Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 My name is Dawn and I have a 3 week old son named . He was diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have been trying to find as much information as possible regarding Dr. Ponseti's method and the treatments for clubbed feet. We are currently seeing an Orthopedic Surgeon from Boston's Children's Hospital. His name is Dr. Kasser. I believe that we are using the Ponseti method. But how can I tell for sure. Here is where we are right now. was casted at 3 days old. That was Friday the 23rd of July. His casts were changed on Wednesday the 28th. We just had the 3rd set of casts put on yesterday. While we were getting ready to leave the doctor told me to make five more appointments 1 week apart for casts changes and that on the last appointment we would be doing the tenonomy. From what I have read this follows along with the Ponseti method. But I would like to have input from you all that have been through this. Does this schedule sound correct? Any information that can be provided would be greatly appreciated. Dawn 9/14/02 BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 It sounds good except that it would be hard for a doctor to tell exactly how many cast it is going to take to correct the feet. It should be determined after each cast weather another will be needed. Here is a link to a checklist for parents on the Ponseti Method. HTH. http://pages.ivillage.com/ponseti_links/id13.html Tori 1/30/04 bilateral atypical cf brace 23/7 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 It sounds good except that it would be hard for a doctor to tell exactly how many cast it is going to take to correct the feet. It should be determined after each cast weather another will be needed. Here is a link to a checklist for parents on the Ponseti Method. HTH. http://pages.ivillage.com/ponseti_links/id13.html Tori 1/30/04 bilateral atypical cf brace 23/7 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hello Dawn. I know many others will be responding to this one as well. The treatment you are getting thus far is the Ponsetti method. Also Dr. Kasser is a qualified physician in this method. You can go to the following website to read more info. I highly recommend it.: www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html I think you are in good hands. Good luck and keep us updated. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hello Dawn. I know many others will be responding to this one as well. The treatment you are getting thus far is the Ponsetti method. Also Dr. Kasser is a qualified physician in this method. You can go to the following website to read more info. I highly recommend it.: www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html I think you are in good hands. Good luck and keep us updated. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hello Dawn. I know many others will be responding to this one as well. The treatment you are getting thus far is the Ponsetti method. Also Dr. Kasser is a qualified physician in this method. You can go to the following website to read more info. I highly recommend it.: www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html I think you are in good hands. Good luck and keep us updated. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Unless his feet were particularly bad that sounds like too many casts to me.The " average baby " (what is that?haha) wears about five casts spaced five days apart, then the tenotomy with alast casts that the baby wears approx. three weeks. What does the dr. propose to do after the last cast? how long is he prescribing follow up care (such as wearing a DBB?) and what will his follow-up be to maintain the correction? Have you asked him specifically if he is Ponseti Trained? Dr. Ponseti's web site (the University of Iowa web site actually) has very indepth information about his protocol, etc., that could be helpful to you in determining if your dr. is really following the Ponseti Method or if he's just another cheap imitation. Best of luck! s. My name is Dawn and I have a 3 week old son named . He was diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have been trying to find as much information as possible regarding Dr. Ponseti's method and the treatments for clubbed feet. We are currently seeing an Orthopedic Surgeon from Boston's Children's Hospital. His name is Dr. Kasser. I believe that we are using the Ponseti method. But how can I tell for sure. Here is where we are right now. was casted at 3 days old. That was Friday the 23rd of July. His casts were changed on Wednesday the 28th. We just had the 3rd set of casts put on yesterday. While we were getting ready to leave the doctor told me to make five more appointments 1 week apart for casts changes and that on the last appointment we would be doing the tenonomy. From what I have read this follows along with the Ponseti method. But I would like to have input from you all that have been through this. Does this schedule sound correct? Any information that can be provided would be greatly appreciated. Dawn 9/14/02 BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Unless his feet were particularly bad that sounds like too many casts to me.The " average baby " (what is that?haha) wears about five casts spaced five days apart, then the tenotomy with alast casts that the baby wears approx. three weeks. What does the dr. propose to do after the last cast? how long is he prescribing follow up care (such as wearing a DBB?) and what will his follow-up be to maintain the correction? Have you asked him specifically if he is Ponseti Trained? Dr. Ponseti's web site (the University of Iowa web site actually) has very indepth information about his protocol, etc., that could be helpful to you in determining if your dr. is really following the Ponseti Method or if he's just another cheap imitation. Best of luck! s. My name is Dawn and I have a 3 week old son named . He was diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have been trying to find as much information as possible regarding Dr. Ponseti's method and the treatments for clubbed feet. We are currently seeing an Orthopedic Surgeon from Boston's Children's Hospital. His name is Dr. Kasser. I believe that we are using the Ponseti method. But how can I tell for sure. Here is where we are right now. was casted at 3 days old. That was Friday the 23rd of July. His casts were changed on Wednesday the 28th. We just had the 3rd set of casts put on yesterday. While we were getting ready to leave the doctor told me to make five more appointments 1 week apart for casts changes and that on the last appointment we would be doing the tenonomy. From what I have read this follows along with the Ponseti method. But I would like to have input from you all that have been through this. Does this schedule sound correct? Any information that can be provided would be greatly appreciated. Dawn 9/14/02 BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Unless his feet were particularly bad that sounds like too many casts to me.The " average baby " (what is that?haha) wears about five casts spaced five days apart, then the tenotomy with alast casts that the baby wears approx. three weeks. What does the dr. propose to do after the last cast? how long is he prescribing follow up care (such as wearing a DBB?) and what will his follow-up be to maintain the correction? Have you asked him specifically if he is Ponseti Trained? Dr. Ponseti's web site (the University of Iowa web site actually) has very indepth information about his protocol, etc., that could be helpful to you in determining if your dr. is really following the Ponseti Method or if he's just another cheap imitation. Best of luck! s. My name is Dawn and I have a 3 week old son named . He was diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have been trying to find as much information as possible regarding Dr. Ponseti's method and the treatments for clubbed feet. We are currently seeing an Orthopedic Surgeon from Boston's Children's Hospital. His name is Dr. Kasser. I believe that we are using the Ponseti method. But how can I tell for sure. Here is where we are right now. was casted at 3 days old. That was Friday the 23rd of July. His casts were changed on Wednesday the 28th. We just had the 3rd set of casts put on yesterday. While we were getting ready to leave the doctor told me to make five more appointments 1 week apart for casts changes and that on the last appointment we would be doing the tenonomy. From what I have read this follows along with the Ponseti method. But I would like to have input from you all that have been through this. Does this schedule sound correct? Any information that can be provided would be greatly appreciated. Dawn 9/14/02 BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hi Dawn, Congratulations on the arrival of Jonathon! It sounds like you are off to a good start. At one point I read that Dr. P changed casts every 5 days if he had a family that had traveled to Iowa and was staying there through the casting. His 3rd cast seems a little late, but the plan going forward seems right. We also made appts for about 7 weeks, so we could get the times we needed and after the 5th cast the hospital called to make our appt for the tenotomy, so hopefully your dr. will evaluate each time and you may not need 8. I would start asking about the tenotomy around the 5th cast. (Hint: if he needs a tenotomy ask for the earliest time you can get because if they use anesthesia he may not be able to have fluids for 4-8 hours before the procedure) Jonathon will be done with casts before you know it and bathtub here he comes! Let us know how you progress. Louisa 6-27-99 Zoe 2-22-04 Right Unilateral Clubfoot FAB 18/7 > My name is Dawn and I have a 3 week old son named . He was > diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have > been trying to find as much information as possible regarding Dr. > Ponseti's method and the treatments for clubbed feet. > > We are currently seeing an Orthopedic Surgeon from Boston's > Children's Hospital. His name is Dr. Kasser. > > I believe that we are using the Ponseti method. But how can I tell > for sure. Here is where we are right now. > > was casted at 3 days old. That was Friday the 23rd of > July. His casts were changed on Wednesday the 28th. We just had > the 3rd set of casts put on yesterday. While we were getting ready > to leave the doctor told me to make five more appointments 1 week > apart for casts changes and that on the last appointment we would be > doing the tenonomy. > > From what I have read this follows along with the Ponseti method. > But I would like to have input from you all that have been through > this. Does this schedule sound correct? > > Any information that can be provided would be greatly appreciated. > > Dawn > 9/14/02 > BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hi Dawn, Congratulations on the arrival of Jonathon! It sounds like you are off to a good start. At one point I read that Dr. P changed casts every 5 days if he had a family that had traveled to Iowa and was staying there through the casting. His 3rd cast seems a little late, but the plan going forward seems right. We also made appts for about 7 weeks, so we could get the times we needed and after the 5th cast the hospital called to make our appt for the tenotomy, so hopefully your dr. will evaluate each time and you may not need 8. I would start asking about the tenotomy around the 5th cast. (Hint: if he needs a tenotomy ask for the earliest time you can get because if they use anesthesia he may not be able to have fluids for 4-8 hours before the procedure) Jonathon will be done with casts before you know it and bathtub here he comes! Let us know how you progress. Louisa 6-27-99 Zoe 2-22-04 Right Unilateral Clubfoot FAB 18/7 > My name is Dawn and I have a 3 week old son named . He was > diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have > been trying to find as much information as possible regarding Dr. > Ponseti's method and the treatments for clubbed feet. > > We are currently seeing an Orthopedic Surgeon from Boston's > Children's Hospital. His name is Dr. Kasser. > > I believe that we are using the Ponseti method. But how can I tell > for sure. Here is where we are right now. > > was casted at 3 days old. That was Friday the 23rd of > July. His casts were changed on Wednesday the 28th. We just had > the 3rd set of casts put on yesterday. While we were getting ready > to leave the doctor told me to make five more appointments 1 week > apart for casts changes and that on the last appointment we would be > doing the tenonomy. > > From what I have read this follows along with the Ponseti method. > But I would like to have input from you all that have been through > this. Does this schedule sound correct? > > Any information that can be provided would be greatly appreciated. > > Dawn > 9/14/02 > BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hi Dawn, Congratulations on the arrival of Jonathon! It sounds like you are off to a good start. At one point I read that Dr. P changed casts every 5 days if he had a family that had traveled to Iowa and was staying there through the casting. His 3rd cast seems a little late, but the plan going forward seems right. We also made appts for about 7 weeks, so we could get the times we needed and after the 5th cast the hospital called to make our appt for the tenotomy, so hopefully your dr. will evaluate each time and you may not need 8. I would start asking about the tenotomy around the 5th cast. (Hint: if he needs a tenotomy ask for the earliest time you can get because if they use anesthesia he may not be able to have fluids for 4-8 hours before the procedure) Jonathon will be done with casts before you know it and bathtub here he comes! Let us know how you progress. Louisa 6-27-99 Zoe 2-22-04 Right Unilateral Clubfoot FAB 18/7 > My name is Dawn and I have a 3 week old son named . He was > diagnosed with Bilateral clubbed feet in utero at 19 weeks. I have > been trying to find as much information as possible regarding Dr. > Ponseti's method and the treatments for clubbed feet. > > We are currently seeing an Orthopedic Surgeon from Boston's > Children's Hospital. His name is Dr. Kasser. > > I believe that we are using the Ponseti method. But how can I tell > for sure. Here is where we are right now. > > was casted at 3 days old. That was Friday the 23rd of > July. His casts were changed on Wednesday the 28th. We just had > the 3rd set of casts put on yesterday. While we were getting ready > to leave the doctor told me to make five more appointments 1 week > apart for casts changes and that on the last appointment we would be > doing the tenonomy. > > From what I have read this follows along with the Ponseti method. > But I would like to have input from you all that have been through > this. Does this schedule sound correct? > > Any information that can be provided would be greatly appreciated. > > Dawn > 9/14/02 > BCF 7/20/04, 3rd casts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Welcome, Dawn & ! Your doctor is listed on Dr. Ponseti's website, which is a good sign, however, you'll still need to do some research so that you know what to expect for your son's treatment, and you'll be able to ask your doctor questions and know what the expected answer(s) should be! Just because a doctor changes casts weekly and uses a tenotomy, does not mean the Ponseti method is being used; not all casting is equal and not all tenotomies are equal. Just as important is the post- correction bracing protocol to prevent regression. The best place to start is Dr. Ponseti's website http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html and the parents' checklist that gave you the link to is a good place also. With a little time spent reading and asking questions, you'll have all the knowledge you'll need to be confident that your son is on track, and to ask questions when things aren't going as expected or if you notice modifications to the standard treatment protocol. It's a bit overwhelming at first- just ask questions if you need clarification on anything! I hope this helps, and I hope this darn post goes through because I lost the first response- Yahoo has been acting up too much lately- argh! Welcome and keep us posted! & (3-16-00) left clubfoot http://ponseticlubfoot.freeservers.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Welcome, Dawn & ! Your doctor is listed on Dr. Ponseti's website, which is a good sign, however, you'll still need to do some research so that you know what to expect for your son's treatment, and you'll be able to ask your doctor questions and know what the expected answer(s) should be! Just because a doctor changes casts weekly and uses a tenotomy, does not mean the Ponseti method is being used; not all casting is equal and not all tenotomies are equal. Just as important is the post- correction bracing protocol to prevent regression. The best place to start is Dr. Ponseti's website http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html and the parents' checklist that gave you the link to is a good place also. With a little time spent reading and asking questions, you'll have all the knowledge you'll need to be confident that your son is on track, and to ask questions when things aren't going as expected or if you notice modifications to the standard treatment protocol. It's a bit overwhelming at first- just ask questions if you need clarification on anything! I hope this helps, and I hope this darn post goes through because I lost the first response- Yahoo has been acting up too much lately- argh! Welcome and keep us posted! & (3-16-00) left clubfoot http://ponseticlubfoot.freeservers.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Welcome, Dawn & ! Your doctor is listed on Dr. Ponseti's website, which is a good sign, however, you'll still need to do some research so that you know what to expect for your son's treatment, and you'll be able to ask your doctor questions and know what the expected answer(s) should be! Just because a doctor changes casts weekly and uses a tenotomy, does not mean the Ponseti method is being used; not all casting is equal and not all tenotomies are equal. Just as important is the post- correction bracing protocol to prevent regression. The best place to start is Dr. Ponseti's website http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html and the parents' checklist that gave you the link to is a good place also. With a little time spent reading and asking questions, you'll have all the knowledge you'll need to be confident that your son is on track, and to ask questions when things aren't going as expected or if you notice modifications to the standard treatment protocol. It's a bit overwhelming at first- just ask questions if you need clarification on anything! I hope this helps, and I hope this darn post goes through because I lost the first response- Yahoo has been acting up too much lately- argh! Welcome and keep us posted! & (3-16-00) left clubfoot http://ponseticlubfoot.freeservers.com/ Quote Link to comment Share on other sites More sharing options...
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