Re: Is your child deaf?

June 28, 2004

I've run this test in my kitchen before! Deafness was one of the first

things we ruled out. I think that is pretty common in kids diagnosed with

autism.

H.

From: " Donna " <dma_nc1@...>

Reply-

Date: Tue, 29 Jun 2004 01:54:50 -0000

Subject: [ ] Is your child deaf?

When my son was 15 months old he was being evaluated by special ed

teachers, ot, pt ect... There must have been 5-6 teachers in the

room we were in...Three teachers were on the floor in front of my

son playing with him one teacher walked slowly up behind him with

pots and pans in her hand, she banged those pots and pans right

behind his head, He didnt even blink an eye. They thought he was

deaf because of this. They said he should have cried.

Have any of your children had a test like this?

Donna

=======================================================

June 28, 2004

My son would have continued playing without a thought as to the racket behind

him. It was only with ABA that he even learned to respond to his own name at

age two and a half years! He was completely non verbal up until that point - no

receptive language at all, not to mention expressive language. However, he

hummed tunes pretty much all day long. We thought it was cute that he could

pick up a tune after hearing something once and recall it weeks later. In

retrospect, his humming to himself was a stim that went away after we removed

soy formula from his diet. With chelation begun at age three and lots of

nutritional supplementation and ABA, is no longer non-verbal. is

now nearly four, and his language is now around that of a 15-18 month old. He

is still quite musical. And since AIT, for the last twelve months or so, he

puts his hands over his ears when he hears certain sounds. It does not have to

be loud, just a disturbing (to him) pitch. At first I thought that he was

" hearing " more and needed time to get used to it, though now I'm not sure that

this is going to go away so easily as the passage of time.

My son's BAERs test, which is a sophisticated hearing test, showed almost normal

hearing. I would be curious to see if his hearing improved with the chelation,

but I wouldn't subject him to the test merely to satisfy my curiosity.

[ ] Is your child deaf?

When my son was 15 months old he was being evaluated by special ed

teachers, ot, pt ect... There must have been 5-6 teachers in the

room we were in...Three teachers were on the floor in front of my

son playing with him one teacher walked slowly up behind him with

pots and pans in her hand, she banged those pots and pans right

behind his head, He didnt even blink an eye. They thought he was

deaf because of this. They said he should have cried.

Have any of your children had a test like this?

Donna

=======================================================

June 28, 2004

Like she said, very common. Lot's of people say their child has no response

to banging pots and pans, but will run to the next room to get the piece of

candy they heard being unwrapped. Supersensitive, selective hearing.

Valeri

[ ] Is your child deaf?

When my son was 15 months old he was being evaluated by special ed

teachers, ot, pt ect... There must have been 5-6 teachers in the

room we were in...Three teachers were on the floor in front of my

son playing with him one teacher walked slowly up behind him with

pots and pans in her hand, she banged those pots and pans right

behind his head, He didnt even blink an eye. They thought he was

deaf because of this. They said he should have cried.

Have any of your children had a test like this?

Donna

=======================================================

June 29, 2004

Yes Donna, my son at around 18-20 months did not respond to very loud

noises or us yelling his name. We thought he was deaf. We had an

Audio Brain Stem Response test done. (sophisticated hearing test

while he was sleeping) His results came back as normal hearing. He

is now 28 months old. We are still in the process of trying to

teach him to respond to his name. We are using ST/OT/DT and

including a mixture of ABA/Floortime therapies. The ABA and Pecs are

probably the most successful at " teaching " responses and the others

are getting him to initiate with us and he does respond now (when he

decides he wants to)

Annette in IL

Proud mom of Tyler

> When my son was 15 months old he was being evaluated by special ed

> teachers, ot, pt ect... There must have been 5-6 teachers in the

> room we were in...Three teachers were on the floor in front of my

> son playing with him one teacher walked slowly up behind him with

> pots and pans in her hand, she banged those pots and pans right

> behind his head, He didnt even blink an eye. They thought he was

> deaf because of this. They said he should have cried.

>

> Have any of your children had a test like this?

>

> Donna

June 29, 2004

Before I had my amalgams removed, I started chelating my 5 year old son with

ALA. I used the 25mg capsules from Kirkman's, but because I was only using

12.5 mg for him I took the capsules apart and put half in his juice and then

put them back together to use for next dose. Of course, I got some on my

fingers when I took the capsules apart and I would then lick my fingers when

I was finished. Just that tiny little bit of ALA caused mercury

redistribution in my body (my amalgams were apparently also leaking at the

time). By the 3rd day, I could barely hear. It was like I was underwater

and I could hear sounds, but they were so annoying and hard to make sense

of, that the only thing I wanted to do was cover up my head and make it all

go away. I immediately started extra vitamin C and E and within 3 days, I

was pretty much back to normal.

That incident taught me 2 lessons. First, always either wear gloves or wash

your hands after handling supplements. Second, I now understood for the

first time what probably happened to my son after his 18 month DTaP and Hib

vaccinations when he completely stopped talking and spiraled down into

autism. The mercury completely messed up my hearing as it had probably done

to his also.