Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 I have a new HOH friend, she works in a neurology clinic and has muscular dystrophy too. I was telling her I had NF2 and she didnt know what it was and said shed ask a Dr. at her work about it. This was her reply to me. Scary how little drs know, yeah, its kids only disease, uh huhhhhhhh, he obviously not know nf1 from nf2, very scary considering we know more than many drs. Hi Cindy, I asked my Dr. that takes care of me about your thing today and he said it's mostly found in youth and followed by the pediatric neurologist and it is rare like you said, but he has heard of it. Quote Link to comment Share on other sites More sharing options...
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