Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hi! I'm offended by all of this! by Quirky to label and throw away hope for kids who can't read facial expressions, hate the feel of wind or sand, can't make friends... by $2.8 billion over 2 decades to delay help for mercury poisoned kids. by CDC, Frist, FDA, Bush and by all other greed inspired people who stand by watching our kids getting poisoned -- and do nothing - or block answers and help. HELL YES, I'M MAD. Let's do something. Let's send 10 copies of Dr. Cave's " What Your Doctor May Not Tell You About CHILDREN'S VACCINES " along with some angry Mom's to every Senator's office in Washington. Let's have a Million People Against Mercury Vaccine Poisoning March. Let's do Billboards. Go MOM'S AGAINST MERCURY!!! Let's DO something!!!!! Let's DO something!! Tami From: Gracie Montgomery <faithgracehope2001@...> Subject: Re: Re: Fwd: Kids Illnesses Baffle Researchers- I do think we need to take some kind of action. A march or protest would be good - but not to just raise Autism Awareness - really no one probably cares - because they're proving that all the time. Legal action against AAP, sit-ins at AAP, constant marches against mandated vaccines, getting lots of media attention about the research that has been done that proves a link between vaccines and injuries, and demands that mandates be repealed. " Donna " <dma_nc1@h...> wrote: > > Does this offend any of you? > > > > Why Don't We Call Them Quirky? > > As more and more kids live with labels, diagnoses and disorders, a > > growing number of experts are beginning to use antiquated terms > > like 'eccentric' and 'odd' > > What's in a name? Students at Brush Ranch, a school for children > > with learning difficulties, aren't encumbered by labels > > By Noonan > > NewsweekMay 3 issue - Like the conscientious pediatricians they > are, > > Perri Klass and Eileen Costello keep up with the ever-evolving > > vocabulary of childhood dysfunction. They know all about autistic > > spectrum disorder, sensory integration dysfunction, pervasive > > developmental disorder, Asperger's syndrome and more. They've > waded > > through the medical literature and analyzed the studies. They know > > the clinical nuances that distinguish the diagnoses. They've seen > > hundreds of kids, counseled and comforted hundreds of worried > > parents. And Klass and Costello know how scary it can be when > those > > medical labels are applied to a young child for the first > time. " The > > terminology has real value, " says Klass, " but it is also > > terrifying. " So the two Boston pediatricians chose a simpler term > to > > lessen the terror for families. Their solution: just say " quirky. " > > > > > > That's the word Klass and Costello settled on as another way to > > describe and think about the hundreds of thousands of kids who > > are " outside the common patterns, " as they put it in their > > book, " Quirky Kids, " which will be in paperback this summer. These > > are kids (and more are being identified than ever) with a wide > range > > of quirks and traits who occupy a gray zone of slippery, often > > overlapping diagnoses, like autistic spectrum disorder, that can > > leave parents frightened and confused. Kids with high IQs who > can't > > read facial expressions, who prefer vacuum cleaners to toys, who > > hate the feel of sand or wind, who have no idea how to make > friends, > > who may suffer daily over things that come easy to others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Tami, Are you the Tami who's in Rotterdam, NY? If so, let's DEFINITELY get together and do something here at the State Legislature. And billboards. I have my eye on one at the intersection of I90 and I787 (cost=$15,000). There has to be a way!! Janet > > > Does this offend any of you? > > > > > > Why Don't We Call Them Quirky? > > > As more and more kids live with labels, diagnoses and disorders, > a > > > growing number of experts are beginning to use antiquated terms > > > like 'eccentric' and 'odd' > > > What's in a name? Students at Brush Ranch, a school for children > > > with learning difficulties, aren't encumbered by labels > > > By Noonan > > > NewsweekMay 3 issue - Like the conscientious pediatricians they > > are, > > > Perri Klass and Eileen Costello keep up with the ever-evolving > > > vocabulary of childhood dysfunction. They know all about > autistic > > > spectrum disorder, sensory integration dysfunction, pervasive > > > developmental disorder, Asperger's syndrome and more. They've > > waded > > > through the medical literature and analyzed the studies. They > know > > > the clinical nuances that distinguish the diagnoses. They've > seen > > > hundreds of kids, counseled and comforted hundreds of worried > > > parents. And Klass and Costello know how scary it can be when > > those > > > medical labels are applied to a young child for the first > > time. " The > > > terminology has real value, " says Klass, " but it is also > > > terrifying. " So the two Boston pediatricians chose a simpler > term > > to > > > lessen the terror for families. Their solution: just > say " quirky. " > > > > > > > > > That's the word Klass and Costello settled on as another way to > > > describe and think about the hundreds of thousands of kids who > > > are " outside the common patterns, " as they put it in their > > > book, " Quirky Kids, " which will be in paperback this summer. > These > > > are kids (and more are being identified than ever) with a wide > > range > > > of quirks and traits who occupy a gray zone of slippery, often > > > overlapping diagnoses, like autistic spectrum disorder, that can > > > leave parents frightened and confused. Kids with high IQs who > > can't > > > read facial expressions, who prefer vacuum cleaners to toys, who > > > hate the feel of sand or wind, who have no idea how to make > > friends, > > > who may suffer daily over things that come easy to others. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Go New York! Let's get another bill passed! Come on, everyone, Iowa led the way, let's see how many states can follow! Missouri won't be far behind .. . . Barb [ ] Re: Doing Something -- quirky, $2.8 billion Tami, Are you the Tami who's in Rotterdam, NY? If so, let's DEFINITELY get together and do something here at the State Legislature. And billboards. I have my eye on one at the intersection of I90 and I787 (cost=$15,000). There has to be a way!! Janet > > > Does this offend any of you? > > > > > > Why Don't We Call Them Quirky? > > > As more and more kids live with labels, diagnoses and disorders, > a > > > growing number of experts are beginning to use antiquated terms > > > like 'eccentric' and 'odd' > > > What's in a name? Students at Brush Ranch, a school for children > > > with learning difficulties, aren't encumbered by labels > > > By Noonan > > > NewsweekMay 3 issue - Like the conscientious pediatricians they > > are, > > > Perri Klass and Eileen Costello keep up with the ever-evolving > > > vocabulary of childhood dysfunction. They know all about > autistic > > > spectrum disorder, sensory integration dysfunction, pervasive > > > developmental disorder, Asperger's syndrome and more. They've > > waded > > > through the medical literature and analyzed the studies. They > know > > > the clinical nuances that distinguish the diagnoses. They've > seen > > > hundreds of kids, counseled and comforted hundreds of worried > > > parents. And Klass and Costello know how scary it can be when > > those > > > medical labels are applied to a young child for the first > > time. " The > > > terminology has real value, " says Klass, " but it is also > > > terrifying. " So the two Boston pediatricians chose a simpler > term > > to > > > lessen the terror for families. Their solution: just > say " quirky. " > > > > > > > > > That's the word Klass and Costello settled on as another way to > > > describe and think about the hundreds of thousands of kids who > > > are " outside the common patterns, " as they put it in their > > > book, " Quirky Kids, " which will be in paperback this summer. > These > > > are kids (and more are being identified than ever) with a wide > > range > > > of quirks and traits who occupy a gray zone of slippery, often > > > overlapping diagnoses, like autistic spectrum disorder, that can > > > leave parents frightened and confused. Kids with high IQs who > > can't > > > read facial expressions, who prefer vacuum cleaners to toys, who > > > hate the feel of sand or wind, who have no idea how to make > > friends, > > > who may suffer daily over things that come easy to others. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Yes. Let's do something. Someone posted yesterday who emphasized that we take this " off-list " . We probably should, because the pharm people are NO DOUBT on this list, watching us. Maybe it's time we posted some phone numbers and started calling and meetings in every city. TamiFreedman@... wrote: Hi! I'm offended by all of this! by Quirky to label and throw away hope for kids who can't read facial expressions, hate the feel of wind or sand, can't make friends... by $2.8 billion over 2 decades to delay help for mercury poisoned kids. by CDC, Frist, FDA, Bush and by all other greed inspired people who stand by watching our kids getting poisoned -- and do nothing - or block answers and help. HELL YES, I'M MAD. Let's do something. Let's send 10 copies of Dr. Cave's " What Your Doctor May Not Tell You About CHILDREN'S VACCINES " along with some angry Mom's to every Senator's office in Washington. Let's have a Million People Against Mercury Vaccine Poisoning March. Let's do Billboards. Go MOM'S AGAINST MERCURY!!! Let's DO something!!!!! Let's DO something!! Tami From: Gracie Montgomery <faithgracehope2001@...> Subject: Re: Re: Fwd: Kids Illnesses Baffle Researchers- I do think we need to take some kind of action. A march or protest would be good - but not to just raise Autism Awareness - really no one probably cares - because they're proving that all the time. Legal action against AAP, sit-ins at AAP, constant marches against mandated vaccines, getting lots of media attention about the research that has been done that proves a link between vaccines and injuries, and demands that mandates be repealed. " Donna " <dma_nc1@h...> wrote: > > Does this offend any of you? > > > > Why Don't We Call Them Quirky? > > As more and more kids live with labels, diagnoses and disorders, a > > growing number of experts are beginning to use antiquated terms > > like 'eccentric' and 'odd' > > What's in a name? Students at Brush Ranch, a school for children > > with learning difficulties, aren't encumbered by labels > > By Noonan > > NewsweekMay 3 issue - Like the conscientious pediatricians they > are, > > Perri Klass and Eileen Costello keep up with the ever-evolving > > vocabulary of childhood dysfunction. They know all about autistic > > spectrum disorder, sensory integration dysfunction, pervasive > > developmental disorder, Asperger's syndrome and more. They've > waded > > through the medical literature and analyzed the studies. They know > > the clinical nuances that distinguish the diagnoses. They've seen > > hundreds of kids, counseled and comforted hundreds of worried > > parents. And Klass and Costello know how scary it can be when > those > > medical labels are applied to a young child for the first > time. " The > > terminology has real value, " says Klass, " but it is also > > terrifying. " So the two Boston pediatricians chose a simpler term > to > > lessen the terror for families. Their solution: just say " quirky. " > > > > > > That's the word Klass and Costello settled on as another way to > > describe and think about the hundreds of thousands of kids who > > are " outside the common patterns, " as they put it in their > > book, " Quirky Kids, " which will be in paperback this summer. These > > are kids (and more are being identified than ever) with a wide > range > > of quirks and traits who occupy a gray zone of slippery, often > > overlapping diagnoses, like autistic spectrum disorder, that can > > leave parents frightened and confused. Kids with high IQs who > can't > > read facial expressions, who prefer vacuum cleaners to toys, who > > hate the feel of sand or wind, who have no idea how to make > friends, > > who may suffer daily over things that come easy to others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Do you know where I can get a copy of the Iowa bill? I really want to do this in NY and live in a town right next to our capital!! There IS a reason why I'm here, after all! Janet > > > > Does this offend any of you? > > > > > > > > Why Don't We Call Them Quirky? > > > > As more and more kids live with labels, diagnoses and > disorders, > > a > > > > growing number of experts are beginning to use antiquated terms > > > > like 'eccentric' and 'odd' > > > > What's in a name? Students at Brush Ranch, a school for > children > > > > with learning difficulties, aren't encumbered by labels > > > > By Noonan > > > > NewsweekMay 3 issue - Like the conscientious pediatricians they > > > are, > > > > Perri Klass and Eileen Costello keep up with the ever-evolving > > > > vocabulary of childhood dysfunction. They know all about > > autistic > > > > spectrum disorder, sensory integration dysfunction, pervasive > > > > developmental disorder, Asperger's syndrome and more. They've > > > waded > > > > through the medical literature and analyzed the studies. They > > know > > > > the clinical nuances that distinguish the diagnoses. They've > > seen > > > > hundreds of kids, counseled and comforted hundreds of worried > > > > parents. And Klass and Costello know how scary it can be when > > > those > > > > medical labels are applied to a young child for the first > > > time. " The > > > > terminology has real value, " says Klass, " but it is also > > > > terrifying. " So the two Boston pediatricians chose a simpler > > term > > > to > > > > lessen the terror for families. Their solution: just > > say " quirky. " > > > > > > > > > > > > That's the word Klass and Costello settled on as another way to > > > > describe and think about the hundreds of thousands of kids who > > > > are " outside the common patterns, " as they put it in their > > > > book, " Quirky Kids, " which will be in paperback this summer. > > These > > > > are kids (and more are being identified than ever) with a wide > > > range > > > > of quirks and traits who occupy a gray zone of slippery, often > > > > overlapping diagnoses, like autistic spectrum disorder, that > can > > > > leave parents frightened and confused. Kids with high IQs who > > > can't > > > > read facial expressions, who prefer vacuum cleaners to toys, > who > > > > hate the feel of sand or wind, who have no idea how to make > > > friends, > > > > who may suffer daily over things that come easy to others. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 How do we take it off-list? (Sorry, I'm a newbie.) Janet > > > Does this offend any of you? > > > > > > Why Don't We Call Them Quirky? > > > As more and more kids live with labels, diagnoses and disorders, > a > > > growing number of experts are beginning to use antiquated terms > > > like 'eccentric' and 'odd' > > > What's in a name? Students at Brush Ranch, a school for children > > > with learning difficulties, aren't encumbered by labels > > > By Noonan > > > NewsweekMay 3 issue - Like the conscientious pediatricians they > > are, > > > Perri Klass and Eileen Costello keep up with the ever-evolving > > > vocabulary of childhood dysfunction. They know all about > autistic > > > spectrum disorder, sensory integration dysfunction, pervasive > > > developmental disorder, Asperger's syndrome and more. They've > > waded > > > through the medical literature and analyzed the studies. They > know > > > the clinical nuances that distinguish the diagnoses. They've > seen > > > hundreds of kids, counseled and comforted hundreds of worried > > > parents. And Klass and Costello know how scary it can be when > > those > > > medical labels are applied to a young child for the first > > time. " The > > > terminology has real value, " says Klass, " but it is also > > > terrifying. " So the two Boston pediatricians chose a simpler > term > > to > > > lessen the terror for families. Their solution: just > say " quirky. " > > > > > > > > > That's the word Klass and Costello settled on as another way to > > > describe and think about the hundreds of thousands of kids who > > > are " outside the common patterns, " as they put it in their > > > book, " Quirky Kids, " which will be in paperback this summer. > These > > > are kids (and more are being identified than ever) with a wide > > range > > > of quirks and traits who occupy a gray zone of slippery, often > > > overlapping diagnoses, like autistic spectrum disorder, that can > > > leave parents frightened and confused. Kids with high IQs who > > can't > > > read facial expressions, who prefer vacuum cleaners to toys, who > > > hate the feel of sand or wind, who have no idea how to make > > friends, > > > who may suffer daily over things that come easy to others. > > > Quote Link to comment Share on other sites More sharing options...
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