's. Most of them

would be in their 20's now. We really didn't do anything with them but

play, swing them, and give them medications. It makes me sad thinking about

what they could have become if we had known what we know now. ABA was still

pretty new then...

I am a bit jealous of those whose kids are newly diagnosed now. When we

started, even the gfcf diet was new and controversial. Now there is so much

info available if people dive in.

Have you tried enzymes with your daughter? If I had a 14 year-old and

hadn't done biomedical interventions, that would probably be the one thing I

would start with. When enzymes were " new " (they are actually " old " in the

treatment of all sorts of things) to autism treatment, I remember reading

all sorts of posts from people who had older children or siblings who were

helped by Houston enzymes. I remember quite vividly a 35 year-old man who

began using words. It doesn't seem to matter a lot whether an autistic

person has digestive problems. If you haven't checked it out already, you

might want to look at . I know the military

doesn't have the most forward-thinking physicians...And I can just imagine

bringing up the vaccine issue with them...But I notice that we are meeting

on the autism treatment list. Have you thought about chelating? Do you have

any sense of what caused your daughter's autism? Did she get boosters at

age 11?

It sounds like you're doing so much for your daughter. She's lucky to have

you for a mom. Blessings on your family and your husband - tell him we

thank him for his service (and yours).

Hang in there!

, mom to and

Re: [ ] Re: Hemet Mom Needs A Break!

> Hi Dan & ,

> Thank you for all your advice! I know of all the

> proposed ideas below to work with my daughter. I just

> have to fine fresh new ways to get her prompted and

> focused.

> I like the idea of the vanishing act! For some

> reason, the kids notice real quick that I not there

> and they come to the bedroom! That's my hideout from

> the world.

> I do not use any kind of treatments. I only found out

> about all these treatments within the 18 months. If I

> had known about the autism dx way back when she was an

> infant, I would've given it a try. But Lani was dx

> with autism officially at the age of 11 yrs. but the

> IEP's in school were already implementing her workload

> for autism. It was very evident back in her early

> school years.

> We're in the military and 15 yrs. away from the states

> that all these treatments were new. But around the

> time my daughter was 7 yrs. I had begun to do research

> on the internet, asking the doctors, buying and

> reading books on autism and asperger (?). I read all

> and anything I could learn about autism so I could

> better manage my child.

> It paid off for the knowledge and school work. A lot

> was from first hand experiences and by reading all the

> books found out that I was on target what I was doing

> to help her in school. I'm not saying that I'm an

> expert on autism, but just through my own experiences

> and being around the school with other children known

> to have autism of varying characteristics.

> My husband is the one who calms me down and takes me

> away from the house when I get too stressed. He's

> been a Godsend for me. He's very loving and patient

> with me (cause I'm hot headed). But now that he's

> deployed, that's more stress! But life goes on and so

> do I, right?

> Thank you for your support. Have a great weekend!

>

>

> _________________________________________________________

>