Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Thank you to those of you who share your experiences. It has been very informative as I am new to researching my recently diagnosed condition. History: I recently turned forty, however, I feel much older. I have lived in consistent pain for more than four years and often get discouraged and depressed as I attempt to do things that are now physically impossible or too painful. I am unaccustomed to these limitations. I am a former Member of the US Ski Team, US National and NCAA champion, member of World Cup Team and World Pro Tour. After retirement from skiing and unaware of this condition, I got involved in many sports recreationally, including cycling and running several marathons, including Boston three times usually between 2:30 and 2:40. My athletic career was pretty mediocre as I did not achieve my objective of becoming a world or Olympic champion and I was injured on several occasions. I had five major reconstructive knee operations while I was competing. Thanks to our team doctor who consistently and effectively pieced me together I have not had any significant reoccurring knee problems. I share this because I am interested to know more about those who have returned to any significant level of sport. I no longer have crazy ambitions to compete at any real athletic level; however, I have two aspiring little athletes seven and four who still believe their daddy is superman. I am looking at doing something because I owe it to them to remain as active as possible and seek the alternatives (the ability to get my socks on in the morning may also be an added benefit). I continue to ski, play hockey, soccer and teach my kids many other sports, however, the pain and repercussions are unbearable. Diagnosis: I recently went to two well-known OS in Boston. They have done THRs on some very famous people with a stated high success rate. I was diagnosed with late stage bone on bone OA worse in the right hip relative to the left. After looking into BHR and resurfacing, I was very disappointed to find that they both spoke very negatively about resurfacing when it seemed so intuitive to me to consider this approach. I am unfamiliar with the medical vernacular, however, in summary they both were adamantly opposed to the procedure. They viewed it as a " romantic " alternative that has a poor track record and limited data to make any judgment relative to future success. It was referred to as an unsubstantiated short-term alternative to the inevitable THR. I was drawn diagrams showing how the thickness of the covered joint was physiologically incompatible, limiting range of motion and will create impingement and thus a higher incidence of dislocation and/or fracture. I was also told about the fallacy of bone stock retention and the argument was invalid due to the fact that the head of the femur will fracture and the inside piece will need to be further reamed in the soon and certain revision to THR. I left feeling rejected at the overwhelming lack of enthusiasm for this alternative approach. In my estimation, the best of the best in THR seemed very myopic and uninterested in my quest for a better life. That is when I moved on and found you. Questions: (sorry for the delay in getting here) 1. What can be anticipated in the near term future (two years) for alternatives to treat this condition? Is it worth waiting? How do you decide? 2. Am I jeopardizing being a candidate for this procedure if I remain active given my current state? 3. Are better materials being considered and when will they be available? 4. Is anyone able to do this in a minimally invasive approach? Is it possible? 5. Will I regain some range of motion? Currently it is dismal. 6. Is it possible to get back to some level of rigorous activity and sport? 7. Are there data points to suggest that the results or procedures are more effective in Europe compared to the US? 8. Are there any studies or is data available relative to the effectiveness of this procedure generally? How long will it last? 9. Can a joint be resurfaced more that one time? 10. How long does recovery take? Thank you for your time and potential response to my questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks, very sorry to hear your story, but selfishly also glad to hear that someone like you, superior athlete, got into this " mess. " I experienced the same " landing " about 3 years ago, and thought that I was the only athlete on earth, 35 years of age with this problem. All I can suggest is to call Dr. Gross in Columbia, SC at Midlands Ortho. and present to him your case...you can't lose anything, believe me. He " fixed " both of my hips back in may of 2003, today I ran about 50 min at about 9 mph pace. Give him a try + he can give you all the answers as an expert. You can find them at . Tell them Miren send you. Good luck! Miren Ten Questions - Anyone Returning to Skiing or Running? Thank you to those of you who share your experiences. It has been very informative as I am new to researching my recently diagnosed condition. History: I recently turned forty, however, I feel much older. I have lived in consistent pain for more than four years and often get discouraged and depressed as I attempt to do things that are now physically impossible or too painful. I am unaccustomed to these limitations. I am a former Member of the US Ski Team, US National and NCAA champion, member of World Cup Team and World Pro Tour. After retirement from skiing and unaware of this condition, I got involved in many sports recreationally, including cycling and running several marathons, including Boston three times usually between 2:30 and 2:40. My athletic career was pretty mediocre as I did not achieve my objective of becoming a world or Olympic champion and I was injured on several occasions. I had five major reconstructive knee operations while I was competing. Thanks to our team doctor who consistently and effectively pieced me together I have not had any significant reoccurring knee problems. I share this because I am interested to know more about those who have returned to any significant level of sport. I no longer have crazy ambitions to compete at any real athletic level; however, I have two aspiring little athletes seven and four who still believe their daddy is superman. I am looking at doing something because I owe it to them to remain as active as possible and seek the alternatives (the ability to get my socks on in the morning may also be an added benefit). I continue to ski, play hockey, soccer and teach my kids many other sports, however, the pain and repercussions are unbearable. Diagnosis: I recently went to two well-known OS in Boston. They have done THRs on some very famous people with a stated high success rate. I was diagnosed with late stage bone on bone OA worse in the right hip relative to the left. After looking into BHR and resurfacing, I was very disappointed to find that they both spoke very negatively about resurfacing when it seemed so intuitive to me to consider this approach. I am unfamiliar with the medical vernacular, however, in summary they both were adamantly opposed to the procedure. They viewed it as a " romantic " alternative that has a poor track record and limited data to make any judgment relative to future success. It was referred to as an unsubstantiated short-term alternative to the inevitable THR. I was drawn diagrams showing how the thickness of the covered joint was physiologically incompatible, limiting range of motion and will create impingement and thus a higher incidence of dislocation and/or fracture. I was also told about the fallacy of bone stock retention and the argument was invalid due to the fact that the head of the femur will fracture and the inside piece will need to be further reamed in the soon and certain revision to THR. I left feeling rejected at the overwhelming lack of enthusiasm for this alternative approach. In my estimation, the best of the best in THR seemed very myopic and uninterested in my quest for a better life. That is when I moved on and found you. Questions: (sorry for the delay in getting here) 1. What can be anticipated in the near term future (two years) for alternatives to treat this condition? Is it worth waiting? How do you decide? 2. Am I jeopardizing being a candidate for this procedure if I remain active given my current state? 3. Are better materials being considered and when will they be available? 4. Is anyone able to do this in a minimally invasive approach? Is it possible? 5. Will I regain some range of motion? Currently it is dismal. 6. Is it possible to get back to some level of rigorous activity and sport? 7. Are there data points to suggest that the results or procedures are more effective in Europe compared to the US? 8. Are there any studies or is data available relative to the effectiveness of this procedure generally? How long will it last? 9. Can a joint be resurfaced more that one time? 10. How long does recovery take? Thank you for your time and potential response to my questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks, very sorry to hear your story, but selfishly also glad to hear that someone like you, superior athlete, got into this " mess. " I experienced the same " landing " about 3 years ago, and thought that I was the only athlete on earth, 35 years of age with this problem. All I can suggest is to call Dr. Gross in Columbia, SC at Midlands Ortho. and present to him your case...you can't lose anything, believe me. He " fixed " both of my hips back in may of 2003, today I ran about 50 min at about 9 mph pace. Give him a try + he can give you all the answers as an expert. You can find them at . Tell them Miren send you. Good luck! Miren Ten Questions - Anyone Returning to Skiing or Running? Thank you to those of you who share your experiences. It has been very informative as I am new to researching my recently diagnosed condition. History: I recently turned forty, however, I feel much older. I have lived in consistent pain for more than four years and often get discouraged and depressed as I attempt to do things that are now physically impossible or too painful. I am unaccustomed to these limitations. I am a former Member of the US Ski Team, US National and NCAA champion, member of World Cup Team and World Pro Tour. After retirement from skiing and unaware of this condition, I got involved in many sports recreationally, including cycling and running several marathons, including Boston three times usually between 2:30 and 2:40. My athletic career was pretty mediocre as I did not achieve my objective of becoming a world or Olympic champion and I was injured on several occasions. I had five major reconstructive knee operations while I was competing. Thanks to our team doctor who consistently and effectively pieced me together I have not had any significant reoccurring knee problems. I share this because I am interested to know more about those who have returned to any significant level of sport. I no longer have crazy ambitions to compete at any real athletic level; however, I have two aspiring little athletes seven and four who still believe their daddy is superman. I am looking at doing something because I owe it to them to remain as active as possible and seek the alternatives (the ability to get my socks on in the morning may also be an added benefit). I continue to ski, play hockey, soccer and teach my kids many other sports, however, the pain and repercussions are unbearable. Diagnosis: I recently went to two well-known OS in Boston. They have done THRs on some very famous people with a stated high success rate. I was diagnosed with late stage bone on bone OA worse in the right hip relative to the left. After looking into BHR and resurfacing, I was very disappointed to find that they both spoke very negatively about resurfacing when it seemed so intuitive to me to consider this approach. I am unfamiliar with the medical vernacular, however, in summary they both were adamantly opposed to the procedure. They viewed it as a " romantic " alternative that has a poor track record and limited data to make any judgment relative to future success. It was referred to as an unsubstantiated short-term alternative to the inevitable THR. I was drawn diagrams showing how the thickness of the covered joint was physiologically incompatible, limiting range of motion and will create impingement and thus a higher incidence of dislocation and/or fracture. I was also told about the fallacy of bone stock retention and the argument was invalid due to the fact that the head of the femur will fracture and the inside piece will need to be further reamed in the soon and certain revision to THR. I left feeling rejected at the overwhelming lack of enthusiasm for this alternative approach. In my estimation, the best of the best in THR seemed very myopic and uninterested in my quest for a better life. That is when I moved on and found you. Questions: (sorry for the delay in getting here) 1. What can be anticipated in the near term future (two years) for alternatives to treat this condition? Is it worth waiting? How do you decide? 2. Am I jeopardizing being a candidate for this procedure if I remain active given my current state? 3. Are better materials being considered and when will they be available? 4. Is anyone able to do this in a minimally invasive approach? Is it possible? 5. Will I regain some range of motion? Currently it is dismal. 6. Is it possible to get back to some level of rigorous activity and sport? 7. Are there data points to suggest that the results or procedures are more effective in Europe compared to the US? 8. Are there any studies or is data available relative to the effectiveness of this procedure generally? How long will it last? 9. Can a joint be resurfaced more that one time? 10. How long does recovery take? Thank you for your time and potential response to my questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks, very sorry to hear your story, but selfishly also glad to hear that someone like you, superior athlete, got into this " mess. " I experienced the same " landing " about 3 years ago, and thought that I was the only athlete on earth, 35 years of age with this problem. All I can suggest is to call Dr. Gross in Columbia, SC at Midlands Ortho. and present to him your case...you can't lose anything, believe me. He " fixed " both of my hips back in may of 2003, today I ran about 50 min at about 9 mph pace. Give him a try + he can give you all the answers as an expert. You can find them at . Tell them Miren send you. Good luck! Miren Ten Questions - Anyone Returning to Skiing or Running? Thank you to those of you who share your experiences. It has been very informative as I am new to researching my recently diagnosed condition. History: I recently turned forty, however, I feel much older. I have lived in consistent pain for more than four years and often get discouraged and depressed as I attempt to do things that are now physically impossible or too painful. I am unaccustomed to these limitations. I am a former Member of the US Ski Team, US National and NCAA champion, member of World Cup Team and World Pro Tour. After retirement from skiing and unaware of this condition, I got involved in many sports recreationally, including cycling and running several marathons, including Boston three times usually between 2:30 and 2:40. My athletic career was pretty mediocre as I did not achieve my objective of becoming a world or Olympic champion and I was injured on several occasions. I had five major reconstructive knee operations while I was competing. Thanks to our team doctor who consistently and effectively pieced me together I have not had any significant reoccurring knee problems. I share this because I am interested to know more about those who have returned to any significant level of sport. I no longer have crazy ambitions to compete at any real athletic level; however, I have two aspiring little athletes seven and four who still believe their daddy is superman. I am looking at doing something because I owe it to them to remain as active as possible and seek the alternatives (the ability to get my socks on in the morning may also be an added benefit). I continue to ski, play hockey, soccer and teach my kids many other sports, however, the pain and repercussions are unbearable. Diagnosis: I recently went to two well-known OS in Boston. They have done THRs on some very famous people with a stated high success rate. I was diagnosed with late stage bone on bone OA worse in the right hip relative to the left. After looking into BHR and resurfacing, I was very disappointed to find that they both spoke very negatively about resurfacing when it seemed so intuitive to me to consider this approach. I am unfamiliar with the medical vernacular, however, in summary they both were adamantly opposed to the procedure. They viewed it as a " romantic " alternative that has a poor track record and limited data to make any judgment relative to future success. It was referred to as an unsubstantiated short-term alternative to the inevitable THR. I was drawn diagrams showing how the thickness of the covered joint was physiologically incompatible, limiting range of motion and will create impingement and thus a higher incidence of dislocation and/or fracture. I was also told about the fallacy of bone stock retention and the argument was invalid due to the fact that the head of the femur will fracture and the inside piece will need to be further reamed in the soon and certain revision to THR. I left feeling rejected at the overwhelming lack of enthusiasm for this alternative approach. In my estimation, the best of the best in THR seemed very myopic and uninterested in my quest for a better life. That is when I moved on and found you. Questions: (sorry for the delay in getting here) 1. What can be anticipated in the near term future (two years) for alternatives to treat this condition? Is it worth waiting? How do you decide? 2. Am I jeopardizing being a candidate for this procedure if I remain active given my current state? 3. Are better materials being considered and when will they be available? 4. Is anyone able to do this in a minimally invasive approach? Is it possible? 5. Will I regain some range of motion? Currently it is dismal. 6. Is it possible to get back to some level of rigorous activity and sport? 7. Are there data points to suggest that the results or procedures are more effective in Europe compared to the US? 8. Are there any studies or is data available relative to the effectiveness of this procedure generally? How long will it last? 9. Can a joint be resurfaced more that one time? 10. How long does recovery take? Thank you for your time and potential response to my questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 > > I recently went to two well-known OS in Boston. Was one of them Dr. B??? >They have done THRs > on some very famous people with a stated high success rate. Famous people always have the best judgement! > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? No near-term alternative, if you mean fake cartilage. Perhaps new bearing surfaces within 2-years. Ask a resurf doc. The longer you wait, the less likely you will be able to have a resurf. Also, you will have a longer and more painful recovery. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Only a resurf doc can tell. If you don't have cysts or AVN, then staying as active as possible may be better than being a couch potato. > 3. Are better materials being considered and when will they be > available? Yes and who knows. The metal alloy currently being used has been tested for over 35-years. I would not want to be a test case for a new and improved material. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? From the postings here Dr Gross in South Carolina makes the shortest incision. My scars are over 15-inches long and have never been a problem. They have faded to thin lines and the underlying tissue is normal. IMO, this is a non-issue. > 5. Will I regain some range of motion? Currently it is dismal. I have surpassed my previous ROM when 20 and a varsity athlete. Since you were a world class athlete, I would imagine you will regain all of your previous ROM, maybe more. One of the first USA resurfers was/is a ballet dancer who was able to go back to ballet. > 6. Is it possible to get back to some level of rigorous activity > and sport? Absolutely. I regularly mtn bike sea kayak and hike. I have not started serious running, but do some hill running (less impact). My doc told me that I should be limited by my own instincts as they really don't know how hard you can push it. One Brit Doc says to hammer it in. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? No. We are the crop of folks that in 10 to 30 years will determine that. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? There is a recent study of the USA trials. Also there is some data on the BHR MMT site. Follow the links provided on the left side of this page. > 9. Can a joint be resurfaced more that one time? Yes, depending on the cause of failure and the remaining bone quality. > 10. How long does recovery take? It depends on your pre-op condition and your work ethic. I am 2.5- years post op and am still gaining ROM and strength, however, I waited until the last moment to go for surgery. I had lots of atrophy and very twisted muscles. From the sounds of your condition, you are not too bad off (comparitively speaking). I guess that if you had it done in the next couple months, you could be skiing next season. bilat C+, July 2001, Dr. Schmalzried Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 > > I recently went to two well-known OS in Boston. Was one of them Dr. B??? >They have done THRs > on some very famous people with a stated high success rate. Famous people always have the best judgement! > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? No near-term alternative, if you mean fake cartilage. Perhaps new bearing surfaces within 2-years. Ask a resurf doc. The longer you wait, the less likely you will be able to have a resurf. Also, you will have a longer and more painful recovery. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Only a resurf doc can tell. If you don't have cysts or AVN, then staying as active as possible may be better than being a couch potato. > 3. Are better materials being considered and when will they be > available? Yes and who knows. The metal alloy currently being used has been tested for over 35-years. I would not want to be a test case for a new and improved material. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? From the postings here Dr Gross in South Carolina makes the shortest incision. My scars are over 15-inches long and have never been a problem. They have faded to thin lines and the underlying tissue is normal. IMO, this is a non-issue. > 5. Will I regain some range of motion? Currently it is dismal. I have surpassed my previous ROM when 20 and a varsity athlete. Since you were a world class athlete, I would imagine you will regain all of your previous ROM, maybe more. One of the first USA resurfers was/is a ballet dancer who was able to go back to ballet. > 6. Is it possible to get back to some level of rigorous activity > and sport? Absolutely. I regularly mtn bike sea kayak and hike. I have not started serious running, but do some hill running (less impact). My doc told me that I should be limited by my own instincts as they really don't know how hard you can push it. One Brit Doc says to hammer it in. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? No. We are the crop of folks that in 10 to 30 years will determine that. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? There is a recent study of the USA trials. Also there is some data on the BHR MMT site. Follow the links provided on the left side of this page. > 9. Can a joint be resurfaced more that one time? Yes, depending on the cause of failure and the remaining bone quality. > 10. How long does recovery take? It depends on your pre-op condition and your work ethic. I am 2.5- years post op and am still gaining ROM and strength, however, I waited until the last moment to go for surgery. I had lots of atrophy and very twisted muscles. From the sounds of your condition, you are not too bad off (comparitively speaking). I guess that if you had it done in the next couple months, you could be skiing next season. bilat C+, July 2001, Dr. Schmalzried Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 > > I recently went to two well-known OS in Boston. Was one of them Dr. B??? >They have done THRs > on some very famous people with a stated high success rate. Famous people always have the best judgement! > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? No near-term alternative, if you mean fake cartilage. Perhaps new bearing surfaces within 2-years. Ask a resurf doc. The longer you wait, the less likely you will be able to have a resurf. Also, you will have a longer and more painful recovery. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Only a resurf doc can tell. If you don't have cysts or AVN, then staying as active as possible may be better than being a couch potato. > 3. Are better materials being considered and when will they be > available? Yes and who knows. The metal alloy currently being used has been tested for over 35-years. I would not want to be a test case for a new and improved material. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? From the postings here Dr Gross in South Carolina makes the shortest incision. My scars are over 15-inches long and have never been a problem. They have faded to thin lines and the underlying tissue is normal. IMO, this is a non-issue. > 5. Will I regain some range of motion? Currently it is dismal. I have surpassed my previous ROM when 20 and a varsity athlete. Since you were a world class athlete, I would imagine you will regain all of your previous ROM, maybe more. One of the first USA resurfers was/is a ballet dancer who was able to go back to ballet. > 6. Is it possible to get back to some level of rigorous activity > and sport? Absolutely. I regularly mtn bike sea kayak and hike. I have not started serious running, but do some hill running (less impact). My doc told me that I should be limited by my own instincts as they really don't know how hard you can push it. One Brit Doc says to hammer it in. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? No. We are the crop of folks that in 10 to 30 years will determine that. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? There is a recent study of the USA trials. Also there is some data on the BHR MMT site. Follow the links provided on the left side of this page. > 9. Can a joint be resurfaced more that one time? Yes, depending on the cause of failure and the remaining bone quality. > 10. How long does recovery take? It depends on your pre-op condition and your work ethic. I am 2.5- years post op and am still gaining ROM and strength, however, I waited until the last moment to go for surgery. I had lots of atrophy and very twisted muscles. From the sounds of your condition, you are not too bad off (comparitively speaking). I guess that if you had it done in the next couple months, you could be skiing next season. bilat C+, July 2001, Dr. Schmalzried Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Great questions, I'll share my knowledge and opinions in-line with your questions - > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? There are new devices coming out every few weeks but the really dramatic research (like being able to regrow cartilage cells) is in its infancy. I doubt you will see any huge changes in the treatments in such a short period as 2 years. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. It is possible to do enough damage that some options may not be available to you. > 3. Are better materials being considered and when will they be > available? Metal-on-Metal, Ceramic-on-Ceramic, Ceramic-on-Crosslinked (or non-crosslinked) Polyethylene, Metal-on-Crosslinked (or non-crosslinked) Polyethylene are all available now in THR systems. I believe only Metal-on-Metal is being used for resurfacing because of the requirement in a resurf to make the femoral head nearly natural size (this results in the acetabular shell having to be large enough to accomodate this head, which requires the shell assembly to be thin, which means it pretty much has to be made out of steel). I am not aware of any research into dramatically different materials that would be available in the 2 year time frame. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? Maybe, but the real question is - is that advantageous? The scar is really the least of your worries. Surgeons are perfecting their techniques every day and each surgery they do is probably a little bit less invasive than the last. When you think about invasive, think about the damage to your body parts, not just the size of the incision. Resurfacing causes much less trauma to your body by not cutting off and reaming out your femur. This would seem to be a good thing. > 5. Will I regain some range of motion? Currently it is dismal. With work (which it doesn't sound like you are afraid of). The large head devices, both THR and resurfacing, can technically provide very good range of motion - you'll have to retrain your muscles to support that range of motion. Medical Technologies has some great charts comparing range of motion for various devices at their site http://www.wmt.com - check it out. > 6. Is it possible to get back to some level of rigorous activity > and sport? Clearly. Just peruse the archives of this list. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? All the resurfacing procedures in the US to-date have been part of clinical trials. They are limited and very controlled. In the UK and Belgium, resurfacing are mainstream procedures. While the US doctors in the studies are fantastic, for best results I would go with the guy who had the most experience - if I had that choice (I don't have that choice but I am more than satisfied that a stateside doctor will do a good job for me). > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? The results from the first 400 done out at JRI in Los Angeles were just published in a paper that is available from the Journal of bone and Joint Surgery (JBJS) at http://www.jbjs.org. They report very encouraging results. There are longer term results available in the U.K. and Belgium because they have been doing the procedures longer. It does look like the metal-on-metal bearing surfaces will have a very long lifetime. > 9. Can a joint be resurfaced more that one time? You have to look at why you would need another resurf. If the material doesn't wear out, the major problem is loosening or bone deterioration. Typically one would think it would be the femoral component that would fail and that can be converted to a THR-style stem that will fit the existing acetabular cup. > 10. How long does recovery take? It varies. You can read lots of stories on this board. Most people are up and around after 6 weeks. Full recovery takes a long time. That really depends on how bad it was prior to surgery. My friends that have had it done say it takes over a year to really feel natural and comfortable. > > Thank you for your time and potential response to my questions. Best of luck. Like so many things, there are no easy answers. You have tapped into a resource with loads of experience in this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Great questions, I'll share my knowledge and opinions in-line with your questions - > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? There are new devices coming out every few weeks but the really dramatic research (like being able to regrow cartilage cells) is in its infancy. I doubt you will see any huge changes in the treatments in such a short period as 2 years. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. It is possible to do enough damage that some options may not be available to you. > 3. Are better materials being considered and when will they be > available? Metal-on-Metal, Ceramic-on-Ceramic, Ceramic-on-Crosslinked (or non-crosslinked) Polyethylene, Metal-on-Crosslinked (or non-crosslinked) Polyethylene are all available now in THR systems. I believe only Metal-on-Metal is being used for resurfacing because of the requirement in a resurf to make the femoral head nearly natural size (this results in the acetabular shell having to be large enough to accomodate this head, which requires the shell assembly to be thin, which means it pretty much has to be made out of steel). I am not aware of any research into dramatically different materials that would be available in the 2 year time frame. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? Maybe, but the real question is - is that advantageous? The scar is really the least of your worries. Surgeons are perfecting their techniques every day and each surgery they do is probably a little bit less invasive than the last. When you think about invasive, think about the damage to your body parts, not just the size of the incision. Resurfacing causes much less trauma to your body by not cutting off and reaming out your femur. This would seem to be a good thing. > 5. Will I regain some range of motion? Currently it is dismal. With work (which it doesn't sound like you are afraid of). The large head devices, both THR and resurfacing, can technically provide very good range of motion - you'll have to retrain your muscles to support that range of motion. Medical Technologies has some great charts comparing range of motion for various devices at their site http://www.wmt.com - check it out. > 6. Is it possible to get back to some level of rigorous activity > and sport? Clearly. Just peruse the archives of this list. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? All the resurfacing procedures in the US to-date have been part of clinical trials. They are limited and very controlled. In the UK and Belgium, resurfacing are mainstream procedures. While the US doctors in the studies are fantastic, for best results I would go with the guy who had the most experience - if I had that choice (I don't have that choice but I am more than satisfied that a stateside doctor will do a good job for me). > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? The results from the first 400 done out at JRI in Los Angeles were just published in a paper that is available from the Journal of bone and Joint Surgery (JBJS) at http://www.jbjs.org. They report very encouraging results. There are longer term results available in the U.K. and Belgium because they have been doing the procedures longer. It does look like the metal-on-metal bearing surfaces will have a very long lifetime. > 9. Can a joint be resurfaced more that one time? You have to look at why you would need another resurf. If the material doesn't wear out, the major problem is loosening or bone deterioration. Typically one would think it would be the femoral component that would fail and that can be converted to a THR-style stem that will fit the existing acetabular cup. > 10. How long does recovery take? It varies. You can read lots of stories on this board. Most people are up and around after 6 weeks. Full recovery takes a long time. That really depends on how bad it was prior to surgery. My friends that have had it done say it takes over a year to really feel natural and comfortable. > > Thank you for your time and potential response to my questions. Best of luck. Like so many things, there are no easy answers. You have tapped into a resource with loads of experience in this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Great questions, I'll share my knowledge and opinions in-line with your questions - > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? There are new devices coming out every few weeks but the really dramatic research (like being able to regrow cartilage cells) is in its infancy. I doubt you will see any huge changes in the treatments in such a short period as 2 years. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. It is possible to do enough damage that some options may not be available to you. > 3. Are better materials being considered and when will they be > available? Metal-on-Metal, Ceramic-on-Ceramic, Ceramic-on-Crosslinked (or non-crosslinked) Polyethylene, Metal-on-Crosslinked (or non-crosslinked) Polyethylene are all available now in THR systems. I believe only Metal-on-Metal is being used for resurfacing because of the requirement in a resurf to make the femoral head nearly natural size (this results in the acetabular shell having to be large enough to accomodate this head, which requires the shell assembly to be thin, which means it pretty much has to be made out of steel). I am not aware of any research into dramatically different materials that would be available in the 2 year time frame. > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? Maybe, but the real question is - is that advantageous? The scar is really the least of your worries. Surgeons are perfecting their techniques every day and each surgery they do is probably a little bit less invasive than the last. When you think about invasive, think about the damage to your body parts, not just the size of the incision. Resurfacing causes much less trauma to your body by not cutting off and reaming out your femur. This would seem to be a good thing. > 5. Will I regain some range of motion? Currently it is dismal. With work (which it doesn't sound like you are afraid of). The large head devices, both THR and resurfacing, can technically provide very good range of motion - you'll have to retrain your muscles to support that range of motion. Medical Technologies has some great charts comparing range of motion for various devices at their site http://www.wmt.com - check it out. > 6. Is it possible to get back to some level of rigorous activity > and sport? Clearly. Just peruse the archives of this list. > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? All the resurfacing procedures in the US to-date have been part of clinical trials. They are limited and very controlled. In the UK and Belgium, resurfacing are mainstream procedures. While the US doctors in the studies are fantastic, for best results I would go with the guy who had the most experience - if I had that choice (I don't have that choice but I am more than satisfied that a stateside doctor will do a good job for me). > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? The results from the first 400 done out at JRI in Los Angeles were just published in a paper that is available from the Journal of bone and Joint Surgery (JBJS) at http://www.jbjs.org. They report very encouraging results. There are longer term results available in the U.K. and Belgium because they have been doing the procedures longer. It does look like the metal-on-metal bearing surfaces will have a very long lifetime. > 9. Can a joint be resurfaced more that one time? You have to look at why you would need another resurf. If the material doesn't wear out, the major problem is loosening or bone deterioration. Typically one would think it would be the femoral component that would fail and that can be converted to a THR-style stem that will fit the existing acetabular cup. > 10. How long does recovery take? It varies. You can read lots of stories on this board. Most people are up and around after 6 weeks. Full recovery takes a long time. That really depends on how bad it was prior to surgery. My friends that have had it done say it takes over a year to really feel natural and comfortable. > > Thank you for your time and potential response to my questions. Best of luck. Like so many things, there are no easy answers. You have tapped into a resource with loads of experience in this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Dear Aleks - I agree with below – do not wait a minute longer. My OA came on suddenly - in July 2003 I was told I had mild OA of the right hip and by 5/03 it was diagnosed as severe. I ignored it for a while then decided to see what my options were with an OS specializing in hips. The appt was July 03 and he told me (at the age of 55) he could schedule me for a THR the next week. He also mentioned I would never ski again, never run again, never play tennis again and needed to plan on having it done again in 10 years. He never said anything about any other options here or in Europe, Australia, India, etc. He just said if I did not want to have the THR next week to just take anti-inflammatory medications, continue until I could not walk anymore then come in and he’d do a THR. I almost ran out of his office (actually limped is a better term) spending the next 5 months in denial sure I could beat this with diet, vitamins, exercise, etc. By December 03 I knew I had to do something. Between hearing from a friend who had a friend successfully resurfaced by Dr. De Smet in the Summer 03, finding the Yahoo chat room (with wonderful people willing to go out of their way to support me) and reading Dr. De Smet’s web site I knew if anyone could do this surgery on someone so far gone it would be Dr. De Smet and resurfacing. I was afraid to waste anymore time looking for local physicians who’d not done as many, did not specialize in hips only and were probably more interested in positive outcomes for their clinical trials than in helping me. I also did not look into Insurance coverage. I got some good advice from this chat group that it’s better to wait and let your surgeon communicate with the insurance company after the fact than to send up red flags and cause a possible denial before hand. Even if I am not covered I feel I’m ahead – I have a chance at an active life for less than the price of a car. Going to Belgium was also significantly cheaper than resurfacing in the US if I end up paying - even with travel/hotel/food/surgery/hospital etc. going to Belgium ends up being 1/3 to ½ the price of resurfacing in the US. So two days after I found this site I sent my x-rays to Dr. De Smet. . Six days later I confirmed surgery six weeks into the future and today I’ve been home less than a week, already walking and with better posture than prior to surgery. Good luck with your decision – act now. I wish I’d done this earlier like the others who’ve posted. RBHR Dr. De Smet 2/4/04 Re: Ten Questions - Anyone Returning to Skiing or Running? Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Dear Aleks - I agree with below – do not wait a minute longer. My OA came on suddenly - in July 2003 I was told I had mild OA of the right hip and by 5/03 it was diagnosed as severe. I ignored it for a while then decided to see what my options were with an OS specializing in hips. The appt was July 03 and he told me (at the age of 55) he could schedule me for a THR the next week. He also mentioned I would never ski again, never run again, never play tennis again and needed to plan on having it done again in 10 years. He never said anything about any other options here or in Europe, Australia, India, etc. He just said if I did not want to have the THR next week to just take anti-inflammatory medications, continue until I could not walk anymore then come in and he’d do a THR. I almost ran out of his office (actually limped is a better term) spending the next 5 months in denial sure I could beat this with diet, vitamins, exercise, etc. By December 03 I knew I had to do something. Between hearing from a friend who had a friend successfully resurfaced by Dr. De Smet in the Summer 03, finding the Yahoo chat room (with wonderful people willing to go out of their way to support me) and reading Dr. De Smet’s web site I knew if anyone could do this surgery on someone so far gone it would be Dr. De Smet and resurfacing. I was afraid to waste anymore time looking for local physicians who’d not done as many, did not specialize in hips only and were probably more interested in positive outcomes for their clinical trials than in helping me. I also did not look into Insurance coverage. I got some good advice from this chat group that it’s better to wait and let your surgeon communicate with the insurance company after the fact than to send up red flags and cause a possible denial before hand. Even if I am not covered I feel I’m ahead – I have a chance at an active life for less than the price of a car. Going to Belgium was also significantly cheaper than resurfacing in the US if I end up paying - even with travel/hotel/food/surgery/hospital etc. going to Belgium ends up being 1/3 to ½ the price of resurfacing in the US. So two days after I found this site I sent my x-rays to Dr. De Smet. . Six days later I confirmed surgery six weeks into the future and today I’ve been home less than a week, already walking and with better posture than prior to surgery. Good luck with your decision – act now. I wish I’d done this earlier like the others who’ve posted. RBHR Dr. De Smet 2/4/04 Re: Ten Questions - Anyone Returning to Skiing or Running? Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Dear Aleks - I agree with below – do not wait a minute longer. My OA came on suddenly - in July 2003 I was told I had mild OA of the right hip and by 5/03 it was diagnosed as severe. I ignored it for a while then decided to see what my options were with an OS specializing in hips. The appt was July 03 and he told me (at the age of 55) he could schedule me for a THR the next week. He also mentioned I would never ski again, never run again, never play tennis again and needed to plan on having it done again in 10 years. He never said anything about any other options here or in Europe, Australia, India, etc. He just said if I did not want to have the THR next week to just take anti-inflammatory medications, continue until I could not walk anymore then come in and he’d do a THR. I almost ran out of his office (actually limped is a better term) spending the next 5 months in denial sure I could beat this with diet, vitamins, exercise, etc. By December 03 I knew I had to do something. Between hearing from a friend who had a friend successfully resurfaced by Dr. De Smet in the Summer 03, finding the Yahoo chat room (with wonderful people willing to go out of their way to support me) and reading Dr. De Smet’s web site I knew if anyone could do this surgery on someone so far gone it would be Dr. De Smet and resurfacing. I was afraid to waste anymore time looking for local physicians who’d not done as many, did not specialize in hips only and were probably more interested in positive outcomes for their clinical trials than in helping me. I also did not look into Insurance coverage. I got some good advice from this chat group that it’s better to wait and let your surgeon communicate with the insurance company after the fact than to send up red flags and cause a possible denial before hand. Even if I am not covered I feel I’m ahead – I have a chance at an active life for less than the price of a car. Going to Belgium was also significantly cheaper than resurfacing in the US if I end up paying - even with travel/hotel/food/surgery/hospital etc. going to Belgium ends up being 1/3 to ½ the price of resurfacing in the US. So two days after I found this site I sent my x-rays to Dr. De Smet. . Six days later I confirmed surgery six weeks into the future and today I’ve been home less than a week, already walking and with better posture than prior to surgery. Good luck with your decision – act now. I wish I’d done this earlier like the others who’ve posted. RBHR Dr. De Smet 2/4/04 Re: Ten Questions - Anyone Returning to Skiing or Running? Hi Aleks! Don't wait any longer! Like you, the first OS I consulted 3 years ago told me to wait until I couldn't stand the pain anymore, and then we'd do a THR. At the time, the pain was just an occasional ache, so I waited another 2 years until I was having significant pain to look into THRs. The more I learned, the less I liked what I found. When I went to the internet and started looking for alternatives, I found out about the hip resurfacing clinical trials. Resurfacing looked like a much more reasonable procedure, so I eventually contacted the JRI and was accepted as a patient by Dr. Amstutz back in June of last year. I wasted 8 months battling for insurance coverage because at the time the JHR wasn't coding resurfacing as a THR the way virtually all the other surgeons in the clinical trials of the Conserve + and Corin devices have been doing all along. JHR's change in policy came too late for me. I've heard wonderful things about Dr. Gross on this site. In fact, I had sent my x-rays to him, too, but with several denials in my file, I was afraid the insurance company would question a request for coverage from his office, too. I've not heard back from him yet, so I don't know if he thinks he could still do a resurfacing on me. Fortunately, through this site, I had also found Dr.De Smet in Belgium. I FedExed him my x-rays last week, and he e-mailed me back within 3 days (over the weekend!). He says that I have such significant damage to my right hip by now that I will need a dysplasia cup with screws, and that my window of opportunity to do this is now very short. Dr. Smet uses the BHR device, which has this option. I don't think either of the 2 US devices have screws. He was able to work me in on March 3rd, and I can hardly wait! I will be paying for this out of pocket because I don't have any time left to ditz around with insurance claims anymore. Fortunately, resurfacing in Belgium costs about half what it does here. I'll just submit the bill after the fact and see if they pay for any of it. Some of Dr. De Smet's patients have received partial reimbursement (maybe because it's not an Investigational Procedure in Europe). Don't lose any more bone or spend any more time in pain! If Dr.Gross thinks you have too much bone damage to be a suitable candidate for resurfacing, send those films to Belgium! Dr. De Smet has done over 1200 resurfacings and has taken on many difficult cases, mine included. You'll find many positive postings about both of them on this site. Let us know what Dr. Gross says. Przygoda Ten Questions - Anyone Returning to Skiing or > Running? > > > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. > I am a former Member of the US Ski Team, US National and NCAA > champion, member of World Cup Team and World Pro Tour. After > retirement from skiing and unaware of this condition, I got involved > in many sports recreationally, including cycling and running several > marathons, including Boston three times usually between 2:30 and > 2:40. My athletic career was pretty mediocre as I did not achieve my > objective of becoming a world or Olympic champion and I was injured > on several occasions. I had five major reconstructive knee > operations while I was competing. Thanks to our team doctor who > consistently and effectively pieced me together I have not had any > significant reoccurring knee problems. I share this because I am > interested to know more about those who have returned to any > significant level of sport. I no longer have crazy ambitions to > compete at any real athletic level; however, I have two aspiring > little athletes seven and four who still believe their daddy is > superman. I am looking at doing something because I owe it to them > to remain as active as possible and seek the alternatives (the > ability to get my socks on in the morning may also be an added > benefit). I continue to ski, play hockey, soccer and teach my kids > many other sports, however, the pain and repercussions are unbearable. > > Diagnosis: > I recently went to two well-known OS in Boston. They have done THRs > on some very famous people with a stated high success rate. I was > diagnosed with late stage bone on bone OA worse in the right hip > relative to the left. After looking into BHR and resurfacing, I was > very disappointed to find that they both spoke very negatively about > resurfacing when it seemed so intuitive to me to consider this > approach. I am unfamiliar with the medical vernacular, however, in > summary they both were adamantly opposed to the procedure. They > viewed it as a " romantic " alternative that has a poor track > record > and limited data to make any judgment relative to future success. It > was referred to as an unsubstantiated short-term alternative to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. I > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? > 3. Are better materials being considered and when will they be > available? > 4. Is anyone able to do this in a minimally invasive approach? > Is it possible? > 5. Will I regain some range of motion? Currently it is dismal. > 6. Is it possible to get back to some level of rigorous activity > and sport? > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? > 9. Can a joint be resurfaced more that one time? > 10. How long does recovery take? > > Thank you for your time and potential response to my questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The best way to tackle this is go for a read of the archives..........there you will find people reporting doing all sorts of activities and tales of long distance runners etc doing this for a good few years now.......... seems noone told their resurfaced hips about ROM being limited, femur heads cracking etc........... And you simply wouldn't get your sort of story from surgeons of any caliber in places like Australia or UK......... they know from experience now that it isn't a romantic story......... For amusement you could also ask both surgeons to produce the research papers what proves their assertions about this current device...............While of course they will expect you to take at face value that a plastic THR will go the distance - the newer ones have not been around long either........... In Australia now we have several choices of resurfacing device made by various coys............. and my surgeon said he thinks someone will have a go at making a plastic one before long......... big prothesis coys wouldn't be doing this if they didn't think there was a future in these devices.............. most know all about the recall nightmares on prothesis and wouldn't be wanting to tempt fate going down that lane I would think............. The issue of cartledge regrowth has come up here from time to time but given how much hassle you guys are having just getting a metal resurface into your country I couldn't see that happening for years.........even if they could figure out how to get it to grow where it should etc or you were prepared to take the months off to let it happen etc.............. The ROM you end up appears to be only limited by scar tissue around the joint - if procedures occured there before, how long you have been hobbling around for and the state of the joint area now as against how much work you personally want to put into getting it back. My hip was frozen for 35 years and I can now move it enough to get by in life.......... in fact yesterday I was fast cruising along a footpath and leaping up and down from high gutters landing onto the hip without a blink......... and sure some will do that with a THR no trouble at all........ so it really always comes down to the question of how you personally feel about metal down your femur bone and cutting off the femur head........... Edith LBHR Dr. L Walter Syd Aust 8/02 > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The best way to tackle this is go for a read of the archives..........there you will find people reporting doing all sorts of activities and tales of long distance runners etc doing this for a good few years now.......... seems noone told their resurfaced hips about ROM being limited, femur heads cracking etc........... And you simply wouldn't get your sort of story from surgeons of any caliber in places like Australia or UK......... they know from experience now that it isn't a romantic story......... For amusement you could also ask both surgeons to produce the research papers what proves their assertions about this current device...............While of course they will expect you to take at face value that a plastic THR will go the distance - the newer ones have not been around long either........... In Australia now we have several choices of resurfacing device made by various coys............. and my surgeon said he thinks someone will have a go at making a plastic one before long......... big prothesis coys wouldn't be doing this if they didn't think there was a future in these devices.............. most know all about the recall nightmares on prothesis and wouldn't be wanting to tempt fate going down that lane I would think............. The issue of cartledge regrowth has come up here from time to time but given how much hassle you guys are having just getting a metal resurface into your country I couldn't see that happening for years.........even if they could figure out how to get it to grow where it should etc or you were prepared to take the months off to let it happen etc.............. The ROM you end up appears to be only limited by scar tissue around the joint - if procedures occured there before, how long you have been hobbling around for and the state of the joint area now as against how much work you personally want to put into getting it back. My hip was frozen for 35 years and I can now move it enough to get by in life.......... in fact yesterday I was fast cruising along a footpath and leaping up and down from high gutters landing onto the hip without a blink......... and sure some will do that with a THR no trouble at all........ so it really always comes down to the question of how you personally feel about metal down your femur bone and cutting off the femur head........... Edith LBHR Dr. L Walter Syd Aust 8/02 > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The best way to tackle this is go for a read of the archives..........there you will find people reporting doing all sorts of activities and tales of long distance runners etc doing this for a good few years now.......... seems noone told their resurfaced hips about ROM being limited, femur heads cracking etc........... And you simply wouldn't get your sort of story from surgeons of any caliber in places like Australia or UK......... they know from experience now that it isn't a romantic story......... For amusement you could also ask both surgeons to produce the research papers what proves their assertions about this current device...............While of course they will expect you to take at face value that a plastic THR will go the distance - the newer ones have not been around long either........... In Australia now we have several choices of resurfacing device made by various coys............. and my surgeon said he thinks someone will have a go at making a plastic one before long......... big prothesis coys wouldn't be doing this if they didn't think there was a future in these devices.............. most know all about the recall nightmares on prothesis and wouldn't be wanting to tempt fate going down that lane I would think............. The issue of cartledge regrowth has come up here from time to time but given how much hassle you guys are having just getting a metal resurface into your country I couldn't see that happening for years.........even if they could figure out how to get it to grow where it should etc or you were prepared to take the months off to let it happen etc.............. The ROM you end up appears to be only limited by scar tissue around the joint - if procedures occured there before, how long you have been hobbling around for and the state of the joint area now as against how much work you personally want to put into getting it back. My hip was frozen for 35 years and I can now move it enough to get by in life.......... in fact yesterday I was fast cruising along a footpath and leaping up and down from high gutters landing onto the hip without a blink......... and sure some will do that with a THR no trouble at all........ so it really always comes down to the question of how you personally feel about metal down your femur bone and cutting off the femur head........... Edith LBHR Dr. L Walter Syd Aust 8/02 > Thank you to those of you who share your experiences. It has been > very informative as I am new to researching my recently diagnosed > condition. > > History: > I recently turned forty, however, I feel much older. I have lived in > consistent pain for more than four years and often get discouraged > and depressed as I attempt to do things that are now physically > impossible or too painful. I am unaccustomed to these limitations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Aleks: I have bilateral OA, and live in Boston. It sounds like we went to the same two " prominent " orthopedic surgeons!! I was diagnosed two years ago by the President of the Massachusetts Society of Orthopedic Surgeons. He gave me two options: Wait until the pain is so bad that you can't walk on it and then do a THR (he still uses the polyethylene cup device.....I'm only 41!!!!), or see a specialist friend of his in Boston to see if a pelvic osteotomy was an option " to take advantage of the remaining acetabular cartilage " . I am a veterinarian and I know that the latter approach is extremely invasive and involves a minimum 12-month recovery with short-term benefit (if any). The second guy told me " you're left hip looks like hell " and " come back for a THR when you can't walk anymore " . Although not a world-class athlete such as yourself, I enjoyed running, biking and squats up until about 2 years ago. It's really depressing to go from an active lifestyle to a pattern of avoidance. Fortunately, I came across this web site and have received excellent advice. I submitted my X-rays to Dr. Gross in SC and he agreed that I would be a good candidate for resurfacing. I am currently waiting for a surgery date in June after the kids are out of school. As you can see from this site, you are not alone. Good luck with your decision!! Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Aleks: I have bilateral OA, and live in Boston. It sounds like we went to the same two " prominent " orthopedic surgeons!! I was diagnosed two years ago by the President of the Massachusetts Society of Orthopedic Surgeons. He gave me two options: Wait until the pain is so bad that you can't walk on it and then do a THR (he still uses the polyethylene cup device.....I'm only 41!!!!), or see a specialist friend of his in Boston to see if a pelvic osteotomy was an option " to take advantage of the remaining acetabular cartilage " . I am a veterinarian and I know that the latter approach is extremely invasive and involves a minimum 12-month recovery with short-term benefit (if any). The second guy told me " you're left hip looks like hell " and " come back for a THR when you can't walk anymore " . Although not a world-class athlete such as yourself, I enjoyed running, biking and squats up until about 2 years ago. It's really depressing to go from an active lifestyle to a pattern of avoidance. Fortunately, I came across this web site and have received excellent advice. I submitted my X-rays to Dr. Gross in SC and he agreed that I would be a good candidate for resurfacing. I am currently waiting for a surgery date in June after the kids are out of school. As you can see from this site, you are not alone. Good luck with your decision!! Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 ive to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. The incidence of dislocation is somewhere between 10 and 100 times lower with resurfacing than with a conventional small ball metal on polyethylene THR. It's hard to give a precise figure because dislocations are extremely rare with resurfacings so it's very hard to get a reliable figure for their frequency. Dislocation rates with large ball MoM THRs is comparable to resurfacing. The incidence with ceramic THRs is better than with metal/poly THRs, but I don't think it is quite as good as MoM or resurfacing. Range of motion is better with a resurfacing than with a conventional small-ball metal/poly THR. Resurfacing ROM is basically the same as with a large ball Metal-on-Metal THR. The major risk factors for fracture are female gender, small size, advanced age, and poor bone condition. Even so, the published papers show a failure rate of about 3% in early cases, with the incidence of failure decreasing rapidly as surgeons gain experience and as they improve patient selection. Resurfacing is not for everyone. If you have poor bone quality, it's probably not for you. As a relatively young male athlete, I can't imagine that you'd be in this situation as long as you don't wait too long. However, you need to have your X-rays evaluated by an OS who actually does resurfacing. Nobody can judge your bone condition from an internet post. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. See above. > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? Biological treatments (cartilage regrowth) are a long way away. I understand that some of the companies are looking into using hard, biologically inert coatings (ceramic or diamond) for resurfacing components, but those won't be available anytime soon. If you allow your bone quality to degrade too much, you may not have any alternatives. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. At a certain point, you'll find it nearly impossible to remain highly active. As someone who is approaching that point with alarming rapidity, my advice is to expedite the resurfacing process. > 3. Are better materials being considered and when will they be > available? I already commented on coatings above. They're not in the immediate future. They'll come eventually, but not in your decision timeframe. In a conversation with Dr. Amstutz today, I was informed of the existence of a metal on crosslinked poly resurfacing device, which might be useful in patients (like me) who have compromised renal function and are thus at more danger of high metal ion levels. I can't see why anyone with normal kidney function would even consider it. Only 21 of them have been installed and they require removal of some acetabular bone because they have a larger external shell than a MoM resurface. The head size is larger than a typical THR, but smaller than a MoM resurface (about 40-44mm maximum). Wear is something of a crap shoot. In THRs, your options are metal/poly, metal/crosslinked poly, metal on metal, and ceramic. Ceramic wears the least, but doesn't permit quite as large a ball as metal on metal (because the shell has to be thicker to avoid cracking). Metal on metal gives you a large ball (like a resurface) and very similar wear characteristics, low risk of dislocation, and excellent ROM. Metal on cross-linked poly is reltively new. It wears roughly 5 times better than conventional metal/poly. This may permit somewhat larger ball sizes (giving better ROM and reduced dislocation risk). Metal/poly is the traditional alternative. Most folks in this group don't think very highly of it. Small ball, higher wear rate, higher dislocation risk, higher risk of osteolysis (leading to aseptic loosening) than the other alternatives. Stem-type devices in general tend to suffer from stress shielding in the femur, which may or may not cause loosening of the femoral component with the passage of time. > 5. Will I regain some range of motion? Currently it is dismal. Starrett, the first patient to get a simultaneous bilateral in the US, went back to performing lead roles as a ballet dancer after his surgery. He has since retired from performing (understandable since he's about 50), but he still teaches and can still do the splits. I'd say that 180 degrees of flexion and abduction constitutes regaining range of motion. ;-) > 6. Is it possible to get back to some level of rigorous activity > and sport? This group is full of people who have. As far as elite athletes like yourself are concerned, , a Masters judo competitor, won the 2001 World Championship in his age division after being resurfaced. He was still competing on a world-class level last year (I don't know about this year). > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? Not really. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? Wear studies suggest that resurfacings wear 20-100 times less than conventional metal on polyethylene. So far, the clinical results for resurfacings are better than for THRs among young, active patients. There aren't any long-term clinical results yet. > 9. Can a joint be resurfaced more that one time? I don't know if anyone's tried. No resurfacing has every " worn out " as far as I know. Those that have been revised have been due to loosening of the femoral component, which is usually due to failure of the underlying bone. This would preclude a subsequent resurfacing of that joint. These patients are typically revised to a large ball MoM THR, using the acetabular shell that's already present. We've got a couple of folks here who've had this done. They can fill you in on the details. The incidence of this is very low, but it does happen. > 10. How long does recovery take? It varies. The usually cited figures are " 2 to 3 times faster than a THR " . Some people take a longer time due to severe muscle atrophy or other problems. I can't tell you how long mine took because it hasn't happened yet. :-( Steve (progressing at a glacial pace towards a bilateral resurf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 ive to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. The incidence of dislocation is somewhere between 10 and 100 times lower with resurfacing than with a conventional small ball metal on polyethylene THR. It's hard to give a precise figure because dislocations are extremely rare with resurfacings so it's very hard to get a reliable figure for their frequency. Dislocation rates with large ball MoM THRs is comparable to resurfacing. The incidence with ceramic THRs is better than with metal/poly THRs, but I don't think it is quite as good as MoM or resurfacing. Range of motion is better with a resurfacing than with a conventional small-ball metal/poly THR. Resurfacing ROM is basically the same as with a large ball Metal-on-Metal THR. The major risk factors for fracture are female gender, small size, advanced age, and poor bone condition. Even so, the published papers show a failure rate of about 3% in early cases, with the incidence of failure decreasing rapidly as surgeons gain experience and as they improve patient selection. Resurfacing is not for everyone. If you have poor bone quality, it's probably not for you. As a relatively young male athlete, I can't imagine that you'd be in this situation as long as you don't wait too long. However, you need to have your X-rays evaluated by an OS who actually does resurfacing. Nobody can judge your bone condition from an internet post. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. See above. > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? Biological treatments (cartilage regrowth) are a long way away. I understand that some of the companies are looking into using hard, biologically inert coatings (ceramic or diamond) for resurfacing components, but those won't be available anytime soon. If you allow your bone quality to degrade too much, you may not have any alternatives. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. At a certain point, you'll find it nearly impossible to remain highly active. As someone who is approaching that point with alarming rapidity, my advice is to expedite the resurfacing process. > 3. Are better materials being considered and when will they be > available? I already commented on coatings above. They're not in the immediate future. They'll come eventually, but not in your decision timeframe. In a conversation with Dr. Amstutz today, I was informed of the existence of a metal on crosslinked poly resurfacing device, which might be useful in patients (like me) who have compromised renal function and are thus at more danger of high metal ion levels. I can't see why anyone with normal kidney function would even consider it. Only 21 of them have been installed and they require removal of some acetabular bone because they have a larger external shell than a MoM resurface. The head size is larger than a typical THR, but smaller than a MoM resurface (about 40-44mm maximum). Wear is something of a crap shoot. In THRs, your options are metal/poly, metal/crosslinked poly, metal on metal, and ceramic. Ceramic wears the least, but doesn't permit quite as large a ball as metal on metal (because the shell has to be thicker to avoid cracking). Metal on metal gives you a large ball (like a resurface) and very similar wear characteristics, low risk of dislocation, and excellent ROM. Metal on cross-linked poly is reltively new. It wears roughly 5 times better than conventional metal/poly. This may permit somewhat larger ball sizes (giving better ROM and reduced dislocation risk). Metal/poly is the traditional alternative. Most folks in this group don't think very highly of it. Small ball, higher wear rate, higher dislocation risk, higher risk of osteolysis (leading to aseptic loosening) than the other alternatives. Stem-type devices in general tend to suffer from stress shielding in the femur, which may or may not cause loosening of the femoral component with the passage of time. > 5. Will I regain some range of motion? Currently it is dismal. Starrett, the first patient to get a simultaneous bilateral in the US, went back to performing lead roles as a ballet dancer after his surgery. He has since retired from performing (understandable since he's about 50), but he still teaches and can still do the splits. I'd say that 180 degrees of flexion and abduction constitutes regaining range of motion. ;-) > 6. Is it possible to get back to some level of rigorous activity > and sport? This group is full of people who have. As far as elite athletes like yourself are concerned, , a Masters judo competitor, won the 2001 World Championship in his age division after being resurfaced. He was still competing on a world-class level last year (I don't know about this year). > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? Not really. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? Wear studies suggest that resurfacings wear 20-100 times less than conventional metal on polyethylene. So far, the clinical results for resurfacings are better than for THRs among young, active patients. There aren't any long-term clinical results yet. > 9. Can a joint be resurfaced more that one time? I don't know if anyone's tried. No resurfacing has every " worn out " as far as I know. Those that have been revised have been due to loosening of the femoral component, which is usually due to failure of the underlying bone. This would preclude a subsequent resurfacing of that joint. These patients are typically revised to a large ball MoM THR, using the acetabular shell that's already present. We've got a couple of folks here who've had this done. They can fill you in on the details. The incidence of this is very low, but it does happen. > 10. How long does recovery take? It varies. The usually cited figures are " 2 to 3 times faster than a THR " . Some people take a longer time due to severe muscle atrophy or other problems. I can't tell you how long mine took because it hasn't happened yet. :-( Steve (progressing at a glacial pace towards a bilateral resurf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 ive to the > inevitable THR. I was drawn diagrams showing how the thickness of > the covered joint was physiologically incompatible, limiting range of > motion and will create impingement and thus a higher incidence of > dislocation and/or fracture. The incidence of dislocation is somewhere between 10 and 100 times lower with resurfacing than with a conventional small ball metal on polyethylene THR. It's hard to give a precise figure because dislocations are extremely rare with resurfacings so it's very hard to get a reliable figure for their frequency. Dislocation rates with large ball MoM THRs is comparable to resurfacing. The incidence with ceramic THRs is better than with metal/poly THRs, but I don't think it is quite as good as MoM or resurfacing. Range of motion is better with a resurfacing than with a conventional small-ball metal/poly THR. Resurfacing ROM is basically the same as with a large ball Metal-on-Metal THR. The major risk factors for fracture are female gender, small size, advanced age, and poor bone condition. Even so, the published papers show a failure rate of about 3% in early cases, with the incidence of failure decreasing rapidly as surgeons gain experience and as they improve patient selection. Resurfacing is not for everyone. If you have poor bone quality, it's probably not for you. As a relatively young male athlete, I can't imagine that you'd be in this situation as long as you don't wait too long. However, you need to have your X-rays evaluated by an OS who actually does resurfacing. Nobody can judge your bone condition from an internet post. I was also told about the fallacy of > bone stock retention and the argument was invalid due to the fact > that the head of the femur will fracture and the inside piece will > need to be further reamed in the soon and certain revision to THR. See above. > left feeling rejected at the overwhelming lack of enthusiasm for this > alternative approach. In my estimation, the best of the best in THR > seemed very myopic and uninterested in my quest for a better life. > That is when I moved on and found you. > > Questions: (sorry for the delay in getting here) > 1. What can be anticipated in the near term future (two years) > for alternatives to treat this condition? Is it worth waiting? How > do you decide? Biological treatments (cartilage regrowth) are a long way away. I understand that some of the companies are looking into using hard, biologically inert coatings (ceramic or diamond) for resurfacing components, but those won't be available anytime soon. If you allow your bone quality to degrade too much, you may not have any alternatives. > 2. Am I jeopardizing being a candidate for this procedure if I > remain active given my current state? Possibly. At a certain point, you'll find it nearly impossible to remain highly active. As someone who is approaching that point with alarming rapidity, my advice is to expedite the resurfacing process. > 3. Are better materials being considered and when will they be > available? I already commented on coatings above. They're not in the immediate future. They'll come eventually, but not in your decision timeframe. In a conversation with Dr. Amstutz today, I was informed of the existence of a metal on crosslinked poly resurfacing device, which might be useful in patients (like me) who have compromised renal function and are thus at more danger of high metal ion levels. I can't see why anyone with normal kidney function would even consider it. Only 21 of them have been installed and they require removal of some acetabular bone because they have a larger external shell than a MoM resurface. The head size is larger than a typical THR, but smaller than a MoM resurface (about 40-44mm maximum). Wear is something of a crap shoot. In THRs, your options are metal/poly, metal/crosslinked poly, metal on metal, and ceramic. Ceramic wears the least, but doesn't permit quite as large a ball as metal on metal (because the shell has to be thicker to avoid cracking). Metal on metal gives you a large ball (like a resurface) and very similar wear characteristics, low risk of dislocation, and excellent ROM. Metal on cross-linked poly is reltively new. It wears roughly 5 times better than conventional metal/poly. This may permit somewhat larger ball sizes (giving better ROM and reduced dislocation risk). Metal/poly is the traditional alternative. Most folks in this group don't think very highly of it. Small ball, higher wear rate, higher dislocation risk, higher risk of osteolysis (leading to aseptic loosening) than the other alternatives. Stem-type devices in general tend to suffer from stress shielding in the femur, which may or may not cause loosening of the femoral component with the passage of time. > 5. Will I regain some range of motion? Currently it is dismal. Starrett, the first patient to get a simultaneous bilateral in the US, went back to performing lead roles as a ballet dancer after his surgery. He has since retired from performing (understandable since he's about 50), but he still teaches and can still do the splits. I'd say that 180 degrees of flexion and abduction constitutes regaining range of motion. ;-) > 6. Is it possible to get back to some level of rigorous activity > and sport? This group is full of people who have. As far as elite athletes like yourself are concerned, , a Masters judo competitor, won the 2001 World Championship in his age division after being resurfaced. He was still competing on a world-class level last year (I don't know about this year). > 7. Are there data points to suggest that the results or > procedures are more effective in Europe compared to the US? Not really. > 8. Are there any studies or is data available relative to the > effectiveness of this procedure generally? How long will it last? Wear studies suggest that resurfacings wear 20-100 times less than conventional metal on polyethylene. So far, the clinical results for resurfacings are better than for THRs among young, active patients. There aren't any long-term clinical results yet. > 9. Can a joint be resurfaced more that one time? I don't know if anyone's tried. No resurfacing has every " worn out " as far as I know. Those that have been revised have been due to loosening of the femoral component, which is usually due to failure of the underlying bone. This would preclude a subsequent resurfacing of that joint. These patients are typically revised to a large ball MoM THR, using the acetabular shell that's already present. We've got a couple of folks here who've had this done. They can fill you in on the details. The incidence of this is very low, but it does happen. > 10. How long does recovery take? It varies. The usually cited figures are " 2 to 3 times faster than a THR " . Some people take a longer time due to severe muscle atrophy or other problems. I can't tell you how long mine took because it hasn't happened yet. :-( Steve (progressing at a glacial pace towards a bilateral resurf) Quote Link to comment Share on other sites More sharing options...
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