My Child by the RSS Support Group

[Guest guest]

Hi Everyone,

I saw this " poem " on an autism website, and while autism certainly is not RSS, I

thought the mother's plea resonated with what some of us feel when we see our

children so try to " fit in " at school. I'm inspired to write an RSS version of

this...How about a group effort! Read this, and you'll see what I'm getting at.

Our " poem " could start out the same way: " There is a child I want you to

know....My child is the one who.., etc. " I'll start out:

" ..My child is the one who needs to reach a little higher to open a door.. "

Enjoy and send me your entries! I'll post " our " poem at end of the week.

Katy

My Child

by Marla DeBruin

There is a child I want you to know. The child is my child.

My child looks like your child, normal and perfect in every way.

My child, however, has an invisible disability.

I'm sure you've seen my child. My child is the one who is never invited to

birthday parties.

My child is the child who has never been over to your house to play with your

child.

My child is the one who sits alone on the swing at the playground.

My child is the one who watches other children play together.

My child wants to play with your child, but is told " no " because my child acts

differently than your child.

My child's disability makes my child extremely naive, something you don't find

in children my child's age.

My child doesn't make fun of others and likes everyone.

Small children are attracted to my child because of my child's patience with

them.

Adults find my child charming and polite because that is the only way my child

knows how to behave with others. For some reason, children the same age as my

child find these characteristics unsettling. Your child avoids my child because

of this.

Many adults work towards helping my child try to fit in.

My child is told social stories to help make my child more like yours. The

problem is that my child needs your child to help learn social skills.

Unfortunately this can't happen because your child wants nothing to do with my

child.

Your child, I'm sure, was taught at an early age to be kind to physically

disabled people. With a certain amount of sympathy and good manners, they accept

those who are afflicted. I wish you could teach your child that some

disabilities are not obvious.

My child does not want sympathy; my child just wants friends.

My child has autism.

My child could be your child.

[Guest guest]

My child is the one who has to work twice as hard in her tae-kwan-do class to

have half the skills, the one who's trying to jump over a bag nearly as long

as she is tall, the one who's only three but keeps doing the footwork even

though it hurts,and spars with kids twice her weight and half again her size.

I see her courage, her dignity, and her drive to suceed when all you see is

that she's cute.

[Guest guest]

My child is the one who has to work twice as hard in her tae-kwan-do class to

have half the skills, the one who's trying to jump over a bag nearly as long

as she is tall, the one who's only three but keeps doing the footwork even

though it hurts,and spars with kids twice her weight and half again her size.

I see her courage, her dignity, and her drive to suceed when all you see is

that she's cute.

[Guest guest]

" My child is the one who busts his buns to " do " like everyone else and drink

from a water fountain without a stool........... "

Debby

PS I love the idea.....definitely going to be a saver when it's done!!!!

" My Child " by the RSS Support Group

> Hi Everyone,

> I saw this " poem " on an autism website, and while autism certainly is not

RSS, I thought the mother's plea resonated with what some of us feel when we

see our children so try to " fit in " at school. I'm inspired to write an

RSS version of this...How about a group effort! Read this, and you'll see

what I'm getting at. Our " poem " could start out the same way: " There is a

child I want you to know....My child is the one who.., etc. " I'll start

out:

>

> " ..My child is the one who needs to reach a little higher to open a

door.. "

>

> Enjoy and send me your entries! I'll post " our " poem at end of the week.

> Katy

>

> My Child

> by Marla DeBruin

>

> There is a child I want you to know. The child is my child.

>

> My child looks like your child, normal and perfect in every way.

>

> My child, however, has an invisible disability.

>

> I'm sure you've seen my child. My child is the one who is never invited to

birthday parties.

>

> My child is the child who has never been over to your house to play with

your child.

>

> My child is the one who sits alone on the swing at the playground.

>

> My child is the one who watches other children play together.

>

> My child wants to play with your child, but is told " no " because my child

acts differently than your child.

>

> My child's disability makes my child extremely naive, something you don't

find in children my child's age.

>

> My child doesn't make fun of others and likes everyone.

>

> Small children are attracted to my child because of my child's patience

with them.

>

> Adults find my child charming and polite because that is the only way my

child knows how to behave with others. For some reason, children the same

age as my child find these characteristics unsettling. Your child avoids my

child because of this.

>

> Many adults work towards helping my child try to fit in.

>

> My child is told social stories to help make my child more like yours. The

problem is that my child needs your child to help learn social skills.

Unfortunately this can't happen because your child wants nothing to do with

my child.

>

> Your child, I'm sure, was taught at an early age to be kind to physically

disabled people. With a certain amount of sympathy and good manners, they

accept those who are afflicted. I wish you could teach your child that some

disabilities are not obvious.

>

> My child does not want sympathy; my child just wants friends.

>

> My child has autism.

>

> My child could be your child.

>

>

>

>

>

[Guest guest]

" My child is the one who busts his buns to " do " like everyone else and drink

from a water fountain without a stool........... "

Debby

PS I love the idea.....definitely going to be a saver when it's done!!!!

" My Child " by the RSS Support Group

> Hi Everyone,

> I saw this " poem " on an autism website, and while autism certainly is not

RSS, I thought the mother's plea resonated with what some of us feel when we

see our children so try to " fit in " at school. I'm inspired to write an

RSS version of this...How about a group effort! Read this, and you'll see

what I'm getting at. Our " poem " could start out the same way: " There is a

child I want you to know....My child is the one who.., etc. " I'll start

out:

>

> " ..My child is the one who needs to reach a little higher to open a

door.. "

>

> Enjoy and send me your entries! I'll post " our " poem at end of the week.

> Katy

>

> My Child

> by Marla DeBruin

>

> There is a child I want you to know. The child is my child.

>

> My child looks like your child, normal and perfect in every way.

>

> My child, however, has an invisible disability.

>

> I'm sure you've seen my child. My child is the one who is never invited to

birthday parties.

>

> My child is the child who has never been over to your house to play with

your child.

>

> My child is the one who sits alone on the swing at the playground.

>

> My child is the one who watches other children play together.

>

> My child wants to play with your child, but is told " no " because my child

acts differently than your child.

>

> My child's disability makes my child extremely naive, something you don't

find in children my child's age.

>

> My child doesn't make fun of others and likes everyone.

>

> Small children are attracted to my child because of my child's patience

with them.

>

> Adults find my child charming and polite because that is the only way my

child knows how to behave with others. For some reason, children the same

age as my child find these characteristics unsettling. Your child avoids my

child because of this.

>

> Many adults work towards helping my child try to fit in.

>

> My child is told social stories to help make my child more like yours. The

problem is that my child needs your child to help learn social skills.

Unfortunately this can't happen because your child wants nothing to do with

my child.

>

> Your child, I'm sure, was taught at an early age to be kind to physically

disabled people. With a certain amount of sympathy and good manners, they

accept those who are afflicted. I wish you could teach your child that some

disabilities are not obvious.

>

> My child does not want sympathy; my child just wants friends.

>

> My child has autism.

>

> My child could be your child.

>

>

>

>

>

[Guest guest]

My child is the one who wore preemie diapers folded over when he was born

full-term at 3 pounds, 5 ounces.

My child is the one who the little girls love to mother!

My child is the one who can act really hungry then wave his food around with

glee, but you may have to get out a microscope to see if any of it has been

consumed.

My child is the one who the toddlers really thought was a doll when he was

their age.

My child was the one with an ng tube on his face and tucked down his shirt his

first few years.

My child was the one who let us feed him to hours of videos for many years,

even in the motorhome on a cross-country trip.

My child is the one who finally got his car seat turned around just before his

7th birthday!

My child is the one who even grown-ups have insisted was a 'baby' from his size

at 7 years old, until (and sometimes even after!) we corrected them.

My child is the one who increased his weight by 30% in the half-year after his

7th birthday, after starting GH and getting a feeding tube/fundo.

My child is the one who can win adults at many sports - as long as it's on a

computer!

Inga

At 08:38 PM 9/18/2002 -0400, you wrote:

>

> " My child is the one who busts his buns to " do " like everyone else and drink

> from a water fountain without a stool........... "

>

> Debby

> PS I love the idea.....definitely going to be a saver when it's done!!!!

>

>

> " My Child " by the RSS Support Group

>

>

> > Hi Everyone,

> > I saw this " poem " on an autism website, and while autism certainly is not

> RSS, I thought the mother's plea resonated with what some of us feel when we

> see our children so try to " fit in " at school. I'm inspired to write an

> RSS version of this...How about a group effort! Read this, and you'll see

> what I'm getting at. Our " poem " could start out the same way: " There is a

> child I want you to know....My child is the one who.., etc. " I'll start

> out:

> >

> > " ..My child is the one who needs to reach a little higher to open a

> door.. "

> >

> > Enjoy and send me your entries! I'll post " our " poem at end of the week.

> > Katy

> >

> > My Child

> > by Marla DeBruin

> >

> > There is a child I want you to know. The child is my child.

> >

> > My child looks like your child, normal and perfect in every way.

> >

> > My child, however, has an invisible disability.

> >

> > I'm sure you've seen my child. My child is the one who is never invited to

> birthday parties.

> >

> > My child is the child who has never been over to your house to play with

> your child.

> >

> > My child is the one who sits alone on the swing at the playground.

> >

> > My child is the one who watches other children play together.

> >

> > My child wants to play with your child, but is told " no " because my child

> acts differently than your child.

> >

> > My child's disability makes my child extremely naive, something you don't

> find in children my child's age.

> >

> > My child doesn't make fun of others and likes everyone.

> >

> > Small children are attracted to my child because of my child's patience

> with them.

> >

> > Adults find my child charming and polite because that is the only way my

> child knows how to behave with others. For some reason, children the same

> age as my child find these characteristics unsettling. Your child avoids my

> child because of this.

> >

> > Many adults work towards helping my child try to fit in.

> >

> > My child is told social stories to help make my child more like yours. The

> problem is that my child needs your child to help learn social skills.

> Unfortunately this can't happen because your child wants nothing to do with

> my child.

> >

> > Your child, I'm sure, was taught at an early age to be kind to physically

> disabled people. With a certain amount of sympathy and good manners, they

> accept those who are afflicted. I wish you could teach your child that some

> disabilities are not obvious.

> >

> > My child does not want sympathy; my child just wants friends.

> >

> > My child has autism.

> >

> > My child could be your child.

> >

> >

> >

> >

> >

[Guest guest]

My child is the one who wore preemie diapers folded over when he was born

full-term at 3 pounds, 5 ounces.

My child is the one who the little girls love to mother!

My child is the one who can act really hungry then wave his food around with

glee, but you may have to get out a microscope to see if any of it has been

consumed.

My child is the one who the toddlers really thought was a doll when he was

their age.

My child was the one with an ng tube on his face and tucked down his shirt his

first few years.

My child was the one who let us feed him to hours of videos for many years,

even in the motorhome on a cross-country trip.

My child is the one who finally got his car seat turned around just before his

7th birthday!

My child is the one who even grown-ups have insisted was a 'baby' from his size

at 7 years old, until (and sometimes even after!) we corrected them.

My child is the one who increased his weight by 30% in the half-year after his

7th birthday, after starting GH and getting a feeding tube/fundo.

My child is the one who can win adults at many sports - as long as it's on a

computer!

Inga

At 08:38 PM 9/18/2002 -0400, you wrote:

>

> " My child is the one who busts his buns to " do " like everyone else and drink

> from a water fountain without a stool........... "

>

> Debby

> PS I love the idea.....definitely going to be a saver when it's done!!!!

>

>

> " My Child " by the RSS Support Group

>

>

> > Hi Everyone,

> > I saw this " poem " on an autism website, and while autism certainly is not

> RSS, I thought the mother's plea resonated with what some of us feel when we

> see our children so try to " fit in " at school. I'm inspired to write an

> RSS version of this...How about a group effort! Read this, and you'll see

> what I'm getting at. Our " poem " could start out the same way: " There is a

> child I want you to know....My child is the one who.., etc. " I'll start

> out:

> >

> > " ..My child is the one who needs to reach a little higher to open a

> door.. "

> >

> > Enjoy and send me your entries! I'll post " our " poem at end of the week.

> > Katy

> >

> > My Child

> > by Marla DeBruin

> >

> > There is a child I want you to know. The child is my child.

> >

> > My child looks like your child, normal and perfect in every way.

> >

> > My child, however, has an invisible disability.

> >

> > I'm sure you've seen my child. My child is the one who is never invited to

> birthday parties.

> >

> > My child is the child who has never been over to your house to play with

> your child.

> >

> > My child is the one who sits alone on the swing at the playground.

> >

> > My child is the one who watches other children play together.

> >

> > My child wants to play with your child, but is told " no " because my child

> acts differently than your child.

> >

> > My child's disability makes my child extremely naive, something you don't

> find in children my child's age.

> >

> > My child doesn't make fun of others and likes everyone.

> >

> > Small children are attracted to my child because of my child's patience

> with them.

> >

> > Adults find my child charming and polite because that is the only way my

> child knows how to behave with others. For some reason, children the same

> age as my child find these characteristics unsettling. Your child avoids my

> child because of this.

> >

> > Many adults work towards helping my child try to fit in.

> >

> > My child is told social stories to help make my child more like yours. The

> problem is that my child needs your child to help learn social skills.

> Unfortunately this can't happen because your child wants nothing to do with

> my child.

> >

> > Your child, I'm sure, was taught at an early age to be kind to physically

> disabled people. With a certain amount of sympathy and good manners, they

> accept those who are afflicted. I wish you could teach your child that some

> disabilities are not obvious.

> >

> > My child does not want sympathy; my child just wants friends.

> >

> > My child has autism.

> >

> > My child could be your child.

> >

> >

> >

> >

> >

[Guest guest]

Katy,

What a great idea

.....my child is the one who knows that good things come in small packages.

.....my child is the one who knows that he may be small but his brain is

bigger than those who tell him he's small.

.....my child is the one who gets to eat cupcakes for breakfast because he

needs the extra calories.

.....my child is the one who can eat potato chips and call it a vegetable.

.....my child is the one who answers to " Shorty " and the other kids are

surprised that it doesn't yank his chain.

Regards,

mom to Colby (RSS, 11 years old, 52.4 " , 62#, Periactin)

[Guest guest]

Katy,

What a great idea

.....my child is the one who knows that good things come in small packages.

.....my child is the one who knows that he may be small but his brain is

bigger than those who tell him he's small.

.....my child is the one who gets to eat cupcakes for breakfast because he

needs the extra calories.

.....my child is the one who can eat potato chips and call it a vegetable.

.....my child is the one who answers to " Shorty " and the other kids are

surprised that it doesn't yank his chain.

Regards,

mom to Colby (RSS, 11 years old, 52.4 " , 62#, Periactin)

[Guest guest]

Katy,

What a great idea

.....my child is the one who knows that good things come in small packages.

.....my child is the one who knows that he may be small but his brain is

bigger than those who tell him he's small.

.....my child is the one who gets to eat cupcakes for breakfast because he

needs the extra calories.

.....my child is the one who can eat potato chips and call it a vegetable.

.....my child is the one who answers to " Shorty " and the other kids are

surprised that it doesn't yank his chain.

Regards,

mom to Colby (RSS, 11 years old, 52.4 " , 62#, Periactin)