Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Hi Ed, Long time no see! :-) I am only aware of a handful, which always staggers me given its potential to slow or even stop our progression and possibly even give some symptom improvement and the fact there is nothing else out there for us that even comes close. I also know of a few using it with very good results for ALS. Possibly the only info you will find is on http://www.lowdosenaltrexone.org/others.htm There are signs that the message is getting through to a few neuros but most know nothing about it or refuse to believe it can be as effective as so many people with neurodegenerative conditions have found it to be, so don't be surprised if he/she turns you down. amesedward wrote: > -- > I wonder if you could tell me how many PLSers are using LDN. I > have done some research on the web about LDN but I don't see anything > about its use for ALS/PLS although I think it's being used. I would > like to talk to my Neuro about it. Thanks for any info. > > Ed Ames -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
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