Re: Re: Ginny/ Update on me

[Guest guest]

Tonia..I didn't get the private e-mail...you can also send it to my aol email which is SteelBayMagnolia@... if you can't get through on my yahoo one. Unfortunately there isn't something that won't make one act up while making another better except for the remicade or methatraxate...the methatrexate made me very sick...so I am hoping for less side affects with the remicade. Hope you are feeling better..and enjoying your new desk...Hugs..GinnyTonia wrote:

Ginny,

I hope that your insurance will let you give yourself the injections at home.....that would be so much easier.

Too bad that some meds will help one thing, but make other things worse. It looks like you are stuck in between a hard place and a rock. Is there anything in the middle that they can do for you otherwise?

Oh, I'm going to be sending you an email to your private addy.......I hope that you get it. My computer is acting up funny.......so, I really hope that you do g et it.

Tonia

-------Original Message-------

Hi all

I saw my rheumatologist yesterday..she is wonderful...she is going to start me on remicade..but I have to have a TB test beforehand to make sure I don't have it...I also have to see an opthamologist that specializes in optic neurology to confirm to suspicions that my optic neuritis is being caused by psoriatic arthritis and not sjogren's which I also have. She doesn't want me on prednisone since my psoriasis is really bad and prednisone can make it even worse. She did inject my fibro trigger points with cortisone and lidocaine to make it feel better..today they are a little sore...hoping tomorrow they will feel 90% better which is usally the case. The good news about remicade now is that they just came out with a new way of giving it...They still give some patients the infusions...but I will have the choice of getting infusions or giving myslef the shot 3x a week...I am definetly going to give it to myself at home if possible...depending on which my

insurance will cover. So things seem to be moving in the right direction now...finally..lol. Hope everyone is having a great weekend...Hugs..Ginny