Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 We use 1-2-3 Magic on our 2 year old and 4 year old. It works really well if you use it correctly. I would ask what they do at school too. Be consistant and don't give in. Alot of times it is really important that she gets no reaction from you when she does insane things. Welcome to the group!!!! Tawnya Introducing Myself Hi, my name is and my 4 year old daughter was diagnosed very late (at 3) of a hearing impairment. She has severe loss in her right ear and moderate loss in her left. She is only on about a 2 year old level as far as language and speech, although it is improving daily. Her pediatrician was convinced (or just convinced us) that she could hear and was just a late talker. It also turned out she was epileptic. My daughter is in a great program for hearing impaired preschoolers and I love it. However, it has been hard to cope with and I have had a hard time discipling her as well as potty training (although she is potty trained at school completely). She is out of control a lot of the time, but only for me and her father. Can anyone help me out? Anything that helped you with your HOH kids? I need any resources I can get. There hasn't been much help here in Knoxville other than handing us a pair of hearing aids and setting her up with a hearing impaired preschool. Thanks!!! All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 <<It also turned out she was epileptic.>> Welcome, my son also age 4 is hearing impaired ( mild to moderate) and has epilepsy. Is she on meds? Which ones? I own a group called toddlers with epilepsy, if you are interested. R Mom to Liam 12/12/00 ( Asthma,Hearing impaired, epilepsy,SGA, Food allergies) Jed 1/22/93 (Asthma) Orlando Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 <<It also turned out she was epileptic.>> Welcome, my son also age 4 is hearing impaired ( mild to moderate) and has epilepsy. Is she on meds? Which ones? I own a group called toddlers with epilepsy, if you are interested. R Mom to Liam 12/12/00 ( Asthma,Hearing impaired, epilepsy,SGA, Food allergies) Jed 1/22/93 (Asthma) Orlando Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 <<It also turned out she was epileptic.>> Welcome, my son also age 4 is hearing impaired ( mild to moderate) and has epilepsy. Is she on meds? Which ones? I own a group called toddlers with epilepsy, if you are interested. R Mom to Liam 12/12/00 ( Asthma,Hearing impaired, epilepsy,SGA, Food allergies) Jed 1/22/93 (Asthma) Orlando Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 --- JillcWood@... wrote: <<Throwing toys meant they were taken away until the same time to following day. They were not put in a closet or cabinet, but on top of the fridge where they could be seen as a reminder. That behavior stopped pretty quickly in both kids.>> Emmett was our thrower and this worked like a charm. He'd sit on the floor and strain his neck to stare at the banished toy. I'd remind him how it got there and that he wouldn't get it back until the next day. If memory serves, only had to do this one 3 times. Quick learner. And, you're right, Jill. Being boringly consistent is what works. Kids crave structure. They want to know what to expect and when. And there's only one way to find out what the limits are, and that's to push them. Johanna __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 --- Barbara Mellert wrote: << but I'm happy to say at 11 and 13, they both ARE potty trained now! >> This is great, Barbara! I good reminder to parents in the midst of the potty battle. I always used to say that I had never seen an adult who choose to not use the bathroom so I knew that sooner or later, our kids would learn. But it's easy to lose that perspective when you're there. Johanna __________________________________ Yahoo! Music Unlimited Access over 1 million songs. Try it free. http://music.yahoo.com/unlimited/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 --- Barbara Mellert wrote: << Bribery was what worked for us too - especially for Sam. And his Pediatrician is who suggested it! So everytime he pooped in the potty (and didn't use a pull-up) we'd pay him a quarter. >> I debated whether or not share this, but I couldn't resist. We had a Poo-poo fairy (given the name by Emma, in the vein of Tooth Fairy) visit each night that there was a BM success. The fairy brought little gifts ... a marble, small animal figurines. Worked wonders for Emma. She was done getting nightly visits in a week. And received a note and a special last-time present. Emmett took a while. We started to run out of things to get him. But he got it eventually! We're a weird a family now that I've read that back to myself. __________________________________ Yahoo! Music Unlimited Access over 1 million songs. Try it free. http://music.yahoo.com/unlimited/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Hi, all, I just wanted to introduce myself and tell my story: My daughter, now 15 months, was diagnosed through the newborn screening with mild/moderate bilateral sensorineural hearing loss. As is similar to many of the situations I've read about here, it was a total surprise to my husband and I and we were thrust into this unfamiliar world of hearing aids, communication options, genetic testing, etc. etc. It turned out that my husband and I are both Connexin 26 carriers (specifically the 167 del T mutation, almost exclusively found in Ashkenazi Jews). Being in Boston at the time, we were lucky to have a lot of support and info available to us - though we had some frustrating experiences with the initial ABR (was very inaccurate, due to our 2 week old daughter being too awake and indicating a loss much greater than what it actually is...but that's another story). Anyway, our daughter Jordan was aided at 5 months and we struggled through the process of finding ways to keep her from pulling the aids off (thank goodness for Hanna Andersson pilot caps!). We also began meeting with an AV therapist who gave us a lot of support and advice. This past October we moved to Savannah, GA to be closer to family (and for the weather, lower cost of living, etc.), and this coincided with an explosion of language on Jordan's part - which hasn't stopped yet! - and she's just doing great. She's also finally stopped pulling her aids off, so that's been a big relief as well. I've met and talked to lots of parents who have children with hearing loss (especially because there were many in the Boston area) and I've always known about this listserve - but it's taken a while for me to feel comfortable and ready to go public online - it just feels so impersonal. But I feel very isolated here in Savannah where there really isn't a parent support group and it's just very different from Boston, so I need a support group somehow and it looks like this listserve is a wonderful source of support and advice. Sorry for rambling, and I look forward to trading stories, suggestions, pieces of advice, etc. And if anybody knows more about Savannah resources or people than I do, as well as info and links on the Connexin 26, 167 del T mutation, please do let me know. Thanks so much, Deganit mom of Jordan, 15 months, mild/moderate hearing loss --------------------------------- What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Hi Deganit, I live in Macon just up I-16 from you, and you are so right, it is a huge culture shock to come from up north to the deep South! I came here from S. Florida by way of Chicago. My daughter has a mod-sev loss bilat and wears hearing aids and is mainstreamed. We did AVT in Atlanta, it was an 85 mile drive one way. There is an AVT that now comes to Macon one day per week from the Auditory Verbal Center in Atlanta. If you 'd like info about that, I could give you phone numbers etc. I don't know much about services or parent groups in Savannah, I was on the state newborn hearing committee until it sunsetted and we were always looking for info on Savannah. There is a group called Parent to Parent that matches parents with kids with similar conditions, that might be a way to find out about what is happening in Savannah. www.parenttoparentofga.org Welcome to Georgia! I wish we weren't at the bottom of the barrel education wise but that is the fact. In Macon 25-30% of kids are in private school, not sure if that is the case in Savannah area or not. But you have a little time before you need to worry about that! Even though there is a very different culture here, it has many good points. I forget all the good points in the summer heat and humidity, but love it here from Oct-April! in Macon (there are several 's here!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Hi Deganit, I live in Macon just up I-16 from you, and you are so right, it is a huge culture shock to come from up north to the deep South! I came here from S. Florida by way of Chicago. My daughter has a mod-sev loss bilat and wears hearing aids and is mainstreamed. We did AVT in Atlanta, it was an 85 mile drive one way. There is an AVT that now comes to Macon one day per week from the Auditory Verbal Center in Atlanta. If you 'd like info about that, I could give you phone numbers etc. I don't know much about services or parent groups in Savannah, I was on the state newborn hearing committee until it sunsetted and we were always looking for info on Savannah. There is a group called Parent to Parent that matches parents with kids with similar conditions, that might be a way to find out about what is happening in Savannah. www.parenttoparentofga.org Welcome to Georgia! I wish we weren't at the bottom of the barrel education wise but that is the fact. In Macon 25-30% of kids are in private school, not sure if that is the case in Savannah area or not. But you have a little time before you need to worry about that! Even though there is a very different culture here, it has many good points. I forget all the good points in the summer heat and humidity, but love it here from Oct-April! in Macon (there are several 's here!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Hi Deganit, I live in Macon just up I-16 from you, and you are so right, it is a huge culture shock to come from up north to the deep South! I came here from S. Florida by way of Chicago. My daughter has a mod-sev loss bilat and wears hearing aids and is mainstreamed. We did AVT in Atlanta, it was an 85 mile drive one way. There is an AVT that now comes to Macon one day per week from the Auditory Verbal Center in Atlanta. If you 'd like info about that, I could give you phone numbers etc. I don't know much about services or parent groups in Savannah, I was on the state newborn hearing committee until it sunsetted and we were always looking for info on Savannah. There is a group called Parent to Parent that matches parents with kids with similar conditions, that might be a way to find out about what is happening in Savannah. www.parenttoparentofga.org Welcome to Georgia! I wish we weren't at the bottom of the barrel education wise but that is the fact. In Macon 25-30% of kids are in private school, not sure if that is the case in Savannah area or not. But you have a little time before you need to worry about that! Even though there is a very different culture here, it has many good points. I forget all the good points in the summer heat and humidity, but love it here from Oct-April! in Macon (there are several 's here!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Hi Deganit - I wanted to reactive your introduction since I think it was overlooked the first time around. Moving from Boston to Savannah is quite a change! We did the opposite - we moved from New Orleans to New Hampshire (we like to say we moved from the deep south to the deep north). I don't know of anyone here who lives in Savannah but am guessing there must be - hopefully they'll respond! Welcome! Barbara > > Hi, all, > > I just wanted to introduce myself and tell my story: > > My daughter, now 15 months, was diagnosed through the newborn screening with mild/moderate bilateral sensorineural hearing loss. As is similar to many of the situations I've read about here, it was a total surprise to my husband and I and we were thrust into this unfamiliar world of hearing aids, communication options, genetic testing, etc. etc. > > It turned out that my husband and I are both Connexin 26 carriers (specifically the 167 del T mutation, almost exclusively found in Ashkenazi Jews). Being in Boston at the time, we were lucky to have a lot of support and info available to us - though we had some frustrating experiences with the initial ABR (was very inaccurate, due to our 2 week old daughter being too awake and indicating a loss much greater than what it actually is...but that's another story). > > Anyway, our daughter Jordan was aided at 5 months and we struggled through the process of finding ways to keep her from pulling the aids off (thank goodness for Hanna Andersson pilot caps!). We also began meeting with an AV therapist who gave us a lot of support and advice. > > This past October we moved to Savannah, GA to be closer to family (and for the weather, lower cost of living, etc.), and this coincided with an explosion of language on Jordan's part - which hasn't stopped yet! - and she's just doing great. She's also finally stopped pulling her aids off, so that's been a big relief as well. > > I've met and talked to lots of parents who have children with hearing loss (especially because there were many in the Boston area) and I've always known about this listserve - but it's taken a while for me to feel comfortable and ready to go public online - it just feels so impersonal. But I feel very isolated here in Savannah where there really isn't a parent support group and it's just very different from Boston, so I need a support group somehow and it looks like this listserve is a wonderful source of support and advice. > > Sorry for rambling, and I look forward to trading stories, suggestions, pieces of advice, etc. And if anybody knows more about Savannah resources or people than I do, as well as info and links on the Connexin 26, 167 del T mutation, please do let me know. > > Thanks so much, > Deganit > mom of Jordan, 15 months, mild/moderate hearing loss > > > --------------------------------- > > What are the most popular cars? Find out at Yahoo! Autos > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Hi Deganit - I wanted to reactive your introduction since I think it was overlooked the first time around. Moving from Boston to Savannah is quite a change! We did the opposite - we moved from New Orleans to New Hampshire (we like to say we moved from the deep south to the deep north). I don't know of anyone here who lives in Savannah but am guessing there must be - hopefully they'll respond! Welcome! Barbara > > Hi, all, > > I just wanted to introduce myself and tell my story: > > My daughter, now 15 months, was diagnosed through the newborn screening with mild/moderate bilateral sensorineural hearing loss. As is similar to many of the situations I've read about here, it was a total surprise to my husband and I and we were thrust into this unfamiliar world of hearing aids, communication options, genetic testing, etc. etc. > > It turned out that my husband and I are both Connexin 26 carriers (specifically the 167 del T mutation, almost exclusively found in Ashkenazi Jews). Being in Boston at the time, we were lucky to have a lot of support and info available to us - though we had some frustrating experiences with the initial ABR (was very inaccurate, due to our 2 week old daughter being too awake and indicating a loss much greater than what it actually is...but that's another story). > > Anyway, our daughter Jordan was aided at 5 months and we struggled through the process of finding ways to keep her from pulling the aids off (thank goodness for Hanna Andersson pilot caps!). We also began meeting with an AV therapist who gave us a lot of support and advice. > > This past October we moved to Savannah, GA to be closer to family (and for the weather, lower cost of living, etc.), and this coincided with an explosion of language on Jordan's part - which hasn't stopped yet! - and she's just doing great. She's also finally stopped pulling her aids off, so that's been a big relief as well. > > I've met and talked to lots of parents who have children with hearing loss (especially because there were many in the Boston area) and I've always known about this listserve - but it's taken a while for me to feel comfortable and ready to go public online - it just feels so impersonal. But I feel very isolated here in Savannah where there really isn't a parent support group and it's just very different from Boston, so I need a support group somehow and it looks like this listserve is a wonderful source of support and advice. > > Sorry for rambling, and I look forward to trading stories, suggestions, pieces of advice, etc. And if anybody knows more about Savannah resources or people than I do, as well as info and links on the Connexin 26, 167 del T mutation, please do let me know. > > Thanks so much, > Deganit > mom of Jordan, 15 months, mild/moderate hearing loss > > > --------------------------------- > > What are the most popular cars? Find out at Yahoo! Autos > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 Hi Deganit - I wanted to reactive your introduction since I think it was overlooked the first time around. Moving from Boston to Savannah is quite a change! We did the opposite - we moved from New Orleans to New Hampshire (we like to say we moved from the deep south to the deep north). I don't know of anyone here who lives in Savannah but am guessing there must be - hopefully they'll respond! Welcome! Barbara > > Hi, all, > > I just wanted to introduce myself and tell my story: > > My daughter, now 15 months, was diagnosed through the newborn screening with mild/moderate bilateral sensorineural hearing loss. As is similar to many of the situations I've read about here, it was a total surprise to my husband and I and we were thrust into this unfamiliar world of hearing aids, communication options, genetic testing, etc. etc. > > It turned out that my husband and I are both Connexin 26 carriers (specifically the 167 del T mutation, almost exclusively found in Ashkenazi Jews). Being in Boston at the time, we were lucky to have a lot of support and info available to us - though we had some frustrating experiences with the initial ABR (was very inaccurate, due to our 2 week old daughter being too awake and indicating a loss much greater than what it actually is...but that's another story). > > Anyway, our daughter Jordan was aided at 5 months and we struggled through the process of finding ways to keep her from pulling the aids off (thank goodness for Hanna Andersson pilot caps!). We also began meeting with an AV therapist who gave us a lot of support and advice. > > This past October we moved to Savannah, GA to be closer to family (and for the weather, lower cost of living, etc.), and this coincided with an explosion of language on Jordan's part - which hasn't stopped yet! - and she's just doing great. She's also finally stopped pulling her aids off, so that's been a big relief as well. > > I've met and talked to lots of parents who have children with hearing loss (especially because there were many in the Boston area) and I've always known about this listserve - but it's taken a while for me to feel comfortable and ready to go public online - it just feels so impersonal. But I feel very isolated here in Savannah where there really isn't a parent support group and it's just very different from Boston, so I need a support group somehow and it looks like this listserve is a wonderful source of support and advice. > > Sorry for rambling, and I look forward to trading stories, suggestions, pieces of advice, etc. And if anybody knows more about Savannah resources or people than I do, as well as info and links on the Connexin 26, 167 del T mutation, please do let me know. > > Thanks so much, > Deganit > mom of Jordan, 15 months, mild/moderate hearing loss > > > --------------------------------- > > What are the most popular cars? Find out at Yahoo! Autos > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Deganit, jsut have a second before needing to rush off but wanted to welcome you. I'm and I live in Macon, just up I-16 from you. I moved here (20 years ago) from South Florida by way of Chicago, and the culture shock is enormous. I have a 14 year old daughter with a moderatly severe loss and she is mainstreamed. So now there are at least 3 of us from " the midstate " on this list. Hopefully we can get together soon. in Macon, going off to do her real job! Quote Link to comment Share on other sites More sharing options...
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