Re: Help! Need ankle advice :-( ... need a EDS ankle doctor

[Guest guest]

Caro,

I agree with Helen, you could be getting a DVT(deep vein thrombosis) Blood

clot since you can feel a cord. The other thing you see pulsating is

probably the dorsalis pedis pulse, an artery near the top of the foot,

normal. I suggest you see you Dr. and ask for an ultrasound/ sonogram, same

thing of the affected area.

Good Luck,

Sincerely, S.

Help! Need ankle advice :-( ... need a EDS ankle doctor

> Hi all,

>

> My left ankle has bee bugging me lately. But only when I walked to the

local

> store. Or, so I thought. So, I devised a trick to find the pain spot.

>

> I wondered if I could find or touch the area that hurt so bad when I walk.

> So, I closed my eyes and tried to touch the area on my right ankle. As it

> happened, I touched above the known area and found the SPOT. OUCH! A big

ouch. I

> felt pain. I tried again and it really REALLY HURT LIKE *heck*.

>

> What I seem to feel is a bunch of veins or arteries, or maybe just one

vein

> or artery ... that hurts. It reminds me of a thombosed vein you get when

.....

> Well, I got one from an infected injection once and from a too tight blood

> pressure cuff. I can actually feel a straw like cord. More than one ...

and a mass

> of tangled blood vessels ... or lumpy stuff under my skin at the ankle

joint

> :-(.

>

> Anyway, it is right where my ankle bends in TOO MUCH when I walk. Can my

own

> bone be crushing my blood vessel? An inch away I do know I have a spot

that

> you can see pulsating. A circle like spot. When I complained years ago,

the dumb

> doctor would say let me see your other foot. She then said you have the

same

> spot on your left foot but <<smaller>> ... Next come the famous question

of

> did it hurt. And dismissal.

>

> Well, I always had my foot bend inward problem. As I played with the area

> tonight, I was able to determined that the spot is VERY VERY painful, and

the

> bone underneath it also hurts ... but <<only>> if I touch it. Or if I put

> pressure on the spot. Worse, is if I move the ankle like in walking. The

minute I

> stop the movement ... the pain stops. Typical of my pain insensitivity

:-<. I

> always had places I could touch and feel pain in that spot, so my body

would

> know it was there. Yes, that sounds stupid, which is why I never reported

painful

> areas to my doctors. Typically, in the doctors office I would not be able

to

> find the spot. When I did, it did nothing when the doc pressed on it.

>

> Well, I played with this area and it seems maybe the bone is the problem,

or

> the ligaments or I do not know what :-<. There is a nearby spot that is

veins

> or varicose veins. But in my foot? Also, the top of my feet is my area

where I

> heal slow and scar. [The rest of me heals rather fast.] I know this from

> years of treating the top of my feet like gold.

>

> My right foot, right side of the ankle, is the foot that I have ALWAYS

hurt.

> I twisted it, been on crutches with, etc., etc. It is the foot that turns

too

> much to the right or is a suspected corrected clubfoot. I also feel my

ankles

> are thicker than they should be but since they do not hurt ... what was I

to

> say to any doctor. He said, my ankles are getting bigger, so what.

>

> Finally, when I move the ankle as in walking ... only then does it hurt

like

> hell. When I stop moving it ... HA! no pain. Woe is me. No wonder I dread

> walking anywhere lately. Grrr. I will die of something because my body

doesn't

> hurt correctly. It seems my outer skin nerves works but not my insides. My

right

> foot that is bothering me is the side I normally feel pain fairly

normally. So

> when I go for walks I always ignored it. After all, whenever I stopped

> walking the pain went away. Unless my BP dropped too low.

>

> I determined, that this is the similiar pain that I feel when my BP stays

low

> for a time. I wonder is I got an old wound, abscess, infection or what!

>

> Plan: I will get a podiatrist or foot doctor. If I can remember since most

of

> the time the foot never hurts. I need to touch it to see that it is still

> sore.

>

> Research: I tried to look up this problem about my stupid foot. It sounds

> like I may have a neurogenic joint of the ankle. Common in people with

diabetes

> and people with insensitivity to pain. Eek! Bottom-line here is that it

> triggers my BP spikes. I got BP of 261/188/92, 282/189/94, 265/184/110.

Those

> numbers are from pressing the sore spot on my foot or doing walking

movements with

> the ankle I suppose. No wonder my latest BP in my doctors office has been

> 250/130. My feet doing this to me is as bad as the butt think. For those

not use to

> me recall, my normal BP is 250/130 or 70/50 or less :-D. Caro

>

> Wish me luck.

>

> Caro

>

>

>