Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 I'm tired of being FAT and HYPO! I'm with a TSH of 9.60 and feeling like I can't get out of my own way! I have to say though I don't miss being on PTU its so nice not to have PTU TONGUE I'm enjoying my little vacation here off of PTU I wish I could permanently not have to take that horrible stuff again but I know I'm suppose to go back on Tuesday but if I feel like this I'm waiting until Friday because hopefully by them my TSH will be down around 2.0 and that would be good and I would be balanced! There is no one to chat with tonight so I'm just whining over here cuz no one is on the MEDIBOARD I wonder if I should have my ENDO do a TSI test and see if I should go on thyroid hormone block and replace therapy what if PTU won't cut the cheeze by itself? Alyssa YAWNS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Hi, Considering your symptoms, you probably would be safe to stay off the meds until Friday. And then have your levels tested after 2 weeks of being on 100 mg in case this dose is also too high for you. If so, you could have it reduced or ask to be put on block and replace. It's good that your hypothyroidism was caught before it got much worse. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Thanks Elaine, This is what I will do! I'm going to stay off PTU until Friday then I might even call the doctor tommorow and fill her in on my decision that would be nice of me. If my levels test out high again I will ask for block and replace. I get my blood work done every 4 weeks so they do catch my hypo or hyper wichever way I happen to be but its so hard being on a roller coaster all the time. How long does it take to get stable its already been 8 months of this PTU thing I know they say 2 years but I want to be stable I do. I'm feeling a little better off the PTU now since last Friday Morning and no heart palpitations yet some but not severe and I am not hyper so thats good. Alyssa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Alyssa, If I remember correctly you have had a history of not lowering your dose when the doctor has told you to. This will certainly lengthen the time it takes to become stable. And becoming more and more hypo IS the expected out come. Please do call the doctor tomorrow and the two of you get on the same page, and now working together, you can put the past behind you, and learn from it. The doctor can not help you as long as you do as you please. I am not trying to be mean, but the new people here need to know that it is not going to be 8 months of a roller coaster ride for them. You have come a long way Alyssa, and we have seen how hard you have worked to learn about Graves' and also the way you were able to drop so many other drugs you were on in the beginning. We are all so happy to see how far you have come. Good Job ! -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Alyssa, If I remember correctly you have had a history of not lowering your dose when the doctor has told you to. This will certainly lengthen the time it takes to become stable. And becoming more and more hypo IS the expected out come. Please do call the doctor tomorrow and the two of you get on the same page, and now working together, you can put the past behind you, and learn from it. The doctor can not help you as long as you do as you please. I am not trying to be mean, but the new people here need to know that it is not going to be 8 months of a roller coaster ride for them. You have come a long way Alyssa, and we have seen how hard you have worked to learn about Graves' and also the way you were able to drop so many other drugs you were on in the beginning. We are all so happy to see how far you have come. Good Job ! -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Alyssa, If I remember correctly you have had a history of not lowering your dose when the doctor has told you to. This will certainly lengthen the time it takes to become stable. And becoming more and more hypo IS the expected out come. Please do call the doctor tomorrow and the two of you get on the same page, and now working together, you can put the past behind you, and learn from it. The doctor can not help you as long as you do as you please. I am not trying to be mean, but the new people here need to know that it is not going to be 8 months of a roller coaster ride for them. You have come a long way Alyssa, and we have seen how hard you have worked to learn about Graves' and also the way you were able to drop so many other drugs you were on in the beginning. We are all so happy to see how far you have come. Good Job ! -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 Pam, I do not have history of not listening to my doctor what was that ONE TIME!!!!!!!!!!!!!! Don't you tell me who is right and who is not and don't tell me that its going to take someone less time than me to get stable I am not taking my PTU until the witch puts me on BLOCK AND REPLACE that is why it has TAKEN ME 8 FRIGIN MONTHS TO GET STABLE NO ONE HAS GIVEN ME BLOCK AND REPLACE PAM WHAT ABOUT THAT OK SO I'M A BIT HYPER THESE DAYS BUT I AM WORKING MY EVER LOVING ASS OFF TO GET BETTER AND I DON'T NEED SOMEONE TELLING ME I DON'T LISTEN THEY DON'T LISTEN TO ALYSSA THE NEW PEOPLE HERE NEED TO KNOW THEY WILL GET THE FRIGIN RUN AROUND IF THE DAMN DOCTORS DON'T DO THEIR FUCKING JOBS THANKS FOR LETTING ME VENT ALYSSA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 Pam, I do not have history of not listening to my doctor what was that ONE TIME!!!!!!!!!!!!!! Don't you tell me who is right and who is not and don't tell me that its going to take someone less time than me to get stable I am not taking my PTU until the witch puts me on BLOCK AND REPLACE that is why it has TAKEN ME 8 FRIGIN MONTHS TO GET STABLE NO ONE HAS GIVEN ME BLOCK AND REPLACE PAM WHAT ABOUT THAT OK SO I'M A BIT HYPER THESE DAYS BUT I AM WORKING MY EVER LOVING ASS OFF TO GET BETTER AND I DON'T NEED SOMEONE TELLING ME I DON'T LISTEN THEY DON'T LISTEN TO ALYSSA THE NEW PEOPLE HERE NEED TO KNOW THEY WILL GET THE FRIGIN RUN AROUND IF THE DAMN DOCTORS DON'T DO THEIR FUCKING JOBS THANKS FOR LETTING ME VENT ALYSSA Quote Link to comment Share on other sites More sharing options...
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