Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Angel wrote: " Dr Mosca thinks that the tilting and hooking we are seeing right now are not relapse-based, but the result of some muscles being too long while the ones that oppose them are too short. Many kids have one kind or the other (metatarsus adductus which hooks the foot in or the inside/outside ankle flexors that make walking happen on the outside of the foot) but Kai just so happens to have both. It isnt something casting is really necessary for at this time. If it doesnt get better by about 3 years, then we will see. This is the normal approach used in the Ponseti Method for these two problems. " Gotcha, Thanks for clarifying that. What you are saying is that Kai has MA and atypical CF and both conditions are pulling the foot inward? Currently the inwardness is from the MA and not a relapse? Tell me if I am still misunderstanding. If I am understanding...THAT STINKS and must be difficult to treat! Just Curious, what does treatment consist of if it does not correct itself? Maybe there won't be another set of issues...sounds like you have enough to consume your thoughts without adding anything else! Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi , I read back and see that my message from last night did not make a bunch of sense LOL I was tired. What it comes down to is that Dr Mosca thinks that the tilting and hooking we are seeing right now are not relapse-based, but the result of some muscles being too long while the ones that oppose them are too short. Many kids have one kind or the other (metatarsus adductus which hooks the foot in or the inside/outside ankle flexors that make walking happen on the outside of the foot) but Kai just so happens to have both. It isnt something casting is really necessary for at this time. If it doesnt get better by about 3 years, then we will see. This is the normal approach used in the Ponseti Method for these two problems. Dr Mosca also thinks that the mid-foot has stabilized. I do not agree about this, since I personally saw what happened when Kai was out of shoes for a week, but at this time it doesnt matter alot as long as things are where they are supposed to be. Short and long of it is his foot is doing well as far as the clubbing and as far as the atypical aspect, now we are just waiting and seeing on the next set of issues Angel > Hi Angel, > Glad to hear from you and that you are doing okay. Moving can be > difficult, but atleast it's over :-). Sorry to hear about Kai's foot (although, I > must admit, I didn't understand much of what you described), but also happy > he's without a cast and that his foot is so flexible! I am not sure I > understand the reasons for waiting to treat though. Is it because you are waiting for > it to stabilize? As little as I seem to know about all of this, I believe that > you will make the best decisions about his care as you always seem so well > educated and thorough about his treatment. (Good Mommy! ;-) > > Freeman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi , I read back and see that my message from last night did not make a bunch of sense LOL I was tired. What it comes down to is that Dr Mosca thinks that the tilting and hooking we are seeing right now are not relapse-based, but the result of some muscles being too long while the ones that oppose them are too short. Many kids have one kind or the other (metatarsus adductus which hooks the foot in or the inside/outside ankle flexors that make walking happen on the outside of the foot) but Kai just so happens to have both. It isnt something casting is really necessary for at this time. If it doesnt get better by about 3 years, then we will see. This is the normal approach used in the Ponseti Method for these two problems. Dr Mosca also thinks that the mid-foot has stabilized. I do not agree about this, since I personally saw what happened when Kai was out of shoes for a week, but at this time it doesnt matter alot as long as things are where they are supposed to be. Short and long of it is his foot is doing well as far as the clubbing and as far as the atypical aspect, now we are just waiting and seeing on the next set of issues Angel > Hi Angel, > Glad to hear from you and that you are doing okay. Moving can be > difficult, but atleast it's over :-). Sorry to hear about Kai's foot (although, I > must admit, I didn't understand much of what you described), but also happy > he's without a cast and that his foot is so flexible! I am not sure I > understand the reasons for waiting to treat though. Is it because you are waiting for > it to stabilize? As little as I seem to know about all of this, I believe that > you will make the best decisions about his care as you always seem so well > educated and thorough about his treatment. (Good Mommy! ;-) > > Freeman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Yeah, that about sums it up. All (or at least most) clubfeet have at least some fixed adduction (stiff) but Kai apparently has dynamic adduction (flexible) which is also not all that uncommon in clubfeet children. Since my next child up - his sister Arica - had moderate to severe MA (flexible) at birth, as well as a " positional clubfoot " (completely flexible, mostly involves the inside/outside ankle flexors) it is not very surprising that Kai also has these two problems, just frustrating. I will have to send some photos across CFPics to really show what I mean. The front of his foot hooks in and the inside tips up so it really *looks* like a CF relapse, but doc asures us it is all flexible ... the only problem I have is that is what he said when Kai came out of the tenotomy cast too ... and his foot was definitely not ok then; I guess I wont get over that anytime soon ANgel Re: Re: Update on Kai Angel wrote: " Dr Mosca thinks that the tilting and hooking we are seeing right now are not relapse-based, but the result of some muscles being too long while the ones that oppose them are too short. Many kids have one kind or the other (metatarsus adductus which hooks the foot in or the inside/outside ankle flexors that make walking happen on the outside of the foot) but Kai just so happens to have both. It isnt something casting is really necessary for at this time. If it doesnt get better by about 3 years, then we will see. This is the normal approach used in the Ponseti Method for these two problems. " Gotcha, Thanks for clarifying that. What you are saying is that Kai has MA and atypical CF and both conditions are pulling the foot inward? Currently the inwardness is from the MA and not a relapse? Tell me if I am still misunderstanding. If I am understanding...THAT STINKS and must be difficult to treat! Just Curious, what does treatment consist of if it does not correct itself? Maybe there won't be another set of issues...sounds like you have enough to consume your thoughts without adding anything else! Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Yeah, that about sums it up. All (or at least most) clubfeet have at least some fixed adduction (stiff) but Kai apparently has dynamic adduction (flexible) which is also not all that uncommon in clubfeet children. Since my next child up - his sister Arica - had moderate to severe MA (flexible) at birth, as well as a " positional clubfoot " (completely flexible, mostly involves the inside/outside ankle flexors) it is not very surprising that Kai also has these two problems, just frustrating. I will have to send some photos across CFPics to really show what I mean. The front of his foot hooks in and the inside tips up so it really *looks* like a CF relapse, but doc asures us it is all flexible ... the only problem I have is that is what he said when Kai came out of the tenotomy cast too ... and his foot was definitely not ok then; I guess I wont get over that anytime soon ANgel Re: Re: Update on Kai Angel wrote: " Dr Mosca thinks that the tilting and hooking we are seeing right now are not relapse-based, but the result of some muscles being too long while the ones that oppose them are too short. Many kids have one kind or the other (metatarsus adductus which hooks the foot in or the inside/outside ankle flexors that make walking happen on the outside of the foot) but Kai just so happens to have both. It isnt something casting is really necessary for at this time. If it doesnt get better by about 3 years, then we will see. This is the normal approach used in the Ponseti Method for these two problems. " Gotcha, Thanks for clarifying that. What you are saying is that Kai has MA and atypical CF and both conditions are pulling the foot inward? Currently the inwardness is from the MA and not a relapse? Tell me if I am still misunderstanding. If I am understanding...THAT STINKS and must be difficult to treat! Just Curious, what does treatment consist of if it does not correct itself? Maybe there won't be another set of issues...sounds like you have enough to consume your thoughts without adding anything else! Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Such great news no more cast! I know you and dh are so pleased, especially dh lol. I hope you're all settled in your new house and that things slow down a little now. Oh wait, there's school right around the corner huh? lol... it never ends! I will try to post the pics soon of our time together. Such fun! There's a great one of Kai's dirty foot from playing outside with Darbi. Did Dr. Mosca tell you *when* Kai might have the ATTT? Will he wait till he's 3 or 4? I know it sounds bad, but really, if that's what he needs it won't be so bad... at least not as bad as the big surgery. hugs! Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 10:00 PM 9/1/2004, you wrote: >Sorry I have been remiss ... I just have been very overwhelmed with moving >into the new house and all that goes with the end of August for us. > >Kai saw Dr Mosca on Aug 25th and Dr Mosca thinks that right now Kai's foot >is doing well. It has good flexibility and he believes most of the odd >gait and hooking of the foot we are seeing is due to multiple muscle >imballances. Dynamic adduction (otherwise known as Metatarsus Adductus) >and the inside/outside ankle imballance that sometimes leads to the ATTT >is what he believes we are looking at right now. Neither seems to be too >bad, but together they *look* bad LOL I am not sure I completely agree >with him, but will reserve judgement. Waiting a few months wont hurt much >I guess (given how easy Kai's foot can be corrected). Dr M also thinks >that the plantar aspect has began to stabilize. I dont think it is as >stable as he believes, but beginning to stabilize is better than another >relapse! > >Bottom line is no cast this time (YAY!!!) and keep stretching and >excersizing the foot and we will see! > >Angel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 That is great Angel. We are hoping to get the same results once we make the trip to Iowa and see Dr P. himself. I think I am a little more skeptical about any treatment since Addisyn has bilateral Atypical clubfeet, but feel if we go to the man himself we should get the best results. Good luck with the new house and keep us updated. Mia > Sorry I have been remiss ... I just have been very overwhelmed with moving into the new house and all that goes with the end of August for us. > > Kai saw Dr Mosca on Aug 25th and Dr Mosca thinks that right now Kai's foot is doing well. It has good flexibility and he believes most of the odd gait and hooking of the foot we are seeing is due to multiple muscle imballances. Dynamic adduction (otherwise known as Metatarsus Adductus) and the inside/outside ankle imballance that sometimes leads to the ATTT is what he believes we are looking at right now. Neither seems to be too bad, but together they *look* bad LOL I am not sure I completely agree with him, but will reserve judgement. Waiting a few months wont hurt much I guess (given how easy Kai's foot can be corrected). Dr M also thinks that the plantar aspect has began to stabilize. I dont think it is as stable as he believes, but beginning to stabilize is better than another relapse! > > Bottom line is no cast this time (YAY!!!) and keep stretching and excersizing the foot and we will see! > > Angel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 That is great Angel. We are hoping to get the same results once we make the trip to Iowa and see Dr P. himself. I think I am a little more skeptical about any treatment since Addisyn has bilateral Atypical clubfeet, but feel if we go to the man himself we should get the best results. Good luck with the new house and keep us updated. Mia > Sorry I have been remiss ... I just have been very overwhelmed with moving into the new house and all that goes with the end of August for us. > > Kai saw Dr Mosca on Aug 25th and Dr Mosca thinks that right now Kai's foot is doing well. It has good flexibility and he believes most of the odd gait and hooking of the foot we are seeing is due to multiple muscle imballances. Dynamic adduction (otherwise known as Metatarsus Adductus) and the inside/outside ankle imballance that sometimes leads to the ATTT is what he believes we are looking at right now. Neither seems to be too bad, but together they *look* bad LOL I am not sure I completely agree with him, but will reserve judgement. Waiting a few months wont hurt much I guess (given how easy Kai's foot can be corrected). Dr M also thinks that the plantar aspect has began to stabilize. I dont think it is as stable as he believes, but beginning to stabilize is better than another relapse! > > Bottom line is no cast this time (YAY!!!) and keep stretching and excersizing the foot and we will see! > > Angel > > Quote Link to comment Share on other sites More sharing options...
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