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The condition I have is anitcardiolipin antibody syndrome (aka-lupis

anticoagulant aka-anitphospholipids) I am told I have it because I am over

weight...or I should say that's why I've had problems from it. It is a

hypercoagulation disorder. Apparently it can occur in overweight people, people

with lupis and after I was diagnosised I found lots of info about people who

have repeated miscarriages are found to have it as well. My neurologist thinks

there is a genetic component to it as both my sister and I have developed it.

We are both visually ipaired. I am the youngest and I was brave (or stupid as

the docs say) enough to have a baby. By loosing at least 100 pounds the ob who

delivered my daughter said I would be in a better position to try for a second.

I'm excited that I'm going to get to do this and possible have the option of

having another child...not to mention the better health so I can play with and

watch my daughter grow and not worry about missing those neat things that are to

occur in her life. :-)

Re: question about preg post op

Kirstin,

Welcome! What medical condition are you talking about??

I am only 14 weeks pregnant, with my very first (was 18 months post op

when I got pregnant), so I can't really answer your questions. My baby is

measuring about 1-2 weeks smaller than it should be, but... that could be

conception miscalculations... so, I'm not real worried and neither is my

ob! :~)

Again, welcome!! And good luck with wls!!!

Sharon

ktyner2003 said:

> Hi...I go for my first consult this coming friday for WLS. I am

> curious about being pregnant after having a bypass done. I have a

> medical condition that didn't allow my daughter to grow as much as

> she should have and am concerned that after the surgery if my husband

> and I were to have another child it would further increase the risk

> of a low birth weight baby. Where your babies healthy and good sized

> babies? My daughter was 5lb 6 pz at 38weeks Since she was so small

> and I was so big I kinda missed out on the fun of being pregnant and

> feeling her. I had butterflies mostly and no real big kicks could be

> felt. I am excited about the prospect of being pregnant as a normal

> sized person. Did anyone get pregnant before the recommended time

> frame and did everything go ok?

> Thanks alot...and I looked at some of y'alls pics and there are some

> very beautifu babies there. :-)

> Kirstin

>

>

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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,

Hello! Thanks for the information... that is pretty wild... I hadn't heard

of that, but then again, I am not a medical person. lol!

Um... this may be a stupid question, but what does visual impairment have

to do with the AAS? Thanks...

Well, good luck in getting pregnant and baby dust is heavily sprinkled in

this forum!! Be prepared! :~)

Hugs

Sharon

Kirstin Tyner said:

> The condition I have is anitcardiolipin antibody syndrome (aka-lupis

> anticoagulant aka-anitphospholipids) I am told I have it because I am

> over weight...or I should say that's why I've had problems from it. It is

> a hypercoagulation disorder. Apparently it can occur in overweight

> people, people with lupis and after I was diagnosised I found lots of info

> about people who have repeated miscarriages are found to have it as well.

> My neurologist thinks there is a genetic component to it as both my sister

> and I have developed it. We are both visually ipaired. I am the youngest

> and I was brave (or stupid as the docs say) enough to have a baby. By

> loosing at least 100 pounds the ob who delivered my daughter said I would

> be in a better position to try for a second. I'm excited that I'm going

> to get to do this and possible have the option of having another

> child...not to mention the better health so I can play with and watch my

> daughter grow and not worry about missing those neat things that are to

> occur in her life. :-)

> Re: question about preg post op

>

>

>

> Kirstin,

>

> Welcome! What medical condition are you talking about??

>

> I am only 14 weeks pregnant, with my very first (was 18 months post op

> when I got pregnant), so I can't really answer your questions. My baby

> is

> measuring about 1-2 weeks smaller than it should be, but... that could

> be

> conception miscalculations... so, I'm not real worried and neither is my

> ob! :~)

>

> Again, welcome!! And good luck with wls!!!

>

> Sharon

>

> ktyner2003 said:

> > Hi...I go for my first consult this coming friday for WLS. I am

> > curious about being pregnant after having a bypass done. I have a

> > medical condition that didn't allow my daughter to grow as much as

> > she should have and am concerned that after the surgery if my husband

> > and I were to have another child it would further increase the risk

> > of a low birth weight baby. Where your babies healthy and good sized

> > babies? My daughter was 5lb 6 pz at 38weeks Since she was so small

> > and I was so big I kinda missed out on the fun of being pregnant and

> > feeling her. I had butterflies mostly and no real big kicks could be

> > felt. I am excited about the prospect of being pregnant as a normal

> > sized person. Did anyone get pregnant before the recommended time

> > frame and did everything go ok?

> > Thanks alot...and I looked at some of y'alls pics and there are some

> > very beautifu babies there. :-)

> > Kirstin

> >

> >

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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,

Hello! Thanks for the information... that is pretty wild... I hadn't heard

of that, but then again, I am not a medical person. lol!

Um... this may be a stupid question, but what does visual impairment have

to do with the AAS? Thanks...

Well, good luck in getting pregnant and baby dust is heavily sprinkled in

this forum!! Be prepared! :~)

Hugs

Sharon

Kirstin Tyner said:

> The condition I have is anitcardiolipin antibody syndrome (aka-lupis

> anticoagulant aka-anitphospholipids) I am told I have it because I am

> over weight...or I should say that's why I've had problems from it. It is

> a hypercoagulation disorder. Apparently it can occur in overweight

> people, people with lupis and after I was diagnosised I found lots of info

> about people who have repeated miscarriages are found to have it as well.

> My neurologist thinks there is a genetic component to it as both my sister

> and I have developed it. We are both visually ipaired. I am the youngest

> and I was brave (or stupid as the docs say) enough to have a baby. By

> loosing at least 100 pounds the ob who delivered my daughter said I would

> be in a better position to try for a second. I'm excited that I'm going

> to get to do this and possible have the option of having another

> child...not to mention the better health so I can play with and watch my

> daughter grow and not worry about missing those neat things that are to

> occur in her life. :-)

> Re: question about preg post op

>

>

>

> Kirstin,

>

> Welcome! What medical condition are you talking about??

>

> I am only 14 weeks pregnant, with my very first (was 18 months post op

> when I got pregnant), so I can't really answer your questions. My baby

> is

> measuring about 1-2 weeks smaller than it should be, but... that could

> be

> conception miscalculations... so, I'm not real worried and neither is my

> ob! :~)

>

> Again, welcome!! And good luck with wls!!!

>

> Sharon

>

> ktyner2003 said:

> > Hi...I go for my first consult this coming friday for WLS. I am

> > curious about being pregnant after having a bypass done. I have a

> > medical condition that didn't allow my daughter to grow as much as

> > she should have and am concerned that after the surgery if my husband

> > and I were to have another child it would further increase the risk

> > of a low birth weight baby. Where your babies healthy and good sized

> > babies? My daughter was 5lb 6 pz at 38weeks Since she was so small

> > and I was so big I kinda missed out on the fun of being pregnant and

> > feeling her. I had butterflies mostly and no real big kicks could be

> > felt. I am excited about the prospect of being pregnant as a normal

> > sized person. Did anyone get pregnant before the recommended time

> > frame and did everything go ok?

> > Thanks alot...and I looked at some of y'alls pics and there are some

> > very beautifu babies there. :-)

> > Kirstin

> >

> >

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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Share on other sites

,

Hello! Thanks for the information... that is pretty wild... I hadn't heard

of that, but then again, I am not a medical person. lol!

Um... this may be a stupid question, but what does visual impairment have

to do with the AAS? Thanks...

Well, good luck in getting pregnant and baby dust is heavily sprinkled in

this forum!! Be prepared! :~)

Hugs

Sharon

Kirstin Tyner said:

> The condition I have is anitcardiolipin antibody syndrome (aka-lupis

> anticoagulant aka-anitphospholipids) I am told I have it because I am

> over weight...or I should say that's why I've had problems from it. It is

> a hypercoagulation disorder. Apparently it can occur in overweight

> people, people with lupis and after I was diagnosised I found lots of info

> about people who have repeated miscarriages are found to have it as well.

> My neurologist thinks there is a genetic component to it as both my sister

> and I have developed it. We are both visually ipaired. I am the youngest

> and I was brave (or stupid as the docs say) enough to have a baby. By

> loosing at least 100 pounds the ob who delivered my daughter said I would

> be in a better position to try for a second. I'm excited that I'm going

> to get to do this and possible have the option of having another

> child...not to mention the better health so I can play with and watch my

> daughter grow and not worry about missing those neat things that are to

> occur in her life. :-)

> Re: question about preg post op

>

>

>

> Kirstin,

>

> Welcome! What medical condition are you talking about??

>

> I am only 14 weeks pregnant, with my very first (was 18 months post op

> when I got pregnant), so I can't really answer your questions. My baby

> is

> measuring about 1-2 weeks smaller than it should be, but... that could

> be

> conception miscalculations... so, I'm not real worried and neither is my

> ob! :~)

>

> Again, welcome!! And good luck with wls!!!

>

> Sharon

>

> ktyner2003 said:

> > Hi...I go for my first consult this coming friday for WLS. I am

> > curious about being pregnant after having a bypass done. I have a

> > medical condition that didn't allow my daughter to grow as much as

> > she should have and am concerned that after the surgery if my husband

> > and I were to have another child it would further increase the risk

> > of a low birth weight baby. Where your babies healthy and good sized

> > babies? My daughter was 5lb 6 pz at 38weeks Since she was so small

> > and I was so big I kinda missed out on the fun of being pregnant and

> > feeling her. I had butterflies mostly and no real big kicks could be

> > felt. I am excited about the prospect of being pregnant as a normal

> > sized person. Did anyone get pregnant before the recommended time

> > frame and did everything go ok?

> > Thanks alot...and I looked at some of y'alls pics and there are some

> > very beautifu babies there. :-)

> > Kirstin

> >

> >

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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just as long as that baby dust is a long term thing :-)

Usually I have to explain what it is to the doctors and then they go look i t up

and tell me I was right. The only one who knew what it was was the OB...that is

other than the neurologist who treated my sister and when she was treated they

didn't know what she had cause it was a " new " thing.

I am visually impaired because I had two clots in my brain which caused the

pressure to build up in my brain and spin. The only outlet for pressure in this

area is your eyeballs. So the optic nerve was damaged. Why exactly mine were

damaged to the point they were is a mistery because I had the clotsremoved and a

working shunt in my brain which should have prevented that, but I guess I needed

to go meet a few folks in OK City and let them have some practice working on my

eyes :-)

Actually it's pretty perplexing to my neurologist that my sister and I both

ended up with visual problems. This is still a new thing so not much is known

about it. I think it would be interesting to find out what study groups are out

there and what they are finding. I'd also like to know for my daughter's sake

as to how she will be effected if at all after she grows up. We are working on

teaching her the healthy habits needed to decrease her risk of becoming obese.

Luckily for her she has my husband's " stick " genes workin' in her too :-)

Hmmm...I seem to be running on. Probably gave you more info that what you

wanted,eh? sorry about that.

Kirstin

Re: question about preg post op

>

>

>

> Kirstin,

>

> Welcome! What medical condition are you talking about??

>

> I am only 14 weeks pregnant, with my very first (was 18 months post op

> when I got pregnant), so I can't really answer your questions. My baby

> is

> measuring about 1-2 weeks smaller than it should be, but... that could

> be

> conception miscalculations... so, I'm not real worried and neither is my

> ob! :~)

>

> Again, welcome!! And good luck with wls!!!

>

> Sharon

>

> ktyner2003 said:

> > Hi...I go for my first consult this coming friday for WLS. I am

> > curious about being pregnant after having a bypass done. I have a

> > medical condition that didn't allow my daughter to grow as much as

> > she should have and am concerned that after the surgery if my husband

> > and I were to have another child it would further increase the risk

> > of a low birth weight baby. Where your babies healthy and good sized

> > babies? My daughter was 5lb 6 pz at 38weeks Since she was so small

> > and I was so big I kinda missed out on the fun of being pregnant and

> > feeling her. I had butterflies mostly and no real big kicks could be

> > felt. I am excited about the prospect of being pregnant as a normal

> > sized person. Did anyone get pregnant before the recommended time

> > frame and did everything go ok?

> > Thanks alot...and I looked at some of y'alls pics and there are some

> > very beautifu babies there. :-)

> > Kirstin

> >

> >

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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Share on other sites

,

Actually, I am fascinated by various medical conditions... the reason

being is that I HAD one for years, and no one could diagnose it until I

moved from Oklahoma to Michigan!! Which makes me wonder... have you ever

been tested for psuedotumor cerbri?? That was what caused my vision

problems (had massive headaches, too) and the docs in Oklahoma kept

telling me it was all psychological... they never did the right test to

find out what it was I actually had!! It was pretty scarey!!

Wehre in Oklahoma are you?? I am from Stillwater, and a great deal of my

family still lives there...

Gosh, I wish I had a few of my dad's stick genes... but I got all the fat

genes! LOL!! My husband did too, unfortunately, so we are really going to

have to watch this little one closely!

You said you have a shunt... they wanted to put a shunt in my head but I

opted for wls instead, and they don't think I will need one now, since I

have lost so much weight. I have started having the really bad headaches

again in the past few weeks, butwonder if that is frompregnancy or ptc...

sigh... I go to my doc tomorrow and I know he is going to send me to my

neuro -- they will want to put me on meds I can't take while pregnant,

though and I SURE don't want a spinal tap while I am pregnant (It is the

only way to really tell if you have PTC)!! SIgh...

ANyway, keep up the faith and I KNOW that baby dust hangs around here like

a constant mist! LOL!

SHaron

Kirstin Tyner said:

> just as long as that baby dust is a long term thing :-)

> Usually I have to explain what it is to the doctors and then they go look

> i t up and tell me I was right. The only one who knew what it was was the

> OB...that is other than the neurologist who treated my sister and when she

> was treated they didn't know what she had cause it was a " new " thing.

> I am visually impaired because I had two clots in my brain which caused

> the pressure to build up in my brain and spin. The only outlet for

> pressure in this area is your eyeballs. So the optic nerve was damaged.

> Why exactly mine were damaged to the point they were is a mistery because

> I had the clotsremoved and a working shunt in my brain which should have

> prevented that, but I guess I needed to go meet a few folks in OK City and

> let them have some practice working on my eyes :-)

> Actually it's pretty perplexing to my neurologist that my sister and I

> both ended up with visual problems. This is still a new thing so not much

> is known about it. I think it would be interesting to find out what study

> groups are out there and what they are finding. I'd also like to know for

> my daughter's sake as to how she will be effected if at all after she

> grows up. We are working on teaching her the healthy habits needed to

> decrease her risk of becoming obese. Luckily for her she has my husband's

> " stick " genes workin' in her too :-)

> Hmmm...I seem to be running on. Probably gave you more info that what you

> wanted,eh? sorry about that.

> Kirstin

>

> Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

Link to comment
Share on other sites

,

Actually, I am fascinated by various medical conditions... the reason

being is that I HAD one for years, and no one could diagnose it until I

moved from Oklahoma to Michigan!! Which makes me wonder... have you ever

been tested for psuedotumor cerbri?? That was what caused my vision

problems (had massive headaches, too) and the docs in Oklahoma kept

telling me it was all psychological... they never did the right test to

find out what it was I actually had!! It was pretty scarey!!

Wehre in Oklahoma are you?? I am from Stillwater, and a great deal of my

family still lives there...

Gosh, I wish I had a few of my dad's stick genes... but I got all the fat

genes! LOL!! My husband did too, unfortunately, so we are really going to

have to watch this little one closely!

You said you have a shunt... they wanted to put a shunt in my head but I

opted for wls instead, and they don't think I will need one now, since I

have lost so much weight. I have started having the really bad headaches

again in the past few weeks, butwonder if that is frompregnancy or ptc...

sigh... I go to my doc tomorrow and I know he is going to send me to my

neuro -- they will want to put me on meds I can't take while pregnant,

though and I SURE don't want a spinal tap while I am pregnant (It is the

only way to really tell if you have PTC)!! SIgh...

ANyway, keep up the faith and I KNOW that baby dust hangs around here like

a constant mist! LOL!

SHaron

Kirstin Tyner said:

> just as long as that baby dust is a long term thing :-)

> Usually I have to explain what it is to the doctors and then they go look

> i t up and tell me I was right. The only one who knew what it was was the

> OB...that is other than the neurologist who treated my sister and when she

> was treated they didn't know what she had cause it was a " new " thing.

> I am visually impaired because I had two clots in my brain which caused

> the pressure to build up in my brain and spin. The only outlet for

> pressure in this area is your eyeballs. So the optic nerve was damaged.

> Why exactly mine were damaged to the point they were is a mistery because

> I had the clotsremoved and a working shunt in my brain which should have

> prevented that, but I guess I needed to go meet a few folks in OK City and

> let them have some practice working on my eyes :-)

> Actually it's pretty perplexing to my neurologist that my sister and I

> both ended up with visual problems. This is still a new thing so not much

> is known about it. I think it would be interesting to find out what study

> groups are out there and what they are finding. I'd also like to know for

> my daughter's sake as to how she will be effected if at all after she

> grows up. We are working on teaching her the healthy habits needed to

> decrease her risk of becoming obese. Luckily for her she has my husband's

> " stick " genes workin' in her too :-)

> Hmmm...I seem to be running on. Probably gave you more info that what you

> wanted,eh? sorry about that.

> Kirstin

>

> Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

Link to comment
Share on other sites

,

Actually, I am fascinated by various medical conditions... the reason

being is that I HAD one for years, and no one could diagnose it until I

moved from Oklahoma to Michigan!! Which makes me wonder... have you ever

been tested for psuedotumor cerbri?? That was what caused my vision

problems (had massive headaches, too) and the docs in Oklahoma kept

telling me it was all psychological... they never did the right test to

find out what it was I actually had!! It was pretty scarey!!

Wehre in Oklahoma are you?? I am from Stillwater, and a great deal of my

family still lives there...

Gosh, I wish I had a few of my dad's stick genes... but I got all the fat

genes! LOL!! My husband did too, unfortunately, so we are really going to

have to watch this little one closely!

You said you have a shunt... they wanted to put a shunt in my head but I

opted for wls instead, and they don't think I will need one now, since I

have lost so much weight. I have started having the really bad headaches

again in the past few weeks, butwonder if that is frompregnancy or ptc...

sigh... I go to my doc tomorrow and I know he is going to send me to my

neuro -- they will want to put me on meds I can't take while pregnant,

though and I SURE don't want a spinal tap while I am pregnant (It is the

only way to really tell if you have PTC)!! SIgh...

ANyway, keep up the faith and I KNOW that baby dust hangs around here like

a constant mist! LOL!

SHaron

Kirstin Tyner said:

> just as long as that baby dust is a long term thing :-)

> Usually I have to explain what it is to the doctors and then they go look

> i t up and tell me I was right. The only one who knew what it was was the

> OB...that is other than the neurologist who treated my sister and when she

> was treated they didn't know what she had cause it was a " new " thing.

> I am visually impaired because I had two clots in my brain which caused

> the pressure to build up in my brain and spin. The only outlet for

> pressure in this area is your eyeballs. So the optic nerve was damaged.

> Why exactly mine were damaged to the point they were is a mistery because

> I had the clotsremoved and a working shunt in my brain which should have

> prevented that, but I guess I needed to go meet a few folks in OK City and

> let them have some practice working on my eyes :-)

> Actually it's pretty perplexing to my neurologist that my sister and I

> both ended up with visual problems. This is still a new thing so not much

> is known about it. I think it would be interesting to find out what study

> groups are out there and what they are finding. I'd also like to know for

> my daughter's sake as to how she will be effected if at all after she

> grows up. We are working on teaching her the healthy habits needed to

> decrease her risk of becoming obese. Luckily for her she has my husband's

> " stick " genes workin' in her too :-)

> Hmmm...I seem to be running on. Probably gave you more info that what you

> wanted,eh? sorry about that.

> Kirstin

>

> Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

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sharon,

since you have lost so much weight, I am seriously doubting it's

PTC.

CALL YOUR DR AND SEE WHAT THEY THINK!

I know women who have taken Diamox during pg.

I can't imagine thats whats happening with you ****unless preg does

somthing to some people to cause PTC to recur****

Sheila

:D

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Yeah, I was HOPING it wasn't ptc... I was going to have another spinal tap

to rule ptc out, but then got pregnant and I refuse to have one of those

things done while pregnant... I had such a horrendous experience with the

last one, I just can't deal with the stress of it... so I wait!

I was about 20 lbs from the bottom rung of my goal weight... my doc didn't

want me to lose any more, but I did... lol... I guess pregnancy put an end

to that thought! LOL!!

I did call my doc... and am waiting for a return call... my head is

reallystarting to bang now, so I will sign off... and let you know what

they say when I hear! :~)

Thanks for your help!

Sharon

angel_of_mercy_911 said:

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Share on other sites

Yeah, I was HOPING it wasn't ptc... I was going to have another spinal tap

to rule ptc out, but then got pregnant and I refuse to have one of those

things done while pregnant... I had such a horrendous experience with the

last one, I just can't deal with the stress of it... so I wait!

I was about 20 lbs from the bottom rung of my goal weight... my doc didn't

want me to lose any more, but I did... lol... I guess pregnancy put an end

to that thought! LOL!!

I did call my doc... and am waiting for a return call... my head is

reallystarting to bang now, so I will sign off... and let you know what

they say when I hear! :~)

Thanks for your help!

Sharon

angel_of_mercy_911 said:

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

Link to comment
Share on other sites

Yeah, I was HOPING it wasn't ptc... I was going to have another spinal tap

to rule ptc out, but then got pregnant and I refuse to have one of those

things done while pregnant... I had such a horrendous experience with the

last one, I just can't deal with the stress of it... so I wait!

I was about 20 lbs from the bottom rung of my goal weight... my doc didn't

want me to lose any more, but I did... lol... I guess pregnancy put an end

to that thought! LOL!!

I did call my doc... and am waiting for a return call... my head is

reallystarting to bang now, so I will sign off... and let you know what

they say when I hear! :~)

Thanks for your help!

Sharon

angel_of_mercy_911 said:

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

Link to comment
Share on other sites

Sharon...just remeber you asked for it :-)

I am in Tulsa.

It's funny you mention pseudotumor. That's what my sister was initially

diagnosised with. Because I was a nursing student and her doctor was a very

nice one (that's one of the reason's he's now my neurologist) I got to watch

her spinal taps he did. The spinal fluid shot out the top of the meter. He said

it was rare for a doc to see that and even rarer for a nurse to get to see it.

His student was pretty impressed too.

Let me start from the begining with my sisiter. She walked aroundfor about a

week with her appendix burst. When they went in to clean everything up she was

put on some heavy duty antibiotics. A day or so after she came home her vision

went funny and pretty much lost a good portion of it. THe surgeon said it was

most likely a side effect of the antibiotics and within a week it should clear

up. Close to the end of the week she was at my parents taking a shower and

passed out and fell. After this happened they refered her to the neurologist.

He checked her out and admitted her. After the spinal tap came back negative as

well as CTs and MRIs it was decided she had pseudotumor. Probably had it for a

while and her body had been compensating for it and the apendix thing confused

her body andit decided to take care ofit as opposed to regulating her

pseudotumor. I can't remember if she came home or if she stayed in the hospital

more. I think they did quite a few spinals and got pressure down and sent her

home and she kept having neck pain and the vidion didn't improve. Either way

she eventually ended up getting a shunt placed because nothing was working. She

came home from the hosptial after placement of the shunt and within a couple

days she started having seizures. She went back and it was found there was a

clot in her brain with an MRV. Well, we had never been told that she had a

clotting disorder the neurosurgeon (aka god according to him) said it was a side

effect of the surgery and my sister had a stroke leaving her with left sided

weakness. The neurologist said pseudotumors where not uncommon in over weight

females 25-40 I believe the age range was. I was under this age limit, but knew

I maybe at risk so I started working on loosing weight. Had I have known it was

a clotting disorder she had I would have NEVER gotten on birth control pills.

-deep breath-

So about two years after that I would have headaches in my sinus area around my

eyes. I went for an eye exam and got new glasses, but that really didn't help

any. The headaches got a little worse, but not to bad. They'd come and begone

in a matter of a few minutes half an hour at the most. I was going through my

last semember of nursing school and was preparing for boards and thought maybe

they were stress related because I was under alot of stress going through school

working, taking care of my now visually impared sister and a relatinship with my

now husband. They started coming a little more and more and finally I started

checking my blood pressure when I had them because of how intense they were

getting...no high blood pressure. I decided to go to the doctor tho check it

out. I was told because I was fat it was most likely related to blood pressure

by a nurse practitioner who worked for the same PCP my sister saw through her

whole appendix, pseudotumor thing. Pissed because I knew it wasn't that I kept

track of numbers to prove it wasn't. Well when they saw it wasn't that she

decided it was just migranes and dropped it. Well, during this time I'dgetthese

god awful pains in my back to where I knew it was in my spinal column and there

would be this intense throbbing that if I was doing somethingI'd have to sit and

wait for them to go away before I could move. Still nothing from the doctor.

Well, I graduated and went on to start working at a hospital. Normally I

carried my stethascope in my pocket, but one night I was really busy and drapped

it over my neck for most of the night. The next morning when I ws walking to my

car when I was going home my neck was KILLING me and I just blew it off thinking

it was related to the pressure puton it by the stethascope. I went home and

went to bed after taking a couple of ibuprofin for the headache I came home

with. I took about a three or four hour nap before my husband and I were to got

to my parents for lunch on labor day. I was a little nauseated and the

ibuprofin had worn off so I took some more and we were off. I ended up

upchucking that evening and developed a black floater in my vision after that.

Having just completed boards not long ago I knew a black floater was a bad thing

to have. I called my doctor the next morning and told the phone lady my

symptoms. I was given a script for Midrin and was told I had a migraine. The

med didn't work and my father ended up taking me to the ER that evening. The

doc really checked my eyes out apparently she was seeing the paploedema and

didn't know what it was. A CT was ran and I was send home with a shot of

demerol in the ass and a script for Tylox. The Tylox helped some. After about

a week off work and speaking to my doctor every day saying there was something

DEFINATELY wrong with me and my vision was getting worse (she kept saying I had

migranines and the vision problems were due to that) I woke up with a headache

that would not go away and no meds would touch. I had my husband take me again

to the er the doc said it wsa just a migrain. Not thinking because my brain was

all swelled up and impaired, ya know, I didn't mention anything about my sister,

but I kept questioning him about it being a migrain andhe kept checking out my

eyes too. I don't think he really believed that's what it was either. My dad

mentioned that he thought I was worried about having the same condition as my

sister. THe doc looked in my eyes again and said to be on the safe side they'd

do a spinal. Well, he got to see the fluid shoot out the top of the meter too.

:-) I was sent home with Lasix (which apparently my boy metabolizes and uses

differently because I ended up not able to pee from it) and a steroid along with

the instructions to call my sisters neurologist on Monday and set up an

appointment.

I went for the appointment and explain all that had been going on. And said I

was a little concerned I had what my sister had. I was told that I didn't want

what my sisiter had because it was not a good thing. I was admited to the

hosptial and had an MRV done and they found two huge clots. One totally

occluded my main sinus in my brain and the other partially occluded a transverse

sinus (in case you don't know your sinuses are your drainage system in your

brain). I got to have fun spending a week in ICU having Eurokinase dripped in

and a catheter advanced into my brain to break up the clots. That did not

decrease the pressure and I had a shunt placed. Which had to be revised twice.

After the last revision I was told most likely I would get about 80 percent of

my vision back and had to loose weight. Well about three to four weeks later I

lost more of my vision and myshunt was still working.

I was sent to OKC to see a neuro opthamologist. He examined my shunt and said

it wasn't functioning properly. I protested saying I had had a CT done just a

week or so ago showing it was working. WELL I found out some good info.

Apparently with this condition changes don't show up on a CT scan nor an MRI and

a spinal tap had to be done to determine wether or not the pressure had gone

down. Well they did one and I was on the high end of normal and I guess

because I was pissed after he told me it wasn't working and said I didn't want

the asshole who placed it and revised it twice to touch me again he kinda

dropped the revision thing since it was in normal limits. I have had a surgery

on both my eyes to decrease pressure of my optic nerve and have gotten some

vision back since. I don't see things very clearly detail wise and I can't see

colors very well...like I couldn't tell the difference between a hunter green

forst green and a navy blue because they are just too close together to

discriminate against for me.

Apparently the reason they know it's not a pseudotumor is because of the fact I

had clots and the fact that I have the anticardiolipins detectable in a blood

test. I am told that my daughter can have this and was told by the OB that if

she becomes pregnant or at age 20 she needs to be tested and have follow up

testing to watch those levels and make sure she's not showing any increase in

them meaning she's close to having an episode. I was was on Coumadin for about

two years and was told that I could be off it if I lost weight. After loosing

65 pounds I was still on it and then began to gain back the weight so I had to

continue on it. I got pregnant and off the Coumadin (not good for baby) and put

on Lovenox and a baby asprin during pregnancy. I was put back on coumadin after

delivery and about a year later after I hadn't been taking it for a few months

because of depression my neurologist opted to put me on asprin therapy. He says

that they don't know exactly how long to keep patients on the coumadin on for

for treatment and then follow with life long asprin therapy, but since I had

been taking it for so long he'd go ahead and take me off of it and that way I

didn't have to worry about going in for blood tests either to monitor it. My

brother hasn't shown any signs of having this. I'm a little concerned about his

daughter because she has had some tests done that have come up positive and

having these positive tests are kind of a warning to possibly developing this.

She's a kinda thick thin, but they have taught her the importance of staying

healthy and she has arthritis so it's better for her joints to have her weight

under control.

So NOW did ya get too much info? Do you know if you have had a blood test for

this? I ask because it is rare and not may doctors know about it and not much

is known about it. Apparently at the time my sister was diagnosed with

pseudotumor they hadn't EVEN heard of this condition. My sister and I were the

first ones to show that there was a genetic link to it. If you haven't had a

blood test I'd ask your doc if it'd be a good idea to have one done to see if

you need to do preventative stuff for your baby.

The research I found all had to deal with normal sized women and they would not

be diagnosed until they had had one child born with no problems and then after

that first pregnancy they had repeated miscarriage after miscarriage. This was

because clots were forming in the placenta and not allowing the baby to be

nurished.

Now we think that this might have come from my father's mother. She had what

they thought were mutlimiscarrages prior to having my father and she was on

strict bed rest the WHOLE pregnancy with him. Not for sure though, but she's

the only one who had had a problem with repeated miscarrages in our family that

is known.

Males can get this as well. They are usually overweight. Being fat means you

produce more estrogen and estrogen caused clots so overweight males can get this

as well. I think it might be rarer in males because I can't find a darn thing

about it in males and in fact I've only really found one thing about a person

who had this without being pregnant. I haven't researched in awhile so maybe

there is more out there now?

So did I give you more than you wanted now? :-)

Kirstin

Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

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Share on other sites

Sharon...just remeber you asked for it :-)

I am in Tulsa.

It's funny you mention pseudotumor. That's what my sister was initially

diagnosised with. Because I was a nursing student and her doctor was a very

nice one (that's one of the reason's he's now my neurologist) I got to watch

her spinal taps he did. The spinal fluid shot out the top of the meter. He said

it was rare for a doc to see that and even rarer for a nurse to get to see it.

His student was pretty impressed too.

Let me start from the begining with my sisiter. She walked aroundfor about a

week with her appendix burst. When they went in to clean everything up she was

put on some heavy duty antibiotics. A day or so after she came home her vision

went funny and pretty much lost a good portion of it. THe surgeon said it was

most likely a side effect of the antibiotics and within a week it should clear

up. Close to the end of the week she was at my parents taking a shower and

passed out and fell. After this happened they refered her to the neurologist.

He checked her out and admitted her. After the spinal tap came back negative as

well as CTs and MRIs it was decided she had pseudotumor. Probably had it for a

while and her body had been compensating for it and the apendix thing confused

her body andit decided to take care ofit as opposed to regulating her

pseudotumor. I can't remember if she came home or if she stayed in the hospital

more. I think they did quite a few spinals and got pressure down and sent her

home and she kept having neck pain and the vidion didn't improve. Either way

she eventually ended up getting a shunt placed because nothing was working. She

came home from the hosptial after placement of the shunt and within a couple

days she started having seizures. She went back and it was found there was a

clot in her brain with an MRV. Well, we had never been told that she had a

clotting disorder the neurosurgeon (aka god according to him) said it was a side

effect of the surgery and my sister had a stroke leaving her with left sided

weakness. The neurologist said pseudotumors where not uncommon in over weight

females 25-40 I believe the age range was. I was under this age limit, but knew

I maybe at risk so I started working on loosing weight. Had I have known it was

a clotting disorder she had I would have NEVER gotten on birth control pills.

-deep breath-

So about two years after that I would have headaches in my sinus area around my

eyes. I went for an eye exam and got new glasses, but that really didn't help

any. The headaches got a little worse, but not to bad. They'd come and begone

in a matter of a few minutes half an hour at the most. I was going through my

last semember of nursing school and was preparing for boards and thought maybe

they were stress related because I was under alot of stress going through school

working, taking care of my now visually impared sister and a relatinship with my

now husband. They started coming a little more and more and finally I started

checking my blood pressure when I had them because of how intense they were

getting...no high blood pressure. I decided to go to the doctor tho check it

out. I was told because I was fat it was most likely related to blood pressure

by a nurse practitioner who worked for the same PCP my sister saw through her

whole appendix, pseudotumor thing. Pissed because I knew it wasn't that I kept

track of numbers to prove it wasn't. Well when they saw it wasn't that she

decided it was just migranes and dropped it. Well, during this time I'dgetthese

god awful pains in my back to where I knew it was in my spinal column and there

would be this intense throbbing that if I was doing somethingI'd have to sit and

wait for them to go away before I could move. Still nothing from the doctor.

Well, I graduated and went on to start working at a hospital. Normally I

carried my stethascope in my pocket, but one night I was really busy and drapped

it over my neck for most of the night. The next morning when I ws walking to my

car when I was going home my neck was KILLING me and I just blew it off thinking

it was related to the pressure puton it by the stethascope. I went home and

went to bed after taking a couple of ibuprofin for the headache I came home

with. I took about a three or four hour nap before my husband and I were to got

to my parents for lunch on labor day. I was a little nauseated and the

ibuprofin had worn off so I took some more and we were off. I ended up

upchucking that evening and developed a black floater in my vision after that.

Having just completed boards not long ago I knew a black floater was a bad thing

to have. I called my doctor the next morning and told the phone lady my

symptoms. I was given a script for Midrin and was told I had a migraine. The

med didn't work and my father ended up taking me to the ER that evening. The

doc really checked my eyes out apparently she was seeing the paploedema and

didn't know what it was. A CT was ran and I was send home with a shot of

demerol in the ass and a script for Tylox. The Tylox helped some. After about

a week off work and speaking to my doctor every day saying there was something

DEFINATELY wrong with me and my vision was getting worse (she kept saying I had

migranines and the vision problems were due to that) I woke up with a headache

that would not go away and no meds would touch. I had my husband take me again

to the er the doc said it wsa just a migrain. Not thinking because my brain was

all swelled up and impaired, ya know, I didn't mention anything about my sister,

but I kept questioning him about it being a migrain andhe kept checking out my

eyes too. I don't think he really believed that's what it was either. My dad

mentioned that he thought I was worried about having the same condition as my

sister. THe doc looked in my eyes again and said to be on the safe side they'd

do a spinal. Well, he got to see the fluid shoot out the top of the meter too.

:-) I was sent home with Lasix (which apparently my boy metabolizes and uses

differently because I ended up not able to pee from it) and a steroid along with

the instructions to call my sisters neurologist on Monday and set up an

appointment.

I went for the appointment and explain all that had been going on. And said I

was a little concerned I had what my sister had. I was told that I didn't want

what my sisiter had because it was not a good thing. I was admited to the

hosptial and had an MRV done and they found two huge clots. One totally

occluded my main sinus in my brain and the other partially occluded a transverse

sinus (in case you don't know your sinuses are your drainage system in your

brain). I got to have fun spending a week in ICU having Eurokinase dripped in

and a catheter advanced into my brain to break up the clots. That did not

decrease the pressure and I had a shunt placed. Which had to be revised twice.

After the last revision I was told most likely I would get about 80 percent of

my vision back and had to loose weight. Well about three to four weeks later I

lost more of my vision and myshunt was still working.

I was sent to OKC to see a neuro opthamologist. He examined my shunt and said

it wasn't functioning properly. I protested saying I had had a CT done just a

week or so ago showing it was working. WELL I found out some good info.

Apparently with this condition changes don't show up on a CT scan nor an MRI and

a spinal tap had to be done to determine wether or not the pressure had gone

down. Well they did one and I was on the high end of normal and I guess

because I was pissed after he told me it wasn't working and said I didn't want

the asshole who placed it and revised it twice to touch me again he kinda

dropped the revision thing since it was in normal limits. I have had a surgery

on both my eyes to decrease pressure of my optic nerve and have gotten some

vision back since. I don't see things very clearly detail wise and I can't see

colors very well...like I couldn't tell the difference between a hunter green

forst green and a navy blue because they are just too close together to

discriminate against for me.

Apparently the reason they know it's not a pseudotumor is because of the fact I

had clots and the fact that I have the anticardiolipins detectable in a blood

test. I am told that my daughter can have this and was told by the OB that if

she becomes pregnant or at age 20 she needs to be tested and have follow up

testing to watch those levels and make sure she's not showing any increase in

them meaning she's close to having an episode. I was was on Coumadin for about

two years and was told that I could be off it if I lost weight. After loosing

65 pounds I was still on it and then began to gain back the weight so I had to

continue on it. I got pregnant and off the Coumadin (not good for baby) and put

on Lovenox and a baby asprin during pregnancy. I was put back on coumadin after

delivery and about a year later after I hadn't been taking it for a few months

because of depression my neurologist opted to put me on asprin therapy. He says

that they don't know exactly how long to keep patients on the coumadin on for

for treatment and then follow with life long asprin therapy, but since I had

been taking it for so long he'd go ahead and take me off of it and that way I

didn't have to worry about going in for blood tests either to monitor it. My

brother hasn't shown any signs of having this. I'm a little concerned about his

daughter because she has had some tests done that have come up positive and

having these positive tests are kind of a warning to possibly developing this.

She's a kinda thick thin, but they have taught her the importance of staying

healthy and she has arthritis so it's better for her joints to have her weight

under control.

So NOW did ya get too much info? Do you know if you have had a blood test for

this? I ask because it is rare and not may doctors know about it and not much

is known about it. Apparently at the time my sister was diagnosed with

pseudotumor they hadn't EVEN heard of this condition. My sister and I were the

first ones to show that there was a genetic link to it. If you haven't had a

blood test I'd ask your doc if it'd be a good idea to have one done to see if

you need to do preventative stuff for your baby.

The research I found all had to deal with normal sized women and they would not

be diagnosed until they had had one child born with no problems and then after

that first pregnancy they had repeated miscarriage after miscarriage. This was

because clots were forming in the placenta and not allowing the baby to be

nurished.

Now we think that this might have come from my father's mother. She had what

they thought were mutlimiscarrages prior to having my father and she was on

strict bed rest the WHOLE pregnancy with him. Not for sure though, but she's

the only one who had had a problem with repeated miscarrages in our family that

is known.

Males can get this as well. They are usually overweight. Being fat means you

produce more estrogen and estrogen caused clots so overweight males can get this

as well. I think it might be rarer in males because I can't find a darn thing

about it in males and in fact I've only really found one thing about a person

who had this without being pregnant. I haven't researched in awhile so maybe

there is more out there now?

So did I give you more than you wanted now? :-)

Kirstin

Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

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Sharon...just remeber you asked for it :-)

I am in Tulsa.

It's funny you mention pseudotumor. That's what my sister was initially

diagnosised with. Because I was a nursing student and her doctor was a very

nice one (that's one of the reason's he's now my neurologist) I got to watch

her spinal taps he did. The spinal fluid shot out the top of the meter. He said

it was rare for a doc to see that and even rarer for a nurse to get to see it.

His student was pretty impressed too.

Let me start from the begining with my sisiter. She walked aroundfor about a

week with her appendix burst. When they went in to clean everything up she was

put on some heavy duty antibiotics. A day or so after she came home her vision

went funny and pretty much lost a good portion of it. THe surgeon said it was

most likely a side effect of the antibiotics and within a week it should clear

up. Close to the end of the week she was at my parents taking a shower and

passed out and fell. After this happened they refered her to the neurologist.

He checked her out and admitted her. After the spinal tap came back negative as

well as CTs and MRIs it was decided she had pseudotumor. Probably had it for a

while and her body had been compensating for it and the apendix thing confused

her body andit decided to take care ofit as opposed to regulating her

pseudotumor. I can't remember if she came home or if she stayed in the hospital

more. I think they did quite a few spinals and got pressure down and sent her

home and she kept having neck pain and the vidion didn't improve. Either way

she eventually ended up getting a shunt placed because nothing was working. She

came home from the hosptial after placement of the shunt and within a couple

days she started having seizures. She went back and it was found there was a

clot in her brain with an MRV. Well, we had never been told that she had a

clotting disorder the neurosurgeon (aka god according to him) said it was a side

effect of the surgery and my sister had a stroke leaving her with left sided

weakness. The neurologist said pseudotumors where not uncommon in over weight

females 25-40 I believe the age range was. I was under this age limit, but knew

I maybe at risk so I started working on loosing weight. Had I have known it was

a clotting disorder she had I would have NEVER gotten on birth control pills.

-deep breath-

So about two years after that I would have headaches in my sinus area around my

eyes. I went for an eye exam and got new glasses, but that really didn't help

any. The headaches got a little worse, but not to bad. They'd come and begone

in a matter of a few minutes half an hour at the most. I was going through my

last semember of nursing school and was preparing for boards and thought maybe

they were stress related because I was under alot of stress going through school

working, taking care of my now visually impared sister and a relatinship with my

now husband. They started coming a little more and more and finally I started

checking my blood pressure when I had them because of how intense they were

getting...no high blood pressure. I decided to go to the doctor tho check it

out. I was told because I was fat it was most likely related to blood pressure

by a nurse practitioner who worked for the same PCP my sister saw through her

whole appendix, pseudotumor thing. Pissed because I knew it wasn't that I kept

track of numbers to prove it wasn't. Well when they saw it wasn't that she

decided it was just migranes and dropped it. Well, during this time I'dgetthese

god awful pains in my back to where I knew it was in my spinal column and there

would be this intense throbbing that if I was doing somethingI'd have to sit and

wait for them to go away before I could move. Still nothing from the doctor.

Well, I graduated and went on to start working at a hospital. Normally I

carried my stethascope in my pocket, but one night I was really busy and drapped

it over my neck for most of the night. The next morning when I ws walking to my

car when I was going home my neck was KILLING me and I just blew it off thinking

it was related to the pressure puton it by the stethascope. I went home and

went to bed after taking a couple of ibuprofin for the headache I came home

with. I took about a three or four hour nap before my husband and I were to got

to my parents for lunch on labor day. I was a little nauseated and the

ibuprofin had worn off so I took some more and we were off. I ended up

upchucking that evening and developed a black floater in my vision after that.

Having just completed boards not long ago I knew a black floater was a bad thing

to have. I called my doctor the next morning and told the phone lady my

symptoms. I was given a script for Midrin and was told I had a migraine. The

med didn't work and my father ended up taking me to the ER that evening. The

doc really checked my eyes out apparently she was seeing the paploedema and

didn't know what it was. A CT was ran and I was send home with a shot of

demerol in the ass and a script for Tylox. The Tylox helped some. After about

a week off work and speaking to my doctor every day saying there was something

DEFINATELY wrong with me and my vision was getting worse (she kept saying I had

migranines and the vision problems were due to that) I woke up with a headache

that would not go away and no meds would touch. I had my husband take me again

to the er the doc said it wsa just a migrain. Not thinking because my brain was

all swelled up and impaired, ya know, I didn't mention anything about my sister,

but I kept questioning him about it being a migrain andhe kept checking out my

eyes too. I don't think he really believed that's what it was either. My dad

mentioned that he thought I was worried about having the same condition as my

sister. THe doc looked in my eyes again and said to be on the safe side they'd

do a spinal. Well, he got to see the fluid shoot out the top of the meter too.

:-) I was sent home with Lasix (which apparently my boy metabolizes and uses

differently because I ended up not able to pee from it) and a steroid along with

the instructions to call my sisters neurologist on Monday and set up an

appointment.

I went for the appointment and explain all that had been going on. And said I

was a little concerned I had what my sister had. I was told that I didn't want

what my sisiter had because it was not a good thing. I was admited to the

hosptial and had an MRV done and they found two huge clots. One totally

occluded my main sinus in my brain and the other partially occluded a transverse

sinus (in case you don't know your sinuses are your drainage system in your

brain). I got to have fun spending a week in ICU having Eurokinase dripped in

and a catheter advanced into my brain to break up the clots. That did not

decrease the pressure and I had a shunt placed. Which had to be revised twice.

After the last revision I was told most likely I would get about 80 percent of

my vision back and had to loose weight. Well about three to four weeks later I

lost more of my vision and myshunt was still working.

I was sent to OKC to see a neuro opthamologist. He examined my shunt and said

it wasn't functioning properly. I protested saying I had had a CT done just a

week or so ago showing it was working. WELL I found out some good info.

Apparently with this condition changes don't show up on a CT scan nor an MRI and

a spinal tap had to be done to determine wether or not the pressure had gone

down. Well they did one and I was on the high end of normal and I guess

because I was pissed after he told me it wasn't working and said I didn't want

the asshole who placed it and revised it twice to touch me again he kinda

dropped the revision thing since it was in normal limits. I have had a surgery

on both my eyes to decrease pressure of my optic nerve and have gotten some

vision back since. I don't see things very clearly detail wise and I can't see

colors very well...like I couldn't tell the difference between a hunter green

forst green and a navy blue because they are just too close together to

discriminate against for me.

Apparently the reason they know it's not a pseudotumor is because of the fact I

had clots and the fact that I have the anticardiolipins detectable in a blood

test. I am told that my daughter can have this and was told by the OB that if

she becomes pregnant or at age 20 she needs to be tested and have follow up

testing to watch those levels and make sure she's not showing any increase in

them meaning she's close to having an episode. I was was on Coumadin for about

two years and was told that I could be off it if I lost weight. After loosing

65 pounds I was still on it and then began to gain back the weight so I had to

continue on it. I got pregnant and off the Coumadin (not good for baby) and put

on Lovenox and a baby asprin during pregnancy. I was put back on coumadin after

delivery and about a year later after I hadn't been taking it for a few months

because of depression my neurologist opted to put me on asprin therapy. He says

that they don't know exactly how long to keep patients on the coumadin on for

for treatment and then follow with life long asprin therapy, but since I had

been taking it for so long he'd go ahead and take me off of it and that way I

didn't have to worry about going in for blood tests either to monitor it. My

brother hasn't shown any signs of having this. I'm a little concerned about his

daughter because she has had some tests done that have come up positive and

having these positive tests are kind of a warning to possibly developing this.

She's a kinda thick thin, but they have taught her the importance of staying

healthy and she has arthritis so it's better for her joints to have her weight

under control.

So NOW did ya get too much info? Do you know if you have had a blood test for

this? I ask because it is rare and not may doctors know about it and not much

is known about it. Apparently at the time my sister was diagnosed with

pseudotumor they hadn't EVEN heard of this condition. My sister and I were the

first ones to show that there was a genetic link to it. If you haven't had a

blood test I'd ask your doc if it'd be a good idea to have one done to see if

you need to do preventative stuff for your baby.

The research I found all had to deal with normal sized women and they would not

be diagnosed until they had had one child born with no problems and then after

that first pregnancy they had repeated miscarriage after miscarriage. This was

because clots were forming in the placenta and not allowing the baby to be

nurished.

Now we think that this might have come from my father's mother. She had what

they thought were mutlimiscarrages prior to having my father and she was on

strict bed rest the WHOLE pregnancy with him. Not for sure though, but she's

the only one who had had a problem with repeated miscarrages in our family that

is known.

Males can get this as well. They are usually overweight. Being fat means you

produce more estrogen and estrogen caused clots so overweight males can get this

as well. I think it might be rarer in males because I can't find a darn thing

about it in males and in fact I've only really found one thing about a person

who had this without being pregnant. I haven't researched in awhile so maybe

there is more out there now?

So did I give you more than you wanted now? :-)

Kirstin

Re: question about preg post op

> >

> >

> >

> > Kirstin,

> >

> > Welcome! What medical condition are you talking about??

> >

> > I am only 14 weeks pregnant, with my very first (was 18 months post

> op

> > when I got pregnant), so I can't really answer your questions. My

> baby

> > is

> > measuring about 1-2 weeks smaller than it should be, but... that

> could

> > be

> > conception miscalculations... so, I'm not real worried and neither

> is my

> > ob! :~)

> >

> > Again, welcome!! And good luck with wls!!!

> >

> > Sharon

> >

> > ktyner2003 said:

> > > Hi...I go for my first consult this coming friday for WLS. I am

> > > curious about being pregnant after having a bypass done. I have a

> > > medical condition that didn't allow my daughter to grow as much as

> > > she should have and am concerned that after the surgery if my

> husband

> > > and I were to have another child it would further increase the

> risk

> > > of a low birth weight baby. Where your babies healthy and good

> sized

> > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> small

> > > and I was so big I kinda missed out on the fun of being pregnant

> and

> > > feeling her. I had butterflies mostly and no real big kicks could

> be

> > > felt. I am excited about the prospect of being pregnant as a

> normal

> > > sized person. Did anyone get pregnant before the recommended time

> > > frame and did everything go ok?

> > > Thanks alot...and I looked at some of y'alls pics and there are

> some

> > > very beautifu babies there. :-)

> > > Kirstin

> > >

> > >

> > >

> > >

> > >

> > > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> > >

> > >

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Sharon I don't blame you for not wanting another tap done. I have had so many

done I have to take off my shoes to count. My back bothers me greatly where

they have been done and I had the stupid neurosurgeon hit something that caused

a tingling pain to shoot down my left leg that still comes and goes from time to

time. It's not uncommon for my left leg togo to sleep after sitting a while in

one position. Differnt than a foot going to sleep because it starts at the hip

and goes down. I refused to even think about having an epidural when pregnant

and the time came to set up that. I did NOT want another thing poked in my back

especially if it was elective.

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Sharon I don't blame you for not wanting another tap done. I have had so many

done I have to take off my shoes to count. My back bothers me greatly where

they have been done and I had the stupid neurosurgeon hit something that caused

a tingling pain to shoot down my left leg that still comes and goes from time to

time. It's not uncommon for my left leg togo to sleep after sitting a while in

one position. Differnt than a foot going to sleep because it starts at the hip

and goes down. I refused to even think about having an epidural when pregnant

and the time came to set up that. I did NOT want another thing poked in my back

especially if it was elective.

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Sharon I don't blame you for not wanting another tap done. I have had so many

done I have to take off my shoes to count. My back bothers me greatly where

they have been done and I had the stupid neurosurgeon hit something that caused

a tingling pain to shoot down my left leg that still comes and goes from time to

time. It's not uncommon for my left leg togo to sleep after sitting a while in

one position. Differnt than a foot going to sleep because it starts at the hip

and goes down. I refused to even think about having an epidural when pregnant

and the time came to set up that. I did NOT want another thing poked in my back

especially if it was elective.

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Yeah... I know, that's why I have been such a non-alarmist about it... but

this one isn't going away AT ALL, no matter what I do!!

So, now I wait....!

I did get a call back from my ob and they wanted me to try excedrin

migraine... so hubby is bringing that home for me. I do go into my regular

doc tomorrow and my ob has called them and wants some tests done when I go

in... if my blood pressure is okay, and I still have the headache, they

are going to prescribe tylenol 3 or darvocet... I do NOT like that idea at

all!! I can't stand codiene and I thought you couldn't take codiene while

pregnant!!

When I lay down, the headache gets better, and it gets worse when I am up

and about... if I stay up too long, it takes it a long time to get better

once I do lay down... I just wonder if it IS preeclampsia??

Oh well... we shall see tomorrow!!

Thanks for all your help!!

Sharon

Kirstin Tyner said:

> FYI pregnancy causes things to swell not only ankles, but nerves and thing

> like that it's not uncommon to have headaches while pregnant because of

> theswelling everywhere...at least that's what I was told by my doctor.

> Re: sharon-question about preg post op

>

>

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

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Yeah... I know, that's why I have been such a non-alarmist about it... but

this one isn't going away AT ALL, no matter what I do!!

So, now I wait....!

I did get a call back from my ob and they wanted me to try excedrin

migraine... so hubby is bringing that home for me. I do go into my regular

doc tomorrow and my ob has called them and wants some tests done when I go

in... if my blood pressure is okay, and I still have the headache, they

are going to prescribe tylenol 3 or darvocet... I do NOT like that idea at

all!! I can't stand codiene and I thought you couldn't take codiene while

pregnant!!

When I lay down, the headache gets better, and it gets worse when I am up

and about... if I stay up too long, it takes it a long time to get better

once I do lay down... I just wonder if it IS preeclampsia??

Oh well... we shall see tomorrow!!

Thanks for all your help!!

Sharon

Kirstin Tyner said:

> FYI pregnancy causes things to swell not only ankles, but nerves and thing

> like that it's not uncommon to have headaches while pregnant because of

> theswelling everywhere...at least that's what I was told by my doctor.

> Re: sharon-question about preg post op

>

>

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

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Yeah... I know, that's why I have been such a non-alarmist about it... but

this one isn't going away AT ALL, no matter what I do!!

So, now I wait....!

I did get a call back from my ob and they wanted me to try excedrin

migraine... so hubby is bringing that home for me. I do go into my regular

doc tomorrow and my ob has called them and wants some tests done when I go

in... if my blood pressure is okay, and I still have the headache, they

are going to prescribe tylenol 3 or darvocet... I do NOT like that idea at

all!! I can't stand codiene and I thought you couldn't take codiene while

pregnant!!

When I lay down, the headache gets better, and it gets worse when I am up

and about... if I stay up too long, it takes it a long time to get better

once I do lay down... I just wonder if it IS preeclampsia??

Oh well... we shall see tomorrow!!

Thanks for all your help!!

Sharon

Kirstin Tyner said:

> FYI pregnancy causes things to swell not only ankles, but nerves and thing

> like that it's not uncommon to have headaches while pregnant because of

> theswelling everywhere...at least that's what I was told by my doctor.

> Re: sharon-question about preg post op

>

>

> sharon,

> since you have lost so much weight, I am seriously doubting it's

> PTC.

>

> CALL YOUR DR AND SEE WHAT THEY THINK!

>

> I know women who have taken Diamox during pg.

> I can't imagine thats whats happening with you ****unless preg does

> somthing to some people to cause PTC to recur****

>

>

> Sheila

> :D

>

>

>

>

>

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,

Nope!! Not too much information!! LOL!! I am a teacher and I just can't

seem know enough about anything...! LOL! :~) I'll be doing some research

of my own on this now! LOL! :~)

What a roller coaster! NOW I know what to tell MY sister to be tested

for!! She has been going through some similar problems to yours and mine

and is scared to get a spinal tap... but I am going to tell her about

this, too... and hope that I can get her in to get tested for one or both.

She is going to end up dead if she doesn't get in to a doctor!

I will mention this to my neuro when I see him on the 29th... it will be

interesting to see what he says!

Wow... I sure feel for you and your sister. I know what this is like. My

docs were in Tulsa, too... wish Ihad run across the neuro you had! LOL!!

Thanks for the information and the time it took to write it all down. It

was very interesting to read (and I had to giggle at the " deep breaths "

you took!LOL).

Hugs

Sharon

Kirstin Tyner said:

> Sharon...just remeber you asked for it :-)

> I am in Tulsa.

> It's funny you mention pseudotumor. That's what my sister was initially

> diagnosised with. Because I was a nursing student and her doctor was a

> very nice one (that's one of the reason's he's now my neurologist) I got

> to watch her spinal taps he did. The spinal fluid shot out the top of the

> meter. He said it was rare for a doc to see that and even rarer for a

> nurse to get to see it. His student was pretty impressed too.

> Let me start from the begining with my sisiter. She walked aroundfor about

> a week with her appendix burst. When they went in to clean everything up

> she was put on some heavy duty antibiotics. A day or so after she came

> home her vision went funny and pretty much lost a good portion of it. THe

> surgeon said it was most likely a side effect of the antibiotics and

> within a week it should clear up. Close to the end of the week she was at

> my parents taking a shower and passed out and fell. After this happened

> they refered her to the neurologist. He checked her out and admitted her.

> After the spinal tap came back negative as well as CTs and MRIs it was

> decided she had pseudotumor. Probably had it for a while and her body had

> been compensating for it and the apendix thing confused her body andit

> decided to take care ofit as opposed to regulating her pseudotumor. I

> can't remember if she came home or if she stayed in the hospital more. I

> think they did quite a few spinals and got pressure down and sent her home

> and she kept having neck pain and the vidion didn't improve. Either way

> she eventually ended up getting a shunt placed because nothing was

> working. She came home from the hosptial after placement of the shunt and

> within a couple days she started having seizures. She went back and it

> was found there was a clot in her brain with an MRV. Well, we had never

> been told that she had a clotting disorder the neurosurgeon (aka god

> according to him) said it was a side effect of the surgery and my sister

> had a stroke leaving her with left sided weakness. The neurologist said

> pseudotumors where not uncommon in over weight females 25-40 I believe the

> age range was. I was under this age limit, but knew I maybe at risk so I

> started working on loosing weight. Had I have known it was a clotting

> disorder she had I would have NEVER gotten on birth control pills.

> -deep breath-

> So about two years after that I would have headaches in my sinus area

> around my eyes. I went for an eye exam and got new glasses, but that

> really didn't help any. The headaches got a little worse, but not to bad.

> They'd come and begone in a matter of a few minutes half an hour at the

> most. I was going through my last semember of nursing school and was

> preparing for boards and thought maybe they were stress related because I

> was under alot of stress going through school working, taking care of my

> now visually impared sister and a relatinship with my now husband. They

> started coming a little more and more and finally I started checking my

> blood pressure when I had them because of how intense they were

> getting...no high blood pressure. I decided to go to the doctor tho check

> it out. I was told because I was fat it was most likely related to blood

> pressure by a nurse practitioner who worked for the same PCP my sister saw

> through her whole appendix, pseudotumor thing. Pissed because I knew it

> wasn't that I kept track of numbers to prove it wasn't. Well when they

> saw it wasn't that she decided it was just migranes and dropped it. Well,

> during this time I'dgetthese god awful pains in my back to where I knew it

> was in my spinal column and there would be this intense throbbing that if

> I was doing somethingI'd have to sit and wait for them to go away before I

> could move. Still nothing from the doctor. Well, I graduated and went on

> to start working at a hospital. Normally I carried my stethascope in my

> pocket, but one night I was really busy and drapped it over my neck for

> most of the night. The next morning when I ws walking to my car when I

> was going home my neck was KILLING me and I just blew it off thinking it

> was related to the pressure puton it by the stethascope. I went home and

> went to bed after taking a couple of ibuprofin for the headache I came

> home with. I took about a three or four hour nap before my husband and I

> were to got to my parents for lunch on labor day. I was a little

> nauseated and the

> ibuprofin had worn off so I took some more and we were off. I ended up

> upchucking that evening and developed a black floater in my vision after

> that. Having just completed boards not long ago I knew a black floater

> was a bad thing to have. I called my doctor the next morning and told

> the phone lady my symptoms. I was given a script for Midrin and was told

> I had a migraine. The med didn't work and my father ended up taking me

> to the ER that evening. The doc really checked my eyes out apparently

> she was seeing the paploedema and didn't know what it was. A CT was ran

> and I was send home with a shot of demerol in the ass and a script for

> Tylox. The Tylox helped some. After about a week off work and speaking

> to my doctor every day saying there was something DEFINATELY wrong with

> me and my vision was getting worse (she kept saying I had migranines and

> the vision problems were due to that) I woke up with a headache that

> would not go away and no meds would touch. I had my husband take me

> again to the er the doc said it wsa just a migrain. Not thinking because

> my brain was all swelled up and impaired, ya know, I didn't mention

> anything about my sister, but I kept questioning him about it being a

> migrain andhe kept checking out my eyes too. I don't think he really

> believed that's what it was either. My dad mentioned that he thought I

> was worried about having the same condition as my sister. THe doc looked

> in my eyes again and said to be on the safe side they'd do a spinal.

> Well, he got to see the fluid shoot out the top of the meter too. :-) I

> was sent home with Lasix (which apparently my boy metabolizes and uses

> differently because I ended up not able to pee from it) and a steroid

> along with the instructions to call my sisters neurologist on Monday and

> set up an appointment.

> I went for the appointment and explain all that had been going on. And

> said I was a little concerned I had what my sister had. I was told that I

> didn't want what my sisiter had because it was not a good thing. I was

> admited to the hosptial and had an MRV done and they found two huge clots.

> One totally occluded my main sinus in my brain and the other partially

> occluded a transverse sinus (in case you don't know your sinuses are your

> drainage system in your brain). I got to have fun spending a week in ICU

> having Eurokinase dripped in and a catheter advanced into my brain to

> break up the clots. That did not decrease the pressure and I had a shunt

> placed. Which had to be revised twice. After the last revision I was

> told most likely I would get about 80 percent of my vision back and had to

> loose weight. Well about three to four weeks later I lost more of my

> vision and myshunt was still working.

> I was sent to OKC to see a neuro opthamologist. He examined my shunt and

> said it wasn't functioning properly. I protested saying I had had a CT

> done just a week or so ago showing it was working. WELL I found out some

> good info. Apparently with this condition changes don't show up on a CT

> scan nor an MRI and a spinal tap had to be done to determine wether or not

> the pressure had gone down. Well they did one and I was on the high end

> of normal and I guess because I was pissed after he told me it wasn't

> working and said I didn't want the asshole who placed it and revised it

> twice to touch me again he kinda dropped the revision thing since it was

> in normal limits. I have had a surgery on both my eyes to decrease

> pressure of my optic nerve and have gotten some vision back since. I

> don't see things very clearly detail wise and I can't see colors very

> well...like I couldn't tell the difference between a hunter green forst

> green and a navy blue because they are just too close together to

> discriminate against for me.

> Apparently the reason they know it's not a pseudotumor is because of the

> fact I had clots and the fact that I have the anticardiolipins detectable

> in a blood test. I am told that my daughter can have this and was told by

> the OB that if she becomes pregnant or at age 20 she needs to be tested

> and have follow up testing to watch those levels and make sure she's not

> showing any increase in them meaning she's close to having an episode. I

> was was on Coumadin for about two years and was told that I could be off

> it if I lost weight. After loosing 65 pounds I was still on it and then

> began to gain back the weight so I had to continue on it. I got pregnant

> and off the Coumadin (not good for baby) and put on Lovenox and a baby

> asprin during pregnancy. I was put back on coumadin after delivery and

> about a year later after I hadn't been taking it for a few months because

> of depression my neurologist opted to put me on asprin therapy. He says

> that they don't know exactly how long to keep patients on the coumadin on

> for for treatment and then follow with life long asprin therapy, but since

> I had been taking it for so long he'd go ahead and take me off of it and

> that way I didn't have to worry about going in for blood tests either to

> monitor it. My brother hasn't shown any signs of having this. I'm a

> little concerned about his daughter because she has had some tests done

> that have come up positive and having these positive tests are kind of a

> warning to possibly developing this. She's a kinda thick thin, but they

> have taught her the importance of staying healthy and she has arthritis so

> it's better for her joints to have her weight under control.

> So NOW did ya get too much info? Do you know if you have had a blood test

> for this? I ask because it is rare and not may doctors know about it and

> not much is known about it. Apparently at the time my sister was

> diagnosed with pseudotumor they hadn't EVEN heard of this condition. My

> sister and I were the first ones to show that there was a genetic link to

> it. If you haven't had a blood test I'd ask your doc if it'd be a good

> idea to have one done to see if you need to do preventative stuff for your

> baby.

> The research I found all had to deal with normal sized women and they

> would not be diagnosed until they had had one child born with no problems

> and then after that first pregnancy they had repeated miscarriage after

> miscarriage. This was because clots were forming in the placenta and not

> allowing the baby to be nurished.

> Now we think that this might have come from my father's mother. She had

> what they thought were mutlimiscarrages prior to having my father and she

> was on strict bed rest the WHOLE pregnancy with him. Not for sure though,

> but she's the only one who had had a problem with repeated miscarrages in

> our family that is known.

> Males can get this as well. They are usually overweight. Being fat means

> you produce more estrogen and estrogen caused clots so overweight males

> can get this as well. I think it might be rarer in males because I can't

> find a darn thing about it in males and in fact I've only really found one

> thing about a person who had this without being pregnant. I haven't

> researched in awhile so maybe there is more out there now?

> So did I give you more than you wanted now? :-)

> Kirstin

> Re: question about preg post op

> > >

> > >

> > >

> > > Kirstin,

> > >

> > > Welcome! What medical condition are you talking about??

> > >

> > > I am only 14 weeks pregnant, with my very first (was 18 months

> post

> > op

> > > when I got pregnant), so I can't really answer your questions.

> My

> > baby

> > > is

> > > measuring about 1-2 weeks smaller than it should be, but... that

> > could

> > > be

> > > conception miscalculations... so, I'm not real worried and

> neither

> > is my

> > > ob! :~)

> > >

> > > Again, welcome!! And good luck with wls!!!

> > >

> > > Sharon

> > >

> > > ktyner2003 said:

> > > > Hi...I go for my first consult this coming friday for WLS. I

> am

> > > > curious about being pregnant after having a bypass done. I

> have a

> > > > medical condition that didn't allow my daughter to grow as

> much as

> > > > she should have and am concerned that after the surgery if my

> > husband

> > > > and I were to have another child it would further increase the

> > risk

> > > > of a low birth weight baby. Where your babies healthy and

> good

> > sized

> > > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> > small

> > > > and I was so big I kinda missed out on the fun of being

> pregnant

> > and

> > > > feeling her. I had butterflies mostly and no real big kicks

> could

> > be

> > > > felt. I am excited about the prospect of being pregnant as a

> > normal

> > > > sized person. Did anyone get pregnant before the recommended

> time

> > > > frame and did everything go ok?

> > > > Thanks alot...and I looked at some of y'alls pics and there

> are

> > some

> > > > very beautifu babies there. :-)

> > > > Kirstin

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Children are a blessing, and a gift from the Lord. -Psalm

> 127:3

> > > >

> > > >

Link to comment
Share on other sites

,

Nope!! Not too much information!! LOL!! I am a teacher and I just can't

seem know enough about anything...! LOL! :~) I'll be doing some research

of my own on this now! LOL! :~)

What a roller coaster! NOW I know what to tell MY sister to be tested

for!! She has been going through some similar problems to yours and mine

and is scared to get a spinal tap... but I am going to tell her about

this, too... and hope that I can get her in to get tested for one or both.

She is going to end up dead if she doesn't get in to a doctor!

I will mention this to my neuro when I see him on the 29th... it will be

interesting to see what he says!

Wow... I sure feel for you and your sister. I know what this is like. My

docs were in Tulsa, too... wish Ihad run across the neuro you had! LOL!!

Thanks for the information and the time it took to write it all down. It

was very interesting to read (and I had to giggle at the " deep breaths "

you took!LOL).

Hugs

Sharon

Kirstin Tyner said:

> Sharon...just remeber you asked for it :-)

> I am in Tulsa.

> It's funny you mention pseudotumor. That's what my sister was initially

> diagnosised with. Because I was a nursing student and her doctor was a

> very nice one (that's one of the reason's he's now my neurologist) I got

> to watch her spinal taps he did. The spinal fluid shot out the top of the

> meter. He said it was rare for a doc to see that and even rarer for a

> nurse to get to see it. His student was pretty impressed too.

> Let me start from the begining with my sisiter. She walked aroundfor about

> a week with her appendix burst. When they went in to clean everything up

> she was put on some heavy duty antibiotics. A day or so after she came

> home her vision went funny and pretty much lost a good portion of it. THe

> surgeon said it was most likely a side effect of the antibiotics and

> within a week it should clear up. Close to the end of the week she was at

> my parents taking a shower and passed out and fell. After this happened

> they refered her to the neurologist. He checked her out and admitted her.

> After the spinal tap came back negative as well as CTs and MRIs it was

> decided she had pseudotumor. Probably had it for a while and her body had

> been compensating for it and the apendix thing confused her body andit

> decided to take care ofit as opposed to regulating her pseudotumor. I

> can't remember if she came home or if she stayed in the hospital more. I

> think they did quite a few spinals and got pressure down and sent her home

> and she kept having neck pain and the vidion didn't improve. Either way

> she eventually ended up getting a shunt placed because nothing was

> working. She came home from the hosptial after placement of the shunt and

> within a couple days she started having seizures. She went back and it

> was found there was a clot in her brain with an MRV. Well, we had never

> been told that she had a clotting disorder the neurosurgeon (aka god

> according to him) said it was a side effect of the surgery and my sister

> had a stroke leaving her with left sided weakness. The neurologist said

> pseudotumors where not uncommon in over weight females 25-40 I believe the

> age range was. I was under this age limit, but knew I maybe at risk so I

> started working on loosing weight. Had I have known it was a clotting

> disorder she had I would have NEVER gotten on birth control pills.

> -deep breath-

> So about two years after that I would have headaches in my sinus area

> around my eyes. I went for an eye exam and got new glasses, but that

> really didn't help any. The headaches got a little worse, but not to bad.

> They'd come and begone in a matter of a few minutes half an hour at the

> most. I was going through my last semember of nursing school and was

> preparing for boards and thought maybe they were stress related because I

> was under alot of stress going through school working, taking care of my

> now visually impared sister and a relatinship with my now husband. They

> started coming a little more and more and finally I started checking my

> blood pressure when I had them because of how intense they were

> getting...no high blood pressure. I decided to go to the doctor tho check

> it out. I was told because I was fat it was most likely related to blood

> pressure by a nurse practitioner who worked for the same PCP my sister saw

> through her whole appendix, pseudotumor thing. Pissed because I knew it

> wasn't that I kept track of numbers to prove it wasn't. Well when they

> saw it wasn't that she decided it was just migranes and dropped it. Well,

> during this time I'dgetthese god awful pains in my back to where I knew it

> was in my spinal column and there would be this intense throbbing that if

> I was doing somethingI'd have to sit and wait for them to go away before I

> could move. Still nothing from the doctor. Well, I graduated and went on

> to start working at a hospital. Normally I carried my stethascope in my

> pocket, but one night I was really busy and drapped it over my neck for

> most of the night. The next morning when I ws walking to my car when I

> was going home my neck was KILLING me and I just blew it off thinking it

> was related to the pressure puton it by the stethascope. I went home and

> went to bed after taking a couple of ibuprofin for the headache I came

> home with. I took about a three or four hour nap before my husband and I

> were to got to my parents for lunch on labor day. I was a little

> nauseated and the

> ibuprofin had worn off so I took some more and we were off. I ended up

> upchucking that evening and developed a black floater in my vision after

> that. Having just completed boards not long ago I knew a black floater

> was a bad thing to have. I called my doctor the next morning and told

> the phone lady my symptoms. I was given a script for Midrin and was told

> I had a migraine. The med didn't work and my father ended up taking me

> to the ER that evening. The doc really checked my eyes out apparently

> she was seeing the paploedema and didn't know what it was. A CT was ran

> and I was send home with a shot of demerol in the ass and a script for

> Tylox. The Tylox helped some. After about a week off work and speaking

> to my doctor every day saying there was something DEFINATELY wrong with

> me and my vision was getting worse (she kept saying I had migranines and

> the vision problems were due to that) I woke up with a headache that

> would not go away and no meds would touch. I had my husband take me

> again to the er the doc said it wsa just a migrain. Not thinking because

> my brain was all swelled up and impaired, ya know, I didn't mention

> anything about my sister, but I kept questioning him about it being a

> migrain andhe kept checking out my eyes too. I don't think he really

> believed that's what it was either. My dad mentioned that he thought I

> was worried about having the same condition as my sister. THe doc looked

> in my eyes again and said to be on the safe side they'd do a spinal.

> Well, he got to see the fluid shoot out the top of the meter too. :-) I

> was sent home with Lasix (which apparently my boy metabolizes and uses

> differently because I ended up not able to pee from it) and a steroid

> along with the instructions to call my sisters neurologist on Monday and

> set up an appointment.

> I went for the appointment and explain all that had been going on. And

> said I was a little concerned I had what my sister had. I was told that I

> didn't want what my sisiter had because it was not a good thing. I was

> admited to the hosptial and had an MRV done and they found two huge clots.

> One totally occluded my main sinus in my brain and the other partially

> occluded a transverse sinus (in case you don't know your sinuses are your

> drainage system in your brain). I got to have fun spending a week in ICU

> having Eurokinase dripped in and a catheter advanced into my brain to

> break up the clots. That did not decrease the pressure and I had a shunt

> placed. Which had to be revised twice. After the last revision I was

> told most likely I would get about 80 percent of my vision back and had to

> loose weight. Well about three to four weeks later I lost more of my

> vision and myshunt was still working.

> I was sent to OKC to see a neuro opthamologist. He examined my shunt and

> said it wasn't functioning properly. I protested saying I had had a CT

> done just a week or so ago showing it was working. WELL I found out some

> good info. Apparently with this condition changes don't show up on a CT

> scan nor an MRI and a spinal tap had to be done to determine wether or not

> the pressure had gone down. Well they did one and I was on the high end

> of normal and I guess because I was pissed after he told me it wasn't

> working and said I didn't want the asshole who placed it and revised it

> twice to touch me again he kinda dropped the revision thing since it was

> in normal limits. I have had a surgery on both my eyes to decrease

> pressure of my optic nerve and have gotten some vision back since. I

> don't see things very clearly detail wise and I can't see colors very

> well...like I couldn't tell the difference between a hunter green forst

> green and a navy blue because they are just too close together to

> discriminate against for me.

> Apparently the reason they know it's not a pseudotumor is because of the

> fact I had clots and the fact that I have the anticardiolipins detectable

> in a blood test. I am told that my daughter can have this and was told by

> the OB that if she becomes pregnant or at age 20 she needs to be tested

> and have follow up testing to watch those levels and make sure she's not

> showing any increase in them meaning she's close to having an episode. I

> was was on Coumadin for about two years and was told that I could be off

> it if I lost weight. After loosing 65 pounds I was still on it and then

> began to gain back the weight so I had to continue on it. I got pregnant

> and off the Coumadin (not good for baby) and put on Lovenox and a baby

> asprin during pregnancy. I was put back on coumadin after delivery and

> about a year later after I hadn't been taking it for a few months because

> of depression my neurologist opted to put me on asprin therapy. He says

> that they don't know exactly how long to keep patients on the coumadin on

> for for treatment and then follow with life long asprin therapy, but since

> I had been taking it for so long he'd go ahead and take me off of it and

> that way I didn't have to worry about going in for blood tests either to

> monitor it. My brother hasn't shown any signs of having this. I'm a

> little concerned about his daughter because she has had some tests done

> that have come up positive and having these positive tests are kind of a

> warning to possibly developing this. She's a kinda thick thin, but they

> have taught her the importance of staying healthy and she has arthritis so

> it's better for her joints to have her weight under control.

> So NOW did ya get too much info? Do you know if you have had a blood test

> for this? I ask because it is rare and not may doctors know about it and

> not much is known about it. Apparently at the time my sister was

> diagnosed with pseudotumor they hadn't EVEN heard of this condition. My

> sister and I were the first ones to show that there was a genetic link to

> it. If you haven't had a blood test I'd ask your doc if it'd be a good

> idea to have one done to see if you need to do preventative stuff for your

> baby.

> The research I found all had to deal with normal sized women and they

> would not be diagnosed until they had had one child born with no problems

> and then after that first pregnancy they had repeated miscarriage after

> miscarriage. This was because clots were forming in the placenta and not

> allowing the baby to be nurished.

> Now we think that this might have come from my father's mother. She had

> what they thought were mutlimiscarrages prior to having my father and she

> was on strict bed rest the WHOLE pregnancy with him. Not for sure though,

> but she's the only one who had had a problem with repeated miscarrages in

> our family that is known.

> Males can get this as well. They are usually overweight. Being fat means

> you produce more estrogen and estrogen caused clots so overweight males

> can get this as well. I think it might be rarer in males because I can't

> find a darn thing about it in males and in fact I've only really found one

> thing about a person who had this without being pregnant. I haven't

> researched in awhile so maybe there is more out there now?

> So did I give you more than you wanted now? :-)

> Kirstin

> Re: question about preg post op

> > >

> > >

> > >

> > > Kirstin,

> > >

> > > Welcome! What medical condition are you talking about??

> > >

> > > I am only 14 weeks pregnant, with my very first (was 18 months

> post

> > op

> > > when I got pregnant), so I can't really answer your questions.

> My

> > baby

> > > is

> > > measuring about 1-2 weeks smaller than it should be, but... that

> > could

> > > be

> > > conception miscalculations... so, I'm not real worried and

> neither

> > is my

> > > ob! :~)

> > >

> > > Again, welcome!! And good luck with wls!!!

> > >

> > > Sharon

> > >

> > > ktyner2003 said:

> > > > Hi...I go for my first consult this coming friday for WLS. I

> am

> > > > curious about being pregnant after having a bypass done. I

> have a

> > > > medical condition that didn't allow my daughter to grow as

> much as

> > > > she should have and am concerned that after the surgery if my

> > husband

> > > > and I were to have another child it would further increase the

> > risk

> > > > of a low birth weight baby. Where your babies healthy and

> good

> > sized

> > > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> > small

> > > > and I was so big I kinda missed out on the fun of being

> pregnant

> > and

> > > > feeling her. I had butterflies mostly and no real big kicks

> could

> > be

> > > > felt. I am excited about the prospect of being pregnant as a

> > normal

> > > > sized person. Did anyone get pregnant before the recommended

> time

> > > > frame and did everything go ok?

> > > > Thanks alot...and I looked at some of y'alls pics and there

> are

> > some

> > > > very beautifu babies there. :-)

> > > > Kirstin

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Children are a blessing, and a gift from the Lord. -Psalm

> 127:3

> > > >

> > > >

Link to comment
Share on other sites

,

Nope!! Not too much information!! LOL!! I am a teacher and I just can't

seem know enough about anything...! LOL! :~) I'll be doing some research

of my own on this now! LOL! :~)

What a roller coaster! NOW I know what to tell MY sister to be tested

for!! She has been going through some similar problems to yours and mine

and is scared to get a spinal tap... but I am going to tell her about

this, too... and hope that I can get her in to get tested for one or both.

She is going to end up dead if she doesn't get in to a doctor!

I will mention this to my neuro when I see him on the 29th... it will be

interesting to see what he says!

Wow... I sure feel for you and your sister. I know what this is like. My

docs were in Tulsa, too... wish Ihad run across the neuro you had! LOL!!

Thanks for the information and the time it took to write it all down. It

was very interesting to read (and I had to giggle at the " deep breaths "

you took!LOL).

Hugs

Sharon

Kirstin Tyner said:

> Sharon...just remeber you asked for it :-)

> I am in Tulsa.

> It's funny you mention pseudotumor. That's what my sister was initially

> diagnosised with. Because I was a nursing student and her doctor was a

> very nice one (that's one of the reason's he's now my neurologist) I got

> to watch her spinal taps he did. The spinal fluid shot out the top of the

> meter. He said it was rare for a doc to see that and even rarer for a

> nurse to get to see it. His student was pretty impressed too.

> Let me start from the begining with my sisiter. She walked aroundfor about

> a week with her appendix burst. When they went in to clean everything up

> she was put on some heavy duty antibiotics. A day or so after she came

> home her vision went funny and pretty much lost a good portion of it. THe

> surgeon said it was most likely a side effect of the antibiotics and

> within a week it should clear up. Close to the end of the week she was at

> my parents taking a shower and passed out and fell. After this happened

> they refered her to the neurologist. He checked her out and admitted her.

> After the spinal tap came back negative as well as CTs and MRIs it was

> decided she had pseudotumor. Probably had it for a while and her body had

> been compensating for it and the apendix thing confused her body andit

> decided to take care ofit as opposed to regulating her pseudotumor. I

> can't remember if she came home or if she stayed in the hospital more. I

> think they did quite a few spinals and got pressure down and sent her home

> and she kept having neck pain and the vidion didn't improve. Either way

> she eventually ended up getting a shunt placed because nothing was

> working. She came home from the hosptial after placement of the shunt and

> within a couple days she started having seizures. She went back and it

> was found there was a clot in her brain with an MRV. Well, we had never

> been told that she had a clotting disorder the neurosurgeon (aka god

> according to him) said it was a side effect of the surgery and my sister

> had a stroke leaving her with left sided weakness. The neurologist said

> pseudotumors where not uncommon in over weight females 25-40 I believe the

> age range was. I was under this age limit, but knew I maybe at risk so I

> started working on loosing weight. Had I have known it was a clotting

> disorder she had I would have NEVER gotten on birth control pills.

> -deep breath-

> So about two years after that I would have headaches in my sinus area

> around my eyes. I went for an eye exam and got new glasses, but that

> really didn't help any. The headaches got a little worse, but not to bad.

> They'd come and begone in a matter of a few minutes half an hour at the

> most. I was going through my last semember of nursing school and was

> preparing for boards and thought maybe they were stress related because I

> was under alot of stress going through school working, taking care of my

> now visually impared sister and a relatinship with my now husband. They

> started coming a little more and more and finally I started checking my

> blood pressure when I had them because of how intense they were

> getting...no high blood pressure. I decided to go to the doctor tho check

> it out. I was told because I was fat it was most likely related to blood

> pressure by a nurse practitioner who worked for the same PCP my sister saw

> through her whole appendix, pseudotumor thing. Pissed because I knew it

> wasn't that I kept track of numbers to prove it wasn't. Well when they

> saw it wasn't that she decided it was just migranes and dropped it. Well,

> during this time I'dgetthese god awful pains in my back to where I knew it

> was in my spinal column and there would be this intense throbbing that if

> I was doing somethingI'd have to sit and wait for them to go away before I

> could move. Still nothing from the doctor. Well, I graduated and went on

> to start working at a hospital. Normally I carried my stethascope in my

> pocket, but one night I was really busy and drapped it over my neck for

> most of the night. The next morning when I ws walking to my car when I

> was going home my neck was KILLING me and I just blew it off thinking it

> was related to the pressure puton it by the stethascope. I went home and

> went to bed after taking a couple of ibuprofin for the headache I came

> home with. I took about a three or four hour nap before my husband and I

> were to got to my parents for lunch on labor day. I was a little

> nauseated and the

> ibuprofin had worn off so I took some more and we were off. I ended up

> upchucking that evening and developed a black floater in my vision after

> that. Having just completed boards not long ago I knew a black floater

> was a bad thing to have. I called my doctor the next morning and told

> the phone lady my symptoms. I was given a script for Midrin and was told

> I had a migraine. The med didn't work and my father ended up taking me

> to the ER that evening. The doc really checked my eyes out apparently

> she was seeing the paploedema and didn't know what it was. A CT was ran

> and I was send home with a shot of demerol in the ass and a script for

> Tylox. The Tylox helped some. After about a week off work and speaking

> to my doctor every day saying there was something DEFINATELY wrong with

> me and my vision was getting worse (she kept saying I had migranines and

> the vision problems were due to that) I woke up with a headache that

> would not go away and no meds would touch. I had my husband take me

> again to the er the doc said it wsa just a migrain. Not thinking because

> my brain was all swelled up and impaired, ya know, I didn't mention

> anything about my sister, but I kept questioning him about it being a

> migrain andhe kept checking out my eyes too. I don't think he really

> believed that's what it was either. My dad mentioned that he thought I

> was worried about having the same condition as my sister. THe doc looked

> in my eyes again and said to be on the safe side they'd do a spinal.

> Well, he got to see the fluid shoot out the top of the meter too. :-) I

> was sent home with Lasix (which apparently my boy metabolizes and uses

> differently because I ended up not able to pee from it) and a steroid

> along with the instructions to call my sisters neurologist on Monday and

> set up an appointment.

> I went for the appointment and explain all that had been going on. And

> said I was a little concerned I had what my sister had. I was told that I

> didn't want what my sisiter had because it was not a good thing. I was

> admited to the hosptial and had an MRV done and they found two huge clots.

> One totally occluded my main sinus in my brain and the other partially

> occluded a transverse sinus (in case you don't know your sinuses are your

> drainage system in your brain). I got to have fun spending a week in ICU

> having Eurokinase dripped in and a catheter advanced into my brain to

> break up the clots. That did not decrease the pressure and I had a shunt

> placed. Which had to be revised twice. After the last revision I was

> told most likely I would get about 80 percent of my vision back and had to

> loose weight. Well about three to four weeks later I lost more of my

> vision and myshunt was still working.

> I was sent to OKC to see a neuro opthamologist. He examined my shunt and

> said it wasn't functioning properly. I protested saying I had had a CT

> done just a week or so ago showing it was working. WELL I found out some

> good info. Apparently with this condition changes don't show up on a CT

> scan nor an MRI and a spinal tap had to be done to determine wether or not

> the pressure had gone down. Well they did one and I was on the high end

> of normal and I guess because I was pissed after he told me it wasn't

> working and said I didn't want the asshole who placed it and revised it

> twice to touch me again he kinda dropped the revision thing since it was

> in normal limits. I have had a surgery on both my eyes to decrease

> pressure of my optic nerve and have gotten some vision back since. I

> don't see things very clearly detail wise and I can't see colors very

> well...like I couldn't tell the difference between a hunter green forst

> green and a navy blue because they are just too close together to

> discriminate against for me.

> Apparently the reason they know it's not a pseudotumor is because of the

> fact I had clots and the fact that I have the anticardiolipins detectable

> in a blood test. I am told that my daughter can have this and was told by

> the OB that if she becomes pregnant or at age 20 she needs to be tested

> and have follow up testing to watch those levels and make sure she's not

> showing any increase in them meaning she's close to having an episode. I

> was was on Coumadin for about two years and was told that I could be off

> it if I lost weight. After loosing 65 pounds I was still on it and then

> began to gain back the weight so I had to continue on it. I got pregnant

> and off the Coumadin (not good for baby) and put on Lovenox and a baby

> asprin during pregnancy. I was put back on coumadin after delivery and

> about a year later after I hadn't been taking it for a few months because

> of depression my neurologist opted to put me on asprin therapy. He says

> that they don't know exactly how long to keep patients on the coumadin on

> for for treatment and then follow with life long asprin therapy, but since

> I had been taking it for so long he'd go ahead and take me off of it and

> that way I didn't have to worry about going in for blood tests either to

> monitor it. My brother hasn't shown any signs of having this. I'm a

> little concerned about his daughter because she has had some tests done

> that have come up positive and having these positive tests are kind of a

> warning to possibly developing this. She's a kinda thick thin, but they

> have taught her the importance of staying healthy and she has arthritis so

> it's better for her joints to have her weight under control.

> So NOW did ya get too much info? Do you know if you have had a blood test

> for this? I ask because it is rare and not may doctors know about it and

> not much is known about it. Apparently at the time my sister was

> diagnosed with pseudotumor they hadn't EVEN heard of this condition. My

> sister and I were the first ones to show that there was a genetic link to

> it. If you haven't had a blood test I'd ask your doc if it'd be a good

> idea to have one done to see if you need to do preventative stuff for your

> baby.

> The research I found all had to deal with normal sized women and they

> would not be diagnosed until they had had one child born with no problems

> and then after that first pregnancy they had repeated miscarriage after

> miscarriage. This was because clots were forming in the placenta and not

> allowing the baby to be nurished.

> Now we think that this might have come from my father's mother. She had

> what they thought were mutlimiscarrages prior to having my father and she

> was on strict bed rest the WHOLE pregnancy with him. Not for sure though,

> but she's the only one who had had a problem with repeated miscarrages in

> our family that is known.

> Males can get this as well. They are usually overweight. Being fat means

> you produce more estrogen and estrogen caused clots so overweight males

> can get this as well. I think it might be rarer in males because I can't

> find a darn thing about it in males and in fact I've only really found one

> thing about a person who had this without being pregnant. I haven't

> researched in awhile so maybe there is more out there now?

> So did I give you more than you wanted now? :-)

> Kirstin

> Re: question about preg post op

> > >

> > >

> > >

> > > Kirstin,

> > >

> > > Welcome! What medical condition are you talking about??

> > >

> > > I am only 14 weeks pregnant, with my very first (was 18 months

> post

> > op

> > > when I got pregnant), so I can't really answer your questions.

> My

> > baby

> > > is

> > > measuring about 1-2 weeks smaller than it should be, but... that

> > could

> > > be

> > > conception miscalculations... so, I'm not real worried and

> neither

> > is my

> > > ob! :~)

> > >

> > > Again, welcome!! And good luck with wls!!!

> > >

> > > Sharon

> > >

> > > ktyner2003 said:

> > > > Hi...I go for my first consult this coming friday for WLS. I

> am

> > > > curious about being pregnant after having a bypass done. I

> have a

> > > > medical condition that didn't allow my daughter to grow as

> much as

> > > > she should have and am concerned that after the surgery if my

> > husband

> > > > and I were to have another child it would further increase the

> > risk

> > > > of a low birth weight baby. Where your babies healthy and

> good

> > sized

> > > > babies? My daughter was 5lb 6 pz at 38weeks Since she was so

> > small

> > > > and I was so big I kinda missed out on the fun of being

> pregnant

> > and

> > > > feeling her. I had butterflies mostly and no real big kicks

> could

> > be

> > > > felt. I am excited about the prospect of being pregnant as a

> > normal

> > > > sized person. Did anyone get pregnant before the recommended

> time

> > > > frame and did everything go ok?

> > > > Thanks alot...and I looked at some of y'alls pics and there

> are

> > some

> > > > very beautifu babies there. :-)

> > > > Kirstin

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Children are a blessing, and a gift from the Lord. -Psalm

> 127:3

> > > >

> > > >

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Oh man, that's what scares me... I 'm afriad that they are going to hit

something they are not supposed to hit!

I am really afraid of an epidural, too... I'm " signed up " for one only if

necessary and if I feel I MUST have one... but... it's the next to last

resort for me!! shudder....

Kirstin Tyner said:

> Sharon I don't blame you for not wanting another tap done. I have had so

> many done I have to take off my shoes to count. My back bothers me

> greatly where they have been done and I had the stupid neurosurgeon hit

> something that caused a tingling pain to shoot down my left leg that still

> comes and goes from time to time. It's not uncommon for my left leg togo

> to sleep after sitting a while in one position. Differnt than a foot

> going to sleep because it starts at the hip and goes down. I refused to

> even think about having an epidural when pregnant and the time came to set

> up that. I did NOT want another thing poked in my back especially if it

> was elective.

>

>

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